Jonah Weisz
@weiszguy.bsky.social
Lib Dem Disability Association committee/Long Covid and Psychedelic Research advocate/Drake Emergent disabled artist 2024 as Post Viral (https://www.instagram.com/p0st.viral)
Paid opportunity to shape the future of IPV trauma treatment!
August 26, 2025 at 4:42 PM
Paid opportunity to shape the future of IPV trauma treatment!
Reposted by Jonah Weisz
"With 4/6 of my #family now #disabled, our once-happy, fulfilled lives have changed forever. I have had to watch one brother’s promising academic career blighted by #LongCovid..Another brother ..is awaiting a #diagnosis.": buff.ly/lHHlwOn
by @weiszguy.bsky.social
#LongHaulers
by @weiszguy.bsky.social
#LongHaulers
ME in the family
A generational Sword of Damocles
buff.ly
August 18, 2025 at 11:31 AM
"With 4/6 of my #family now #disabled, our once-happy, fulfilled lives have changed forever. I have had to watch one brother’s promising academic career blighted by #LongCovid..Another brother ..is awaiting a #diagnosis.": buff.ly/lHHlwOn
by @weiszguy.bsky.social
#LongHaulers
by @weiszguy.bsky.social
#LongHaulers
A great article from Syed, well worth reading
What we see in Gaza is rekindling jihad. Netanyahu must be stopped
The brutal and protracted assault on civilians is exactly what Hamas planned to provoke with its October 7 attacks
Matthew Syed
www.thetimes.com/comment/colu...
The brutal and protracted assault on civilians is exactly what Hamas planned to provoke with its October 7 attacks
Matthew Syed
www.thetimes.com/comment/colu...
What we see in Gaza is rekindling jihad. Netanyahu must be stopped
The brutal and protracted assault on civilians is exactly what Hamas planned to provoke with its October 7 attacks
www.thetimes.com
July 21, 2025 at 4:05 PM
A great article from Syed, well worth reading
My second set has just come out. Thank you so much to all 30 of you who listened to the last one 🥰 you're making dreams come true (and having a great time whilst doing it)
www.mixcloud.com/Direction_ra...
www.mixcloud.com/Direction_ra...
Heaven Could Be Lately Fm With Post Viral 16.07.25
www.mixcloud.com
July 21, 2025 at 3:06 PM
My second set has just come out. Thank you so much to all 30 of you who listened to the last one 🥰 you're making dreams come true (and having a great time whilst doing it)
www.mixcloud.com/Direction_ra...
www.mixcloud.com/Direction_ra...
Reposted by Jonah Weisz
My understanding (I am not an expert on this subject) is that FII is extremely rare.
Yet allegations of FII are rife against families of children with disabilities. This issue particularly affects those with Long Covid and ME.
See this report ➡️ cerebra.org.uk/wp-content/u...
Yet allegations of FII are rife against families of children with disabilities. This issue particularly affects those with Long Covid and ME.
See this report ➡️ cerebra.org.uk/wp-content/u...
July 15, 2025 at 8:13 AM
My understanding (I am not an expert on this subject) is that FII is extremely rare.
Yet allegations of FII are rife against families of children with disabilities. This issue particularly affects those with Long Covid and ME.
See this report ➡️ cerebra.org.uk/wp-content/u...
Yet allegations of FII are rife against families of children with disabilities. This issue particularly affects those with Long Covid and ME.
See this report ➡️ cerebra.org.uk/wp-content/u...
If you’re here today, say hi 👋 :)
July 11, 2025 at 8:05 AM
If you’re here today, say hi 👋 :)
My first ever episode of Heaven Could Be Lately is out now! (live every Wednesday @ 3pm)
Vibe = Upbeat tracks to lock into work with 🪩 🎶
directionradio.org
Vibe = Upbeat tracks to lock into work with 🪩 🎶
directionradio.org
Direction Radio: Support and Empowerment Through Music
Discover Direction Radio, where we empower and support individuals with diverse needs through music and speech.
directionradio.org
July 9, 2025 at 2:18 PM
My first ever episode of Heaven Could Be Lately is out now! (live every Wednesday @ 3pm)
Vibe = Upbeat tracks to lock into work with 🪩 🎶
directionradio.org
Vibe = Upbeat tracks to lock into work with 🪩 🎶
directionradio.org
Thank you @helenmorganlibdem.bsky.social, @tessamunt.bsky.social, and @libdems.org.uk for standing with ME patients. After decades of systemic neglect, finally we are being taken seriously
June 30 + 8… still no Delivery Plan on ME.
Grateful to helenmorganlibdem.bsky.social, LibDem Health Spokesperson for writing to rthonwesstreeting.bsky.social asking that the Plan be published very shortly.
We want people with ME, and their carers, to know that the LibDems are on their side.
Grateful to helenmorganlibdem.bsky.social, LibDem Health Spokesperson for writing to rthonwesstreeting.bsky.social asking that the Plan be published very shortly.
We want people with ME, and their carers, to know that the LibDems are on their side.
July 8, 2025 at 5:37 PM
Thank you @helenmorganlibdem.bsky.social, @tessamunt.bsky.social, and @libdems.org.uk for standing with ME patients. After decades of systemic neglect, finally we are being taken seriously
Reposted by Jonah Weisz
"I tested positive again for #Covid19 ..I had nearly reached the top, and was about to be crushed as it tumbled back down. The red line on the lateral flow test might as well have been a jail sentence.": buff.ly/eeWEvaF
by @weiszguy.bsky.social
#NEisVoid #ChronicFatigue #pwME #MECFS
by @weiszguy.bsky.social
#NEisVoid #ChronicFatigue #pwME #MECFS
ME in the family
A generational Sword of Damocles
buff.ly
June 28, 2025 at 8:30 PM
"I tested positive again for #Covid19 ..I had nearly reached the top, and was about to be crushed as it tumbled back down. The red line on the lateral flow test might as well have been a jail sentence.": buff.ly/eeWEvaF
by @weiszguy.bsky.social
#NEisVoid #ChronicFatigue #pwME #MECFS
by @weiszguy.bsky.social
#NEisVoid #ChronicFatigue #pwME #MECFS
Reposted by Jonah Weisz
It'll take more than a hose down to clean up the water industry.
We will continue to campaign to replace Ofwat and clean up our waterways for good.
We will continue to campaign to replace Ofwat and clean up our waterways for good.
June 3, 2025 at 6:30 PM
It'll take more than a hose down to clean up the water industry.
We will continue to campaign to replace Ofwat and clean up our waterways for good.
We will continue to campaign to replace Ofwat and clean up our waterways for good.
Very moving installation. I really hope one day I am well enough to get to Glastonbury
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Art installation inspired by ME coming to Bristol and Glastonbury
The Mirrorbox artwork plays messages recorded by people with conditions such as ME and long Covid.
www.bbc.co.uk
June 3, 2025 at 6:37 PM
Very moving installation. I really hope one day I am well enough to get to Glastonbury
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Thank you @helenmorganlibdem.bsky.social for your support - it means so much to patients across the UK
Today is #WorldMEDay.
ME is a chronic, complex and often misunderstood condition that has a huge impact on patients.
People with ME have been let down for decades - it's time for that to end.
Our @libdems.org.uk letter to the Government 👇
ME is a chronic, complex and often misunderstood condition that has a huge impact on patients.
People with ME have been let down for decades - it's time for that to end.
Our @libdems.org.uk letter to the Government 👇
May 12, 2025 at 3:05 PM
Thank you @helenmorganlibdem.bsky.social for your support - it means so much to patients across the UK
Great to see so many organisations coming together to promote the ME cause!
Now more than ever, it feels like we are united to achieve progress
Now more than ever, it feels like we are united to achieve progress
👋Now is the time for action @rthonwesstreeting.bsky.social
Collaborative and united effort on #MEAwarenessDay from the community 🙌
#StrongerTogether 💙
Collaborative and united effort on #MEAwarenessDay from the community 🙌
#StrongerTogether 💙
On #WorldMEDay the UK ME community faces a twofold threat: the loss of critical welfare benefits, and a lack of meaningful treatments to pave their way back to work.
This must change.
We’re asking the government to back the new ME Delivery Plan with the resources it deserves.
This must change.
We’re asking the government to back the new ME Delivery Plan with the resources it deserves.
May 12, 2025 at 3:00 PM
Great to see so many organisations coming together to promote the ME cause!
Now more than ever, it feels like we are united to achieve progress
Now more than ever, it feels like we are united to achieve progress
This is a seismic day for ME and LC communities in the UK. Having the entire party's support behind our mission to ensure equitable funding for biomedical research dramatically shifts the overton window on this issue. Many, many thanks to @tessamunt.bsky.social and her team for their work on this
So delighted that all 72 LibDem MPs signed this letter to @rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay
May 8, 2025 at 4:41 PM
This is a seismic day for ME and LC communities in the UK. Having the entire party's support behind our mission to ensure equitable funding for biomedical research dramatically shifts the overton window on this issue. Many, many thanks to @tessamunt.bsky.social and her team for their work on this
So proud to have played my part in this! Thank you @helenmorganlibdem.bsky.social for your support
Delighted to see my LD colleague @helenmorganlibdem.bsky.social write in The Times that the forthcoming government Delivery Plan for ME must has ambition, clear targets and resources to make a meaningful difference. As a member of the APPG ME I’ll do what I can. #pwME have waited too long.
"Thousands of patients in dark rooms are looking to the government to prove it is on their side." Writes @helenmorganlibdem.bsky.social
With no further funding for the ME delivery plan, will it just be more tokenism & dismissal for #pwME?
To read more: archive.ph/a3iYo
With no further funding for the ME delivery plan, will it just be more tokenism & dismissal for #pwME?
To read more: archive.ph/a3iYo
February 19, 2025 at 5:28 PM
So proud to have played my part in this! Thank you @helenmorganlibdem.bsky.social for your support
Reposted by Jonah Weisz
It’s #ThereForME!
Our message: “Thank you for all the support this year – it means the world to us! We’re thinking of you this Christmas. We’ll keep fighting for you in 2025. Lots of love. Karen, Emma, Oonagh”
#PatientSafety #pwME #pwLC #ThereForME
Our message: “Thank you for all the support this year – it means the world to us! We’re thinking of you this Christmas. We’ll keep fighting for you in 2025. Lots of love. Karen, Emma, Oonagh”
#PatientSafety #pwME #pwLC #ThereForME
December 17, 2024 at 9:00 AM
It’s #ThereForME!
Our message: “Thank you for all the support this year – it means the world to us! We’re thinking of you this Christmas. We’ll keep fighting for you in 2025. Lots of love. Karen, Emma, Oonagh”
#PatientSafety #pwME #pwLC #ThereForME
Our message: “Thank you for all the support this year – it means the world to us! We’re thinking of you this Christmas. We’ll keep fighting for you in 2025. Lots of love. Karen, Emma, Oonagh”
#PatientSafety #pwME #pwLC #ThereForME
So proud of my party for its engagement with our campaign. Special thank you to @helenmorganlibdem.bsky.social for raising awareness of LC & ME in her capacity as DHSC Spokesperson
Dec 14: It’s Helen Morgan! @helenmorganlibdem.bsky.social is @libdems.org.uk Spokesperson for Health & Social Care and a supporter of #pwME in parliament.
“My Christmas wish for people with ME & Long Covid is that they get the recognition, road-mapping and resources they need for a better future.”
“My Christmas wish for people with ME & Long Covid is that they get the recognition, road-mapping and resources they need for a better future.”
December 14, 2024 at 10:46 AM
So proud of my party for its engagement with our campaign. Special thank you to @helenmorganlibdem.bsky.social for raising awareness of LC & ME in her capacity as DHSC Spokesperson
Reposted by Jonah Weisz
🚨 Yes, that’s a party leader on our #ThereForMe advent calendar! 💚
Big thanks to @adrianramsay.bsky.social @greenparty.org.uk for taking part - and for leading the way on #LongCovid policy
Big thanks to @adrianramsay.bsky.social @greenparty.org.uk for taking part - and for leading the way on #LongCovid policy
Dec 8: It’s Adrian Ramsay! @adrianramsay.bsky.social is Co-Leader of the @greenparty.org.uk, the first party to develop a Covid & Long Covid policy 🙌
His message: “My Christmas wish for people with ME and Long Covid is that they get the medical and financial support they need.”
#PatientSafety
His message: “My Christmas wish for people with ME and Long Covid is that they get the medical and financial support they need.”
#PatientSafety
December 8, 2024 at 9:08 AM
🚨 Yes, that’s a party leader on our #ThereForMe advent calendar! 💚
Big thanks to @adrianramsay.bsky.social @greenparty.org.uk for taking part - and for leading the way on #LongCovid policy
Big thanks to @adrianramsay.bsky.social @greenparty.org.uk for taking part - and for leading the way on #LongCovid policy
Reposted by Jonah Weisz
Dec 1: It's Dr William Weir, who has worked with and supported patients with ME for decades.
His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”
His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”
December 1, 2024 at 9:00 AM
Dec 1: It's Dr William Weir, who has worked with and supported patients with ME for decades.
His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”
His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”
Reposted by Jonah Weisz
Make sure you’re following #ThereForME on our new social media accounts!
You can find links here: linktr.ee/ThereForME
#ComingSoon
You can find links here: linktr.ee/ThereForME
#ComingSoon
November 26, 2024 at 9:00 AM
Make sure you’re following #ThereForME on our new social media accounts!
You can find links here: linktr.ee/ThereForME
#ComingSoon
You can find links here: linktr.ee/ThereForME
#ComingSoon