Sarah Walter
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sarahmwalter.bsky.social
Sarah Walter
@sarahmwalter.bsky.social
Working to empower research participants and co-create research that involves their perspectives and priorities. Alzheimer’s, Dementia, Down Syndrome with Alzheimer’s, Clinical trials, Advocacy. PhD Candidate, University of Edinburgh
Really looking forward to this webinar on partnering with #Vietnamese communities - sign up here! Alz.org/research-webinars #dementia #research #participatoryresearch
February 4, 2025 at 3:19 PM
#researchadvent for today - excited to be part of the team planning #publicengagement with www.Aptwebstudy.org anyone over 50 is welcome to join our online Webstudy #prevention #alzheimers #endalz
December 16, 2024 at 4:47 PM
In three years I’ll look back and think .. how blissfully happy I am working hard and loving my sarcastic brilliant kids.
December 16, 2024 at 1:03 AM
I have so much appreciation for the people with lived experience of dementia that have been part of my co-design team. They keep me focused on what really matters, and (bonus) they give me so much grace, support and love! #gratitude #endalz #researchadvent
December 12, 2024 at 6:45 PM
Today’ #researchadvent - I’m excited about my PHD project! ethics submitted today!! Topic is research ambassadors for dementia research. #researchadvent #uofedinburgh #pgrstudent
December 12, 2024 at 12:00 AM
These self-advocates and parents inspire me as a researcher. All day and every day. Thank you for your partnership and most of all your friendship!! #downsyndrome #researchpartners #endalz
November 18, 2024 at 8:35 PM
“In order to improve equity, you have to partner with the community.” Lived experience of Sam from San Antonio, diagnosed at age 53. Thank you for sharing your experience. We can and must improve diagnosis access! #endalz #healthequity #participantsfirst
November 18, 2024 at 8:31 PM
At the NDSS adult summit and the 4th take away is to take part in research! #endalz #healthequity #downsyndrome
November 16, 2024 at 8:00 PM
Dr Mike Rafii from our group at USC ATRI calls for more research and care access for the thousands of older individuals with Down Syndrome living with #Alzheimer’s disease #researchaccess #healthequity #downsyndrome
November 16, 2024 at 12:02 AM
At NDSS adult meeting and Getting fired up about the gross disparities in access to research and medical treatments for people with Down syndrome- Researchers!! We have a lot of work to do! #downsyndrome #ndss #healthequity
November 15, 2024 at 10:09 PM
The National Down syndrome conference adult summit kicked off with an inspiring first day - we (researchers) have so much to learn from self advocates! @elizabethhead.bsky.social #endalz #downsyndrome
November 15, 2024 at 3:04 PM