An open book written in an arcane tongue.
Additional, never ulterior.
via.library.depaul.edu/cgi/viewcont...
Screenshot from Science for ME weekly update
#MEcfs #CFS
via.library.depaul.edu/cgi/viewcont...
Screenshot from Science for ME weekly update
#MEcfs #CFS
Being disabled is a 24/7 job. There’s no breaks. No vacation. No raises.
No one would do his for the “perks” because there aren’t any.
We deserve good healthcare, housing and an affordable living wage. We don’t get that.
Being disabled is a 24/7 job. There’s no breaks. No vacation. No raises.
No one would do his for the “perks” because there aren’t any.
We deserve good healthcare, housing and an affordable living wage. We don’t get that.
I miss the old me too, but this is my reality now.
I’m proud of who I’ve become, but I am suffering.
I’m exhausted and in pain every day. I can’t do most of the things that used to come naturally to me. I’m dependent on caregivers.
I miss the old me too, but this is my reality now.
I’m proud of who I’ve become, but I am suffering.
I’m exhausted and in pain every day. I can’t do most of the things that used to come naturally to me. I’m dependent on caregivers.
Being on disability is not fun.
You’re forced into legislated poverty. Treated like a “useless eater”. Shunned, abandoned and constantly questioned.
It’s dehumanizing 🧵
Being on disability is not fun.
You’re forced into legislated poverty. Treated like a “useless eater”. Shunned, abandoned and constantly questioned.
It’s dehumanizing 🧵
I didn’t find shit.
I didn’t find shit.
(Artist’s reference in one of the windows.)
(Artist’s reference in one of the windows.)
It doesn’t wash off.
The common ephemera
Was never love in the first place.
It doesn’t wash off.
The common ephemera
Was never love in the first place.
Clowns: "that's not what they're doing"
Oh ok so ACTUALLY they're telling you you're not worth it to keep alive, that's not supposed to feel like you're being told to kiIl yourself, that would be irrational eh
No means no. If a patient doesn’t want it, end of discussion.
It should never be offered in lieu of care or social supports.
If it is, it’s not compassion.
It’s eugenics 🧵
Clowns: "that's not what they're doing"
Oh ok so ACTUALLY they're telling you you're not worth it to keep alive, that's not supposed to feel like you're being told to kiIl yourself, that would be irrational eh
It took me years to get a diagnosis. Countless doctors telling me it was “nothing”, “anxiety” or part of “being a woman”
POTS can be devastating & patients need timely diagnosis
It took me years to get a diagnosis. Countless doctors telling me it was “nothing”, “anxiety” or part of “being a woman”
POTS can be devastating & patients need timely diagnosis
Don't spread panic or misinformation. Signal is still the best general comms tool for journalists, protestors, activists, organizers, and vulnerable people.
Don't spread panic or misinformation. Signal is still the best general comms tool for journalists, protestors, activists, organizers, and vulnerable people.
But it means so very very much more after the last 5 years.
It has become almost an alternate reality history rather than a story.
But it means so very very much more after the last 5 years.
It has become almost an alternate reality history rather than a story.
Never ulterior.
Sometimes it takes multiple possibilities to gather motivation, but none can be false because that’s extra work not extra motivation.
Never ulterior.
Sometimes it takes multiple possibilities to gather motivation, but none can be false because that’s extra work not extra motivation.
(Hellblazer: Rise and Fall - art by @darickr.bsky.social)