Linda
@lindaoh.bsky.social
Interested in
history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic,
ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic,
ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
Reposted by Linda
"McGill University-led research has discovered that transplanting gut microbiota from women with fibromyalgia into mice induces pain, immune activation, metabolomic changes, and reduced skin innervation."
Read more: https://tinyurl.com/mv82c492
#MECFS #MyalgicEncephalomyelitis #Fibromyalgia #Fibro
Read more: https://tinyurl.com/mv82c492
#MECFS #MyalgicEncephalomyelitis #Fibromyalgia #Fibro
Mice develop fibromyalgia-like pain after receiving gut microbiota from human patients
McGill University-led research has discovered that transplanting gut microbiota from women with fibromyalgia into mice induces pain, immune activation, metabolomic changes, and reduced skin innervation.
tinyurl.com
April 30, 2025 at 10:26 AM
"McGill University-led research has discovered that transplanting gut microbiota from women with fibromyalgia into mice induces pain, immune activation, metabolomic changes, and reduced skin innervation."
Read more: https://tinyurl.com/mv82c492
#MECFS #MyalgicEncephalomyelitis #Fibromyalgia #Fibro
Read more: https://tinyurl.com/mv82c492
#MECFS #MyalgicEncephalomyelitis #Fibromyalgia #Fibro
Reposted by Linda
Me/cfs or fibro changes you so much that you wish you could find your new tribe but you have no energy to do so
April 30, 2025 at 6:43 PM
Me/cfs or fibro changes you so much that you wish you could find your new tribe but you have no energy to do so
Reposted by Linda
“I would love to say it’s the fatigue but honestly it’s not”: Into Adulthood with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
Screenshot is from the latest Science for ME weekly update
www.tandfonline.com/doi/abs/10.1...
#MEcfs #CFS
Screenshot is from the latest Science for ME weekly update
www.tandfonline.com/doi/abs/10.1...
#MEcfs #CFS
May 1, 2025 at 12:49 AM
“I would love to say it’s the fatigue but honestly it’s not”: Into Adulthood with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
Screenshot is from the latest Science for ME weekly update
www.tandfonline.com/doi/abs/10.1...
#MEcfs #CFS
Screenshot is from the latest Science for ME weekly update
www.tandfonline.com/doi/abs/10.1...
#MEcfs #CFS
Reposted by Linda
1) Good news: the European call on high-burden, under-researched conditions will likely be renewed in the 2025 work program of Horizon Europe.
#MECFS is prominently mentioned as an example.
#MECFS is prominently mentioned as an example.
April 28, 2025 at 2:10 PM
1) Good news: the European call on high-burden, under-researched conditions will likely be renewed in the 2025 work program of Horizon Europe.
#MECFS is prominently mentioned as an example.
#MECFS is prominently mentioned as an example.
I have to see my employers doctor tomorrow and the irony is I can't sleep. After 2 years of sleep, I was not expecting this problem. I'm terrified that I'll lose my job if I don't agree to go back in some capacity. #CFS #ME #LongCovid But if I don't go back soon, I'll die of poverty. Great options!
May 1, 2025 at 12:49 AM
I have to see my employers doctor tomorrow and the irony is I can't sleep. After 2 years of sleep, I was not expecting this problem. I'm terrified that I'll lose my job if I don't agree to go back in some capacity. #CFS #ME #LongCovid But if I don't go back soon, I'll die of poverty. Great options!
It's so nice to be back online again. That's definitely the last time I go to hospital for a day procedure when I'm severe. Just slept for 19 or 20 hours out of every 24 for months. Feeling a little better at last.
May 1, 2025 at 12:44 AM
It's so nice to be back online again. That's definitely the last time I go to hospital for a day procedure when I'm severe. Just slept for 19 or 20 hours out of every 24 for months. Feeling a little better at last.
Reposted by Linda
Reports of conditions resembling #ME/CFS began emerging in the early 20th century, describing sporadic cases of encephalomyelitis (likened to “abortive poliomyelitis”) with unclear origins following illnesses (7). Notably, one of the earliest diagnostic journals.physiology.org/doi/full/10....
Mitochondrial Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | Physiology | American Physiological Society
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating multisystem disorder of unclear etiology that affects many individuals worldwide. One of its hallmark symptoms is prolonged fatigue following exertion, a feature also observed in long COVID, suggesting an underlying dysfunction in energy production in both conditions. Here, mitochondrial dysfunction and its potential pathogenetic role in these disorders are reviewed.
journals.physiology.org
April 30, 2025 at 11:02 PM
Reports of conditions resembling #ME/CFS began emerging in the early 20th century, describing sporadic cases of encephalomyelitis (likened to “abortive poliomyelitis”) with unclear origins following illnesses (7). Notably, one of the earliest diagnostic journals.physiology.org/doi/full/10....
Reposted by Linda
Friends or family who go to a gym, consider helping your me/cfs or fibromyalgia loved one with physical tasks instead...
April 30, 2025 at 11:06 PM
Friends or family who go to a gym, consider helping your me/cfs or fibromyalgia loved one with physical tasks instead...
Reposted by Linda
Thanks for the messages about my starter pack. I've been in hospital for a few days so will reply when I've improved.
November 15, 2024 at 4:55 PM
Thanks for the messages about my starter pack. I've been in hospital for a few days so will reply when I've improved.
Reposted by Linda
November 14, 2024 at 4:06 AM
Reposted by Linda
November 12, 2024 at 9:24 PM
Thanks for the messages about my starter pack. I've been in hospital for a few days so will reply when I've improved.
November 15, 2024 at 4:55 PM
Thanks for the messages about my starter pack. I've been in hospital for a few days so will reply when I've improved.
Reposted by Linda
Here we go again... Any tips out there for a decent app for posting to multiple social media platforms in one go?
a black and white photo of a button that says reset .
ALT: a black and white photo of a button that says reset .
media.tenor.com
November 13, 2024 at 9:52 PM
Here we go again... Any tips out there for a decent app for posting to multiple social media platforms in one go?
Reposted by Linda
I just got these texts from a bed bound Long COVID friend who went through a traumatic experience at her SSDI hearing. It’s heartbreaking how dehumanizing this process is for people already struggling to survive. #SSDI #DisabilityRights #LongCOVID
November 14, 2024 at 4:19 PM
I just got these texts from a bed bound Long COVID friend who went through a traumatic experience at her SSDI hearing. It’s heartbreaking how dehumanizing this process is for people already struggling to survive. #SSDI #DisabilityRights #LongCOVID
Reposted by Linda
Bluesky for Beginners
Very Basic Tips on Getting Going —
by STEFFANI CAMERON
nomadnomore.substack.com/p/bluesky-fo...
Very Basic Tips on Getting Going —
by STEFFANI CAMERON
nomadnomore.substack.com/p/bluesky-fo...
November 11, 2024 at 2:14 AM
Bluesky for Beginners
Very Basic Tips on Getting Going —
by STEFFANI CAMERON
nomadnomore.substack.com/p/bluesky-fo...
Very Basic Tips on Getting Going —
by STEFFANI CAMERON
nomadnomore.substack.com/p/bluesky-fo...
Reposted by Linda
I know medical misogyny is a huge part of it but are there other reasons why the medical establishment have overwhelmingly ignored conditions like fibromyalgia and ME?
It’s bananas to me with how debilitating and widespread these conditions that research mostly ignores them. #NEISVoid
It’s bananas to me with how debilitating and widespread these conditions that research mostly ignores them. #NEISVoid
November 14, 2024 at 4:38 PM
I know medical misogyny is a huge part of it but are there other reasons why the medical establishment have overwhelmingly ignored conditions like fibromyalgia and ME?
It’s bananas to me with how debilitating and widespread these conditions that research mostly ignores them. #NEISVoid
It’s bananas to me with how debilitating and widespread these conditions that research mostly ignores them. #NEISVoid
Reposted by Linda
When you see someone riling up teachers and parents, blaming phones (or whatever) for children's academic and intellectual struggles, you can share this. I've updated it. I tried to be as thorough as possible:
www.okdoomer.io/covid-brain-...
www.okdoomer.io/covid-brain-...
Covid Causes Much More than Brain Fog
A mountain of evidence tells us that even mild Covid is bad for your brain.
www.okdoomer.io
May 12, 2024 at 8:57 PM
When you see someone riling up teachers and parents, blaming phones (or whatever) for children's academic and intellectual struggles, you can share this. I've updated it. I tried to be as thorough as possible:
www.okdoomer.io/covid-brain-...
www.okdoomer.io/covid-brain-...
Reposted by Linda
Firmly believe Ireland lost its way as a nation when we stopped wearing shawls that doubled as cosy blankets, and would like to propose a return to the wearable bed
November 14, 2024 at 10:05 AM
Firmly believe Ireland lost its way as a nation when we stopped wearing shawls that doubled as cosy blankets, and would like to propose a return to the wearable bed
Reposted by Linda
Nothing more than to one day find work I'm physically capable of doing.
It's so hard because unless I can do something consistently enough to make it into a job it's not really safe for me to try (both for my healths sake & the fact that disability can get revoked & I still won't be able to work)
It's so hard because unless I can do something consistently enough to make it into a job it's not really safe for me to try (both for my healths sake & the fact that disability can get revoked & I still won't be able to work)
November 14, 2024 at 6:34 AM
Nothing more than to one day find work I'm physically capable of doing.
It's so hard because unless I can do something consistently enough to make it into a job it's not really safe for me to try (both for my healths sake & the fact that disability can get revoked & I still won't be able to work)
It's so hard because unless I can do something consistently enough to make it into a job it's not really safe for me to try (both for my healths sake & the fact that disability can get revoked & I still won't be able to work)
Reposted by Linda
Instead of being given an ME diagnosis & warned about overexerting, I was told by my doctor to journal about my “childhood trauma.” When I asked, “what childhood trauma?” she double checked my chart & said “uhh, repressed trauma.”
#GreatestMEdicalScandal
www.samuelkronen.com/p/greatest-m...
#GreatestMEdicalScandal
www.samuelkronen.com/p/greatest-m...
November 14, 2024 at 6:42 AM
Instead of being given an ME diagnosis & warned about overexerting, I was told by my doctor to journal about my “childhood trauma.” When I asked, “what childhood trauma?” she double checked my chart & said “uhh, repressed trauma.”
#GreatestMEdicalScandal
www.samuelkronen.com/p/greatest-m...
#GreatestMEdicalScandal
www.samuelkronen.com/p/greatest-m...
Reposted by Linda
The #GreatestMEdicalScandal has spread the lie that this very physical disease is mental, so our doctors treat us accordingly. But just a year ago the Mayo Clinic and ME Action published this accessible paper to get docs up to speed.
#JohnVsJonVsME
www.mayoclinicproceedings.org/article/S002...
#JohnVsJonVsME
www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
October 31, 2024 at 3:59 AM
The #GreatestMEdicalScandal has spread the lie that this very physical disease is mental, so our doctors treat us accordingly. But just a year ago the Mayo Clinic and ME Action published this accessible paper to get docs up to speed.
#JohnVsJonVsME
www.mayoclinicproceedings.org/article/S002...
#JohnVsJonVsME
www.mayoclinicproceedings.org/article/S002...
Reposted by Linda
This was Austrian Airlines' final post over on the Twitter.
November 13, 2024 at 6:08 PM
This was Austrian Airlines' final post over on the Twitter.
Reposted by Linda
Today’s cartoon addresses the appointment where your doctor wants to dismiss you because your condition upsets their feelings …
November 13, 2024 at 9:54 AM
Today’s cartoon addresses the appointment where your doctor wants to dismiss you because your condition upsets their feelings …
Reposted by Linda
Focus on post-exertional malaise when approaching ME/CFS in specialist healthcare improves satisfaction and reduces deterioration: www.frontiersin.org/journals/neu... #PEM #MECFS #PostCOVME
Frontiers | Focus on post-exertional malaise when approaching ME/CFS in specialist healthcare improves satisfaction and reduces deterioration
BackgroundPost-exertional malaise (PEM) is considered a hallmark characteristic of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This may also...
www.frontiersin.org
November 11, 2024 at 6:03 PM
Focus on post-exertional malaise when approaching ME/CFS in specialist healthcare improves satisfaction and reduces deterioration: www.frontiersin.org/journals/neu... #PEM #MECFS #PostCOVME
Reposted by Linda
Somthing helpful for all newcomers 🫡
Tips and Tricks for Bluesky Search - Bluesky
Let’s dive into all the tips and tricks for advanced Bluesky search!
bsky.social
November 12, 2024 at 11:56 PM
Somthing helpful for all newcomers 🫡