Tess Falor, Ph.D.
@tessfalor.bsky.social
Founder - Renegade Research
#MECFS #LongCovid
#MECFS #LongCovid
Reposted by Tess Falor, Ph.D.
We held a Volunteer Info Session today for people wanting to volunteer for Renegade Research!
Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more
🧵
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Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more
🧵
1/
November 15, 2025 at 10:52 PM
We held a Volunteer Info Session today for people wanting to volunteer for Renegade Research!
Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more
🧵
1/
Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more
🧵
1/
Reposted by Tess Falor, Ph.D.
Volunteer Info Session recording: www.youtube.com/watch?v=H40w...
@tessfalor.bsky.social, @isabelrb.bsky.social, @ellybrosius.bsky.social, @katboniface.bsky.social, @mayalongcovid.bsky.social with org overview, volunteer work, current/future projects
Slideshow: docs.google.com/presentation...
2/
@tessfalor.bsky.social, @isabelrb.bsky.social, @ellybrosius.bsky.social, @katboniface.bsky.social, @mayalongcovid.bsky.social with org overview, volunteer work, current/future projects
Slideshow: docs.google.com/presentation...
2/
Renegade Research Volunteer Information Session
YouTube video by Renegade Research
www.youtube.com
November 15, 2025 at 11:00 PM
Volunteer Info Session recording: www.youtube.com/watch?v=H40w...
@tessfalor.bsky.social, @isabelrb.bsky.social, @ellybrosius.bsky.social, @katboniface.bsky.social, @mayalongcovid.bsky.social with org overview, volunteer work, current/future projects
Slideshow: docs.google.com/presentation...
2/
@tessfalor.bsky.social, @isabelrb.bsky.social, @ellybrosius.bsky.social, @katboniface.bsky.social, @mayalongcovid.bsky.social with org overview, volunteer work, current/future projects
Slideshow: docs.google.com/presentation...
2/
This is coming up this Saturday at noon ET.
Join us to meet our awesome team and learn out how you can get involved!
Join us to meet our awesome team and learn out how you can get involved!
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
November 12, 2025 at 5:34 PM
This is coming up this Saturday at noon ET.
Join us to meet our awesome team and learn out how you can get involved!
Join us to meet our awesome team and learn out how you can get involved!
The Amatica team is doing amazing patient-led decentralized work.
Can't wait to hear more on the 21st!
Can't wait to hear more on the 21st!
Please sign up our next Clinician's Roundtable with @jackamatica.bsky.social & Nicholas Boyd-Gibbins of @amaticahealth.bsky.social on Friday, Nov. 21!
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky
November 12, 2025 at 5:33 PM
The Amatica team is doing amazing patient-led decentralized work.
Can't wait to hear more on the 21st!
Can't wait to hear more on the 21st!
Exciting news! The community raised enough money to cover all of the samples for David Esteban's study. We don’t have to raise the full $7k, because a lab has offered to run them for lower cost! 🙌
April 11, 2025 at 3:20 PM
Exciting news! The community raised enough money to cover all of the samples for David Esteban's study. We don’t have to raise the full $7k, because a lab has offered to run them for lower cost! 🙌
Reposted by Tess Falor, Ph.D.
Total so far is $4,356 of $7,000 goal raised! Pls donate if possible - every $5 matters - more than double the impact of this PASC (Long Covid) metabolites study (lab closed that was to process the samples). This research will likely help people with ME/CFS as well and other populations. #medsky
The $7k would amplify the study's impact on understanding Long COVID!
Read more about the study and donate here: www.zeffy.com/en-US/fundra...
Read more about the study and donate here: www.zeffy.com/en-US/fundra...
Support David Esteban's study on Microbial Metabolites in Long COVID
* Heads up: Zeffy has a default "tip" of 17% that goes to them, but it's not required. When you go to donate, you can select the dropdown under "Help keep Zeffy free for Renegade Research" and put in ...
www.zeffy.com
April 5, 2025 at 3:26 PM
Total so far is $4,356 of $7,000 goal raised! Pls donate if possible - every $5 matters - more than double the impact of this PASC (Long Covid) metabolites study (lab closed that was to process the samples). This research will likely help people with ME/CFS as well and other populations. #medsky
Reposted by Tess Falor, Ph.D.
Wow! Making good progress on this fundraiser @tessfalor.bsky.social 😊 Just a little more to go folks... donations of any size will help complete this very important #longCovid study!
The majority of the work has been completed on this #longCovid research project... just needs a little push to button-up. Read more and donate if possible as below per @tessfalor.bsky.social who is one of the participants in the study!
The $7k would amplify the study's impact on understanding Long COVID!
Read more about the study and donate here: www.zeffy.com/en-US/fundra...
Read more about the study and donate here: www.zeffy.com/en-US/fundra...
April 5, 2025 at 3:47 PM
Wow! Making good progress on this fundraiser @tessfalor.bsky.social 😊 Just a little more to go folks... donations of any size will help complete this very important #longCovid study!
Reposted by Tess Falor, Ph.D.
The majority of the work has been completed on this #longCovid research project... just needs a little push to button-up. Read more and donate if possible as below per @tessfalor.bsky.social who is one of the participants in the study!
The $7k would amplify the study's impact on understanding Long COVID!
Read more about the study and donate here: www.zeffy.com/en-US/fundra...
Read more about the study and donate here: www.zeffy.com/en-US/fundra...
Support David Esteban's study on Microbial Metabolites in Long COVID
* Heads up: Zeffy has a default "tip" of 17% that goes to them, but it's not required. When you go to donate, you can select the dropdown under "Help keep Zeffy free for Renegade Research" and put in ...
www.zeffy.com
April 4, 2025 at 7:21 PM
The majority of the work has been completed on this #longCovid research project... just needs a little push to button-up. Read more and donate if possible as below per @tessfalor.bsky.social who is one of the participants in the study!
Reposted by Tess Falor, Ph.D.
The $7k would amplify the study's impact on understanding Long COVID!
Read more about the study and donate here: www.zeffy.com/en-US/fundra...
Read more about the study and donate here: www.zeffy.com/en-US/fundra...
Support David Esteban's study on Microbial Metabolites in Long COVID
* Heads up: Zeffy has a default "tip" of 17% that goes to them, but it's not required. When you go to donate, you can select the dropdown under "Help keep Zeffy free for Renegade Research" and put in ...
www.zeffy.com
April 4, 2025 at 7:10 PM
Dates are set! May 13-19. #InnovationInn
5 patient-scientist team members will come to my house to run self-experiments related to Post Exertional Malaise (PEM)/Post Exertional Symptom Exacerbation (PESE) & do real-time analysis of our samples.
5 patient-scientist team members will come to my house to run self-experiments related to Post Exertional Malaise (PEM)/Post Exertional Symptom Exacerbation (PESE) & do real-time analysis of our samples.
Imagine scientist-patients getting together for a week to run an experiment. Gathering tons of data and biological samples.
It's happening. My house. April or May 2025.
@RenegadeRes #RenegadeResearch
#InnovationInn #ResearchRetreat
🔬🏡
It's happening. My house. April or May 2025.
@RenegadeRes #RenegadeResearch
#InnovationInn #ResearchRetreat
🔬🏡
April 4, 2025 at 2:45 PM
Dates are set! May 13-19. #InnovationInn
5 patient-scientist team members will come to my house to run self-experiments related to Post Exertional Malaise (PEM)/Post Exertional Symptom Exacerbation (PESE) & do real-time analysis of our samples.
5 patient-scientist team members will come to my house to run self-experiments related to Post Exertional Malaise (PEM)/Post Exertional Symptom Exacerbation (PESE) & do real-time analysis of our samples.
Reposted by Tess Falor, Ph.D.
Hey y’all—David Esteban’s @patientled.bsky.social funded Long Covid study has hit a snag just before the finish line—the cost to process samples went up. They’ve collected 43 but now can only run 20. $7000 would cover the rest!
Thanks so much for giving or boosting!
Thanks so much for giving or boosting!
Support David Esteban's study on Microbial Metabolites in Long COVID
* Heads up: Zeffy has a default "tip" of 17% that goes to them, but it's not required. When you go to donate, you can select the dropdown under "Help keep Zeffy free for Renegade Research" and put in ...
www.zeffy.com
April 3, 2025 at 5:42 PM
Hey y’all—David Esteban’s @patientled.bsky.social funded Long Covid study has hit a snag just before the finish line—the cost to process samples went up. They’ve collected 43 but now can only run 20. $7000 would cover the rest!
Thanks so much for giving or boosting!
Thanks so much for giving or boosting!
3 years ago I joined a panel of patients to determine how to allocate $4.8 million to Long COVID, ME/CFS, & dysautonomia research (the @patientled.bsky.social research fund).
It was an amazing experience working with patients like @ahandvanish.bsky.social @themegascope.bsky.social & many more.
🧵
It was an amazing experience working with patients like @ahandvanish.bsky.social @themegascope.bsky.social & many more.
🧵
April 3, 2025 at 11:47 PM
3 years ago I joined a panel of patients to determine how to allocate $4.8 million to Long COVID, ME/CFS, & dysautonomia research (the @patientled.bsky.social research fund).
It was an amazing experience working with patients like @ahandvanish.bsky.social @themegascope.bsky.social & many more.
🧵
It was an amazing experience working with patients like @ahandvanish.bsky.social @themegascope.bsky.social & many more.
🧵
Reposted by Tess Falor, Ph.D.
Round Table on lactate levels in #MECFS and #LongCovid! 👇
Thank you @sunsopeningband.bsky.social @ciarawrightphd.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @katboniface.bsky.social @doc4care.bsky.social and everyone else from @renegaderesearch.bsky.social for your great efforts!
Thank you @sunsopeningband.bsky.social @ciarawrightphd.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @katboniface.bsky.social @doc4care.bsky.social and everyone else from @renegaderesearch.bsky.social for your great efforts!
Check out the amazing presentation today from Todd Davenport and Ciara Wright on the details of The Acid Test.
youtu.be/6BUZtcC1Ezc
youtu.be/6BUZtcC1Ezc
March 29, 2025 at 12:50 AM
Round Table on lactate levels in #MECFS and #LongCovid! 👇
Thank you @sunsopeningband.bsky.social @ciarawrightphd.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @katboniface.bsky.social @doc4care.bsky.social and everyone else from @renegaderesearch.bsky.social for your great efforts!
Thank you @sunsopeningband.bsky.social @ciarawrightphd.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @katboniface.bsky.social @doc4care.bsky.social and everyone else from @renegaderesearch.bsky.social for your great efforts!
Reposted by Tess Falor, Ph.D.
You are invited to attend our next Renegade Research #Clinician Roundtable on April 11, 2025
✅️ Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD + more.
us06web.zoom.us/webinar/regi...
✅️ Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD + more.
us06web.zoom.us/webinar/regi...
March 29, 2025 at 6:36 PM
You are invited to attend our next Renegade Research #Clinician Roundtable on April 11, 2025
✅️ Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD + more.
us06web.zoom.us/webinar/regi...
✅️ Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD + more.
us06web.zoom.us/webinar/regi...
Reposted by Tess Falor, Ph.D.
Very excited to say that @crunchme.bsky.social's first report is out and about 🙌
The Future is a Policy Choice: Addressing Infection-Associated Chronic Conditions
Our goal here is to bring together the key info needed to make the case for taking action *now*!
drive.google.com/file/d/17fgU...
The Future is a Policy Choice: Addressing Infection-Associated Chronic Conditions
Our goal here is to bring together the key info needed to make the case for taking action *now*!
drive.google.com/file/d/17fgU...
January 27, 2025 at 2:11 PM
Very excited to say that @crunchme.bsky.social's first report is out and about 🙌
The Future is a Policy Choice: Addressing Infection-Associated Chronic Conditions
Our goal here is to bring together the key info needed to make the case for taking action *now*!
drive.google.com/file/d/17fgU...
The Future is a Policy Choice: Addressing Infection-Associated Chronic Conditions
Our goal here is to bring together the key info needed to make the case for taking action *now*!
drive.google.com/file/d/17fgU...
Imagine scientist-patients getting together for a week to run an experiment. Gathering tons of data and biological samples.
It's happening. My house. April or May 2025.
@RenegadeRes #RenegadeResearch
#InnovationInn #ResearchRetreat
🔬🏡
It's happening. My house. April or May 2025.
@RenegadeRes #RenegadeResearch
#InnovationInn #ResearchRetreat
🔬🏡
March 8, 2025 at 12:59 AM
Imagine scientist-patients getting together for a week to run an experiment. Gathering tons of data and biological samples.
It's happening. My house. April or May 2025.
@RenegadeRes #RenegadeResearch
#InnovationInn #ResearchRetreat
🔬🏡
It's happening. My house. April or May 2025.
@RenegadeRes #RenegadeResearch
#InnovationInn #ResearchRetreat
🔬🏡
It's so exciting to see an #MEspine related paper published!
Good timing before the #MEspine24 (or I guess now #MEspine25) research roundtable tomorrow!
www.frontiersin.org/journals/neu...
Good timing before the #MEspine24 (or I guess now #MEspine25) research roundtable tomorrow!
www.frontiersin.org/journals/neu...
Frontiers | Comorbidities and neurosurgical interventions in a cohort with connective tissue disorders
www.frontiersin.org
January 24, 2025 at 12:22 AM
It's so exciting to see an #MEspine related paper published!
Good timing before the #MEspine24 (or I guess now #MEspine25) research roundtable tomorrow!
www.frontiersin.org/journals/neu...
Good timing before the #MEspine24 (or I guess now #MEspine25) research roundtable tomorrow!
www.frontiersin.org/journals/neu...
Reposted by Tess Falor, Ph.D.
Looking forward to the part about "possible treatments in ME/CFS"
Jan 24, 2025
1p Eastern US
Hosts include @renegaderesearch.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @richellesepulveda.bsky.social
Robert Naviaux, MD.
Q. Can NextGen Metabolomics be used to help diagnose CFS?
A: Yes!
Jan 24, 2025
1p Eastern US
Hosts include @renegaderesearch.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @richellesepulveda.bsky.social
Robert Naviaux, MD.
Q. Can NextGen Metabolomics be used to help diagnose CFS?
A: Yes!
Wow! Next Week: 1/24/25, Fri, 1p ET US.
Speaker Robert Naviaux, MD, (Genetics Prof UCSD) on
"Cell danger response (CDR) inhibition of salugenesis—molecular and mechanical mechanisms and possible treatments in ME/CFS"
Register here
us06web.zoom.us/webinar/regi...
Speaker Robert Naviaux, MD, (Genetics Prof UCSD) on
"Cell danger response (CDR) inhibition of salugenesis—molecular and mechanical mechanisms and possible treatments in ME/CFS"
Register here
us06web.zoom.us/webinar/regi...
January 20, 2025 at 8:52 PM
Looking forward to the part about "possible treatments in ME/CFS"
Jan 24, 2025
1p Eastern US
Hosts include @renegaderesearch.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @richellesepulveda.bsky.social
Robert Naviaux, MD.
Q. Can NextGen Metabolomics be used to help diagnose CFS?
A: Yes!
Jan 24, 2025
1p Eastern US
Hosts include @renegaderesearch.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @richellesepulveda.bsky.social
Robert Naviaux, MD.
Q. Can NextGen Metabolomics be used to help diagnose CFS?
A: Yes!
I've been obsessed with Bob Naviaux's work for a few years now. He takes an evolutionary perspective, which I've been interested in for over a decade.
Next Friday he will bring in another of my favorite topics - #MEspine (mechanical spine issues leading to #MECFS Sx)
tinyurl.com/4c34kety
Next Friday he will bring in another of my favorite topics - #MEspine (mechanical spine issues leading to #MECFS Sx)
tinyurl.com/4c34kety
January 17, 2025 at 10:57 PM
I've been obsessed with Bob Naviaux's work for a few years now. He takes an evolutionary perspective, which I've been interested in for over a decade.
Next Friday he will bring in another of my favorite topics - #MEspine (mechanical spine issues leading to #MECFS Sx)
tinyurl.com/4c34kety
Next Friday he will bring in another of my favorite topics - #MEspine (mechanical spine issues leading to #MECFS Sx)
tinyurl.com/4c34kety
We had a great @remissionbiome.bsky.social primary
Preliminary results meeting today!
Watch the recording: youtu.be/Y4Un2rQLKTw
Preliminary results meeting today!
Watch the recording: youtu.be/Y4Un2rQLKTw
January 17, 2025 at 10:54 PM
We had a great @remissionbiome.bsky.social primary
Preliminary results meeting today!
Watch the recording: youtu.be/Y4Un2rQLKTw
Preliminary results meeting today!
Watch the recording: youtu.be/Y4Un2rQLKTw
Reposted by Tess Falor, Ph.D.
Let's start the new year with a few people really worth following if you're interested in #MECFS and #LongCovid:
@scheibenbogen.bsky.social
@putrinolab.bsky.social
@sunsopeningband.bsky.social
@exceedhergrasp1.bsky.social
@isabelrb.bsky.social
@tessfalor.bsky.social
More ⬇️
go.bsky.app/42cuLif
@scheibenbogen.bsky.social
@putrinolab.bsky.social
@sunsopeningband.bsky.social
@exceedhergrasp1.bsky.social
@isabelrb.bsky.social
@tessfalor.bsky.social
More ⬇️
go.bsky.app/42cuLif
January 1, 2025 at 9:41 PM
Let's start the new year with a few people really worth following if you're interested in #MECFS and #LongCovid:
@scheibenbogen.bsky.social
@putrinolab.bsky.social
@sunsopeningband.bsky.social
@exceedhergrasp1.bsky.social
@isabelrb.bsky.social
@tessfalor.bsky.social
More ⬇️
go.bsky.app/42cuLif
@scheibenbogen.bsky.social
@putrinolab.bsky.social
@sunsopeningband.bsky.social
@exceedhergrasp1.bsky.social
@isabelrb.bsky.social
@tessfalor.bsky.social
More ⬇️
go.bsky.app/42cuLif
Reposted by Tess Falor, Ph.D.
To prep for @renegaderesearch.bsky.social @tessfalor.bsky.social talk on 1/24/2025, you might scan Dr. Naviaux and his lab's ME/CFS page.
(This talk is part 3 in series exploring mechanical, brainstem, and molecular basis hypotheses of ME/CFS.)
naviauxlab.ucsd.edu/science-item...
(This talk is part 3 in series exploring mechanical, brainstem, and molecular basis hypotheses of ME/CFS.)
naviauxlab.ucsd.edu/science-item...
Chronic Fatigue Syndrome research – Naviaux Lab
naviauxlab.ucsd.edu
January 16, 2025 at 5:10 PM
To prep for @renegaderesearch.bsky.social @tessfalor.bsky.social talk on 1/24/2025, you might scan Dr. Naviaux and his lab's ME/CFS page.
(This talk is part 3 in series exploring mechanical, brainstem, and molecular basis hypotheses of ME/CFS.)
naviauxlab.ucsd.edu/science-item...
(This talk is part 3 in series exploring mechanical, brainstem, and molecular basis hypotheses of ME/CFS.)
naviauxlab.ucsd.edu/science-item...
Reposted by Tess Falor, Ph.D.
Together, we can lead the way toward understanding, treatment, and ultimately, long-term remission. Help us keep up the momentum!
👉 Donate today: zeffy.com/en-US/fundra...
(To make a larger donation or donate crypto DM
@tessfalor.bsky.social)
6/8
👉 Donate today: zeffy.com/en-US/fundra...
(To make a larger donation or donate crypto DM
@tessfalor.bsky.social)
6/8
Accelerate research and care for ME/CFS & Long COVID
Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...
zeffy.com
December 3, 2024 at 6:26 PM
Together, we can lead the way toward understanding, treatment, and ultimately, long-term remission. Help us keep up the momentum!
👉 Donate today: zeffy.com/en-US/fundra...
(To make a larger donation or donate crypto DM
@tessfalor.bsky.social)
6/8
👉 Donate today: zeffy.com/en-US/fundra...
(To make a larger donation or donate crypto DM
@tessfalor.bsky.social)
6/8
Reposted by Tess Falor, Ph.D.
Exciting news this Giving Tuesday!
We’re excited to announce that our nonprofit, Renegade Research, has been awarded a grant from Vitalik Buterin's Kanro Filantropic Fund to kickstart 8 innovative patient-led research projects focused on #MECFS & #LongCOVID.
1/8
We’re excited to announce that our nonprofit, Renegade Research, has been awarded a grant from Vitalik Buterin's Kanro Filantropic Fund to kickstart 8 innovative patient-led research projects focused on #MECFS & #LongCOVID.
1/8
December 3, 2024 at 6:26 PM
Exciting news this Giving Tuesday!
We’re excited to announce that our nonprofit, Renegade Research, has been awarded a grant from Vitalik Buterin's Kanro Filantropic Fund to kickstart 8 innovative patient-led research projects focused on #MECFS & #LongCOVID.
1/8
We’re excited to announce that our nonprofit, Renegade Research, has been awarded a grant from Vitalik Buterin's Kanro Filantropic Fund to kickstart 8 innovative patient-led research projects focused on #MECFS & #LongCOVID.
1/8