Mora
@longcovidisreal.bsky.social
POTS , LC 🎗️
Invisible illness warrior
Invisible illness warrior
Reposted by Mora
James is looking for folks who’ve dealt with pediatric POTS in order to help a friend.
If that’s you (or someone you love) please comment and hopefully we can help this 9 year old who could use some support.
If that’s you (or someone you love) please comment and hopefully we can help this 9 year old who could use some support.
Pediatric POTS
I have a friend whose 9-year old daughter has been diagnosed with POTS. She is on some heart meds, but is still passing out. I'm looking for any pediatric-specific POTS site/tweet/etc that I can pass on to this scared Mom. Thanks
@broadwaybabyto - Thanks for your help!
I have a friend whose 9-year old daughter has been diagnosed with POTS. She is on some heart meds, but is still passing out. I'm looking for any pediatric-specific POTS site/tweet/etc that I can pass on to this scared Mom. Thanks
@broadwaybabyto - Thanks for your help!
February 19, 2025 at 1:49 AM
James is looking for folks who’ve dealt with pediatric POTS in order to help a friend.
If that’s you (or someone you love) please comment and hopefully we can help this 9 year old who could use some support.
If that’s you (or someone you love) please comment and hopefully we can help this 9 year old who could use some support.
Reposted by Mora
New research from Stony Brook University finds 85% of Long COVID patients had multiple COVID infections, highlighting a link between repeated infections and higher risk of Long COVID. Vaccination before infection reduced risk. Read more in The Lancet Regional Health—Americas. #LongCOVID #COVID
Patients who have had multiple COVID infections appear prone to contracting long COVID
A new study that identified 475 patients with post-acute sequelae of COVID-19 (PASC), also known as long COVID, revealed that nearly 85% (403) of these patients had multiple COVID-19 infections over t...
medicalxpress.com
January 17, 2025 at 12:30 PM
New research from Stony Brook University finds 85% of Long COVID patients had multiple COVID infections, highlighting a link between repeated infections and higher risk of Long COVID. Vaccination before infection reduced risk. Read more in The Lancet Regional Health—Americas. #LongCOVID #COVID
Reposted by Mora
When people think of #LongCovid many think of fatigue. But for some that’s not an issue. Here’s a report on Kelsie Gonzalez’s hearing loss & #tinnitus.
“Intensity of the ring just got louder & louder. I felt very isolated… I was just in my head with that horn sound”
www.local10.com/news/local/2...
“Intensity of the ring just got louder & louder. I felt very isolated… I was just in my head with that horn sound”
www.local10.com/news/local/2...
HealthCAST: For some, long Covid includes hearing loss
Kelsie Gonzalez got married last year. It was the perfect day despite the bride’s struggles with long Covid.
www.local10.com
January 18, 2025 at 8:52 AM
When people think of #LongCovid many think of fatigue. But for some that’s not an issue. Here’s a report on Kelsie Gonzalez’s hearing loss & #tinnitus.
“Intensity of the ring just got louder & louder. I felt very isolated… I was just in my head with that horn sound”
www.local10.com/news/local/2...
“Intensity of the ring just got louder & louder. I felt very isolated… I was just in my head with that horn sound”
www.local10.com/news/local/2...
Reposted by Mora
In the clerb, we all cryin 💔
January 18, 2025 at 4:29 PM
In the clerb, we all cryin 💔
Reposted by Mora
If you’re doing everything you can to avoid COVID & you get sick anyways, you were failed by society. You did not fail.
You were failed by governments & public health who’ve abdicated all responsibility. By people who won’t take the most basic precautions.
It’s not your fault.
You were failed by governments & public health who’ve abdicated all responsibility. By people who won’t take the most basic precautions.
It’s not your fault.
January 5, 2025 at 8:35 PM
If you’re doing everything you can to avoid COVID & you get sick anyways, you were failed by society. You did not fail.
You were failed by governments & public health who’ve abdicated all responsibility. By people who won’t take the most basic precautions.
It’s not your fault.
You were failed by governments & public health who’ve abdicated all responsibility. By people who won’t take the most basic precautions.
It’s not your fault.
Reposted by Mora
Real, "It would be easier to just curl up into a ball and die," hours here. #longcovid
January 15, 2025 at 3:00 PM
Real, "It would be easier to just curl up into a ball and die," hours here. #longcovid
Reposted by Mora
Watch the start of the Guardian series on first-hand experiences of living with #LongCovid
www.theguardian.com/society/vide...
www.theguardian.com/society/vide...
‘The pandemic isn’t over’: my year of long Covid – video
Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and...
www.theguardian.com
January 14, 2025 at 8:53 PM
Watch the start of the Guardian series on first-hand experiences of living with #LongCovid
www.theguardian.com/society/vide...
www.theguardian.com/society/vide...
Reposted by Mora
Good watch. It'll be my 3rd anniversary this year with long covid in November. This gives a glimpse into that life. We are all different but there are commonalities.
📺Emotive, beautifully shot doc by The Guardian of a year with Long Covid with @greendarrenshipley.bsky.social
It powerfully depicts the devastating impact #LongCovid is still having on individuals, families and society.
youtu.be/3mzG8j16FlQ?...
It powerfully depicts the devastating impact #LongCovid is still having on individuals, families and society.
youtu.be/3mzG8j16FlQ?...
My year of long covid: 'the pandemic isn't over'
YouTube video by The Guardian
youtu.be
January 14, 2025 at 9:04 PM
Good watch. It'll be my 3rd anniversary this year with long covid in November. This gives a glimpse into that life. We are all different but there are commonalities.
Long COVID is indeed a real condition, and it can indeed affect adolescents.
#LONGCOVID
#BrainFog
#POTS
#LONGCOVID
#BrainFog
#POTS
January 15, 2025 at 3:05 AM
Long COVID is indeed a real condition, and it can indeed affect adolescents.
#LONGCOVID
#BrainFog
#POTS
#LONGCOVID
#BrainFog
#POTS
Reposted by Mora
Keep it up folks! Times just wrote about medical gaslighting of long covid patients. I’m shocked. I think institutions like @sickkidsvs.bsky.social and the Canadian paediatric society will have increasing difficulties gaslighting long covid kids.
time.com/7206080/long...
time.com/7206080/long...
Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards
The chronic illnesses that make doctors doubt their patients often start after what “should” be a short-lived sickness—like COVID-19.
time.com
January 14, 2025 at 11:28 PM
Keep it up folks! Times just wrote about medical gaslighting of long covid patients. I’m shocked. I think institutions like @sickkidsvs.bsky.social and the Canadian paediatric society will have increasing difficulties gaslighting long covid kids.
time.com/7206080/long...
time.com/7206080/long...
Reposted by Mora
Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards - TIME
January 14, 2025 at 11:56 PM
Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards - TIME
Reposted by Mora
US: 4 in 10 Minnesota COVID survivors report having at least 1 lingering symptom.
"This suggests that an estimated 365,000 adults in Minnesota could have experienced symptoms of long COVID"
www.cidrap.umn.edu/covid-19/4-1...
"This suggests that an estimated 365,000 adults in Minnesota could have experienced symptoms of long COVID"
www.cidrap.umn.edu/covid-19/4-1...
4 in 10 Minnesota COVID survivors report having at least 1 lingering symptom
Participants who received at least 1 COVID-19 vaccine booster dose had a 30% lower risk of long-COVID symptoms than their unvaccinated peers.
www.cidrap.umn.edu
January 15, 2025 at 1:09 AM
US: 4 in 10 Minnesota COVID survivors report having at least 1 lingering symptom.
"This suggests that an estimated 365,000 adults in Minnesota could have experienced symptoms of long COVID"
www.cidrap.umn.edu/covid-19/4-1...
"This suggests that an estimated 365,000 adults in Minnesota could have experienced symptoms of long COVID"
www.cidrap.umn.edu/covid-19/4-1...
Reposted by Mora
I have an article about the importance of patient-driven research for #LongCovid coming out soon & the magazine where it's publishing wants me to recommend five people (researchers, advocates, etc) that they will contact to ask to react to the piece in a forum. I have a several patient […]
Original post on sciencemastodon.com
sciencemastodon.com
January 15, 2025 at 1:37 AM
I have an article about the importance of patient-driven research for #LongCovid coming out soon & the magazine where it's publishing wants me to recommend five people (researchers, advocates, etc) that they will contact to ask to react to the piece in a forum. I have a several patient […]
Reposted by Mora
"Researcher Marissa Rakus says almost every woman you meet has at least one story of medical gaslighting."
Link to study website: www.healuwindsor.com/copy-of-medi...
#AcademicSky #EpiSky #MedSky #WomensHealth
Link to study website: www.healuwindsor.com/copy-of-medi...
#AcademicSky #EpiSky #MedSky #WomensHealth
January 12, 2025 at 5:36 PM
"Researcher Marissa Rakus says almost every woman you meet has at least one story of medical gaslighting."
Link to study website: www.healuwindsor.com/copy-of-medi...
#AcademicSky #EpiSky #MedSky #WomensHealth
Link to study website: www.healuwindsor.com/copy-of-medi...
#AcademicSky #EpiSky #MedSky #WomensHealth
Reposted by Mora
Of course it’s “Not All Men” but it’s definitely 100% of the men who say “Not All Men”.
Hit dogs always holler.
Hit dogs always holler.
January 14, 2025 at 12:44 PM
Of course it’s “Not All Men” but it’s definitely 100% of the men who say “Not All Men”.
Hit dogs always holler.
Hit dogs always holler.
Reposted by Mora
I’m sad / brain upset again but I’m not going to make yesterday’s mistake and try to look into a stressful thing. Any mistakes I make instead will be new and exciting.
January 15, 2025 at 2:13 AM
I’m sad / brain upset again but I’m not going to make yesterday’s mistake and try to look into a stressful thing. Any mistakes I make instead will be new and exciting.
Reposted by Mora
It is impossible to overstate how amazing PrEP is and that it is one of the greatest medical breakthroughs in history. HIV was a literal death sentence when I was a teenager. No hope. This is a monumental achievement in human history. But no, not for us.
Right wing extremists are trying to block access to PrEP, which all but eliminates HIV risk.
It’s part of their Make America Sick Again agenda.
PrEP can end HIV infections globally. These zealots don’t want that. They want to go back to the 1950s. They want people to get HIV as punishment for sin.
It’s part of their Make America Sick Again agenda.
PrEP can end HIV infections globally. These zealots don’t want that. They want to go back to the 1950s. They want people to get HIV as punishment for sin.
SCOTUS Takes Up Case Challenging the ACA’s No-Cost Coverage of PrEP
Two Christian-owned companies are challenging the Affordable Care Act’s mandate that insurers cover certain preventive services — including PrEP — at no cost.
www.them.us
January 14, 2025 at 7:59 PM
It is impossible to overstate how amazing PrEP is and that it is one of the greatest medical breakthroughs in history. HIV was a literal death sentence when I was a teenager. No hope. This is a monumental achievement in human history. But no, not for us.
Reposted by Mora
BREAKING: Pete Hegseth refuses to answer whether he would follow an order from Donald Trump that violates the United States Constitution.
January 14, 2025 at 6:44 PM
BREAKING: Pete Hegseth refuses to answer whether he would follow an order from Donald Trump that violates the United States Constitution.
Reposted by Mora
Now that my body is falling apart I have to find someone who loves me for my personality, so I guess I’m dying alone now
January 14, 2025 at 10:59 PM
Now that my body is falling apart I have to find someone who loves me for my personality, so I guess I’m dying alone now
Reposted by Mora
At LEAST twice a day I say to myself “maybe I should get tested for ADHD”
January 14, 2025 at 3:26 PM
At LEAST twice a day I say to myself “maybe I should get tested for ADHD”
Reposted by Mora
I know this website has truly replaced Twitter because I'm now regularly getting people who don't follow me in my mentions assuming I don't know anything about the thing I'm posting about.
January 14, 2025 at 11:32 AM
I know this website has truly replaced Twitter because I'm now regularly getting people who don't follow me in my mentions assuming I don't know anything about the thing I'm posting about.
Reposted by Mora
Oral surgeon consult. Got my readimask on under my aura & my mini hepa in my purse. First appointment of the day.
December 17, 2024 at 12:57 PM
Oral surgeon consult. Got my readimask on under my aura & my mini hepa in my purse. First appointment of the day.