ALowerhouse
@vertigogrl.bsky.social
An unintentional collector of an alphabet soup of chronic illnesses #MECFS #EDS #MCAS #POTS. Pronouns: she/her
Reposted by ALowerhouse
FOLKS??
Rebeka needs a ride home. And a meal. On Thanksgiving!
ASAP
Rebeka needs a ride home. And a meal. On Thanksgiving!
ASAP
hey friends,
i'll be discharged in an hour or so.
i'm sorry for asking, but i need $48 to get a ride home please?
also, i don't have any food (hoping i can get something from the food bank tomorrow, but i'll need a meal for tonight)
please help if you can 🙏🏽
paypal.me/thelongestroad
i'll be discharged in an hour or so.
i'm sorry for asking, but i need $48 to get a ride home please?
also, i don't have any food (hoping i can get something from the food bank tomorrow, but i'll need a meal for tonight)
please help if you can 🙏🏽
paypal.me/thelongestroad
Pay RMM Creative using PayPal.Me
Go to paypal.me/thelongestroad and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.
paypal.me
November 27, 2025 at 4:55 PM
FOLKS??
Rebeka needs a ride home. And a meal. On Thanksgiving!
ASAP
Rebeka needs a ride home. And a meal. On Thanksgiving!
ASAP
Reposted by ALowerhouse
If you're interested, this tribute to Alice Wong was written by one of the people who knew her best
www.thenation.com/article/soci...
www.thenation.com/article/soci...
A Tribute to an Oracle, Alice Wong
Alice had the ability to look to the future and a world where laws and attitudes did not keep disabled people poor, pitied, and isolated.
www.thenation.com
November 26, 2025 at 11:18 PM
If you're interested, this tribute to Alice Wong was written by one of the people who knew her best
www.thenation.com/article/soci...
www.thenation.com/article/soci...
Reposted by ALowerhouse
Since this year of all years I think skipping the big stores and shopping small businesses is a great thing, I asked my discord community to give me links to their shops!
view.flodesk.com/emails/69274...
Please link to your own shops in the replies, and show us some pics of your favorite items!
view.flodesk.com/emails/69274...
Please link to your own shops in the replies, and show us some pics of your favorite items!
November 26, 2025 at 8:44 PM
Since this year of all years I think skipping the big stores and shopping small businesses is a great thing, I asked my discord community to give me links to their shops!
view.flodesk.com/emails/69274...
Please link to your own shops in the replies, and show us some pics of your favorite items!
view.flodesk.com/emails/69274...
Please link to your own shops in the replies, and show us some pics of your favorite items!
Reposted by ALowerhouse
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
substack.com
November 23, 2025 at 6:23 PM
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Reposted by ALowerhouse
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
November 7, 2025 at 5:00 PM
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Reposted by ALowerhouse
Clinical trials are under attack from the Trump administration.
@washingtonpost.com reported on a new JAMA paper that shows grants for 383 clinical trials were terminated from the end of February to August, affecting more than 74,000 trial participants.
@allysonchiu.bsky.social
@washingtonpost.com reported on a new JAMA paper that shows grants for 383 clinical trials were terminated from the end of February to August, affecting more than 74,000 trial participants.
@allysonchiu.bsky.social
November 21, 2025 at 7:13 PM
Clinical trials are under attack from the Trump administration.
@washingtonpost.com reported on a new JAMA paper that shows grants for 383 clinical trials were terminated from the end of February to August, affecting more than 74,000 trial participants.
@allysonchiu.bsky.social
@washingtonpost.com reported on a new JAMA paper that shows grants for 383 clinical trials were terminated from the end of February to August, affecting more than 74,000 trial participants.
@allysonchiu.bsky.social
Reposted by ALowerhouse
The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
“People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous,” said @exceedhergrasp1.bsky.social. She and other experts agree these trials are a waste of $$ and will not advance our biological understanding of Long COVID. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 3:56 PM
The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Reposted by ALowerhouse
friends, thank you so so much ❤️
i'm almost there- i literally just need $170 to be able to pay for radiation!!!!
please can 17 of you send $10 towards that?
also, can someone please help me to get home (i'm gonna need about $38 ASAP)
i didn't i'd get to go home today
PLEASE?
i'm almost there- i literally just need $170 to be able to pay for radiation!!!!
please can 17 of you send $10 towards that?
also, can someone please help me to get home (i'm gonna need about $38 ASAP)
i didn't i'd get to go home today
PLEASE?
please help if you can 🙏🏽
i had to use some of the money i received for radiation to pay the consultation fees of another specialist.
that means i need a little over 100% of the goal.
please help me reach it asap?radiation will help reduce the tumor & hopefully the doctors can do a resection again
i had to use some of the money i received for radiation to pay the consultation fees of another specialist.
that means i need a little over 100% of the goal.
please help me reach it asap?radiation will help reduce the tumor & hopefully the doctors can do a resection again
if you can spare anything,
i am behind on utilities & need medication.
i also need the last bit to be able to start radiation therapy. (see ko-fi goal)
ko-fi.com/rebekamash/g...
paypal.me/
i am behind on utilities & need medication.
i also need the last bit to be able to start radiation therapy. (see ko-fi goal)
ko-fi.com/rebekamash/g...
paypal.me/
November 16, 2025 at 9:15 PM
friends, thank you so so much ❤️
i'm almost there- i literally just need $170 to be able to pay for radiation!!!!
please can 17 of you send $10 towards that?
also, can someone please help me to get home (i'm gonna need about $38 ASAP)
i didn't i'd get to go home today
PLEASE?
i'm almost there- i literally just need $170 to be able to pay for radiation!!!!
please can 17 of you send $10 towards that?
also, can someone please help me to get home (i'm gonna need about $38 ASAP)
i didn't i'd get to go home today
PLEASE?
Reposted by ALowerhouse
I dare you to read @thellpsx.bsky.social and @pipagaopoetry.bsky.social on their sister crip for eSims for Gaza Alice Wong and not cry llps.substack.com/p/alice-wong...
Alice Wong was Crips for eSims for Gaza, and Everything to Us
by Jane Shi and Leah Lakshmi Piepzna-Samarasinha
llps.substack.com
November 17, 2025 at 7:35 PM
I dare you to read @thellpsx.bsky.social and @pipagaopoetry.bsky.social on their sister crip for eSims for Gaza Alice Wong and not cry llps.substack.com/p/alice-wong...
Reposted by ALowerhouse
“Storytelling is a powerful form of resistance. It leaves evidence that we were here in a society that devalues, excludes, and eliminates us.”
— alice wong
— alice wong
Here is an obituary for Alice Wong from The Sick Times, a publication aligned with disability rights and disability activism, if you are looking for an alternative to reading the nyt one: thesicktimes.org/2025/11/15/a...
Alice Wong, disability activist and luminary, dies at 51 - The Sick Times
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
thesicktimes.org
November 17, 2025 at 4:56 AM
“Storytelling is a powerful form of resistance. It leaves evidence that we were here in a society that devalues, excludes, and eliminates us.”
— alice wong
— alice wong
Reposted by ALowerhouse
Before she died, Alice Wong was kind enough to give me an interview for my book, Who Wants Normal?
Here’s her wonderful advice to disabled women (from the Guardian extract): www.theguardian.com/world/2025/a...
Here’s her wonderful advice to disabled women (from the Guardian extract): www.theguardian.com/world/2025/a...
November 17, 2025 at 12:06 PM
Before she died, Alice Wong was kind enough to give me an interview for my book, Who Wants Normal?
Here’s her wonderful advice to disabled women (from the Guardian extract): www.theguardian.com/world/2025/a...
Here’s her wonderful advice to disabled women (from the Guardian extract): www.theguardian.com/world/2025/a...
Reposted by ALowerhouse
Yesterday, i found out before my brother's funeral that my long time friend and mentor Alice Wong had passed. I wasn't able to say something sooner but her loss has really hit me.
@sfdirewolf.bsky.social was one of the first people in the disability community to befriend me and embrace me.
@sfdirewolf.bsky.social was one of the first people in the disability community to befriend me and embrace me.
November 17, 2025 at 7:29 AM
Yesterday, i found out before my brother's funeral that my long time friend and mentor Alice Wong had passed. I wasn't able to say something sooner but her loss has really hit me.
@sfdirewolf.bsky.social was one of the first people in the disability community to befriend me and embrace me.
@sfdirewolf.bsky.social was one of the first people in the disability community to befriend me and embrace me.
Reposted by ALowerhouse
The MacArthur "Genius" Award-winner was best known as the founder of the Disability Visibility Project, which highlights disabled people and disability culture through storytelling projects, social media and other channels. n.pr/47WGe0m
Disability rights activist and author Alice Wong dies at 51
The MacArthur "Genius" Award-winner was best known as the founder of the Disability Visibility Project, which highlights disabled people and disability culture through storytelling projects, social media and other channels.
n.pr
November 16, 2025 at 4:41 AM
The MacArthur "Genius" Award-winner was best known as the founder of the Disability Visibility Project, which highlights disabled people and disability culture through storytelling projects, social media and other channels. n.pr/47WGe0m
Reposted by ALowerhouse
Alice Wong helped me accept my disabilities.
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
Thank You Alice Wong
Alice Wong has passed away and the disability community has lost a leader. I lost a mentor and a friend. The Disabled Ginger wouldn't exist without Alice and everything she taught me.
www.disabledginger.com
November 16, 2025 at 12:16 AM
Alice Wong helped me accept my disabilities.
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
Reposted by ALowerhouse
"Alice supported and took many people with Long COVID under her wing — I was honored to call her a colleague and friend."
@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
Alice Wong, disability activist and luminary, dies at 51 - The Sick Times
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
thesicktimes.org
November 16, 2025 at 12:09 AM
"Alice supported and took many people with Long COVID under her wing — I was honored to call her a colleague and friend."
@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
Reposted by ALowerhouse
I did not expect to be nominated!! I would love it if you voted for me and others!! Lots of talented people!
I was nominated for:
🌸 Intersectionality Matters - Disabled BIPOC Creator of the Year
🌸 Chatty Gamer Award - Disabled Just Chatting Creator of the Year
docs.google.com/forms/d/e/1F...
I was nominated for:
🌸 Intersectionality Matters - Disabled BIPOC Creator of the Year
🌸 Chatty Gamer Award - Disabled Just Chatting Creator of the Year
docs.google.com/forms/d/e/1F...
Disabled Creators' Award Voting Form (Round Two)
Vote for your favorite creators for the Disabled Creators' Award. Please read each description carefully. There are 18 categories, and creators can be nominated for multiple awards. This form is due b...
docs.google.com
November 15, 2025 at 10:46 PM
I did not expect to be nominated!! I would love it if you voted for me and others!! Lots of talented people!
I was nominated for:
🌸 Intersectionality Matters - Disabled BIPOC Creator of the Year
🌸 Chatty Gamer Award - Disabled Just Chatting Creator of the Year
docs.google.com/forms/d/e/1F...
I was nominated for:
🌸 Intersectionality Matters - Disabled BIPOC Creator of the Year
🌸 Chatty Gamer Award - Disabled Just Chatting Creator of the Year
docs.google.com/forms/d/e/1F...
Reposted by ALowerhouse
My heart is so heavy … I lost a friend and mentor yesterday and the disability community lost a leader.
The incomparable Alice Wong passed away.
She inspired me to find my voice.
She encouraged me to take up space and embrace my disabled body.
The incomparable Alice Wong passed away.
She inspired me to find my voice.
She encouraged me to take up space and embrace my disabled body.
November 15, 2025 at 8:39 PM
My heart is so heavy … I lost a friend and mentor yesterday and the disability community lost a leader.
The incomparable Alice Wong passed away.
She inspired me to find my voice.
She encouraged me to take up space and embrace my disabled body.
The incomparable Alice Wong passed away.
She inspired me to find my voice.
She encouraged me to take up space and embrace my disabled body.
Reposted by ALowerhouse
For all you misinformed doctors, nurses, pharmacists, cancer technicians, politicians, bosses, teachers, caregivers, and average people on the street:
“There is no such thing as a COVID infection without consequence.”
— David Putrino, Long Covid researcher
“There is no such thing as a COVID infection without consequence.”
— David Putrino, Long Covid researcher
November 11, 2025 at 7:59 PM
For all you misinformed doctors, nurses, pharmacists, cancer technicians, politicians, bosses, teachers, caregivers, and average people on the street:
“There is no such thing as a COVID infection without consequence.”
— David Putrino, Long Covid researcher
“There is no such thing as a COVID infection without consequence.”
— David Putrino, Long Covid researcher
Reposted by ALowerhouse
UPDATE: We have added more entries to this list of Utah restaurants and other businesses offering free meals to those in need.
‘Your community cares’: Here’s a list of Utah restaurants offering free meals, and how to help
You can grab a bite if you’re struggling — or chip in if you can. Here's a list of what we've heard so far.
www.sltrib.com
November 7, 2025 at 12:17 AM
UPDATE: We have added more entries to this list of Utah restaurants and other businesses offering free meals to those in need.
Reposted by ALowerhouse
Alan had another job interview today. No matter what, we will not be insured come January without help to pay during the gap. That gap will likely kill me.
Donations are tax deductible and I can't withdraw funds w/out a receipt!
helphopelive.org/campaign/159...
Donations are tax deductible and I can't withdraw funds w/out a receipt!
helphopelive.org/campaign/159...
Donate to Midwest/West Catastrophic Illness Fund in honor of Karrie Higgins
Help Karrie Higgins's friends and family raise money for medical expenses associated with Ehlers-Danlos syndrome Catastrophic Illness. Donate today.
helphopelive.org
November 6, 2025 at 5:05 PM
Alan had another job interview today. No matter what, we will not be insured come January without help to pay during the gap. That gap will likely kill me.
Donations are tax deductible and I can't withdraw funds w/out a receipt!
helphopelive.org/campaign/159...
Donations are tax deductible and I can't withdraw funds w/out a receipt!
helphopelive.org/campaign/159...