PxP (For Patients, By Patients)
@pxphub.bsky.social
👉For Patients, By Patients 👈 The PxP initiative brings together resources for the patient engagement community in health research.
Do you feel like an "accidental advocate"? During #PxP25, speakers and attendees spoke about how their personal health journeys led them to advocacy and research in ways they had never imagined.
🎥Check out this session recording to learn about pathways of patient partners: youtu.be/2Rht0OAVSR8
🎥Check out this session recording to learn about pathways of patient partners: youtu.be/2Rht0OAVSR8
Journeys of impact: pathways of patient partners
YouTube video by PxP For Patients, By Patients
youtu.be
November 3, 2025 at 10:09 PM
Do you feel like an "accidental advocate"? During #PxP25, speakers and attendees spoke about how their personal health journeys led them to advocacy and research in ways they had never imagined.
🎥Check out this session recording to learn about pathways of patient partners: youtu.be/2Rht0OAVSR8
🎥Check out this session recording to learn about pathways of patient partners: youtu.be/2Rht0OAVSR8
What are some unique challenges and opportunities for patient engagement in research in different parts of the world?
👀Watch back this session from day 1 of #PxP25
youtu.be/xJwAKSoHGNs
#PPI #PatientEngagement #ConsumerInvolvement
👀Watch back this session from day 1 of #PxP25
youtu.be/xJwAKSoHGNs
#PPI #PatientEngagement #ConsumerInvolvement
Global voices, local impact: Patient Engagement in research around the world
YouTube video by PxP For Patients, By Patients
youtu.be
October 29, 2025 at 5:43 PM
What are some unique challenges and opportunities for patient engagement in research in different parts of the world?
👀Watch back this session from day 1 of #PxP25
youtu.be/xJwAKSoHGNs
#PPI #PatientEngagement #ConsumerInvolvement
👀Watch back this session from day 1 of #PxP25
youtu.be/xJwAKSoHGNs
#PPI #PatientEngagement #ConsumerInvolvement
Looking for a case study on co-design? PxP Australia featured an insightful presentation by Joan Carlini and Letisha Living, facilitated by Janelle Bowden.
Their #ConsumerInvolvement project used Lego!
Intrigued?
Watch the session back here: www.youtube.com/watch?si=UQV...
Their #ConsumerInvolvement project used Lego!
Intrigued?
Watch the session back here: www.youtube.com/watch?si=UQV...
PxP Australia 2025
YouTube video by PxP For Patients, By Patients
www.youtube.com
October 22, 2025 at 5:54 PM
Looking for a case study on co-design? PxP Australia featured an insightful presentation by Joan Carlini and Letisha Living, facilitated by Janelle Bowden.
Their #ConsumerInvolvement project used Lego!
Intrigued?
Watch the session back here: www.youtube.com/watch?si=UQV...
Their #ConsumerInvolvement project used Lego!
Intrigued?
Watch the session back here: www.youtube.com/watch?si=UQV...
Reposted by PxP (For Patients, By Patients)
Having a great international chat with patients and researchers at #PxP25. Bold, daring, brave and powerful voices in health research
At the cutting edge: innovations in patient engagement
The first sessions of #PxP25 day 3 is underway!
Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/
#PatientEngagement #ConsumerEngagement #ForPatientsByPatients
The first sessions of #PxP25 day 3 is underway!
Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/
#PatientEngagement #ConsumerEngagement #ForPatientsByPatients
Event - PxP
Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).
pxphub.org
September 12, 2025 at 3:51 AM
Having a great international chat with patients and researchers at #PxP25. Bold, daring, brave and powerful voices in health research
At the cutting edge: innovations in patient engagement
The first sessions of #PxP25 day 3 is underway!
Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/
#PatientEngagement #ConsumerEngagement #ForPatientsByPatients
The first sessions of #PxP25 day 3 is underway!
Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/
#PatientEngagement #ConsumerEngagement #ForPatientsByPatients
Event - PxP
Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).
pxphub.org
September 12, 2025 at 12:21 AM
At the cutting edge: innovations in patient engagement
The first sessions of #PxP25 day 3 is underway!
Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/
#PatientEngagement #ConsumerEngagement #ForPatientsByPatients
The first sessions of #PxP25 day 3 is underway!
Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/
#PatientEngagement #ConsumerEngagement #ForPatientsByPatients
Reposted by PxP (For Patients, By Patients)
I haven't managed to catch up with Days 1 and 2 of #PXP25 just yet...but it sounds like I'll need to go through some interesting conversations. This quote from Michelle particularly reminds me of some of our earlier work on pushing back on institutional barriers: doi.org/10.1111/inm....
September 12, 2025 at 12:11 AM
I haven't managed to catch up with Days 1 and 2 of #PXP25 just yet...but it sounds like I'll need to go through some interesting conversations. This quote from Michelle particularly reminds me of some of our earlier work on pushing back on institutional barriers: doi.org/10.1111/inm....
💜Thank you so much to Kwanele Asante for guiding our second day of PxP 2025 as the conference host, and to the incredible speakers for today’s sessions. 👏. Thank you for everything you shared – for your wisdom, honesty and practical examples for doing better research.
September 11, 2025 at 1:24 AM
💜Thank you so much to Kwanele Asante for guiding our second day of PxP 2025 as the conference host, and to the incredible speakers for today’s sessions. 👏. Thank you for everything you shared – for your wisdom, honesty and practical examples for doing better research.
For Patients, By Patients
Day 2 - Discussing all things #PatientEngagement #PPI #PatientPartners and more is in session!
If you want to join, it's free!
Sign-up here ➡️ pxphub.org/event/
And if you missed day 1, head to the #Rewatch parties 🥳
Day 2 - Discussing all things #PatientEngagement #PPI #PatientPartners and more is in session!
If you want to join, it's free!
Sign-up here ➡️ pxphub.org/event/
And if you missed day 1, head to the #Rewatch parties 🥳
Event - PxP
Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).
pxphub.org
September 10, 2025 at 5:08 PM
For Patients, By Patients
Day 2 - Discussing all things #PatientEngagement #PPI #PatientPartners and more is in session!
If you want to join, it's free!
Sign-up here ➡️ pxphub.org/event/
And if you missed day 1, head to the #Rewatch parties 🥳
Day 2 - Discussing all things #PatientEngagement #PPI #PatientPartners and more is in session!
If you want to join, it's free!
Sign-up here ➡️ pxphub.org/event/
And if you missed day 1, head to the #Rewatch parties 🥳
The #PxP25 re-watch parties will be starting in a little under an hour. There are three sessions - and the timings should work well for people in parts of Asia and Oceania, or people joining us after work in West Coast Americas. Looking forward to seeing some of you there!
September 10, 2025 at 12:06 AM
The #PxP25 re-watch parties will be starting in a little under an hour. There are three sessions - and the timings should work well for people in parts of Asia and Oceania, or people joining us after work in West Coast Americas. Looking forward to seeing some of you there!
What did you learn at #PxP25 today? Did particular words resonate with you? We would love to hear your reflections in the comments below ⬇️
September 9, 2025 at 10:08 PM
What did you learn at #PxP25 today? Did particular words resonate with you? We would love to hear your reflections in the comments below ⬇️
Reposted by PxP (For Patients, By Patients)
PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
July 24, 2025 at 5:50 PM
PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
Reposted by PxP (For Patients, By Patients)
PxP Steering Committee Member Patrícia de Luca shares a quote highlighting the value of diverse, global perspectives, especially from individuals living with chronic conditions.
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement
August 7, 2025 at 10:27 PM
PxP Steering Committee Member Patrícia de Luca shares a quote highlighting the value of diverse, global perspectives, especially from individuals living with chronic conditions.
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement
Reposted by PxP (For Patients, By Patients)
PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well.
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch
August 13, 2025 at 9:47 PM
PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well.
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch
#PxP25 starts tomorrow! A huge thank you to our incredible 2025 steering committee for their guidance at every step of the way. 💜💚💜
We are excited to learn from this amazing line-up of speakers!
✅Still time to register: bit.ly/PxP-2025
We are excited to learn from this amazing line-up of speakers!
✅Still time to register: bit.ly/PxP-2025
🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake...
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
September 8, 2025 at 7:39 PM
#PxP25 starts tomorrow! A huge thank you to our incredible 2025 steering committee for their guidance at every step of the way. 💜💚💜
We are excited to learn from this amazing line-up of speakers!
✅Still time to register: bit.ly/PxP-2025
We are excited to learn from this amazing line-up of speakers!
✅Still time to register: bit.ly/PxP-2025
PxP India is taking place on August 30th 7 pm IST. The session is geared towards those based in India, but open to people from across the globe with an interest in patient engagement (PPI) in health research.
👉More info and register: pxphub.org/event/pxp-in...
👉More info and register: pxphub.org/event/pxp-in...
PxP India 2025 - PxP
We are grateful to the 2024 PxP Steering Committee for their guidance and expertise. All members of the Steering Committee identify as patient partners.
pxphub.org
August 29, 2025 at 10:14 PM
PxP India is taking place on August 30th 7 pm IST. The session is geared towards those based in India, but open to people from across the globe with an interest in patient engagement (PPI) in health research.
👉More info and register: pxphub.org/event/pxp-in...
👉More info and register: pxphub.org/event/pxp-in...
🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake...
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
August 29, 2025 at 3:43 AM
🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake...
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
🎥Recording is now available to watch PxP Africa if you missed joining us live, or want to watch the session back to reflect on all the valuable insights from our speakers:
youtu.be/ol0bavw8psA
#PxP25 #PatientEngagement #PPI
youtu.be/ol0bavw8psA
#PxP25 #PatientEngagement #PPI
PxP Africa 2025
YouTube video by PxP For Patients, By Patients
youtu.be
August 25, 2025 at 5:09 PM
🎥Recording is now available to watch PxP Africa if you missed joining us live, or want to watch the session back to reflect on all the valuable insights from our speakers:
youtu.be/ol0bavw8psA
#PxP25 #PatientEngagement #PPI
youtu.be/ol0bavw8psA
#PxP25 #PatientEngagement #PPI
PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well.
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch
August 13, 2025 at 9:47 PM
PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well.
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch
📢We are very excited to announce that the speakers for PxP Africa will be Action Amos, Mbali Ngobese, and Rosebud Ombura. We are looking forward to connecting with everybody on August 13th!
There is still time to register here: pxphub.org/event/pxp-af...
#PxP25 #PxPAfrica
There is still time to register here: pxphub.org/event/pxp-af...
#PxP25 #PxPAfrica
August 8, 2025 at 4:59 PM
📢We are very excited to announce that the speakers for PxP Africa will be Action Amos, Mbali Ngobese, and Rosebud Ombura. We are looking forward to connecting with everybody on August 13th!
There is still time to register here: pxphub.org/event/pxp-af...
#PxP25 #PxPAfrica
There is still time to register here: pxphub.org/event/pxp-af...
#PxP25 #PxPAfrica
PxP Steering Committee Member Patrícia de Luca shares a quote highlighting the value of diverse, global perspectives, especially from individuals living with chronic conditions.
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement
August 7, 2025 at 10:27 PM
PxP Steering Committee Member Patrícia de Luca shares a quote highlighting the value of diverse, global perspectives, especially from individuals living with chronic conditions.
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement
Reposted by PxP (For Patients, By Patients)
EVENT 🌟 Registration is open for PxP25!
Sept 9–12 | Free, fully virtual conference for patient partners, researchers & clinicians to connect & learn.
✔️ Live sessions
✔️ Watch parties for all time zones
✔️ Recordings after event
Register 👉 events.zoom.us/ev/Asr1pT76o...
Sept 9–12 | Free, fully virtual conference for patient partners, researchers & clinicians to connect & learn.
✔️ Live sessions
✔️ Watch parties for all time zones
✔️ Recordings after event
Register 👉 events.zoom.us/ev/Asr1pT76o...
📢Sign up now for #PxP25!
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
bit.ly/3HwYxQg
#PPI #ConsumerInvolvement #ForPatientsByPatients
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
bit.ly/3HwYxQg
#PPI #ConsumerInvolvement #ForPatientsByPatients
July 31, 2025 at 1:15 PM
EVENT 🌟 Registration is open for PxP25!
Sept 9–12 | Free, fully virtual conference for patient partners, researchers & clinicians to connect & learn.
✔️ Live sessions
✔️ Watch parties for all time zones
✔️ Recordings after event
Register 👉 events.zoom.us/ev/Asr1pT76o...
Sept 9–12 | Free, fully virtual conference for patient partners, researchers & clinicians to connect & learn.
✔️ Live sessions
✔️ Watch parties for all time zones
✔️ Recordings after event
Register 👉 events.zoom.us/ev/Asr1pT76o...
Reposted by PxP (For Patients, By Patients)
ÉVÉNEMENT 🌟 Les inscriptions sont ouvertes pour PxP25 !
Du 9 au 12 sept | Conférence gratuite et virtuelle pour patient·e·s, chercheur·euse·s & clinicien·ne·s.
✔️ Séances en direct
✔️ Rediffusions selon fuseaux horaires
✔️ Enregistrements disponibles
Inscription 👉 events.zoom.us/ev/Asr1pT76o...
Du 9 au 12 sept | Conférence gratuite et virtuelle pour patient·e·s, chercheur·euse·s & clinicien·ne·s.
✔️ Séances en direct
✔️ Rediffusions selon fuseaux horaires
✔️ Enregistrements disponibles
Inscription 👉 events.zoom.us/ev/Asr1pT76o...
📢Sign up now for #PxP25!
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
bit.ly/3HwYxQg
#PPI #ConsumerInvolvement #ForPatientsByPatients
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
bit.ly/3HwYxQg
#PPI #ConsumerInvolvement #ForPatientsByPatients
July 31, 2025 at 1:15 PM
ÉVÉNEMENT 🌟 Les inscriptions sont ouvertes pour PxP25 !
Du 9 au 12 sept | Conférence gratuite et virtuelle pour patient·e·s, chercheur·euse·s & clinicien·ne·s.
✔️ Séances en direct
✔️ Rediffusions selon fuseaux horaires
✔️ Enregistrements disponibles
Inscription 👉 events.zoom.us/ev/Asr1pT76o...
Du 9 au 12 sept | Conférence gratuite et virtuelle pour patient·e·s, chercheur·euse·s & clinicien·ne·s.
✔️ Séances en direct
✔️ Rediffusions selon fuseaux horaires
✔️ Enregistrements disponibles
Inscription 👉 events.zoom.us/ev/Asr1pT76o...
📢Introducing PxP Australia! - a regional PxP webinar, led by Janelle Bowden and Letisha Living (2025 PXP Steering Cttee members).
Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au...
#ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement
Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au...
#ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement
August 1, 2025 at 11:21 PM
📢Introducing PxP Australia! - a regional PxP webinar, led by Janelle Bowden and Letisha Living (2025 PXP Steering Cttee members).
Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au...
#ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement
Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au...
#ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement
Calling Patient Partners who do their own research!
With all the information online, it can be difficult to know what is trustworthy or credible content. So, we created the resource "Fact vs. Fiction: Helping you sift through online information."
👉 bit.ly/4lTe781
With all the information online, it can be difficult to know what is trustworthy or credible content. So, we created the resource "Fact vs. Fiction: Helping you sift through online information."
👉 bit.ly/4lTe781
July 30, 2025 at 9:34 PM
Calling Patient Partners who do their own research!
With all the information online, it can be difficult to know what is trustworthy or credible content. So, we created the resource "Fact vs. Fiction: Helping you sift through online information."
👉 bit.ly/4lTe781
With all the information online, it can be difficult to know what is trustworthy or credible content. So, we created the resource "Fact vs. Fiction: Helping you sift through online information."
👉 bit.ly/4lTe781
Need to write a Letter of Support but don’t know where to get started?
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
July 24, 2025 at 5:58 PM
Need to write a Letter of Support but don’t know where to get started?
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...