Katie Lazell-Fairman
@klazell.bsky.social
Artist, Long Covid, ME/CFS, POTS, EDS, previously Data Scientist. Life on pause due to #longcovid. Climate collapse aware.
Reposted by Katie Lazell-Fairman
We’re sharing madeleines and earl grey tea for #BlueSunday #TeaPartyforME! Madeleines are relatively easy to make for feeling so fancy and we’re happy to have been able to make them again.
May 18, 2025 at 6:49 PM
We’re sharing madeleines and earl grey tea for #BlueSunday #TeaPartyforME! Madeleines are relatively easy to make for feeling so fancy and we’re happy to have been able to make them again.
Reposted by Katie Lazell-Fairman
Whom up late thinking about how today might be the last day they were anything close to prosperous
April 9, 2025 at 4:04 AM
Whom up late thinking about how today might be the last day they were anything close to prosperous
Reposted by Katie Lazell-Fairman
It’s been five years since John Prine died of COVID-19. If you’re so inclined (and able — it’s long), here’s an essay I wrote about how his songs helped me accept a life with the debilitating, deeply marginalized chronic illness ME/CFS. 1/3
How Singer-Songwriter John Prine Helped Me Accept A Life of Illness
It’s been a year since Prine died of COVID-19. His death made me reflect on what it means to be sick and how his songs helped me learn to…
m-lazell-fairman.medium.com
April 7, 2025 at 11:21 PM
It’s been five years since John Prine died of COVID-19. If you’re so inclined (and able — it’s long), here’s an essay I wrote about how his songs helped me accept a life with the debilitating, deeply marginalized chronic illness ME/CFS. 1/3
Reposted by Katie Lazell-Fairman
When scholars of authoritarianism and fascism leave U.S. universities because of the deteriorating political situation here, we should really worry.
March 26, 2025 at 12:50 AM
When scholars of authoritarianism and fascism leave U.S. universities because of the deteriorating political situation here, we should really worry.
Reposted by Katie Lazell-Fairman
🚨 🚨 🚨
Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts!
This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts!
This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
📣 #LongCOVID Community: With recent news, we're now hearing NIH RECOVER-TLC research & AHRQ Long COVID clinic funding could also be at risk. So LCC is launching a rapid-response campaign NOW to make it easier to call Congress & ask for #NoLongCOVIDCuts 1/x
bit.ly/NoLongCOVIDCutsCall
bit.ly/NoLongCOVIDCutsCall
March 26, 2025 at 2:38 AM
🚨 🚨 🚨
Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts!
This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts!
This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
Reposted by Katie Lazell-Fairman
Tucson, Arizona today.
Original projected attendance was 3,000 people.
23,000 showed up.
Original projected attendance was 3,000 people.
23,000 showed up.
March 22, 2025 at 9:10 PM
Tucson, Arizona today.
Original projected attendance was 3,000 people.
23,000 showed up.
Original projected attendance was 3,000 people.
23,000 showed up.
Reposted by Katie Lazell-Fairman
Martial law could happen in 30 days. Sound nuts? Look at what's already happening.
www.the-sentinel-intelligence.com/p/should-i-s...
www.the-sentinel-intelligence.com/p/should-i-s...
Should I Stay or Should I Go Now? 30 Days Until Martial Law...?
It could happen.
www.the-sentinel-intelligence.com
March 21, 2025 at 3:03 AM
Martial law could happen in 30 days. Sound nuts? Look at what's already happening.
www.the-sentinel-intelligence.com/p/should-i-s...
www.the-sentinel-intelligence.com/p/should-i-s...
Reposted by Katie Lazell-Fairman
Want to make a difference? Consider being a control in a clinical trial. Your participation can contribute to the future of science and medicine! Email CoreResearch@mountsinai.org if you're interested.
March 17, 2025 at 3:52 PM
Want to make a difference? Consider being a control in a clinical trial. Your participation can contribute to the future of science and medicine! Email CoreResearch@mountsinai.org if you're interested.
Reposted by Katie Lazell-Fairman
Whenever Zionists get pissed about a post like this I realize how much of their project depends on no one seeing Palestinians as actual people and it makes me so much more determined to have their stories be told.
There is a famine again in Gaza- no aid is getting in and electricity and water are severely limited. So if Gazans on here seem more persistent than usual please remember they are desperate and treat them how you’d hope someone would treat your family.
March 17, 2025 at 12:23 PM
Whenever Zionists get pissed about a post like this I realize how much of their project depends on no one seeing Palestinians as actual people and it makes me so much more determined to have their stories be told.
Reposted by Katie Lazell-Fairman
🏠 Without PIP, 700,000 more disabled households could be pushed into poverty.
Cutting this or other disability benefits would increase hardship for some of the poorest in society - something morally indefensible.
Read the letter in full here: www.scope.org.uk/campaigns/op... 3/3
Cutting this or other disability benefits would increase hardship for some of the poorest in society - something morally indefensible.
Read the letter in full here: www.scope.org.uk/campaigns/op... 3/3
The cost of cuts to disability benefits: Our open letter to the Chancellor | Disability charity Scope UK
Right now, the government is considering changes to disability benefits. But for millions of disabled people, these benefits are a lifeline. They are the difference between surviving and being pushed ...
www.scope.org.uk
March 14, 2025 at 5:41 PM
🏠 Without PIP, 700,000 more disabled households could be pushed into poverty.
Cutting this or other disability benefits would increase hardship for some of the poorest in society - something morally indefensible.
Read the letter in full here: www.scope.org.uk/campaigns/op... 3/3
Cutting this or other disability benefits would increase hardship for some of the poorest in society - something morally indefensible.
Read the letter in full here: www.scope.org.uk/campaigns/op... 3/3
Reposted by Katie Lazell-Fairman
The media won't tell you that people are still suffering from & becoming disabled by Long Covid. Each infection increases risk, even a mild case & even if you think you did fine previously. Getting repeatedly infected is not sustainable & public health is worse than ever. Protect yourself & others.
March 15, 2025 at 3:22 PM
The media won't tell you that people are still suffering from & becoming disabled by Long Covid. Each infection increases risk, even a mild case & even if you think you did fine previously. Getting repeatedly infected is not sustainable & public health is worse than ever. Protect yourself & others.
Reposted by Katie Lazell-Fairman
Started the day crying, seeing everyone sharing all their #LongCovidAwarenessDay stories. How many more will become disabled? Ignoring the problem won’t make it go away. We need real investments in research on sophisticated therapeutics. (Note the irony in the chart’s title)
March 15, 2025 at 3:50 PM
Started the day crying, seeing everyone sharing all their #LongCovidAwarenessDay stories. How many more will become disabled? Ignoring the problem won’t make it go away. We need real investments in research on sophisticated therapeutics. (Note the irony in the chart’s title)
Reposted by Katie Lazell-Fairman
My friend & colleague Heather Stone has worked tirelessly to fight for treatment for people with rare & incurable diseases, including #LongCOVID. This well-written article follows her work at FDA & the coinciding quest to cure a fatal infection: Balamuthia. 🧪
www.washingtonpost.com/opinions/int...
www.washingtonpost.com/opinions/int...
Opinion | The free-living bureaucrat
Michael Lewis on Heather Stone of the Food and Drug Administration.
www.washingtonpost.com
March 14, 2025 at 8:39 PM
My friend & colleague Heather Stone has worked tirelessly to fight for treatment for people with rare & incurable diseases, including #LongCOVID. This well-written article follows her work at FDA & the coinciding quest to cure a fatal infection: Balamuthia. 🧪
www.washingtonpost.com/opinions/int...
www.washingtonpost.com/opinions/int...
Reposted by Katie Lazell-Fairman
Chuck Schumer Helps Pull Democrats Back From Brink Of Courage
March 14, 2025 at 5:55 PM
Chuck Schumer Helps Pull Democrats Back From Brink Of Courage
Reposted by Katie Lazell-Fairman
This. If masking everywhere is too much, start with hospitals, doctor’s offices, and elder care facilities. It’s a small thing to help make these places safer for immunocompromised people like me.
Friendly reminder that it's never too late to start masking up again. And if you only mask some of the time, it's never too late to mask more often.
If either statements apply to you, there's no better time to mask up again than today.
If either statements apply to you, there's no better time to mask up again than today.
March 5, 2025 at 10:58 PM
This. If masking everywhere is too much, start with hospitals, doctor’s offices, and elder care facilities. It’s a small thing to help make these places safer for immunocompromised people like me.
Reposted by Katie Lazell-Fairman
For this #InternationalWomensDay I’m sharing one of my symptomatology embroideries, paresthesia (face) (2016). Paresthesias are tingling sensations. Mine are caused by #MECFS, a disease affecting mostly women, and the symptoms are often ignored or not taken seriously because of medical misogyny. 🧶
March 8, 2025 at 4:00 PM
For this #InternationalWomensDay I’m sharing one of my symptomatology embroideries, paresthesia (face) (2016). Paresthesias are tingling sensations. Mine are caused by #MECFS, a disease affecting mostly women, and the symptoms are often ignored or not taken seriously because of medical misogyny. 🧶
Reposted by Katie Lazell-Fairman
My fellow Americans, we officially hit a new low today.
Thanks to felon Trump’s all out assault on democracy, we are now on a civil rights loss warning list with the Democratic Republic of Congo, Italy, Pakistan & Serbia.
Nonviolent civil resistance is a must!
www.theguardian.com/us-news/2025...
Thanks to felon Trump’s all out assault on democracy, we are now on a civil rights loss warning list with the Democratic Republic of Congo, Italy, Pakistan & Serbia.
Nonviolent civil resistance is a must!
www.theguardian.com/us-news/2025...
US added to international watchlist for rapid decline in civic freedoms
Civicus, an international non-profit, puts country alongside Democratic Republic of Congo, Italy, Pakistan and Serbia
www.theguardian.com
March 10, 2025 at 1:29 AM
My fellow Americans, we officially hit a new low today.
Thanks to felon Trump’s all out assault on democracy, we are now on a civil rights loss warning list with the Democratic Republic of Congo, Italy, Pakistan & Serbia.
Nonviolent civil resistance is a must!
www.theguardian.com/us-news/2025...
Thanks to felon Trump’s all out assault on democracy, we are now on a civil rights loss warning list with the Democratic Republic of Congo, Italy, Pakistan & Serbia.
Nonviolent civil resistance is a must!
www.theguardian.com/us-news/2025...
Reposted by Katie Lazell-Fairman
Cutting disability benefits doesn't 'incentivise work'. But it does penalise and humiliate the disabled, and that's the real point.
March 9, 2025 at 6:54 PM
Cutting disability benefits doesn't 'incentivise work'. But it does penalise and humiliate the disabled, and that's the real point.
Reposted by Katie Lazell-Fairman
Reposted by Katie Lazell-Fairman
Deeply concerning news about our friend and former BF teammate Rebecca Burke whose backpacking trip to the US has ended with her being detained by ICE for over ten days, with no clear timeline for her release. Please read her father's statement here: www.facebook.com/paulrburke
March 9, 2025 at 7:49 PM
Deeply concerning news about our friend and former BF teammate Rebecca Burke whose backpacking trip to the US has ended with her being detained by ICE for over ten days, with no clear timeline for her release. Please read her father's statement here: www.facebook.com/paulrburke
Reposted by Katie Lazell-Fairman
Reposted by Katie Lazell-Fairman
The pwME in vid calling for return to “old fashioned convalescence” reminded me of a neighbor who got mono in 1950s. Her doc advised family to support her rest. Took 6 months, but she recovered from bedbound never to relapse.
It’s not total nonsense that there is lost wisdom, but RFKs BS is not it.
It’s not total nonsense that there is lost wisdom, but RFKs BS is not it.
One of the contributors to this wonderful video, pwME Horace Reid, just passed. It’s only 6 minutes and affecting. Well worth the watch. His portion begins at 4:54. #MECFS #LongCovid
Discover M.E.
YouTube video by Hope4MEFibroNI
youtu.be
March 3, 2025 at 11:03 PM
The pwME in vid calling for return to “old fashioned convalescence” reminded me of a neighbor who got mono in 1950s. Her doc advised family to support her rest. Took 6 months, but she recovered from bedbound never to relapse.
It’s not total nonsense that there is lost wisdom, but RFKs BS is not it.
It’s not total nonsense that there is lost wisdom, but RFKs BS is not it.
Reposted by Katie Lazell-Fairman
If you don’t wear a mask bc you’re worried friends or family will pull away, know that none of those ppl would be there for you anyway if you come down with a debilitating post-infectious illness like #LongCovid or #MECFS. 🧵
March 4, 2025 at 2:30 PM
If you don’t wear a mask bc you’re worried friends or family will pull away, know that none of those ppl would be there for you anyway if you come down with a debilitating post-infectious illness like #LongCovid or #MECFS. 🧵
Reposted by Katie Lazell-Fairman
As a sick person, I know the love that must have been in that house and want to believe that some of that somehow remains now that she and he have passed on. I want more for ppl to honor that love by breaking the veil in themselves that makes disabled ppl so foreign. 3/3
March 4, 2025 at 3:56 PM
As a sick person, I know the love that must have been in that house and want to believe that some of that somehow remains now that she and he have passed on. I want more for ppl to honor that love by breaking the veil in themselves that makes disabled ppl so foreign. 3/3
Reposted by Katie Lazell-Fairman
Watched a YT vid abt English artist William Hogarth. He supported one of the first orphanages, in part bc he’d spent 5 yrs growing up in a debtor’s prison w his family, after his father’s attempt to start a Latin-speaking coffee house failed. Can we stop listening to the ghouls that want that world?
‘There will meet some learned gentlemen’: Hogarth’s Coffee House at St. John’s Gate - Museum of the Order of St John
Richard Hogarth, father of the engraver and painter William, set up his coffee shop in 1704 at St. John’s Gate, Clerkenwell
museumstjohn.org.uk
March 4, 2025 at 4:16 PM
Watched a YT vid abt English artist William Hogarth. He supported one of the first orphanages, in part bc he’d spent 5 yrs growing up in a debtor’s prison w his family, after his father’s attempt to start a Latin-speaking coffee house failed. Can we stop listening to the ghouls that want that world?