J Peace
@jpeacejpeace.bsky.social
En-route to CV-19 (Long) recovery.
Reposted by J Peace
Assessing the Health and Functionality of the Microcirculation Using Thermal Imaging. Preprint with @resiapretorius www.preprints.org/manuscript/2... #preprints via @Preprints_org #TeamClots
www.preprints.org
October 17, 2025 at 9:27 AM
Assessing the Health and Functionality of the Microcirculation Using Thermal Imaging. Preprint with @resiapretorius www.preprints.org/manuscript/2... #preprints via @Preprints_org #TeamClots
Reposted by J Peace
To remember another M.E.
community member and friend who’s life has ended too soon
😔🌹🦋
community member and friend who’s life has ended too soon
😔🌹🦋
July 20, 2025 at 5:01 PM
To remember another M.E.
community member and friend who’s life has ended too soon
😔🌹🦋
community member and friend who’s life has ended too soon
😔🌹🦋
Reposted by J Peace
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
July 31, 2025 at 6:45 AM
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
Reposted by J Peace
Ten outstanding questions in Neuroinflammation and #LongCovid. Read the preprint here: www.preprints.org/manuscript/2... and check #UnitedtoFight videos from last year here www.youtube.com/@UniteToFigh...
June 18, 2025 at 5:01 PM
Ten outstanding questions in Neuroinflammation and #LongCovid. Read the preprint here: www.preprints.org/manuscript/2... and check #UnitedtoFight videos from last year here www.youtube.com/@UniteToFigh...
The irony is not lost on me, but this clip speaks to a fundamental aspect of humanity, we have always been unique in our ability to share abstracted ideas, but never have that ability been owned by others.
youtube.com/shorts/va0Dj...
youtube.com/shorts/va0Dj...
Bo Burnham predicted Big Tech's takeover of everything in 2019
YouTube video by More Perfect Union
youtube.com
June 10, 2025 at 5:19 AM
The irony is not lost on me, but this clip speaks to a fundamental aspect of humanity, we have always been unique in our ability to share abstracted ideas, but never have that ability been owned by others.
youtube.com/shorts/va0Dj...
youtube.com/shorts/va0Dj...
Reposted by J Peace
#MECFSAwarenessMonth – Day 22: Conclusion
Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.
Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.
May 22, 2025 at 5:17 AM
#MECFSAwarenessMonth – Day 22: Conclusion
Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.
Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.
Reposted by J Peace
The largest Long C-19 Delphi Consensus to-date has dropped.
179 Clinicians and Scientists contributed to this global effort‼️
With thanks to my amazing colleagues (too many to mention) but led by our awesome Chair @andrewewing11.bsky.social
ann-clinmicrob.biomedcentral.com/articles/10....
179 Clinicians and Scientists contributed to this global effort‼️
With thanks to my amazing colleagues (too many to mention) but led by our awesome Chair @andrewewing11.bsky.social
ann-clinmicrob.biomedcentral.com/articles/10....
Long COVID clinical evaluation, research and impact on society: a global expert consensus - Annals of Clinical Microbiology and Antimicrobials
Background Long COVID is a complex, heterogeneous syndrome affecting over four hundred million people globally. There are few recommendations, and no formal training exists for medical professionals t...
ann-clinmicrob.biomedcentral.com
April 20, 2025 at 10:39 PM
The largest Long C-19 Delphi Consensus to-date has dropped.
179 Clinicians and Scientists contributed to this global effort‼️
With thanks to my amazing colleagues (too many to mention) but led by our awesome Chair @andrewewing11.bsky.social
ann-clinmicrob.biomedcentral.com/articles/10....
179 Clinicians and Scientists contributed to this global effort‼️
With thanks to my amazing colleagues (too many to mention) but led by our awesome Chair @andrewewing11.bsky.social
ann-clinmicrob.biomedcentral.com/articles/10....
Reposted by J Peace
🚨 New Video 🚨 A Clinician’s Guide to Navigating Complex Illness: ME/CFS, POTS, and Long COVID Explained
🎥 1.5 hours of my clinical insights, practical strategies, and a journey through uncertainty.
Video:👉 youtu.be/Ej9yyOsGYNg?...
🎥 1.5 hours of my clinical insights, practical strategies, and a journey through uncertainty.
Video:👉 youtu.be/Ej9yyOsGYNg?...
Unpacking Complex Conditions: A Step-by-Step Plan for ME/CFS, POTS, and Long COVID
YouTube video by Psychiatry Simplified - Dr Sanil Rege
youtu.be
December 13, 2024 at 3:31 PM
🚨 New Video 🚨 A Clinician’s Guide to Navigating Complex Illness: ME/CFS, POTS, and Long COVID Explained
🎥 1.5 hours of my clinical insights, practical strategies, and a journey through uncertainty.
Video:👉 youtu.be/Ej9yyOsGYNg?...
🎥 1.5 hours of my clinical insights, practical strategies, and a journey through uncertainty.
Video:👉 youtu.be/Ej9yyOsGYNg?...
Reposted by J Peace
Reposted by J Peace
The #Leonardi_Effect is very real...
@fitterhappieraj.bsky.social was correct in 2020....
Increasingly insightful with every publication.
For those who may be new to this
Start here:
thetyee.ca/Analysis/202...
@fitterhappieraj.bsky.social was correct in 2020....
Increasingly insightful with every publication.
For those who may be new to this
Start here:
thetyee.ca/Analysis/202...
December 28, 2024 at 11:59 AM
The #Leonardi_Effect is very real...
@fitterhappieraj.bsky.social was correct in 2020....
Increasingly insightful with every publication.
For those who may be new to this
Start here:
thetyee.ca/Analysis/202...
@fitterhappieraj.bsky.social was correct in 2020....
Increasingly insightful with every publication.
For those who may be new to this
Start here:
thetyee.ca/Analysis/202...
Reposted by J Peace
We welcome this research and were pleased to help ensure the experiences of children with #LongCovid were heard.
However, we remain concerned the inquiry has not yet appointed a paediatric expert to assist in Module 8.
covid19.public-inquiry.uk/news/how-did...
#LongcovidKids #CovidInquiry
However, we remain concerned the inquiry has not yet appointed a paediatric expert to assist in Module 8.
covid19.public-inquiry.uk/news/how-did...
#LongcovidKids #CovidInquiry
How did the Covid pandemic affect children? Hundreds of young people give evidence to landmark Inquiry research project - Archives
UK Covid-19 Inquiry announces completion of the Children and Young People’s Voices fieldwork. In total, 600 children and young people aged 9-22 have been able to share their personal experiences of th...
covid19.public-inquiry.uk
December 19, 2024 at 10:38 AM
We welcome this research and were pleased to help ensure the experiences of children with #LongCovid were heard.
However, we remain concerned the inquiry has not yet appointed a paediatric expert to assist in Module 8.
covid19.public-inquiry.uk/news/how-did...
#LongcovidKids #CovidInquiry
However, we remain concerned the inquiry has not yet appointed a paediatric expert to assist in Module 8.
covid19.public-inquiry.uk/news/how-did...
#LongcovidKids #CovidInquiry
Reposted by J Peace
Hello blue sky people! I have 16,000 Twitter followers to whom I am dedicated to helping with MECFS. How will I ever reach that over here? Do I need to post on both places? ❤️
November 23, 2024 at 9:27 PM
Hello blue sky people! I have 16,000 Twitter followers to whom I am dedicated to helping with MECFS. How will I ever reach that over here? Do I need to post on both places? ❤️
Reposted by J Peace
Some butterflies at home, Sunshine Coast hinterland: Orchard Swallowtail, White-banded Plane, Wonder Brown, Richmond Birdwing
November 24, 2024 at 8:33 AM
Some butterflies at home, Sunshine Coast hinterland: Orchard Swallowtail, White-banded Plane, Wonder Brown, Richmond Birdwing
Doing a Bluesky subathon to get to 100k
;p
;p
November 23, 2024 at 8:10 AM
Doing a Bluesky subathon to get to 100k
;p
;p
Reposted by J Peace
Wise words from Matt Haig.
November 20, 2024 at 6:27 PM
Wise words from Matt Haig.
Reposted by J Peace
The more rehab in ME is studied the more people harmed by it are found. 57% of ME patients harmed by healthcare should make you question the negligible damage so many proponents of exercise have claimed. When actually asked its everywhere as patients have said for decades.
482 diagnosed ME/CFS Germans
"In particular, the search for qualified physicians (97.5%) and rehabilitation measures for ME/CFS patients (93.8%) were rated predominantly negatively; 56.5% of the patients reported that their health had worsened..."
link.springer.com/article/10.1...
"In particular, the search for qualified physicians (97.5%) and rehabilitation measures for ME/CFS patients (93.8%) were rated predominantly negatively; 56.5% of the patients reported that their health had worsened..."
link.springer.com/article/10.1...
Erfahrungen von ME/CFS-Kranken (Myalgische Enzephalomyelitis/Chronisches Fatigue-Syndrom) mit Arztsuche, Reha- und Klinikaufenthalten, Gutachter:innen sowie Kranken- und Rentenversicherungen - Prävent...
Background There have already been indications in the past that patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are largely dissatisfied with the German healthcare and social...
link.springer.com
November 17, 2024 at 3:28 PM
The more rehab in ME is studied the more people harmed by it are found. 57% of ME patients harmed by healthcare should make you question the negligible damage so many proponents of exercise have claimed. When actually asked its everywhere as patients have said for decades.
Reposted by J Peace
Everyone with PEM/PENE has dysautonomia but not everyone with dysautonomia may have PEM/PENE.
Pass it on.
Pass it on.
November 17, 2024 at 9:55 AM
Everyone with PEM/PENE has dysautonomia but not everyone with dysautonomia may have PEM/PENE.
Pass it on.
Pass it on.
Reposted by J Peace
Reposted by J Peace
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care.
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
Meet the Perthshire GP long Covid sufferers turn to when no one else can help
Dr Claire Taylor - who set up Scotland's first private long Covid clinic in 2022 - gets around 300 emails from people asking for appointments each week.
www.thecourier.co.uk
November 14, 2024 at 10:42 AM
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care.
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
There is no moving on from this. The current chronic illness is just the tip of the iceberg. Long term damage is being done by every infection in a way we haven't seen since the spanish flu.
Reuters: 'Many long COVID patients adjust to slim recovery odds as world moves on'
'The United States and some countries like Germany continue to fund long COVID research'
www.reuters.com/business/hea...
'The United States and some countries like Germany continue to fund long COVID research'
www.reuters.com/business/hea...
Many long COVID patients adjust to slim recovery odds as world moves on
There are certain phrases that Wachuka Gichohi finds difficult to hear after enduring four years of living with long COVID, marked by debilitating fatigue, pain, panic attacks and other symptoms so severe she feared she would die overnight.
www.reuters.com
November 14, 2024 at 11:18 PM
There is no moving on from this. The current chronic illness is just the tip of the iceberg. Long term damage is being done by every infection in a way we haven't seen since the spanish flu.
Reposted by J Peace
The battle against #LongCovid on the cover of Science Translational Medicine. Lot of important articles here bit.ly/3YN1ktt
November 13, 2024 at 10:26 PM
The battle against #LongCovid on the cover of Science Translational Medicine. Lot of important articles here bit.ly/3YN1ktt
Reposted by J Peace
Crucial paper #5
I will slowly compile some of the better science to move Cøvid along on the 🔵 App 🙏🏻
doi.org/10.1038/s415...
I will slowly compile some of the better science to move Cøvid along on the 🔵 App 🙏🏻
doi.org/10.1038/s415...
Altered functional brain connectivity, efficiency, and information flow associated with brain fog after mild to moderate COVID-19 infection - Scientific Reports
Scientific Reports - Altered functional brain connectivity, efficiency, and information flow associated with brain fog after mild to moderate COVID-19 infection
doi.org
November 12, 2024 at 8:58 PM
Crucial paper #5
I will slowly compile some of the better science to move Cøvid along on the 🔵 App 🙏🏻
doi.org/10.1038/s415...
I will slowly compile some of the better science to move Cøvid along on the 🔵 App 🙏🏻
doi.org/10.1038/s415...
Reposted by J Peace
