Pam Bishop, PhD
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pamelarbishop.bsky.social
Pam Bishop, PhD
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Hearing music when there is no sound. But I also have trouble identifying sounds as what they are.
December 7, 2024 at 3:26 PM
Hooray! I'm not on social media all that much in general these days due to massive fatigue, but I do check in from time to time.
December 3, 2024 at 9:05 PM
Thank you!
December 3, 2024 at 3:57 PM
I've sent message to my contact at the CDC to find out if they would be willing to have a virtual option for patient reps. Will post an update when I hear back.
December 3, 2024 at 3:55 PM
Here is the online form to apply: cmss.jotform.com/243085747246...
CMSS Long COVID Expert Panel Application
Please click the link to complete this form.
cmss.jotform.com
December 3, 2024 at 3:20 PM
THC makes my brain fog much more horrid. Barely functional as it is, but it does help with the pain. I can't manage that trade off with having my kids, though. I need to be present.
November 26, 2024 at 4:59 PM
I would 💯 try this if I had medical professional who could monitor it. Which will likely never happen. Ugh.
November 26, 2024 at 4:57 PM
Ah interesting!
November 26, 2024 at 4:51 PM
Interesting. I did metformin a year or two ago, but I don't think the dose was that high. It didn't seem to help my LC sxs and destroyed my stomach, so I stopped.
November 26, 2024 at 2:43 PM
Sorry you are suffering with it also. Thanks for the recs.
November 26, 2024 at 2:42 PM
I actually have one, but just the ear clip. Maybe I'll look into the pads for it, thanks! Hadn't thought of that. Would probably help the neck pain at the very least.
November 26, 2024 at 2:42 PM
Thanks. I guess so should say what I've tried: menthol cream, lidocaine, heat, acupressure, ice, OTC pain meds, magnesium oil (topical), neck brace.
November 26, 2024 at 1:38 PM