Lightnews — Scholar-powered news

Patients leading the way: research from within

December 2, 2025 at 1:00 AM

PxP (For Patients, By Patients)

@pxphub.bsky.social

How are patients are changing the research system from within?
www.youtube.com/watch?v=Wf5v...

At the cutting edge: innovations in patient engagement

December 2, 2025 at 12:31 AM

PxP (For Patients, By Patients)

@pxphub.bsky.social

🌎How are research teams engaging patients as partners in different parts of the world?

☑️Check out case studies from Brazil and Australia in this session recording from the #PxP25 conference in September: www.youtube.com/watch?v=LBW8...

Stronger together: building capacity on research teams

December 2, 2025 at 12:07 AM

PxP (For Patients, By Patients)

@pxphub.bsky.social

Learn more about evidence-based advocacy and using justice-informed, trauma-informed approaches to patient engagement in health research.

🎥Check out this webinar recording from the #PxP25 conference: www.youtube.com/watch?v=-xoH...

Owning your lived experience: patient partner as part of your identity

December 1, 2025 at 11:38 PM

PxP (For Patients, By Patients)

@pxphub.bsky.social

💭How do you navigate owning your lived experience as one aspect of your identity?

www.youtube.com/watch?v=F39U...

PxP 2025 artworks created by visual alchemist Candace Ramjohn during the annual conference, including impactful quotes...

December 1, 2025 at 11:11 PM

PxP (For Patients, By Patients)

@pxphub.bsky.social

At #PxP25, we hosted three unique sessions that weren’t recorded for our YouTube channel to create a safe space for open dialogue. Check out the anonymized illustrations from these sessions here, along with other artwork from this year’s conference:
pxphub.org/pxp-2025-art...

PxP 2025 Artworks - PxP

Laying the groundwork: setting up for success in patient partnership

December 1, 2025 at 10:55 PM

PxP (For Patients, By Patients)

@pxphub.bsky.social

How can you lay the groundwork for successful patient partnership?

#PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role.

🎥 Watch back: www.youtube.com/watch?v=EnJ6...

Journeys of impact: pathways of patient partners

November 18, 2025 at 12:29 AM

PxP (For Patients, By Patients)

@pxphub.bsky.social

Do you feel like an "accidental advocate"? During #PxP25, speakers and attendees spoke about how their personal health journeys led them to advocacy and research in ways they had never imagined.

🎥Check out this session recording to learn about pathways of patient partners: youtu.be/2Rht0OAVSR8

Global voices, local impact: Patient Engagement in research around the world

youtu.be

November 3, 2025 at 10:09 PM

PxP (For Patients, By Patients)

@pxphub.bsky.social

What are some unique challenges and opportunities for patient engagement in research in different parts of the world?

👀Watch back this session from day 1 of #PxP25
youtu.be/xJwAKSoHGNs

#PPI #PatientEngagement #ConsumerInvolvement

youtu.be

October 29, 2025 at 5:43 PM

PxP (For Patients, By Patients)

@pxphub.bsky.social

Looking for a case study on co-design? PxP Australia featured an insightful presentation by Joan Carlini and Letisha Living, facilitated by Janelle Bowden.

Their #ConsumerInvolvement project used Lego!

Intrigued?
Watch the session back here: www.youtube.com/watch?si=UQV...

PxP Australia 2025

Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).

October 22, 2025 at 5:54 PM

Reposted by PxP (For Patients, By Patients)

Anntics

@anntics.bsky.social

Having a great international chat with patients and researchers at #PxP25. Bold, daring, brave and powerful voices in health research

PxP (For Patients, By Patients) @pxphub.bsky.social · Sep 12

At the cutting edge: innovations in patient engagement

The first sessions of #PxP25 day 3 is underway!

Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/

#PatientEngagement #ConsumerEngagement #ForPatientsByPatients

Event - PxP

Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).

September 12, 2025 at 3:51 AM

PxP (For Patients, By Patients)

@pxphub.bsky.social

At the cutting edge: innovations in patient engagement

The first sessions of #PxP25 day 3 is underway!

Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/

#PatientEngagement #ConsumerEngagement #ForPatientsByPatients

Event - PxP

Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).

September 12, 2025 at 12:21 AM

Reposted by PxP (For Patients, By Patients)

Brett Scholz

@wingspan.bsky.social

I haven't managed to catch up with Days 1 and 2 of #PXP25 just yet...but it sounds like I'll need to go through some interesting conversations. This quote from Michelle particularly reminds me of some of our earlier work on pushing back on institutional barriers: doi.org/10.1111/inm....

September 12, 2025 at 12:11 AM

PxP (For Patients, By Patients)

@pxphub.bsky.social

💜Thank you so much to Kwanele Asante for guiding our second day of PxP 2025 as the conference host, and to the incredible speakers for today’s sessions. 👏. Thank you for everything you shared – for your wisdom, honesty and practical examples for doing better research.

Day 2: Setting up for success and inspiring others. Grid of photos of Day 2 speakers at PxP 2025.

September 11, 2025 at 1:24 AM

PxP (For Patients, By Patients)

@pxphub.bsky.social

For Patients, By Patients

Day 2 - Discussing all things #PatientEngagement #PPI #PatientPartners and more is in session!

If you want to join, it's free!

Sign-up here ➡️ pxphub.org/event/

And if you missed day 1, head to the #Rewatch parties 🥳

Event - PxP

We are grateful to the 2024 PxP Steering Committee for their guidance and expertise. All members of the Steering Committee identify as patient partners.

September 10, 2025 at 5:08 PM

PxP (For Patients, By Patients)

@pxphub.bsky.social

The #PxP25 re-watch parties will be starting in a little under an hour. There are three sessions - and the timings should work well for people in parts of Asia and Oceania, or people joining us after work in West Coast Americas. Looking forward to seeing some of you there!

September 10, 2025 at 12:06 AM

PxP (For Patients, By Patients)

@pxphub.bsky.social

What did you learn at #PxP25 today? Did particular words resonate with you? We would love to hear your reflections in the comments below ⬇️

September 9, 2025 at 10:08 PM

Reposted by PxP (For Patients, By Patients)

PxP (For Patients, By Patients)

@pxphub.bsky.social

PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.

Learn more about PxP 2025 here:
pxphub.org/event/

#PxP25 #PatientEngagement

I'm honoured to serve on the international steering committee for the PxP Conference 2025, a virtual global event championing the leadership of patient experts in healthcare transformation. The time has come to unleash the full power of lived experience... patients are no longer passive participants, but active drivers of research and care that truly reflect the needs of our diverse society. This is the democratisation of healthcare: bold, inclusive, and guided by those with the deepest expertise - people living with health conditions every day. Together, we're redefining what meaningful, equitable, and person-led health systems look like."

July 24, 2025 at 5:50 PM

Reposted by PxP (For Patients, By Patients)

PxP (For Patients, By Patients)

@pxphub.bsky.social

PxP Steering Committee Member Patrícia de Luca shares a quote highlighting the value of diverse, global perspectives, especially from individuals living with chronic conditions.

Learn more about PxP 2025 here: pxphub.org/event/

#PxP25 #PatientEngagement

"Participating as a steering committee member in 2025 has been a great honor. I'm so glad to be here and hear different perspectives from various parts of the world, showing the roots of the real engagement of people living with chronic conditions. PxP is an opportunity to be part of a safe space with exchangeable learning. I hope to see all of you there!" Patrícia de Luca PxP Steering Committee Member 2025

August 7, 2025 at 10:27 PM

Reposted by PxP (For Patients, By Patients)

PxP (For Patients, By Patients)

@pxphub.bsky.social

PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well.

Learn more about PxP 2025 here: pxphub.org/event/

#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch

August 13, 2025 at 9:47 PM

PxP (For Patients, By Patients)

@pxphub.bsky.social

#PxP25 starts tomorrow! A huge thank you to our incredible 2025 steering committee for their guidance at every step of the way. 💜💚💜

We are excited to learn from this amazing line-up of speakers!

✅Still time to register: bit.ly/PxP-2025

PxP (For Patients, By Patients) @pxphub.bsky.social · Aug 29

🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake...

#PxP25 #PatientEngagement #PPI #ConsumerInvolvement

September 8, 2025 at 7:39 PM

PxP (For Patients, By Patients)

@pxphub.bsky.social

PxP India is taking place on August 30th 7 pm IST. The session is geared towards those based in India, but open to people from across the globe with an interest in patient engagement (PPI) in health research.

👉More info and register: pxphub.org/event/pxp-in...

PxP India 2025 - PxP

August 29, 2025 at 10:14 PM

PxP (For Patients, By Patients)

@pxphub.bsky.social

🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake...

#PxP25 #PatientEngagement #PPI #ConsumerInvolvement

August 29, 2025 at 3:43 AM

PxP (For Patients, By Patients)

@pxphub.bsky.social

🎥Recording is now available to watch PxP Africa if you missed joining us live, or want to watch the session back to reflect on all the valuable insights from our speakers:
youtu.be/ol0bavw8psA
#PxP25 #PatientEngagement #PPI

PxP Africa 2025