Carol Van Hulle
@phdcarolvh.bsky.social
Research Scientist with the Wisconsin Alzheimer's Disease Research center. Research interests include early detection and diagnosis through speech patterns, memory complaints, and behavioral changes, and fluid biomarkers.
First hint that anti-amyloid antibodies may delay symptom onset. This preliminary study is the basis of an NIH grant that is now stalled.
Researchers find a hint at how to delay Alzheimer's symptoms. Now they have to prove it
An experimental treatment appears to postpone Alzheimer's symptoms in some people genetically destined to get the disease at a young age.
apnews.com
March 31, 2025 at 2:25 PM
First hint that anti-amyloid antibodies may delay symptom onset. This preliminary study is the basis of an NIH grant that is now stalled.
Reposted by Carol Van Hulle
This is catastrophic for pancreatic cancer patients
March 26, 2025 at 12:11 PM
This is catastrophic for pancreatic cancer patients
Reposted by Carol Van Hulle
1- Important reporting by @propublica.org regarding potential censorship of research findings at the National Cancer Institute - with implications both for academic freedom and for the advancement of science.
#medsky
www.propublica.org/article/nati...
#medsky
www.propublica.org/article/nati...
National Cancer Institute Employees Can’t Publish Information on These Topics Without Special Approval
Vaccines. Fluoride. Autism. Communications involving these and 20 other “controversial, high profile, or sensitive” topics will get extra scrutiny under Health Secretary Robert F. Kennedy Jr.
www.propublica.org
March 10, 2025 at 9:01 PM
1- Important reporting by @propublica.org regarding potential censorship of research findings at the National Cancer Institute - with implications both for academic freedom and for the advancement of science.
#medsky
www.propublica.org/article/nati...
#medsky
www.propublica.org/article/nati...
Reposted by Carol Van Hulle
And this is BEFORE Bhattacharya’s confirmation vote.
If Bhattacharya becomes NIH director he’ll weaponize the whole NIH grant portfolio like this— to serve political ends. Not just for vaccines but to punish universities Republicans do not like.
If Bhattacharya becomes NIH director he’ll weaponize the whole NIH grant portfolio like this— to serve political ends. Not just for vaccines but to punish universities Republicans do not like.
wapo.st/3Dw7WG0
NIH email: “It is the policy of NIH not to prioritize research activities that focuses gaining scientific knowledge on why individuals are hesitant to be vaccinated and/or explore ways to improve vaccine interest and commitment...Therefore, the award is terminated.”
NIH email: “It is the policy of NIH not to prioritize research activities that focuses gaining scientific knowledge on why individuals are hesitant to be vaccinated and/or explore ways to improve vaccine interest and commitment...Therefore, the award is terminated.”
NIH to terminate or limit grants related to vaccine hesitancy and uptake
The order covers more than 40 awards to researchers around the country seeking to understand why vaccine acceptance has declined.
wapo.st
March 11, 2025 at 12:12 AM
And this is BEFORE Bhattacharya’s confirmation vote.
If Bhattacharya becomes NIH director he’ll weaponize the whole NIH grant portfolio like this— to serve political ends. Not just for vaccines but to punish universities Republicans do not like.
If Bhattacharya becomes NIH director he’ll weaponize the whole NIH grant portfolio like this— to serve political ends. Not just for vaccines but to punish universities Republicans do not like.
Reposted by Carol Van Hulle
What are the risks of cancer from drinking alcohol?
I reported on this for @nature.com and summarized what the science says - and how to think about the risks.
www.nature.com/articles/d41...
I reported on this for @nature.com and summarized what the science says - and how to think about the risks.
www.nature.com/articles/d41...
Alcohol and cancer risk: what you need to know
Experts weigh in on the risks of moderate drinking — and how people should assess them.
www.nature.com
March 11, 2025 at 1:17 PM
What are the risks of cancer from drinking alcohol?
I reported on this for @nature.com and summarized what the science says - and how to think about the risks.
www.nature.com/articles/d41...
I reported on this for @nature.com and summarized what the science says - and how to think about the risks.
www.nature.com/articles/d41...
Reposted by Carol Van Hulle
As we learn Gene Hackman had severe Alzheimer’s, we find out that Trump and Musk are killing research into Alzheimer’s cures.
The Trump/Musk crime spree has to be stopped. Get their hands off our government.
The Trump/Musk crime spree has to be stopped. Get their hands off our government.
🧪The Alzheimer's Disease Research Center program is a crown jewel in the NIA's funding portfolio. 35 centers in red, blue and purple states put data in a single repository working towards a shared goal of curing AD. Funding for center renewals is on hold.
tinyurl.com/yc2pr626
#standupforscience2025
tinyurl.com/yc2pr626
#standupforscience2025
March 8, 2025 at 1:43 PM
As we learn Gene Hackman had severe Alzheimer’s, we find out that Trump and Musk are killing research into Alzheimer’s cures.
The Trump/Musk crime spree has to be stopped. Get their hands off our government.
The Trump/Musk crime spree has to be stopped. Get their hands off our government.
Reposted by Carol Van Hulle
The @standupforscience.bsky.social DC rally is on.
What we are hearing from around the country:
"this is big!"
"biggest rally I have seen around here in years and years"
The public cares about medical research--and students, GenZ, and other people too are ready to stand up.
What we are hearing from around the country:
"this is big!"
"biggest rally I have seen around here in years and years"
The public cares about medical research--and students, GenZ, and other people too are ready to stand up.
March 7, 2025 at 6:40 PM
The @standupforscience.bsky.social DC rally is on.
What we are hearing from around the country:
"this is big!"
"biggest rally I have seen around here in years and years"
The public cares about medical research--and students, GenZ, and other people too are ready to stand up.
What we are hearing from around the country:
"this is big!"
"biggest rally I have seen around here in years and years"
The public cares about medical research--and students, GenZ, and other people too are ready to stand up.
Reposted by Carol Van Hulle
Yes. Journalists should note this:
Every science or tech student, age 5-35 today, is looking at the destruction of their career prospects due to Trump and Musk.
We should be interviewing those students and talking about the impact to their lives.
Every science or tech student, age 5-35 today, is looking at the destruction of their career prospects due to Trump and Musk.
We should be interviewing those students and talking about the impact to their lives.
Every one of my friends is asking “do I even have a career going forward”
“Our next generation of researchers are now poised on the edge of this cliff, not knowing if there’s going to be a bridge that’s going to get them to the other side, or if this is it”
Musk and Trump are blowing up science careers for every STEM student.
Musk and Trump are blowing up science careers for every STEM student.
March 8, 2025 at 2:21 PM
Yes. Journalists should note this:
Every science or tech student, age 5-35 today, is looking at the destruction of their career prospects due to Trump and Musk.
We should be interviewing those students and talking about the impact to their lives.
Every science or tech student, age 5-35 today, is looking at the destruction of their career prospects due to Trump and Musk.
We should be interviewing those students and talking about the impact to their lives.
Reposted by Carol Van Hulle
Please read the stories of these amazing scientists, the work they do to keep our food supply safe and stable, and make sure everyone in your life knows that this crucial work is being gutted by this administration and that needs to stop.
@altusda.altgov.info @altnih4science.bsky.social
@altusda.altgov.info @altnih4science.bsky.social
March 8, 2025 at 2:39 PM
Please read the stories of these amazing scientists, the work they do to keep our food supply safe and stable, and make sure everyone in your life knows that this crucial work is being gutted by this administration and that needs to stop.
@altusda.altgov.info @altnih4science.bsky.social
@altusda.altgov.info @altnih4science.bsky.social
Thanks to everyone who stood up for science at the WI state Capitol #standupforscience
www.channel3000.com/news/stand-u...
www.channel3000.com/news/stand-u...
'Stand up for Science' protest brings hundreds to Wisconsin Capitol
Protestors speak out against defunding the National Institutes of Health
www.channel3000.com
March 8, 2025 at 5:25 PM
Thanks to everyone who stood up for science at the WI state Capitol #standupforscience
www.channel3000.com/news/stand-u...
www.channel3000.com/news/stand-u...
Reposted by Carol Van Hulle
Reposted by Carol Van Hulle
Stop collaborate and listen! 😀Yesterday was a great day for science! Thank you @standupforscience.bsky.social !The real work begins now. People are listening! We need to challenge misunderstandings and show that investment in science is crucial for our health for our economy and for our future!
March 8, 2025 at 3:37 PM
Stop collaborate and listen! 😀Yesterday was a great day for science! Thank you @standupforscience.bsky.social !The real work begins now. People are listening! We need to challenge misunderstandings and show that investment in science is crucial for our health for our economy and for our future!
Reposted by Carol Van Hulle
Look, I love Executive Orders. And I [huge eyeroll] helped write a couple. But EOs are not laws. They are polite requests to executive branch agencies who if they want to, can say, “we are working to achieve the objectives outlined in the Executive Order, and will update you in the future. [laughs]”
Executive Orders are not laws.
They are not legally binding.
They are a way for a President to signal their interpretation of actual laws. And if they're not blatantly unconstitutional, they can have some force in the executive branch.
They cannot take over the legislative or judicial powers.
They are not legally binding.
They are a way for a President to signal their interpretation of actual laws. And if they're not blatantly unconstitutional, they can have some force in the executive branch.
They cannot take over the legislative or judicial powers.
March 4, 2025 at 7:12 PM
Reposted by Carol Van Hulle
"No probationary nurses were fired but it was a bloodbath for the lab work people."
"Turnaround times for bloodwork and disease labs increased dramatically" - which affects patient care and clinical trials.
"Turnaround times for bloodwork and disease labs increased dramatically" - which affects patient care and clinical trials.
elmo from sesame street is standing in front of a wall of flames
Alt: elmo from sesame street is standing in front of a wall of flames
media.tenor.com
March 4, 2025 at 6:16 PM
"No probationary nurses were fired but it was a bloodbath for the lab work people."
"Turnaround times for bloodwork and disease labs increased dramatically" - which affects patient care and clinical trials.
"Turnaround times for bloodwork and disease labs increased dramatically" - which affects patient care and clinical trials.
Reposted by Carol Van Hulle
The Trump administration is killing cancer research. I can't imagine this is what anyone voted for.
Fred Hutchinson Cancer Center is a major NIH-supported hospital and research center in Seattle.
And NIH funds many essential clinical trials that cannot be supported by the private sector. This is devastating.
And NIH funds many essential clinical trials that cannot be supported by the private sector. This is devastating.
An oncology nurse told me yesterday that NIH supported (but not pharma supported) clinical trials have been paused at Fred Hutch 😢
March 4, 2025 at 9:10 PM
The Trump administration is killing cancer research. I can't imagine this is what anyone voted for.
Reposted by Carol Van Hulle
The Hutch🩸is a very important place in my life…I’m on my second life because of the incredible talented researchers,doctors nurses and staff ❤️☮️ I’m worried that we will lose good people to diseases that are curable and lose the talent that develops the cures
March 4, 2025 at 9:18 PM
The Hutch🩸is a very important place in my life…I’m on my second life because of the incredible talented researchers,doctors nurses and staff ❤️☮️ I’m worried that we will lose good people to diseases that are curable and lose the talent that develops the cures
Reposted by Carol Van Hulle
It is not "just a pause". It can destroy everything a lab has worked for.
February 10, 2025 at 4:47 PM
It is not "just a pause". It can destroy everything a lab has worked for.
Read through all the comments on this article. It is a fascinating discussion on whether reductions in AD related brain changes (e.g. reduction in amyloid plaques) is enough to approve a drug. Or should clinical trials still be required to show a change in actual symptoms of AD?
Is It Time to Approve Drugs Based on Amyloid Removal? | ALZFORUM
www.alzforum.org
February 10, 2025 at 4:45 PM
Read through all the comments on this article. It is a fascinating discussion on whether reductions in AD related brain changes (e.g. reduction in amyloid plaques) is enough to approve a drug. Or should clinical trials still be required to show a change in actual symptoms of AD?