Pam Bishop, PhD
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Pinned
Reposted by Pam Bishop, PhD
Resonant, painful essay about the way internalized ableism even more than Long Covid threatened this person’s marriage.
I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance.
Gift link: www.nytimes.com/2025/01/31/s...
I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance.
Gift link: www.nytimes.com/2025/01/31/s...
I Love You. Please Find Someone Else. (Gift Article)
“In sickness and in health” may sound romantic — until you’re sidelined with a chronic illness.
www.nytimes.com
January 31, 2025 at 6:11 PM
Resonant, painful essay about the way internalized ableism even more than Long Covid threatened this person’s marriage.
I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance.
Gift link: www.nytimes.com/2025/01/31/s...
I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance.
Gift link: www.nytimes.com/2025/01/31/s...
Reposted by Pam Bishop, PhD
Welcome immigrants from X interested in science to the friendlier skies of @bsky.app, as documented by a new @nature.com survey (but you already knew that 😉)
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
January 24, 2025 at 3:22 PM
Welcome immigrants from X interested in science to the friendlier skies of @bsky.app, as documented by a new @nature.com survey (but you already knew that 😉)
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
Reposted by Pam Bishop, PhD
A team in Exeter has developed a finger-prick test to classify long Covid into three types: weak antibody response, excess immune response, and unclear patterns.
Early results suggest it could guide tailored treatments, but larger trials are needed.
www.bbc.com/news/article...
Early results suggest it could guide tailored treatments, but larger trials are needed.
www.bbc.com/news/article...
Exeter firm excited over long Covid test breakthrough
The firm says for some people it can confirm the existence of long Covid and help treatment.
www.bbc.com
January 24, 2025 at 1:06 PM
A team in Exeter has developed a finger-prick test to classify long Covid into three types: weak antibody response, excess immune response, and unclear patterns.
Early results suggest it could guide tailored treatments, but larger trials are needed.
www.bbc.com/news/article...
Early results suggest it could guide tailored treatments, but larger trials are needed.
www.bbc.com/news/article...
Reposted by Pam Bishop, PhD
Please help spread the word 👇
@putrinolab.bsky.social @daltmann.bsky.social @sunny-rae1.bsky.social @sunsopeningband.bsky.social @binitakane.bsky.social @davidjoffe64.bsky.social @drannanz.bsky.social @johanvawe.bsky.social @pamelarbishop.bsky.social @oonaghcousins.bsky.social @cureid.bsky.social
@putrinolab.bsky.social @daltmann.bsky.social @sunny-rae1.bsky.social @sunsopeningband.bsky.social @binitakane.bsky.social @davidjoffe64.bsky.social @drannanz.bsky.social @johanvawe.bsky.social @pamelarbishop.bsky.social @oonaghcousins.bsky.social @cureid.bsky.social
‼️Important opportunity for #LongCovid patients & MDs‼️
Please share your experiences with medications and supplements tried for Long Covid in the FDA/CureID "Long Covid Treatment Survey" until Jan 31st.
Results may influence clinical trials!
Link: cure.ncats.io/pilot-overvi..., then click "share".
Please share your experiences with medications and supplements tried for Long Covid in the FDA/CureID "Long Covid Treatment Survey" until Jan 31st.
Results may influence clinical trials!
Link: cure.ncats.io/pilot-overvi..., then click "share".
January 18, 2025 at 11:28 PM
Reposted by Pam Bishop, PhD
Science Alert: 'Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals'
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals
Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS).
www.sciencealert.com
January 21, 2025 at 2:21 PM
Science Alert: 'Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals'
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
Reposted by Pam Bishop, PhD
The Sick Times: “Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels”
“The reality of Long COVID is also often erased or minimized”
thesicktimes.org/2025/01/14/i...
“The reality of Long COVID is also often erased or minimized”
thesicktimes.org/2025/01/14/i...
Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels - The Sick Times
Lymphopenia is a health condition in which people have low white blood cell count in their blood. Without these cells, the body is unable to defend itself effectively against pathogens. Lymphopenia is...
thesicktimes.org
January 14, 2025 at 6:49 PM
The Sick Times: “Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels”
“The reality of Long COVID is also often erased or minimized”
thesicktimes.org/2025/01/14/i...
“The reality of Long COVID is also often erased or minimized”
thesicktimes.org/2025/01/14/i...
Reposted by Pam Bishop, PhD
I just wrote a @C19LH_Advocacy letter: Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24)
Write one here:
actionnetwork.org/letters/urge...
Write one here:
actionnetwork.org/letters/urge...
Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24)
The Telehealth Modernization Act of 2024 offers a critical opportunity to secure life-saving healthcare access for millions of Americans, particularly those with Long COVID, infection-associated chron...
actionnetwork.org
December 9, 2024 at 3:42 PM
I just wrote a @C19LH_Advocacy letter: Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24)
Write one here:
actionnetwork.org/letters/urge...
Write one here:
actionnetwork.org/letters/urge...
Today is my 4 year COVIDversary. I didn't dread it this yr as in previous yrs. I don't want to b sick but have accepted this is my life. I'm one of the unlucky ones whose health has been in steady decline since day 1. But each day w my family is a precious gift now. #LongCovid
December 7, 2024 at 3:25 PM
Today is my 4 year COVIDversary. I didn't dread it this yr as in previous yrs. I don't want to b sick but have accepted this is my life. I'm one of the unlucky ones whose health has been in steady decline since day 1. But each day w my family is a precious gift now. #LongCovid
Anyone else have musical auditory hallucinations w #LongCovid? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.
December 5, 2024 at 2:00 PM
Anyone else have musical auditory hallucinations w #LongCovid? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.
Reposted by Pam Bishop, PhD
Passing it on
I don't have the energy for this, so passing on info.
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
Adobe Acrobat
acrobat.adobe.com
December 4, 2024 at 1:17 PM
Passing it on
I don't have the energy for this, so passing on info.
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
Adobe Acrobat
acrobat.adobe.com
December 3, 2024 at 3:19 PM
I don't have the energy for this, so passing on info.
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID.
acrobat.adobe.com/id/urn:aaid:...
Ty has joined the chat! @seekingboston.bsky.social
One year ago I was diagnosed with stage IV cancer. Nothing can prepare you for a Dr telling you that you have 2-8 years to live. I spit in cancer's face and still here a yr later still fighting. www.seekingbostonmarathon.com/2024/02/long... #cancer #LongCovid
Long Covid, Turbo Cancer, and Fast Car
An amateur runner's blog about qualifying for the Boston Marathon.
www.seekingbostonmarathon.com
November 26, 2024 at 5:01 PM
Ty has joined the chat! @seekingboston.bsky.social
Reposted by Pam Bishop, PhD
“It took a while for scientists to discover COVID was entering the brain. We know – the literature shows – from cases in the past that these viruses [H5Nx variants] like to hide in the brain,” Beckman said.
My short interview with The Front about #H5N1 is out
www.thefrontonline.com/article/2024...
My short interview with The Front about #H5N1 is out
www.thefrontonline.com/article/2024...
Whatcom County reports its first flock infected with Avian influenza
A teenager was hospitalized in critical condition on Nov. 9 in Vancouver, B.C. after contracting the first recorded human case of bird flu in Canada, according to Canadian health officials.
www.thefrontonline.com
November 25, 2024 at 6:11 PM
“It took a while for scientists to discover COVID was entering the brain. We know – the literature shows – from cases in the past that these viruses [H5Nx variants] like to hide in the brain,” Beckman said.
My short interview with The Front about #H5N1 is out
www.thefrontonline.com/article/2024...
My short interview with The Front about #H5N1 is out
www.thefrontonline.com/article/2024...
Tell me your most effective non-opioid ways to manage pain. Neck and spine pain specifically, but also other joint pain. It's just out of control lately. #LongCovid
November 26, 2024 at 1:33 PM
Tell me your most effective non-opioid ways to manage pain. Neck and spine pain specifically, but also other joint pain. It's just out of control lately. #LongCovid
Reposted by Pam Bishop, PhD
You may think that neurological symptoms in #LongCovid are for old people, but it is the opposite. Young adults (18–44 years) and middle-aged (45–64 years) with mild acute #COVID cases (non-hospitalized), represent 90% of the cases of #NeuroCovid. Read here: onlinelibrary.wiley.com/doi/10.1002/...
November 23, 2024 at 6:53 PM
You may think that neurological symptoms in #LongCovid are for old people, but it is the opposite. Young adults (18–44 years) and middle-aged (45–64 years) with mild acute #COVID cases (non-hospitalized), represent 90% of the cases of #NeuroCovid. Read here: onlinelibrary.wiley.com/doi/10.1002/...
Reposted by Pam Bishop, PhD
New research shows younger and middle-aged adults have worse long COVID symptoms than older adults
"On an average of 10 months after COVID-19 onset, younger (ages 18-44) and middle-aged (ages 45-64) adults had worse neurologic symptoms of long COVID than adults 65 and older."
#LongCOVID
"On an average of 10 months after COVID-19 onset, younger (ages 18-44) and middle-aged (ages 45-64) adults had worse neurologic symptoms of long COVID than adults 65 and older."
#LongCOVID
New research shows younger and middle-aged adults have worse long COVID symptoms than older adults
New study from Northwestern Medicine finds symptoms occurred regardless of mild or severe COVID-19 infection
news.nm.org
November 22, 2024 at 10:50 PM
New research shows younger and middle-aged adults have worse long COVID symptoms than older adults
"On an average of 10 months after COVID-19 onset, younger (ages 18-44) and middle-aged (ages 45-64) adults had worse neurologic symptoms of long COVID than adults 65 and older."
#LongCOVID
"On an average of 10 months after COVID-19 onset, younger (ages 18-44) and middle-aged (ages 45-64) adults had worse neurologic symptoms of long COVID than adults 65 and older."
#LongCOVID
Anyone with #EBV reactivation taking Acyclovir? I've been on it for two weeks and my knee joints are absolutely killing me. Just wondering if it's another weird #LongCovid phase or common side effect. TIA (Knee joint pain is one of my LC symptoms, but this is intense)
November 19, 2024 at 7:11 PM
Anyone with #EBV reactivation taking Acyclovir? I've been on it for two weeks and my knee joints are absolutely killing me. Just wondering if it's another weird #LongCovid phase or common side effect. TIA (Knee joint pain is one of my LC symptoms, but this is intense)
It's been two years now since I felt human after HELP apheresis. It only lasted two weeks, but it was glorious. Wish it was available & affordable to do weekly. It is the ONLY trt that has made me feel well in 4 yrs. 2 weeks in 4 years of being sick. #LongCOVID
November 18, 2024 at 8:56 PM
It's been two years now since I felt human after HELP apheresis. It only lasted two weeks, but it was glorious. Wish it was available & affordable to do weekly. It is the ONLY trt that has made me feel well in 4 yrs. 2 weeks in 4 years of being sick. #LongCOVID
Reposted by Pam Bishop, PhD
Welcome to my Bluesky feed - I mostly post about science, tech and advocacy related to solving infection-associated chronic illnesses, like ME/CFS, Long Covid and Chronic Lyme 💙🦋
Please give me a follow!
#MECFS #LongCovid
Please give me a follow!
#MECFS #LongCovid
November 14, 2024 at 1:00 PM
Welcome to my Bluesky feed - I mostly post about science, tech and advocacy related to solving infection-associated chronic illnesses, like ME/CFS, Long Covid and Chronic Lyme 💙🦋
Please give me a follow!
#MECFS #LongCovid
Please give me a follow!
#MECFS #LongCovid
Reposted by Pam Bishop, PhD
🧪 Here’s what’s happening this week in #LongCOVID research: bit.ly/3UVJt2j
💌 Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/
💌 Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/
November 15, 2024 at 4:55 PM
🧪 Here’s what’s happening this week in #LongCOVID research: bit.ly/3UVJt2j
💌 Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/
💌 Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/
Reposted by Pam Bishop, PhD
Study: “The COVID-19 group had a significantly higher rates of bacterial infections, influenza virus infections, and mycoplasma infections”
Just like Spanish Flu, Covid is increasing the risk of bacterial infections.
#MycoplasmaPneumonia #Pneumonia #LongCovid
www.thelancet.com/journals/lan...
Just like Spanish Flu, Covid is increasing the risk of bacterial infections.
#MycoplasmaPneumonia #Pneumonia #LongCovid
www.thelancet.com/journals/lan...
Long COVID facts and findings: a large-scale online survey in 74,075 Chinese participants
This survey provides valuable insights into long COVID situation among Chinese residents,
with 10%–30% (including repeated infection) reporting symptoms. Monitoring at-risk
individuals based on identi...
www.thelancet.com
November 17, 2024 at 9:30 AM
Study: “The COVID-19 group had a significantly higher rates of bacterial infections, influenza virus infections, and mycoplasma infections”
Just like Spanish Flu, Covid is increasing the risk of bacterial infections.
#MycoplasmaPneumonia #Pneumonia #LongCovid
www.thelancet.com/journals/lan...
Just like Spanish Flu, Covid is increasing the risk of bacterial infections.
#MycoplasmaPneumonia #Pneumonia #LongCovid
www.thelancet.com/journals/lan...
Reposted by Pam Bishop, PhD
Researchers exposed skeletal muscle to serum of ppl w/ #MECFS or #LongCovid
@48 hrs: contractile
profile severely compromised, shift to glycolysis
@ 96-144 hrs: high fatiguability, fragile tissue, fragmented mitochondria
Postexertional malaise is very real.
www.sciencedirect.com/science/arti...
@48 hrs: contractile
profile severely compromised, shift to glycolysis
@ 96-144 hrs: high fatiguability, fragile tissue, fragmented mitochondria
Postexertional malaise is very real.
www.sciencedirect.com/science/arti...
571P Muscular metabolic plasticity in 3D in vitro models against systemic stress factors in ME/CFS and long COVID-19
Myalgic encephalomyelities/ chronic fatigue syndrome and long COVID-19 are clinically challenging, multi-symptomatic conditions with multiple overlapp…
www.sciencedirect.com
November 16, 2024 at 3:44 PM
Researchers exposed skeletal muscle to serum of ppl w/ #MECFS or #LongCovid
@48 hrs: contractile
profile severely compromised, shift to glycolysis
@ 96-144 hrs: high fatiguability, fragile tissue, fragmented mitochondria
Postexertional malaise is very real.
www.sciencedirect.com/science/arti...
@48 hrs: contractile
profile severely compromised, shift to glycolysis
@ 96-144 hrs: high fatiguability, fragile tissue, fragmented mitochondria
Postexertional malaise is very real.
www.sciencedirect.com/science/arti...
Reposted by Pam Bishop, PhD
#MedSky, Pause & check out symptoms of #LongCovid from Nat’l Academy (#NASEM). LC is not rare, & clinicians of all kinds are caring for ppl w/ it, whether they know it or not. As the #MedEd saying goes: you may not have seen it, but it has seen you. 👀 #MedTwitter
www.nejm.org/doi/full/10....
www.nejm.org/doi/full/10....
Long Covid Defined | NEJM
Members of the National Academies of Sciences, Engineering, and Medicine describe the process and rationale for the development of the 2024 definition of persistent Covid-19 symptoms (long Covid).
www.nejm.org
November 16, 2024 at 4:12 PM
#MedSky, Pause & check out symptoms of #LongCovid from Nat’l Academy (#NASEM). LC is not rare, & clinicians of all kinds are caring for ppl w/ it, whether they know it or not. As the #MedEd saying goes: you may not have seen it, but it has seen you. 👀 #MedTwitter
www.nejm.org/doi/full/10....
www.nejm.org/doi/full/10....
Reposted by Pam Bishop, PhD
📺A Start-up Guide in less than 10 mins.
This is predominantly for people who haven't moved over (but is also has some handy tips)!
We have a Bluesky playlist on YouTube too with shorts & vids to help the community
#longcovid #mecfs #chronicillness #disability
youtu.be/aY8mYN7_ufs?...
This is predominantly for people who haven't moved over (but is also has some handy tips)!
We have a Bluesky playlist on YouTube too with shorts & vids to help the community
#longcovid #mecfs #chronicillness #disability
youtu.be/aY8mYN7_ufs?...
Set up Bluesky Guide - in less than 10 mins
YouTube video by Long Covid Advocacy
youtu.be
November 16, 2024 at 10:36 AM
📺A Start-up Guide in less than 10 mins.
This is predominantly for people who haven't moved over (but is also has some handy tips)!
We have a Bluesky playlist on YouTube too with shorts & vids to help the community
#longcovid #mecfs #chronicillness #disability
youtu.be/aY8mYN7_ufs?...
This is predominantly for people who haven't moved over (but is also has some handy tips)!
We have a Bluesky playlist on YouTube too with shorts & vids to help the community
#longcovid #mecfs #chronicillness #disability
youtu.be/aY8mYN7_ufs?...
Many long COVID patients adjust to slim recovery odds as world moves on
#LongCovid
www.reuters.com/business/hea...
#LongCovid
www.reuters.com/business/hea...
Many long COVID patients adjust to slim recovery odds as world moves on
There are certain phrases that Wachuka Gichohi finds difficult to hear after enduring four years of living with long COVID, marked by debilitating fatigue, pain, panic attacks and other symptoms so severe she feared she would die overnight.
www.reuters.com
November 17, 2024 at 2:17 PM
Many long COVID patients adjust to slim recovery odds as world moves on
#LongCovid
www.reuters.com/business/hea...
#LongCovid
www.reuters.com/business/hea...