RemissionBiome MECFS/LongCovid Patient-led Research Project
@remissionbiome.bsky.social
Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
It's time to invest in biomedical research of complex chronic illness, harnessing patient expertise and community! Thanks @betsyladyzhets.bsky.social for this piece with @remissionbiome.bsky.social @meactnet.bsky.social +.
Gracias for including my voice & #MillionsMissing MX. #ME #LongCovid #POTS
Gracias for including my voice & #MillionsMissing MX. #ME #LongCovid #POTS
How patient-led research could speed up medical innovation
People with long COVID, ME/CFS and other chronic conditions are taking up science to find symptom relief and inspire new directions for professional scientists.
www.sciencenews.org
March 30, 2024 at 1:40 AM
It's time to invest in biomedical research of complex chronic illness, harnessing patient expertise and community! Thanks @betsyladyzhets.bsky.social for this piece with @remissionbiome.bsky.social @meactnet.bsky.social +.
Gracias for including my voice & #MillionsMissing MX. #ME #LongCovid #POTS
Gracias for including my voice & #MillionsMissing MX. #ME #LongCovid #POTS
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
@remissionbiome.bsky.social @tessfalor.bsky.social have been talking about these issues. Here’s a recent talk by Peter Rowe on the subject. I’m wishing you good treatment and support
youtu.be/WaM2mPzR64w?...
youtu.be/WaM2mPzR64w?...
February 23, 2024 at 7:51 PM
@remissionbiome.bsky.social @tessfalor.bsky.social have been talking about these issues. Here’s a recent talk by Peter Rowe on the subject. I’m wishing you good treatment and support
youtu.be/WaM2mPzR64w?...
youtu.be/WaM2mPzR64w?...
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
Here's the recording of the second Peter Rowe talk!
He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS.
youtu.be/WaM2mPzR64w?...
He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS.
youtu.be/WaM2mPzR64w?...
February 19, 2024 at 8:23 PM
Here's the recording of the second Peter Rowe talk!
He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS.
youtu.be/WaM2mPzR64w?...
He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS.
youtu.be/WaM2mPzR64w?...
February 19, 2024 at 6:22 AM
Here's the recording of the second Peter Rowe talk!
He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS.
youtu.be/WaM2mPzR64w?...
He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS.
youtu.be/WaM2mPzR64w?...
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
Free webinar tomorrow by Dr Rowe, with Q&A.
#MECFS #LongCovid #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS
#MECFS #LongCovid #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS
Part 2 - Peter Rowe, MD
Feb 16 at 2pm EST
Dr. Rowe will cover:
✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation
Register here: us06web.zoom.us/webinar/regi...
Feb 16 at 2pm EST
Dr. Rowe will cover:
✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation
Register here: us06web.zoom.us/webinar/regi...
February 16, 2024 at 12:00 AM
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
Recording of Part 1 here:
Watch the recording of Dr. Peter Rowe's talk that he just did for the community:
youtu.be/hTNpWjbVhsY?...
It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.
youtu.be/hTNpWjbVhsY?...
It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.
Peter C. Rowe, MD - orthostatic intolerance, brain blood flow, and venous congestion in ME/CFS
Presentation to Renegade Research on February 9, 2024
youtu.be
February 16, 2024 at 12:01 AM
Recording of Part 1 here:
Happening tomorrow at 2pm EST!
Register here: us06web.zoom.us/webinar/regi...
(If you already registered for the 1st one, you don't have to register again.)
Register here: us06web.zoom.us/webinar/regi...
(If you already registered for the 1st one, you don't have to register again.)
Part 2 - Peter Rowe, MD
Feb 16 at 2pm EST
Dr. Rowe will cover:
✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation
Register here: us06web.zoom.us/webinar/regi...
Feb 16 at 2pm EST
Dr. Rowe will cover:
✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation
Register here: us06web.zoom.us/webinar/regi...
February 15, 2024 at 9:52 PM
Happening tomorrow at 2pm EST!
Register here: us06web.zoom.us/webinar/regi...
(If you already registered for the 1st one, you don't have to register again.)
Register here: us06web.zoom.us/webinar/regi...
(If you already registered for the 1st one, you don't have to register again.)
Part 2 - Peter Rowe, MD
Feb 16 at 2pm EST
Dr. Rowe will cover:
✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation
Register here: us06web.zoom.us/webinar/regi...
Feb 16 at 2pm EST
Dr. Rowe will cover:
✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation
Register here: us06web.zoom.us/webinar/regi...
February 15, 2024 at 9:51 PM
Part 2 - Peter Rowe, MD
Feb 16 at 2pm EST
Dr. Rowe will cover:
✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation
Register here: us06web.zoom.us/webinar/regi...
Feb 16 at 2pm EST
Dr. Rowe will cover:
✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation
Register here: us06web.zoom.us/webinar/regi...
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
Want to understand why and how many people are using nicotine patches for #LongCovid and #MECFS?
Start here!
Linktr.ee/thenicotinetest
Start here!
Linktr.ee/thenicotinetest
December 23, 2023 at 8:59 AM
Want to understand why and how many people are using nicotine patches for #LongCovid and #MECFS?
Start here!
Linktr.ee/thenicotinetest
Start here!
Linktr.ee/thenicotinetest
Register to join us next week, if you didn't register for the first one:
us06web.zoom.us/webinar/regi...
(If you already registered for the first one you don't have to register again. It's the same link.)
us06web.zoom.us/webinar/regi...
(If you already registered for the first one you don't have to register again. It's the same link.)
February 10, 2024 at 7:10 AM
Register to join us next week, if you didn't register for the first one:
us06web.zoom.us/webinar/regi...
(If you already registered for the first one you don't have to register again. It's the same link.)
us06web.zoom.us/webinar/regi...
(If you already registered for the first one you don't have to register again. It's the same link.)
Watch the recording of Dr. Peter Rowe's talk that he just did for the community:
youtu.be/hTNpWjbVhsY?...
It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.
youtu.be/hTNpWjbVhsY?...
It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.
Peter C. Rowe, MD - orthostatic intolerance, brain blood flow, and venous congestion in ME/CFS
Presentation to Renegade Research on February 9, 2024
youtu.be
February 10, 2024 at 7:09 AM
Watch the recording of Dr. Peter Rowe's talk that he just did for the community:
youtu.be/hTNpWjbVhsY?...
It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.
youtu.be/hTNpWjbVhsY?...
It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.
Reminder that part 1 of Dr. Rowe's talk is today at 2pm EST!
Sign up link 👇
us06web.zoom.us/webinar/regi...
#MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS
Sign up link 👇
us06web.zoom.us/webinar/regi...
#MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS
February 9, 2024 at 12:38 PM
Reminder that part 1 of Dr. Rowe's talk is today at 2pm EST!
Sign up link 👇
us06web.zoom.us/webinar/regi...
#MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS
Sign up link 👇
us06web.zoom.us/webinar/regi...
#MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
RemissionBiome20 gets you 20% off...
and Healthy Gut donates 10% to help fund @remissionbiome.bsky.social studies. 😀
Thanks for "oversharing" - and Big Congratulations On Your Abnormal Test Results! 🎉
and Healthy Gut donates 10% to help fund @remissionbiome.bsky.social studies. 😀
Thanks for "oversharing" - and Big Congratulations On Your Abnormal Test Results! 🎉
November 22, 2023 at 2:15 AM
RemissionBiome20 gets you 20% off...
and Healthy Gut donates 10% to help fund @remissionbiome.bsky.social studies. 😀
Thanks for "oversharing" - and Big Congratulations On Your Abnormal Test Results! 🎉
and Healthy Gut donates 10% to help fund @remissionbiome.bsky.social studies. 😀
Thanks for "oversharing" - and Big Congratulations On Your Abnormal Test Results! 🎉
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
Just called & emailed my reps asking for their support of a #LongCovidMoonshot 🚀🌝
Have you made your calls yet today?
Call guide here: longcovidmoonshot.com
Have you made your calls yet today?
Call guide here: longcovidmoonshot.com
November 14, 2023 at 9:08 PM
Just called & emailed my reps asking for their support of a #LongCovidMoonshot 🚀🌝
Have you made your calls yet today?
Call guide here: longcovidmoonshot.com
Have you made your calls yet today?
Call guide here: longcovidmoonshot.com
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
During my 2009 @remissionbiome.bsky.social event, I was shocked to realize how sick I had really been. I had gotten so used to it that I didn't even know how bad it was until it went away. I started to think that EVERYONE was probably actually sick, but was just used to it.
November 11, 2023 at 10:48 AM
During my 2009 @remissionbiome.bsky.social event, I was shocked to realize how sick I had really been. I had gotten so used to it that I didn't even know how bad it was until it went away. I started to think that EVERYONE was probably actually sick, but was just used to it.
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
The @remissionbiome.bsky.social #Renegade50 are spread around the US, Canada, Mexico, EU, and UK. For Biome2 we have people lined up in Australia, Finland, Iceland, & Bali + others in the running in India, Lithuania, Trinidad & Tobago, South Africa, Indonesia, Japan, Brazil, & many more.
November 11, 2023 at 10:59 AM
The @remissionbiome.bsky.social #Renegade50 are spread around the US, Canada, Mexico, EU, and UK. For Biome2 we have people lined up in Australia, Finland, Iceland, & Bali + others in the running in India, Lithuania, Trinidad & Tobago, South Africa, Indonesia, Japan, Brazil, & many more.
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
The Microbiome's Impact on Health - my interview with Dr. Alessio Fasano
ancestralhealth.substack.com/p/the-microb...
ancestralhealth.substack.com/p/the-microb...
The Microbiome's Impact on Health
Listen now | With Alessio Fasano, MD
ancestralhealth.substack.com
October 15, 2023 at 1:28 AM
The Microbiome's Impact on Health - my interview with Dr. Alessio Fasano
ancestralhealth.substack.com/p/the-microb...
ancestralhealth.substack.com/p/the-microb...
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
Not protecting the most vulnerable is criminal. We know that cancer patients are at greater risk of contracting and complications from ID. How can we end this madness?
October 15, 2023 at 1:50 AM
Not protecting the most vulnerable is criminal. We know that cancer patients are at greater risk of contracting and complications from ID. How can we end this madness?
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
In a world where you can be anything: Be kind, be honest, be in service of others. We only live once & don't take anything with us. At the end of my journey, I want to have been loved & trusted. Today, I want laugh, find joy in the everyday things & never lose my humanity!!!
November 11, 2023 at 9:38 AM
In a world where you can be anything: Be kind, be honest, be in service of others. We only live once & don't take anything with us. At the end of my journey, I want to have been loved & trusted. Today, I want laugh, find joy in the everyday things & never lose my humanity!!!
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
Throughout my illness, I have gone through financial devastation from medical bills and not being able to work. There were many times when I saw people having access to trx I couldn't even think of having. I clawed myself out some of the worst times by 1/
November 11, 2023 at 9:39 AM
Throughout my illness, I have gone through financial devastation from medical bills and not being able to work. There were many times when I saw people having access to trx I couldn't even think of having. I clawed myself out some of the worst times by 1/
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
β-Caryophyllene, A Natural Dietary CB2 Receptor Selective Cannabinoid can be a Candidate to Target the Trinity of Infection, Immunity, and Inflammation in COVID-19 - PMC
www.ncbi.nlm.nih.gov/pmc/articles...
www.ncbi.nlm.nih.gov/pmc/articles...
β-Caryophyllene, A Natural Dietary CB2 Receptor Selective Cannabinoid can be a Candidate to Target ...
Coronavirus disease (COVID-19), caused by novel severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), is an ongoing pandemic and presents a public health emergency. It has affected millions of...
www.ncbi.nlm.nih.gov
November 11, 2023 at 9:42 AM
β-Caryophyllene, A Natural Dietary CB2 Receptor Selective Cannabinoid can be a Candidate to Target the Trinity of Infection, Immunity, and Inflammation in COVID-19 - PMC
www.ncbi.nlm.nih.gov/pmc/articles...
www.ncbi.nlm.nih.gov/pmc/articles...
Reposted by RemissionBiome MECFS/LongCovid Patient-led Research Project
My very first conversation with @tessfalor.bsky.social about what has become @remissionbiome.bsky.social
- I told her right away “I’ll do it ”. Then my abx ready in January 2023 to get started.
- I told her right away “I’ll do it ”. Then my abx ready in January 2023 to get started.
November 11, 2023 at 9:47 AM
My very first conversation with @tessfalor.bsky.social about what has become @remissionbiome.bsky.social
- I told her right away “I’ll do it ”. Then my abx ready in January 2023 to get started.
- I told her right away “I’ll do it ”. Then my abx ready in January 2023 to get started.