Pam Bishop, PhD
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Pinned
Reposted by Pam Bishop, PhD
Resonant, painful essay about the way internalized ableism even more than Long Covid threatened this person’s marriage.
I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance.
Gift link: www.nytimes.com/2025/01/31/s...
I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance.
Gift link: www.nytimes.com/2025/01/31/s...
I Love You. Please Find Someone Else. (Gift Article)
“In sickness and in health” may sound romantic — until you’re sidelined with a chronic illness.
www.nytimes.com
January 31, 2025 at 6:11 PM
Resonant, painful essay about the way internalized ableism even more than Long Covid threatened this person’s marriage.
I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance.
Gift link: www.nytimes.com/2025/01/31/s...
I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance.
Gift link: www.nytimes.com/2025/01/31/s...
Reposted by Pam Bishop, PhD
Welcome immigrants from X interested in science to the friendlier skies of @bsky.app, as documented by a new @nature.com survey (but you already knew that 😉)
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
January 24, 2025 at 3:22 PM
Welcome immigrants from X interested in science to the friendlier skies of @bsky.app, as documented by a new @nature.com survey (but you already knew that 😉)
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
Reposted by Pam Bishop, PhD
A team in Exeter has developed a finger-prick test to classify long Covid into three types: weak antibody response, excess immune response, and unclear patterns.
Early results suggest it could guide tailored treatments, but larger trials are needed.
www.bbc.com/news/article...
Early results suggest it could guide tailored treatments, but larger trials are needed.
www.bbc.com/news/article...
Exeter firm excited over long Covid test breakthrough
The firm says for some people it can confirm the existence of long Covid and help treatment.
www.bbc.com
January 24, 2025 at 1:06 PM
A team in Exeter has developed a finger-prick test to classify long Covid into three types: weak antibody response, excess immune response, and unclear patterns.
Early results suggest it could guide tailored treatments, but larger trials are needed.
www.bbc.com/news/article...
Early results suggest it could guide tailored treatments, but larger trials are needed.
www.bbc.com/news/article...
Reposted by Pam Bishop, PhD
Please help spread the word 👇
@putrinolab.bsky.social @daltmann.bsky.social @sunny-rae1.bsky.social @sunsopeningband.bsky.social @binitakane.bsky.social @davidjoffe64.bsky.social @drannanz.bsky.social @johanvawe.bsky.social @pamelarbishop.bsky.social @oonaghcousins.bsky.social @cureid.bsky.social
@putrinolab.bsky.social @daltmann.bsky.social @sunny-rae1.bsky.social @sunsopeningband.bsky.social @binitakane.bsky.social @davidjoffe64.bsky.social @drannanz.bsky.social @johanvawe.bsky.social @pamelarbishop.bsky.social @oonaghcousins.bsky.social @cureid.bsky.social
‼️Important opportunity for #LongCovid patients & MDs‼️
Please share your experiences with medications and supplements tried for Long Covid in the FDA/CureID "Long Covid Treatment Survey" until Jan 31st.
Results may influence clinical trials!
Link: cure.ncats.io/pilot-overvi..., then click "share".
Please share your experiences with medications and supplements tried for Long Covid in the FDA/CureID "Long Covid Treatment Survey" until Jan 31st.
Results may influence clinical trials!
Link: cure.ncats.io/pilot-overvi..., then click "share".
January 18, 2025 at 11:28 PM
Reposted by Pam Bishop, PhD
Science Alert: 'Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals'
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals
Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS).
www.sciencealert.com
January 21, 2025 at 2:21 PM
Science Alert: 'Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals'
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
Reposted by Pam Bishop, PhD
The Sick Times: “Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels”
“The reality of Long COVID is also often erased or minimized”
thesicktimes.org/2025/01/14/i...
“The reality of Long COVID is also often erased or minimized”
thesicktimes.org/2025/01/14/i...
Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels - The Sick Times
Lymphopenia is a health condition in which people have low white blood cell count in their blood. Without these cells, the body is unable to defend itself effectively against pathogens. Lymphopenia is...
thesicktimes.org
January 14, 2025 at 6:49 PM
The Sick Times: “Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels”
“The reality of Long COVID is also often erased or minimized”
thesicktimes.org/2025/01/14/i...
“The reality of Long COVID is also often erased or minimized”
thesicktimes.org/2025/01/14/i...
Reposted by Pam Bishop, PhD
I just wrote a @C19LH_Advocacy letter: Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24)
Write one here:
actionnetwork.org/letters/urge...
Write one here:
actionnetwork.org/letters/urge...
Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24)
The Telehealth Modernization Act of 2024 offers a critical opportunity to secure life-saving healthcare access for millions of Americans, particularly those with Long COVID, infection-associated chron...
actionnetwork.org
December 9, 2024 at 3:42 PM
I just wrote a @C19LH_Advocacy letter: Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24)
Write one here:
actionnetwork.org/letters/urge...
Write one here:
actionnetwork.org/letters/urge...
Hearing music when there is no sound. But I also have trouble identifying sounds as what they are.
December 7, 2024 at 3:26 PM
Hearing music when there is no sound. But I also have trouble identifying sounds as what they are.
Today is my 4 year COVIDversary. I didn't dread it this yr as in previous yrs. I don't want to b sick but have accepted this is my life. I'm one of the unlucky ones whose health has been in steady decline since day 1. But each day w my family is a precious gift now. #LongCovid
December 7, 2024 at 3:25 PM
Today is my 4 year COVIDversary. I didn't dread it this yr as in previous yrs. I don't want to b sick but have accepted this is my life. I'm one of the unlucky ones whose health has been in steady decline since day 1. But each day w my family is a precious gift now. #LongCovid
Anyone else have musical auditory hallucinations w #LongCovid? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.
December 5, 2024 at 2:00 PM
Anyone else have musical auditory hallucinations w #LongCovid? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.
Reposted by Pam Bishop, PhD
Passing it on
I don't have the energy for this, so passing on info.
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
Adobe Acrobat
acrobat.adobe.com
December 4, 2024 at 1:17 PM
Passing it on
Hooray! I'm not on social media all that much in general these days due to massive fatigue, but I do check in from time to time.
December 3, 2024 at 9:05 PM
Hooray! I'm not on social media all that much in general these days due to massive fatigue, but I do check in from time to time.
I've sent message to my contact at the CDC to find out if they would be willing to have a virtual option for patient reps. Will post an update when I hear back.
December 3, 2024 at 3:55 PM
I've sent message to my contact at the CDC to find out if they would be willing to have a virtual option for patient reps. Will post an update when I hear back.
Here is the online form to apply: cmss.jotform.com/243085747246...
CMSS Long COVID Expert Panel Application
Please click the link to complete this form.
cmss.jotform.com
December 3, 2024 at 3:20 PM
Here is the online form to apply: cmss.jotform.com/243085747246...
I don't have the energy for this, so passing on info.
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
Adobe Acrobat
acrobat.adobe.com
December 3, 2024 at 3:19 PM
I don't have the energy for this, so passing on info.
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
Ty has joined the chat! @seekingboston.bsky.social
One year ago I was diagnosed with stage IV cancer. Nothing can prepare you for a Dr telling you that you have 2-8 years to live. I spit in cancer's face and still here a yr later still fighting. www.seekingbostonmarathon.com/2024/02/long... #cancer #LongCovid
Long Covid, Turbo Cancer, and Fast Car
An amateur runner's blog about qualifying for the Boston Marathon.
www.seekingbostonmarathon.com
November 26, 2024 at 5:01 PM
Ty has joined the chat! @seekingboston.bsky.social
THC makes my brain fog much more horrid. Barely functional as it is, but it does help with the pain. I can't manage that trade off with having my kids, though. I need to be present.
November 26, 2024 at 4:59 PM
THC makes my brain fog much more horrid. Barely functional as it is, but it does help with the pain. I can't manage that trade off with having my kids, though. I need to be present.
I would 💯 try this if I had medical professional who could monitor it. Which will likely never happen. Ugh.
November 26, 2024 at 4:57 PM
I would 💯 try this if I had medical professional who could monitor it. Which will likely never happen. Ugh.
Ah interesting!
November 26, 2024 at 4:51 PM
Ah interesting!
Interesting. I did metformin a year or two ago, but I don't think the dose was that high. It didn't seem to help my LC sxs and destroyed my stomach, so I stopped.
November 26, 2024 at 2:43 PM
Interesting. I did metformin a year or two ago, but I don't think the dose was that high. It didn't seem to help my LC sxs and destroyed my stomach, so I stopped.
Sorry you are suffering with it also. Thanks for the recs.
November 26, 2024 at 2:42 PM
Sorry you are suffering with it also. Thanks for the recs.
I actually have one, but just the ear clip. Maybe I'll look into the pads for it, thanks! Hadn't thought of that. Would probably help the neck pain at the very least.
November 26, 2024 at 2:42 PM
I actually have one, but just the ear clip. Maybe I'll look into the pads for it, thanks! Hadn't thought of that. Would probably help the neck pain at the very least.
Reposted by Pam Bishop, PhD
“It took a while for scientists to discover COVID was entering the brain. We know – the literature shows – from cases in the past that these viruses [H5Nx variants] like to hide in the brain,” Beckman said.
My short interview with The Front about #H5N1 is out
www.thefrontonline.com/article/2024...
My short interview with The Front about #H5N1 is out
www.thefrontonline.com/article/2024...
Whatcom County reports its first flock infected with Avian influenza
A teenager was hospitalized in critical condition on Nov. 9 in Vancouver, B.C. after contracting the first recorded human case of bird flu in Canada, according to Canadian health officials.
www.thefrontonline.com
November 25, 2024 at 6:11 PM
“It took a while for scientists to discover COVID was entering the brain. We know – the literature shows – from cases in the past that these viruses [H5Nx variants] like to hide in the brain,” Beckman said.
My short interview with The Front about #H5N1 is out
www.thefrontonline.com/article/2024...
My short interview with The Front about #H5N1 is out
www.thefrontonline.com/article/2024...
Thanks. I guess so should say what I've tried: menthol cream, lidocaine, heat, acupressure, ice, OTC pain meds, magnesium oil (topical), neck brace.
November 26, 2024 at 1:38 PM
Thanks. I guess so should say what I've tried: menthol cream, lidocaine, heat, acupressure, ice, OTC pain meds, magnesium oil (topical), neck brace.