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Reposted by Tara Nerte

The Real McCoy

@rippermd41.bsky.social

Underneath that post someone asked what it was like for Isla having the accusation of FII hanging over them. This is what her mom wrote.

“It broke Isla emotionally. So damaging, she didn't trust anyone except family after that.
Physically, it definitely caused a decline…”

Tweet from Sim: Both U & Isla sounded lovely. I can't imagine wot it must hy bn like 2have had aspersions of FIl hanging over U. Do U think it contributed 2Isla's condition deteriorating? I'd never heard of FIl until recently. It's unbelievable that the school/SW did that knowing how rare it

Reply from @swiftsswallows
@Swiftsswa... • Jul 20
It broke Isla emotionally. So damaging, she didn't trust anyone except family after that.
Physically, it definitely caused a decline, I think the months of being on high alert & in fear had an impact. The professionals involved lied, ganged up on us, the truth didn't matter 1/

Reply from @swiftswallows

Isla's paediatrician wasn't included until after Isla had been placed on Child Protection. Isla's tutor who supported us had complaints made against her by Social Services that she needed extra training as she couldn't see the non existent safeguarding concerns. 2/

Reply from @swiftsswallows

Isla had such a strong sense of right & wrong and the injustice of it was so hard. Knowing that there's no-one that you can trust & that you have no power definitely had an impact on decisions made re accessing medical care/support years later

Reply from Sim @docsimsim • Jul 21
I'm really sorry to hear that, it's a crime how kids with ME have been/continue to be treated. Was Isla ever forced to have GET/CBT?

Reply from @swiftsswallows

Not forced. We tried to follow increases and did for a few months but then Isla deteriorated hugely. She was only mildly affected to begin with. Was told to push through the pain, pain dismissed as growing pains but stopped following the plan. 1/

Reply from @swiftsswallows

Trouble was when we stopped professionals raised concerns. With CBT Isla didn't have any as CAHMS said she showed no signs of wanting to improve so that led to Family Therapy offered to just me & her dad, to change our perceptions of illness as that was stopping Isla improving. 2/
6:42 PM • Jul 21, 2025 •

Reply @swiftsswallows

We declined that as knew it was poop emoji & so then Isla was offered 1:1 sessions CBT based to work on setting goals and targets. We declined that as well. Isla desperately wanted to do stuff, she didn't need goals. 3/

Reply @swiftsswallows..•Jul21 ..
Looking back we declined a lot of things. Catch 22 really - engage with poop emoji CBT & GET and get worse or refuse so as to protect your child but then have Social Services involved.

July 31, 2025 at 6:32 PM

Reposted by Tara Nerte

The Real McCoy

@rippermd41.bsky.social

If you are unfamiliar with Myalgic Encephalomyelitis (ME) aka #MECFS it is a serious complex multisystem disease.

But for decades it’s been dismissed, psychologized and ignored.

@georgemonbiot.bsky.social calls it “the greatest medical scandal of the 21st century.”

July 31, 2025 at 4:54 PM

Reposted by Tara Nerte

sarah boothby

@swastrosarah.bsky.social

@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.

sarah boothby @swastrosarah.bsky.social · Jul 31

Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights

July 31, 2025 at 7:11 AM

Reposted by Tara Nerte

sarah boothby

@swastrosarah.bsky.social

Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights

July 31, 2025 at 6:45 AM

Reposted by Tara Nerte

Yann (ME/LC)

@me-cfs.bsky.social

This is Isla at age 8.

She died at age 18 with severe ME/CFS.

Isla’s mum, who took care of Isla and tried to protect her from abusive medical professionals has been arrested. The state and medical system are trying to blame her for a death resulting from neglect and harmful medical practice.

More, more, more

You are meant to understand my illness but you all do is push, push, push. Nothing I do is ever good enough. I am proud and think you will be pleased with me as I have been going to school much more than before, but all you do is say I need to stay there longer, and if I feel ill I can’t [go] home early. I can’t get to sleep at night and you make me feel like it is my fault. You tell my parents to ignore me at night time, even when I am upset and feeling scared and lonely. Lucky for me they ignore you! I am so tired but you say I still have to get out of bed and walk even at the weekend after I have been at school all week. I don’t like coming to see you, it makes me worry what you are going to ask me to do next. My mum tells you I sometimes feel much worse but you tell us I just have to do more, more, more. You speak to my school and I worry they will be on your side and expect more of me too. I worry about what you are going to tell us to do next. I think you should care more about the children who come to see you and try to understand what they are going through.

From Isla aged 8

July 31, 2025 at 12:40 PM

Reposted by Tara Nerte

The Guardian

@theguardian.com

‘Gaza must be eliminated’: Israel’s airwaves are filled with pro-genocide propaganda | Arwa Mahdawi

Here is a collection of 20 of the more outrageous statements by Israeli lawmakers or public figures since 7 October 2023

www.theguardian.com

June 27, 2025 at 10:23 AM

Reposted by Tara Nerte

C.H. Romatowski

@chromatowski.bsky.social

This is a family I know and I’d be grateful for any leads or shares especially if you know people in the area.

ME/CFS San Diego @mecfssd.bsky.social · Jun 28

Help needed for young adult with rapidly worsening ME/CFS in Temecula, CA. Bedbound with increasingly very severe symptoms, needs compassionate hospital care or skilled nursing support. Any Southern CA lived experience, hospital, supportive, or nursing home recommendations? info@mecfsSanDiego.com.

ME/CFS crisis in Temecula, CA
YOUNG ADULT WITH ME/CFS IS RAPIDLY DECLINING.
severely ill, needs safe medical care and support now.
Seeking advice, housing, and help.
info@mecfsSanDiego.com
ME/CFS

June 28, 2025 at 8:21 PM

Reposted by Tara Nerte

Isabel Ramirez-Burnett

@isabelrb.bsky.social

My birthday is in 2 days. Help me celebrate by helping me do the work to advance research and care of MECFS and Long Covid at @renegaderesearch.bsky.social

Donate to my birthday fundraiser if you are able. Any amount helps

tinyurl.com/Renegage-Res...

Isabel Ramírez-Burnett

Remission Biome is a community science, patient and caregiver-led project of the non-profit, decentralized research organization, Renegade Research. We work in collaboration with researchers and clini...

tinyurl.com

June 30, 2025 at 11:47 AM

Reposted by Tara Nerte

e. hashman

@eha.sh

There is no limit to my match this month!! So I've created fundraisers for:

@openmedf.bsky.social: openmedicinefoundation.crowdchange.co/50084
@meactnet.bsky.social: meaction.funraise.org/fundraiser/e...

But I will match any donations to ME-supporting 501c3s with a receipt.

May 12, 2025 at 4:26 PM

Reposted by Tara Nerte

Tara Nerte

@taranerte.bsky.social

This is Nevra. Campaigner for health equity in the global south. #DV survivor. Wildly generous with her many talents. Severe illness haver, without support in Pakistan as an unmarried disabled woman...

screenshot of Nevra's Bluesky bio @nlizaki.bsky.social

February 20, 2025 at 7:51 PM

Tara Nerte

@taranerte.bsky.social

Unable to be here much lately, but I need you to know about this firecracker activist whose light may be snuffed out without more support. 🔥‼️

Passionate about women’s rights, health, and global equity? Please read on... 🧵

Yellow and orange sunburst background with the words “Fight fascism: Equip good people to do good”

February 20, 2025 at 7:51 PM

Reposted by Tara Nerte

Tara Nerte

@taranerte.bsky.social

Still looking... 👁️🔍
DMs open, if you know of capable + conscientious + Covid-safe eye doctors in the Kitchener-Waterloo area. 🙏

Tara Nerte @taranerte.bsky.social · Oct 7

Seeking #Covid -safe eye doctors (optometrist, & possibly ophthalmologist) in Kitchener-Waterloo. 👁️👁️
🔸 I’m immune-deficient & chronically ill—can’t take risks. 🔸 Clean air is good, but doctor must be willing to 😷.
Please comment or DM if you can recommend someone! 🙏
Reskeets appreciated. 💜

Medic wearing an N95 mask, next to a schematic of the eye. Text reads: Help me find a safe eye doctor?

October 18, 2024 at 7:34 PM

Reposted by Tara Nerte

Susan Kiddie 🍉

@susankiddie.bsky.social

My Canadian peoples.

Looking for recommendations for a reputable online pharmacy.

Finally breaking down and considering taking rx medication for my chronic pain and need to have it delivered. Sigh.

Any suggestions would be appreciated.

October 18, 2024 at 5:23 PM

Reposted by Tara Nerte

George Monbiot

@georgemonbiot.bsky.social

This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...

Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot

Chronic fatigue syndrome is as physiological as a broken leg. We must learn all we can from this tragic case, says Guardian columnist George Monbiot

www.theguardian.com

October 18, 2024 at 6:39 AM

Tara Nerte

@taranerte.bsky.social

Still looking... 👁️🔍
DMs open, if you know of capable + conscientious + Covid-safe eye doctors in the Kitchener-Waterloo area. 🙏

Tara Nerte @taranerte.bsky.social · Oct 7

Seeking #Covid -safe eye doctors (optometrist, & possibly ophthalmologist) in Kitchener-Waterloo. 👁️👁️
🔸 I’m immune-deficient & chronically ill—can’t take risks. 🔸 Clean air is good, but doctor must be willing to 😷.
Please comment or DM if you can recommend someone! 🙏
Reskeets appreciated. 💜

October 18, 2024 at 7:34 PM

Tara Nerte

@taranerte.bsky.social

Seeking #Covid -safe eye doctors (optometrist, & possibly ophthalmologist) in Kitchener-Waterloo. 👁️👁️
🔸 I’m immune-deficient & chronically ill—can’t take risks. 🔸 Clean air is good, but doctor must be willing to 😷.
Please comment or DM if you can recommend someone! 🙏
Reskeets appreciated. 💜

October 7, 2024 at 5:15 PM

Reposted by Tara Nerte

Erin Raeburn

@erinraeburn.bsky.social

Canadian MCAS folks: Cromolyn eye drops have been recalled due to infection risk. Apparently the preservative isn't effective enough and there could be mold and bacteria growth. #MCAS #ChronicIllness 🇨🇦

www.ctvnews.ca/health/eye-d...

Eye drops recalled in Canada over infection risk

A Canadian pharmaceutical company is warning consumers not to use some of its eye drops because of potential microbial growth that may result in eye infections.

www.ctvnews.ca

September 28, 2024 at 3:31 PM

Reposted by Tara Nerte

Kelly

@broadwaybabyto.bsky.social

It’s a terrifying time to be a patient. I have home nursing for BP checks & IV fluids…yet 3 times nurses have tried to administer insulin. I’m not diabetic.

What if I were unconscious or unable to correct them?

2 out of 3 got mad at me for correcting them & tried to force the insulin on me /1

September 17, 2024 at 2:45 AM

Reposted by Tara Nerte

Susan Kiddie 🍉

@susankiddie.bsky.social

My Covid cautious people, I am trying to figure out how best to Covid proof the main level of a bungalow that has a separate basement unit. Any thoughts or resources?

Thanks

##CovidIsAirborne

August 5, 2024 at 12:53 AM

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Susan Kiddie 🍉

@susankiddie.bsky.social

Israel using water as weapon of war as Gaza supply plummets by 94%, creating deadly health catastrophe: Oxfam 

Israel damaged or destroyed five water and sanitation sites every three days since the start of this war

www.oxfam.org/en/press-rel...

Israel using water as weapon of war as Gaza supply plummets by 94%, creating deadly health catastrophe: Oxfam  | Oxfam International

www.oxfam.org

July 18, 2024 at 4:04 PM

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🇨🇦Joe Vipond🇨🇦

@jvipondmd.bsky.social

Hey All! Quick ask from the @cancovsoc.bsky.social. We've been gifted w/ amazing volunteers for many of our committees. But we do need some smart vols to help us with FUNDRAISING!If u care about our work, and have experience in non-profit Fundraising, plz reach out by DM!We'd love your help!

July 15, 2024 at 2:05 PM