Brett Scholz
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wingspan.bsky.social
Brett Scholz
@wingspan.bsky.social
Addicted to matcha latte 🍵 and reforming health systems ✊🏻

All things #LivedExperienceLeadership | Vice-Chair @ischp.bsky.social |
Associate Professor #ourANU School of Medicine and Psychology
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ABOUT ME:

I post mostly about lived experience leadership in health policy, services, research and education. I don't work from a lived experience perspective myself, but write a lot of academic articles and substack posts about lived experience leadership.

I also post about Eurovision and Matcha.
Feel free to check out this paper about #Aphantasia, @notcorry.sciguys.co.uk & @lukecutforth.bsky.social -- it uses a SciGuys transcript as part of the data. Hope you enjoy how meta that is -- SciGuys being used to produce scientific knowledge -- and thanks for giving us a lot to think about!
Check out my recent publication (co-authored with my mum!) which explores how #aphantasia is often widely understood as a deficiency, a disorder, or dehumanising. Such understandings were common in social media posts, but also in scientific literature in the field. (1/4)

doi.org/10.58544/ims...
Disordered, deficient, and dehumanised: How biomedical and cognitive approaches are limiting our understandings of aphantasia | International Mad Studies Journal
doi.org
January 6, 2026 at 1:59 AM
Check out my recent publication (co-authored with my mum!) which explores how #aphantasia is often widely understood as a deficiency, a disorder, or dehumanising. Such understandings were common in social media posts, but also in scientific literature in the field. (1/4)

doi.org/10.58544/ims...
Disordered, deficient, and dehumanised: How biomedical and cognitive approaches are limiting our understandings of aphantasia | International Mad Studies Journal
doi.org
January 6, 2026 at 1:47 AM
I always say 明後日 because I didn't know there was an English word for it. We need a word for 明明後日 though... not sure if overovermorrow or overmorrowmorrow would work best...
all the other germanic languages in my replies being like yeah we're still using this 😙🎶

english, we could bring overmorrow back, it used to exist and it could come back!
en.wiktionary.org/wiki/overmor...
December 31, 2025 at 12:43 PM
Pretty happy finishing up the working year by being recognised in a group email as a relentless voice for lived experience leadership. Honestly feeling like I can log-off for 2025 satisfied now.
December 23, 2025 at 11:40 PM
Hi @notcorry.sciguys.co.uk 👋 I just had a paper published that includes extracts of the SciGuys episode transcript on aphantasia as data. I couldn't find a SciGuys contact but would love to send you a copy! Will be sharing the details on here too in due course.
December 15, 2025 at 10:51 AM
The Eurovision vote didn't go the way I expected. Its kind of both incomprehensible but also semi-unsurprising. Honestly just devastating to know 2026 is going to be yet another year we can't enjoy celebrating music together.
December 4, 2025 at 8:49 PM
Feeling a little worn out (but perhaps not surprised) that the glass ceiling in lived experience leadership we described almost a decade ago (across a range of orgs) is still going strong (as described here in service orgs)...

Doi.org/10.1080/01612840.2017.1280106
December 4, 2025 at 8:39 PM
Reposted by Brett Scholz
I'd seen the reporting around Keira Knightley's awful response but wow the video makes it... even worse??? It's so dismissive and callous and that horrible little laugh??? like what the hell?? And the smarmy, "I'm very sorry" in the least apologetic tone I've ever heard in my life. Jfc.
The thing that gets me about actors responding like this whenever they’re asking about JKR is that they always say “we need to learn to agree to disagree ^_^” as if trans people are the ones leading the campaign, when we’re just trying to live our lives while JKR posts about trans hate 24/7
October 16, 2025 at 9:53 PM
I just read a paper I wanted to cite in a grant application, only to get to the reference list and see that it cites what must be an AI hallucinated paper "written" by me. 🙃
October 14, 2025 at 10:14 PM
I haven't managed to catch up with Days 1 and 2 of #PXP25 just yet...but it sounds like I'll need to go through some interesting conversations. This quote from Michelle particularly reminds me of some of our earlier work on pushing back on institutional barriers: doi.org/10.1111/inm....
September 12, 2025 at 12:11 AM
The NHMRC is seeking feedback on its Draft Statement regarding Consumer and Community Involvement. In this article, I discuss how the Statement falls short in incorporating recent research and addressing current best practice for effective consumer participation: open.substack.com/pub/livedexp...
Making a timid statement
And how the NHMRC Statement on Consumer and Community Involvement could become more bold and live up to its values
open.substack.com
August 17, 2025 at 10:40 PM
I spent my Sunday morning writing about how the NHMRC & CHF draft Statement on Consumer and Community Involvement in Health and Medical Research draws on outdated ideas that limit consumer involvement. I'll be posting it to the Lived Experience Leadership Substack tomorrow.
Lived Experience Leadership | Brett Scholz | Substack
A monthly reflection on the trends and developments in lived experience leadership across the health sector. Click to read Lived Experience Leadership, by Brett Scholz, a Substack publication. Launche...
livedexperienceleadership.substack.com
August 17, 2025 at 2:14 AM
Check out the #pechakucha I presented at ISCHP2025 about the exponential increase in patient involvement (and how we're not really as participatory as we'd like to believe) livedexperienceleadership.substack.com/p/the-expone...
The exponential growth of patient involvement
Much ado and not doing much
livedexperienceleadership.substack.com
July 25, 2025 at 6:39 AM
Reposted by Brett Scholz
Nothing says US centric social media as when everyone assume pride month is in june. When thats just the case in the US. Sweden has pride month july/august and some countries have it in december.

EVERY MONTH is pride month somewhere in the world.
June 1, 2024 at 6:16 PM
Bridget Brennan asking the important questions of the treasurer about Labor's commitments to Indigenous communities...to a somewhat lacklustre answer. Australians showed they don't buy into the exclusion sold by conservatives. Let's hope Labor lean in to the mandate they have been handed #AusVotes
May 3, 2025 at 12:32 PM
Reposted by Brett Scholz
Hey Albo, how about fixing the universities now, eh? #auspol #ausvotes #binnight
May 3, 2025 at 12:19 PM
In honour of the great work of Antony GREEN @antonygreenelec.bsky.social I made a matcha cheesecake to enjoy while sitting back watching #AusVotes outcomes.
May 3, 2025 at 9:30 AM
Have a listen to this latest ISCHP podcast! I had great chat with Wendy Stainton-Rogers about where critical health psychology has been and where it might go next...
Wendy Stainton-Rogers joins us to look back on receiving the ISCHP lifetime achievement award (2023), shares her plans for (more!) book-writing, reflects on q-methodology as a ‘boutique method’, and reminisces about memorable conference moments (including a story about the infamous water pistols!).
2.3. Wendy Stainton-Rogers: Trouble-Maker by The Operative Word
This episode was recorded by Brett Scholz, with WendyStainton-Rogers. In this third episode of Volume Two, Wendy looks back on receiving the ISCHP lifetime achievement award (2023), shares her plans f...
creators.spotify.com
May 1, 2025 at 11:08 AM
Reposted by Brett Scholz
Jane is in Victoria and Chinese Victorians may consider making a public complaint to the Victorian Equal Opportunity and Human Rights Commission.
Jane Hume made an extraordinarily defamatory & racist claim that “Chinese spies” are handing out for Labor #auspol #ausvotes
April 30, 2025 at 12:44 AM
I loved having this chat with Gareth Treharne about all things ISCHP. Have a listen to get into the ISCHP spirit ahead of #ISCHP2025 in Galway in 3 months time!!
The next episode of The Operative Word, with Gareth Treharne is out now! Gareth reflects on his research and teaching, experiences attending ISCHP conferences, and his term as ISCHP Chair. Listen below, or wherever you get your podcasts.
2.2. Gareth Treharne: Capacity-Building by The Operative Word
This episode was recorded by Brett Scholz, with Gareth Treharne. In this second episode of Volume Two, Gareth reflects on his research and teaching, his experiences of attending ISCHP conferences, and...
creators.spotify.com
April 7, 2025 at 4:32 AM
Reposted by Brett Scholz
Just as Trump cuts billions from U.S. universities and drives leading academics out of the country, Dutton chooses yet another Trump card from the deck.

Cash is spot on; Dutton will aim to deliver “exact same” as Trump
March 31, 2025 at 10:38 PM
I really enjoyed this study. Perhaps not surprising, but good to get some data about how lived experience disclosures can show clients that their therapist is “human,” but this may come at the cost that they are no longer viewed as a “professional.
Goldilocks Disclosures: A Qualitative Exploration of When Therapist Self-Disclosure of Lived Experience Is “Just Right”

Alysia Robertson, Tegan Cruwys, Anika Quayle, Mark Stevens, Michael Platow, Brett Scholz
(@wingspan.bsky.social)

psycnet.apa.org/fulltext/202...
APA PsycNet
psycnet.apa.org
March 24, 2025 at 4:41 AM
How bizarre that there is someone out there who thought men would need their own cakes...
March 16, 2025 at 5:06 AM
This month, I reflect on the use of "lived experience leader" as an identity, and talk about how it's both positive (making #LivedExperienceLeadership visible) and concerning (in how it relates to central tenets of lived experience leadership)

livedexperienceleadership.substack.com/publish/post...
Is ‘Lived Experience Leader’ an identity?
Or is lived experience leadership better understood as an action oriented practice?
livedexperienceleadership.substack.com
March 7, 2025 at 9:27 PM