Brian Shuell
@bshuell.bsky.social
Living with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Occasionally bipedal. Twitter/X refugee. #mecfs
Reposted by Brian Shuell
✅ ✅ Submitted support for Maryland's TEDCO Long COVID Innovation Grant and Loan Program (HB0027) this AM!
February 6, 2026 at 3:23 PM
✅ ✅ Submitted support for Maryland's TEDCO Long COVID Innovation Grant and Loan Program (HB0027) this AM!
Reposted by Brian Shuell
May still be time to sneak in a testimony for anyone wanting to support the effort to get dedicated research funds for Long Covid in Maryland. #LongCovid #MECFS
As of a few min ago i was still able to submit my LOS. if you need a template i can email you my letter!! I didnt have spoons to go in depth but alas
February 6, 2026 at 8:27 PM
May still be time to sneak in a testimony for anyone wanting to support the effort to get dedicated research funds for Long Covid in Maryland. #LongCovid #MECFS
CISA was DOGEd last year. AI will be taking corporate jobs that have security privileges. Seems like a perfect storm for cyber security nighmare.
Hackers Recruit Unhappy Insiders to Bypass Data Security
The souring economy has hackers on the hunt for disgruntled workers open to assisting with cyberattacks through authorized access into their employer’s digital systems.
www.wsj.com
February 3, 2026 at 12:56 AM
CISA was DOGEd last year. AI will be taking corporate jobs that have security privileges. Seems like a perfect storm for cyber security nighmare.
Reposted by Brian Shuell
If you are worried how data will be used against ICE protesters.
Or how smart homes reveal your secrets.
Or smart cars or medical devices will become evidence in court.
Listen to this conversation.
There are risks, rewards, and even solutions…
Or how smart homes reveal your secrets.
Or smart cars or medical devices will become evidence in court.
Listen to this conversation.
There are risks, rewards, and even solutions…
In his forthcoming book, Your Data Will Be Used Against You, George Washington University Law School professor Andrew Guthrie Ferguson explores how sensor-driven technologies, social media monitoring, and artificial intelligence can be weaponized against democratic values and personal freedoms.
How to Apply the 'Tyrant Test' to Technology
George Washington University Law School professor Andrew Guthrie Ferguson is the author of the forthcoming book Your Data Will Be Used Against You.
www.techpolicy.press
February 1, 2026 at 6:58 PM
If you are worried how data will be used against ICE protesters.
Or how smart homes reveal your secrets.
Or smart cars or medical devices will become evidence in court.
Listen to this conversation.
There are risks, rewards, and even solutions…
Or how smart homes reveal your secrets.
Or smart cars or medical devices will become evidence in court.
Listen to this conversation.
There are risks, rewards, and even solutions…
Reposted by Brian Shuell
Ok y'all. Whats going on is making me cry on the regular. It feels weird to be here at the GRAMMYs - but I want to honor the music of my ancestors by playing it- we gonna do some busking tomorrow, come say hello if you’re in town for the shindig.
January 31, 2026 at 11:47 PM
Ok y'all. Whats going on is making me cry on the regular. It feels weird to be here at the GRAMMYs - but I want to honor the music of my ancestors by playing it- we gonna do some busking tomorrow, come say hello if you’re in town for the shindig.
Reposted by Brian Shuell
NYT: 'Religious Leaders in Minnesota Say It’s Their Duty to Resist ICE'
'Progressive clergy members are in the spotlight — protesting, organizing and getting arrested. It’s a split screen to the Trump administration’s muscular, conservative Christianity'
www.nytimes.com/2026/02/01/b...
'Progressive clergy members are in the spotlight — protesting, organizing and getting arrested. It’s a split screen to the Trump administration’s muscular, conservative Christianity'
www.nytimes.com/2026/02/01/b...
Religious Leaders in Minnesota Say It’s Their Duty to Resist ICE
www.nytimes.com
February 1, 2026 at 7:47 PM
NYT: 'Religious Leaders in Minnesota Say It’s Their Duty to Resist ICE'
'Progressive clergy members are in the spotlight — protesting, organizing and getting arrested. It’s a split screen to the Trump administration’s muscular, conservative Christianity'
www.nytimes.com/2026/02/01/b...
'Progressive clergy members are in the spotlight — protesting, organizing and getting arrested. It’s a split screen to the Trump administration’s muscular, conservative Christianity'
www.nytimes.com/2026/02/01/b...
Reposted by Brian Shuell
'In the Twin Cities, ICE resistance goes mainstream'
“Doing nothing isn’t okay.”
“This movement that we’re building is about love and it’s about the powerful futures that we want to build each other."
minnesotareformer.com/2026/01/21/i...
“Doing nothing isn’t okay.”
“This movement that we’re building is about love and it’s about the powerful futures that we want to build each other."
minnesotareformer.com/2026/01/21/i...
In the Twin Cities, ICE resistance goes mainstream • Minnesota Reformer
The week before an ICE agent shot and killed Renee Good in south Minneapolis, her 67-year-old neighbor Terri Sullivan heard that a school in nearby Richfield that serves mostly Latino students needed ...
minnesotareformer.com
January 31, 2026 at 9:54 PM
'In the Twin Cities, ICE resistance goes mainstream'
“Doing nothing isn’t okay.”
“This movement that we’re building is about love and it’s about the powerful futures that we want to build each other."
minnesotareformer.com/2026/01/21/i...
“Doing nothing isn’t okay.”
“This movement that we’re building is about love and it’s about the powerful futures that we want to build each other."
minnesotareformer.com/2026/01/21/i...
Reposted by Brian Shuell
NPR: 'A red hat, inspired by a symbol of resistance to Nazi occupation, gains traction in Minnesota'
'Since making the pattern available for $5, the shop has raised nearly $400,000, Mashaal said Friday.'
www.npr.org/2026/01/31/n...
'Since making the pattern available for $5, the shop has raised nearly $400,000, Mashaal said Friday.'
www.npr.org/2026/01/31/n...
A red hat, inspired by a symbol of resistance to Nazi occupation, gains traction in Minnesota
A Minneapolis knitting shop has resurrected the design of a Norwegian cap worn to protest Nazi occupation. Its owner says the money raised from hat pattern sales will support the local immigrant commu...
www.npr.org
January 31, 2026 at 9:55 PM
NPR: 'A red hat, inspired by a symbol of resistance to Nazi occupation, gains traction in Minnesota'
'Since making the pattern available for $5, the shop has raised nearly $400,000, Mashaal said Friday.'
www.npr.org/2026/01/31/n...
'Since making the pattern available for $5, the shop has raised nearly $400,000, Mashaal said Friday.'
www.npr.org/2026/01/31/n...
Reposted by Brian Shuell
"MPR News has learned that the police chief in the small southern Minnesota city of St. Peter intervened Thursday afternoon to prevent federal immigration agents from arresting a local resident" who had been observing federal agents. www.mprnews.org/story/2026/0...
St. Peter police chief intervenes, prevents federal agents from arresting resident
The police chief of St. Peter intervened to prevent federal agents from taking a local resident who was observing ICE enforcement actions into custody. It is believed to the first time local police in...
www.mprnews.org
January 31, 2026 at 2:48 PM
"MPR News has learned that the police chief in the small southern Minnesota city of St. Peter intervened Thursday afternoon to prevent federal immigration agents from arresting a local resident" who had been observing federal agents. www.mprnews.org/story/2026/0...
A very good 17 minute documentary on POTS. If you are someone you love suffers from POTS this might be a helpful video to share with them and would be good to share with Healthcare providers.
POTS : An Invisible Illness | Full Movie
YouTube video by PCARES
youtube.com
December 6, 2025 at 6:06 PM
A very good 17 minute documentary on POTS. If you are someone you love suffers from POTS this might be a helpful video to share with them and would be good to share with Healthcare providers.
Is this one of the many facets of PEM that is found in people with #longcovid and #mecfs?
Your Brain Has a Built-In Isolation Mode - Neuroscience News
New research uncovers the exact immune-to-brain pathway that drives the loss of social motivation during sickness.
neurosciencenews.com
November 26, 2025 at 2:13 PM
Is this one of the many facets of PEM that is found in people with #longcovid and #mecfs?
I have long Covid. Don’t call my chronic disease a ‘journey’ www.statnews.com/2025/11/25/c... via @statnews.com
I have long Covid. Don’t call my chronic disease a ‘journey’
A “journey” is something you choose. No one chooses chronic illness.
www.statnews.com
November 26, 2025 at 10:39 AM
I have long Covid. Don’t call my chronic disease a ‘journey’ www.statnews.com/2025/11/25/c... via @statnews.com
Reposted by Brian Shuell
Some healthcare providers are still referring to #mecfs and #longcovid as psychological or "functional" despite considerable research to the contrary. Here, I review the latest findings and expert thinking, with potential for treatment: www.medscape.com/viewarticle/...
Research Into ME/CFS Pathology Points to Possible Treatments
With greater understanding of the complex pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome, researchers aim to target treatments.
www.medscape.com
November 8, 2025 at 4:33 PM
Some healthcare providers are still referring to #mecfs and #longcovid as psychological or "functional" despite considerable research to the contrary. Here, I review the latest findings and expert thinking, with potential for treatment: www.medscape.com/viewarticle/...
Reposted by Brian Shuell
"Graded exercise" is neither supported by evidence nor recommended for people with an illness defined by worsening with exercise. #mecfs #longcovid www.medscape.com/viewarticle/...
No Evidence Supports Using Graded Exercise for ME/CFS
Studies examining the effects of activity-based interventions haven’t required post-exertional malaise as a core criterion for the now-termed ‘myalgic encephalomyelitis/chronic fatigue syndrome.’
www.medscape.com
October 31, 2025 at 1:18 PM
"Graded exercise" is neither supported by evidence nor recommended for people with an illness defined by worsening with exercise. #mecfs #longcovid www.medscape.com/viewarticle/...
Reposted by Brian Shuell
🎥 Recordings Available: Community Symposium on the Molecular Basis of ME/CFS
👉 Access them here: ow.ly/Aw2G50XcIIO
#MECFS #pwME
👉 Access them here: ow.ly/Aw2G50XcIIO
#MECFS #pwME
October 21, 2025 at 9:55 PM
🎥 Recordings Available: Community Symposium on the Molecular Basis of ME/CFS
👉 Access them here: ow.ly/Aw2G50XcIIO
#MECFS #pwME
👉 Access them here: ow.ly/Aw2G50XcIIO
#MECFS #pwME
Reposted by Brian Shuell
Just published: Low-dose rapamycin alleviates clinical symptoms of fatigue and PEM in ME/CFS patients via improvement of autophagy: a pilot study. J Transl Med 23, 1148 (2025). doi.org/10.1186/s129...
Low-dose rapamycin alleviates clinical symptoms of fatigue and PEM in ME/CFS patients via improvement of autophagy: a pilot study - Journal of Translational Medicine
Background mTOR activation is associated with chronic inflammation in ME/CFS. Previous studies have shown that sustained mTOR activation may cause chronic muscle fatigue by inhibiting ATG13-mediated a...
doi.org
October 21, 2025 at 4:41 PM
Just published: Low-dose rapamycin alleviates clinical symptoms of fatigue and PEM in ME/CFS patients via improvement of autophagy: a pilot study. J Transl Med 23, 1148 (2025). doi.org/10.1186/s129...
Reposted by Brian Shuell
Sunday morning read: www.npr.org/2025/10/18/n...
A caregiver's survival guide: Advice from people who've been there
Family caregivers offer their wit, wisdom and survival tips for the hardest unpaid job in America.
www.npr.org
October 19, 2025 at 1:15 PM
Sunday morning read: www.npr.org/2025/10/18/n...
Reposted by Brian Shuell
Someone knowing their limits and stopping before a crash starts is an important part of pacing yourself. Very concerning conclusions.
Essentially they say they didn’t find physiological evidence people with ME/CFS fatigue faster than controls, but instead that pwME quit on tasks sooner, and they argue that’s what should be studied about ME—the will to make an effort, not the effects effort has on us.
2/
2/
October 18, 2025 at 8:54 PM
Someone knowing their limits and stopping before a crash starts is an important part of pacing yourself. Very concerning conclusions.
Just a reminder that this is coming up quickly, on 10/31. You can register to watch remotely or in person. Im very curious to see what they come up with.
IACC Long Covid Case Competition at UMich Ross school of business. Open to the public, in person or online. #Longcovid #mecfs #POTS
10/31/25: University of Michigan, '2025 IACC Long Covid Case Competition'
'A student-led initiative at the University of Michigan aiming to raise awareness and drive industry engagement around infection-associated chronic conditions (IACC) like Long Covid...'
www.bus.umich.edu/Conferences/...
'A student-led initiative at the University of Michigan aiming to raise awareness and drive industry engagement around infection-associated chronic conditions (IACC) like Long Covid...'
www.bus.umich.edu/Conferences/...
October 18, 2025 at 2:05 PM
Just a reminder that this is coming up quickly, on 10/31. You can register to watch remotely or in person. Im very curious to see what they come up with.
Great meme and yes, i will likely borrow it.
October 18, 2025 at 1:42 PM
Great meme and yes, i will likely borrow it.
This is a beautifully worded description of how people with ME have to navigate the world. I have yet to meet a person with ME who "prefers" living like this. In fact, we abhor it.
Of course everyone affected knows ME is the opposite—as you say, our loved ones have to beg us to do less to stay safe, when our instinct is always to do more (at our peril).
3/3
3/3
October 18, 2025 at 12:51 PM
This is a beautifully worded description of how people with ME have to navigate the world. I have yet to meet a person with ME who "prefers" living like this. In fact, we abhor it.
Reposted by Brian Shuell
#NEISvoid inside baseball—
The NIH team’s response to this (the Davenport et al comment) is awful.
It’s here: www.nature.com/articles/s41...
1/
The NIH team’s response to this (the Davenport et al comment) is awful.
It’s here: www.nature.com/articles/s41...
1/
"ME/CFS isn’t about doing less by choice.
It’s about the body’s inability to recover.
It’s time to shift the narrative from motivation to biology."
Thank you @sunsopeningband.bsky.social et al for writing this new manuscript:
www.nature.com/articles/s41...
It’s about the body’s inability to recover.
It’s time to shift the narrative from motivation to biology."
Thank you @sunsopeningband.bsky.social et al for writing this new manuscript:
www.nature.com/articles/s41...
Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome
Nature Communications - Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome
www.nature.com
October 18, 2025 at 3:55 AM
#NEISvoid inside baseball—
The NIH team’s response to this (the Davenport et al comment) is awful.
It’s here: www.nature.com/articles/s41...
1/
The NIH team’s response to this (the Davenport et al comment) is awful.
It’s here: www.nature.com/articles/s41...
1/
Reposted by Brian Shuell
Important thread for #pwME & #LongCovid (this affects y’all too). We need to dismantle/replace this dangerous & outdated paradigm once & for all, & we need NIH research funding to do that, but the people assigned to “help” us at NIH keep showing themselves to be enemies, not friends
#NEISvoid inside baseball—
The NIH team’s response to this (the Davenport et al comment) is awful.
It’s here: www.nature.com/articles/s41...
1/
The NIH team’s response to this (the Davenport et al comment) is awful.
It’s here: www.nature.com/articles/s41...
1/
"ME/CFS isn’t about doing less by choice.
It’s about the body’s inability to recover.
It’s time to shift the narrative from motivation to biology."
Thank you @sunsopeningband.bsky.social et al for writing this new manuscript:
www.nature.com/articles/s41...
It’s about the body’s inability to recover.
It’s time to shift the narrative from motivation to biology."
Thank you @sunsopeningband.bsky.social et al for writing this new manuscript:
www.nature.com/articles/s41...
October 18, 2025 at 4:37 AM
Important thread for #pwME & #LongCovid (this affects y’all too). We need to dismantle/replace this dangerous & outdated paradigm once & for all, & we need NIH research funding to do that, but the people assigned to “help” us at NIH keep showing themselves to be enemies, not friends
Reposted by Brian Shuell
Of course everyone affected knows ME is the opposite—as you say, our loved ones have to beg us to do less to stay safe, when our instinct is always to do more (at our peril).
3/3
3/3
October 18, 2025 at 5:33 AM
Of course everyone affected knows ME is the opposite—as you say, our loved ones have to beg us to do less to stay safe, when our instinct is always to do more (at our peril).
3/3
3/3