Sarah Walter
@sarahmwalter.bsky.social
Working to empower research participants and co-create research that involves their perspectives and priorities. Alzheimer’s, Dementia, Down Syndrome with Alzheimer’s, Clinical trials, Advocacy. PhD Candidate, University of Edinburgh
Reposted by Sarah Walter
Current list of terminated grants by NIH. taggs.hhs.gov/Content/Data...
taggs.hhs.gov
March 20, 2025 at 2:02 PM
Current list of terminated grants by NIH. taggs.hhs.gov/Content/Data...
Reposted by Sarah Walter
Affected in any way by recent federal science cuts? Please fill out and share a new survey to track impacts.👇
I'm unaffiliated but can vouch this is being run by a group of alumni of the AAAS Science & Technology Policy Fellowship and USAID Science for Development Fellowship.
I'm unaffiliated but can vouch this is being run by a group of alumni of the AAAS Science & Technology Policy Fellowship and USAID Science for Development Fellowship.
🚨 America Needs Your Voice. 🚨
Federal science cuts hurt jobs, security & innovation. The IMPACTS Survey tracks the consequences—because policy affects us all.
📢 Impacted? Share your story.
🔗 Take the survey: bit.ly/SnTIMPACTS
📢 More at fedscienceimpacts.org
#IMPACTSSurvey #AmericaNeedsYourVoice
Federal science cuts hurt jobs, security & innovation. The IMPACTS Survey tracks the consequences—because policy affects us all.
📢 Impacted? Share your story.
🔗 Take the survey: bit.ly/SnTIMPACTS
📢 More at fedscienceimpacts.org
#IMPACTSSurvey #AmericaNeedsYourVoice
March 8, 2025 at 11:11 PM
Affected in any way by recent federal science cuts? Please fill out and share a new survey to track impacts.👇
I'm unaffiliated but can vouch this is being run by a group of alumni of the AAAS Science & Technology Policy Fellowship and USAID Science for Development Fellowship.
I'm unaffiliated but can vouch this is being run by a group of alumni of the AAAS Science & Technology Policy Fellowship and USAID Science for Development Fellowship.
Reposted by Sarah Walter
Francis Collins, the NIH Director for 12 years, led the Human Genome Project and other NIH efforts for 32 years, resigned today. Key words from his resignation letter
www.nytimes.com/2025/03/01/u...
www.nytimes.com/2025/03/01/u...
March 1, 2025 at 6:07 PM
Francis Collins, the NIH Director for 12 years, led the Human Genome Project and other NIH efforts for 32 years, resigned today. Key words from his resignation letter
www.nytimes.com/2025/03/01/u...
www.nytimes.com/2025/03/01/u...
This is critical research. Cancelled.
Just received notice that our grant was terminated. 5R24AG066599-03
TheRiseRegistry.org
TheRiseRegistry.org
March 1, 2025 at 5:17 PM
This is critical research. Cancelled.
Reposted by Sarah Walter
Please see a collective response from an esteemed group of leaders in the dementia field to the NYT article and book “doctored” by Charles Piller. www.nytimes.com/2025/01/24/o...
February 8, 2025 at 5:55 PM
Please see a collective response from an esteemed group of leaders in the dementia field to the NYT article and book “doctored” by Charles Piller. www.nytimes.com/2025/01/24/o...
A scientist and dear friend wrote this response to misleading accusations of fraud in #Alzheimers research. www.nytimes.com/2025/02/06/o...
Opinion | The Price of Fraud in Alzheimer’s Research
Readers worry that fraud may tarnish the field and slow the race for a cure. Also: Charles Blow’s farewell; treatment for addiction; the Gulf of America; Socrates and Donald Trump.
www.nytimes.com
February 7, 2025 at 8:04 PM
A scientist and dear friend wrote this response to misleading accusations of fraud in #Alzheimers research. www.nytimes.com/2025/02/06/o...
As a mom of a young teenage girl, I want to thank these researchers for this beautiful work! What a powerful example of good science and intentional co-production! #socialscience #inclusion #womenshealth
NEW PAPER: What do teenage girls think is causing the rise in depression & anxiety in their demographic?
I was struck, during the analysis, about how often 'pressure' came up. Girls are under so much pressure to look and behave in certain ways 😔
Well done to Ola on her thoughtful leadership here
I was struck, during the analysis, about how often 'pressure' came up. Girls are under so much pressure to look and behave in certain ways 😔
Well done to Ola on her thoughtful leadership here
We talk a lot about why adolescent girls report more low mood and anxiety, and why this might be getting worse.
But what do girls themselves think might explain this? As you might have guessed, we don’t really know.
So, we asked them: doi.org/10.1186/s129...
1/8
But what do girls themselves think might explain this? As you might have guessed, we don’t really know.
So, we asked them: doi.org/10.1186/s129...
1/8
February 6, 2025 at 5:08 PM
As a mom of a young teenage girl, I want to thank these researchers for this beautiful work! What a powerful example of good science and intentional co-production! #socialscience #inclusion #womenshealth
Reposted by Sarah Walter
Y’all, @alzdemjournals.bsky.social Behavior & Socioeconomics of Aging (BSEA) has reached an important milestone ALREADY! 3 peer-reviewed research papers: PUBLISHED! Read and share: alz-journals.onlinelibrary.wiley.com/journal/2997...
Alzheimer's & Dementia: Behavior & Socioeconomics of Aging
Click on the title to browse this journal
alz-journals.onlinelibrary.wiley.com
February 5, 2025 at 12:10 AM
Y’all, @alzdemjournals.bsky.social Behavior & Socioeconomics of Aging (BSEA) has reached an important milestone ALREADY! 3 peer-reviewed research papers: PUBLISHED! Read and share: alz-journals.onlinelibrary.wiley.com/journal/2997...
Reposted by Sarah Walter
⭐Webinar reminder! Join us tomorrow, February 5th.
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Sign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research.
📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration
#PatientEngagement #PxP
📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration
#PatientEngagement #PxP
February 4, 2025 at 4:26 PM
⭐Webinar reminder! Join us tomorrow, February 5th.
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Really looking forward to this webinar on partnering with #Vietnamese communities - sign up here! Alz.org/research-webinars #dementia #research #participatoryresearch
February 4, 2025 at 3:19 PM
Really looking forward to this webinar on partnering with #Vietnamese communities - sign up here! Alz.org/research-webinars #dementia #research #participatoryresearch
This is unacceptable, clear disparity in diagnosis which will impact these individuals and families in enormous ways!
A new study of 340k residents in Nueces County, Texas finds 85% of Mexican Americans with dementia are unaware of their diagnosis. 👀
Journal of General Internal Medicine: https://rdcu.be/d6BDm
Journal of General Internal Medicine: https://rdcu.be/d6BDm
January 17, 2025 at 7:49 PM
This is unacceptable, clear disparity in diagnosis which will impact these individuals and families in enormous ways!
Reposted by Sarah Walter
UW Madison seeks a visionary and transformative leader for Division Chief, Geriatrics and Gerontology. This is an exceptional opportunity to expand research on aging, guide the professional development of faculty and shape the next gen of medical professionals. To apply: lnkd.in/gWp23jDN
January 15, 2025 at 2:22 PM
UW Madison seeks a visionary and transformative leader for Division Chief, Geriatrics and Gerontology. This is an exceptional opportunity to expand research on aging, guide the professional development of faculty and shape the next gen of medical professionals. To apply: lnkd.in/gWp23jDN
Reposted by Sarah Walter
UK #PublicInvolvement #PPI news:
@nihr.bsky.social Centre for Engagement & Dissemination (formerly INVOLVE) to be hosted by @bmj.com group from 1/4. They will lead & coordinate 'Public Partnerships & Research Impact activities'.
www.nihr.ac.uk/news/nihr-in...
Will be watching with interest...
#PPIE
@nihr.bsky.social Centre for Engagement & Dissemination (formerly INVOLVE) to be hosted by @bmj.com group from 1/4. They will lead & coordinate 'Public Partnerships & Research Impact activities'.
www.nihr.ac.uk/news/nihr-in...
Will be watching with interest...
#PPIE
NIHR to increase commitment to Public Partnerships and Research Impact with new Coordinating Centre contract
www.nihr.ac.uk
January 17, 2025 at 10:24 AM
UK #PublicInvolvement #PPI news:
@nihr.bsky.social Centre for Engagement & Dissemination (formerly INVOLVE) to be hosted by @bmj.com group from 1/4. They will lead & coordinate 'Public Partnerships & Research Impact activities'.
www.nihr.ac.uk/news/nihr-in...
Will be watching with interest...
#PPIE
@nihr.bsky.social Centre for Engagement & Dissemination (formerly INVOLVE) to be hosted by @bmj.com group from 1/4. They will lead & coordinate 'Public Partnerships & Research Impact activities'.
www.nihr.ac.uk/news/nihr-in...
Will be watching with interest...
#PPIE
Reposted by Sarah Walter
The evidence base for the significance of patient narratives *as an intervention* continues to grow. This 2024 US paper shows that sharing patient stories widely with staff can improve the experiences of future patients.
journals.lww.com/hcmrjournal/...
journals.lww.com/hcmrjournal/...
January 16, 2025 at 1:50 PM
Reposted by Sarah Walter
When speaking to (or about) someone living with a #mentalhealth condition, it’s best to use person-first language that focuses on the individual, not the illness.
You can find a full list and a FREE DOWNLOAD wellbeings.org/LanguageGuide
You can find a full list and a FREE DOWNLOAD wellbeings.org/LanguageGuide
January 8, 2025 at 7:36 PM
When speaking to (or about) someone living with a #mentalhealth condition, it’s best to use person-first language that focuses on the individual, not the illness.
You can find a full list and a FREE DOWNLOAD wellbeings.org/LanguageGuide
You can find a full list and a FREE DOWNLOAD wellbeings.org/LanguageGuide
Reposted by Sarah Walter
All Los Angeles Public Library locations are providing free N95 masks. Libraries are essential!
January 14, 2025 at 2:57 AM
All Los Angeles Public Library locations are providing free N95 masks. Libraries are essential!
So wonderful to have the evidence that both researchers and community members benefit when we partner! Important learning —> community members value quality of relationship and a focus on #prevention #dementia #ppi researchinvolvement.biomedcentral.com/articles/10....
Engaging older adults in the process of aging research: a multimethod study evaluating the experience and efficacy of a citizen advisory group for a dementia risk reduction program - Research Involvem...
Background Collaborative research with end-users is an effective way to generate meaningful research applications and support greater impact on practice and knowledge exchange. To address these needs,...
researchinvolvement.biomedcentral.com
January 5, 2025 at 7:21 PM
So wonderful to have the evidence that both researchers and community members benefit when we partner! Important learning —> community members value quality of relationship and a focus on #prevention #dementia #ppi researchinvolvement.biomedcentral.com/articles/10....
Reposted by Sarah Walter
Happy new year #PublicInvolvement people 🎊
This starter pack is growing growing fast & almost at capacity. So if you work in health & care research #PPI &/or #Coproduction & would like to be added let me know 👋.
If you're on it already take another look 👀, as there may well be new people to follow
This starter pack is growing growing fast & almost at capacity. So if you work in health & care research #PPI &/or #Coproduction & would like to be added let me know 👋.
If you're on it already take another look 👀, as there may well be new people to follow
#PublicInvolvement (#PPI #PPIE), #Coproduction and #ParticipatoryResearch in health and care research starter pack: go.bsky.app/PWEAnFR
January 4, 2025 at 12:20 PM
Happy new year #PublicInvolvement people 🎊
This starter pack is growing growing fast & almost at capacity. So if you work in health & care research #PPI &/or #Coproduction & would like to be added let me know 👋.
If you're on it already take another look 👀, as there may well be new people to follow
This starter pack is growing growing fast & almost at capacity. So if you work in health & care research #PPI &/or #Coproduction & would like to be added let me know 👋.
If you're on it already take another look 👀, as there may well be new people to follow
Reposted by Sarah Walter
TIDE (Together In Dementia Everyday) has been awarded a grant by the Dementia Trust to begin some peer support groups for carers of people with young onset dementia (YOD) in conjunction with the Alzheimer's Society
(@alzheimerssoc.bsky.social).
Read More: buff.ly/3ZZa8gl
(@alzheimerssoc.bsky.social).
Read More: buff.ly/3ZZa8gl
January 1, 2025 at 8:37 AM
TIDE (Together In Dementia Everyday) has been awarded a grant by the Dementia Trust to begin some peer support groups for carers of people with young onset dementia (YOD) in conjunction with the Alzheimer's Society
(@alzheimerssoc.bsky.social).
Read More: buff.ly/3ZZa8gl
(@alzheimerssoc.bsky.social).
Read More: buff.ly/3ZZa8gl
Reposted by Sarah Walter
31 December 1995. Still the perfect goodbye.
December 31, 2024 at 12:21 PM
31 December 1995. Still the perfect goodbye.
Reposted by Sarah Walter
Critical findings from my man @bryandjames.bsky.social at Rush Alzheimer's Disease Research Center. Social activities may delay dementia onset by 5 years. That delay could result in $500,000 savings in healthcare costs. #ENDALZ #Alzheimer's
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
Late‐life social activity and subsequent risk of dementia and mild cognitive impairment
INTRODUCTION
Social activity is associated with better cognitive health in old age. To better translate epidemiological research for public health communication, we estimated relations of levels of .....
alz-journals.onlinelibrary.wiley.com
December 30, 2024 at 8:31 PM
Critical findings from my man @bryandjames.bsky.social at Rush Alzheimer's Disease Research Center. Social activities may delay dementia onset by 5 years. That delay could result in $500,000 savings in healthcare costs. #ENDALZ #Alzheimer's
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
Fantastic paper- showing effectiveness of engaging with older adults to disseminate science!! Let’s go!!
Collaborative research with end-users is practical, effective, and more efficient than hypothesizing about what end-users want, need, and will use. Most important, collaboration is ethically superior to treating people as subjects rather than as partners.
#Alzheimers #dementia #science
#Alzheimers #dementia #science
Engaging older adults in the process of aging research: a multimethod study evaluating the experience and efficacy of a citizen advisory group for a dementia risk reduction program - Research Involvem...
Background Collaborative research with end-users is an effective way to generate meaningful research applications and support greater impact on practice and knowledge exchange. To address these needs,...
researchinvolvement.biomedcentral.com
December 28, 2024 at 2:16 AM
Fantastic paper- showing effectiveness of engaging with older adults to disseminate science!! Let’s go!!
Reposted by Sarah Walter
🎅📡 Track Santa this Christmas!
The North American Aerospace Defense Command (NORAD)'s Santa Tracker uses radar, satellites & jets to monitor Santa's flight around the globe
A fun way to explore tech & science this Christmas!
Track Santa here: www.noradsanta.org
#Christmas #Santa #SciComm 🧪
The North American Aerospace Defense Command (NORAD)'s Santa Tracker uses radar, satellites & jets to monitor Santa's flight around the globe
A fun way to explore tech & science this Christmas!
Track Santa here: www.noradsanta.org
#Christmas #Santa #SciComm 🧪
Official NORAD Tracks Santa
www.noradsanta.org
December 24, 2024 at 1:46 PM
🎅📡 Track Santa this Christmas!
The North American Aerospace Defense Command (NORAD)'s Santa Tracker uses radar, satellites & jets to monitor Santa's flight around the globe
A fun way to explore tech & science this Christmas!
Track Santa here: www.noradsanta.org
#Christmas #Santa #SciComm 🧪
The North American Aerospace Defense Command (NORAD)'s Santa Tracker uses radar, satellites & jets to monitor Santa's flight around the globe
A fun way to explore tech & science this Christmas!
Track Santa here: www.noradsanta.org
#Christmas #Santa #SciComm 🧪
Reposted by Sarah Walter
Great to hear of new discoveries and I hope the exhibition bolsters conservation efforts 🧪🌍
Blob-headed fish and amphibious mouse among 27 new species found in ‘thrilling’ Peru expedition
Scientists surprised to find so many animals unknown to science in Alto Mayo, a well-populated region
www.theguardian.com
December 20, 2024 at 9:45 AM
Great to hear of new discoveries and I hope the exhibition bolsters conservation efforts 🧪🌍
#researchadvent for today - excited to be part of the team planning #publicengagement with www.Aptwebstudy.org anyone over 50 is welcome to join our online Webstudy #prevention #alzheimers #endalz
December 16, 2024 at 4:47 PM
#researchadvent for today - excited to be part of the team planning #publicengagement with www.Aptwebstudy.org anyone over 50 is welcome to join our online Webstudy #prevention #alzheimers #endalz