Helen Hassell
@helenhassell.bsky.social
Lived experience partner NHS England, National Voices.Unpaid carer for last 28yrs & counting. Passionate about person centred care & working with systems to co-produce &co design with everyone. SEND experience Love my dog, Leia and getting those miles in!
Pinned
Helen Hassell
@helenhassell.bsky.social
· Nov 20
I did a course with the Health Innovation Network locally which gave cpd points. Might be worth exploring with your local network.
NHS England used to run a course @acserrao76.bsky.social can you help?
NHS England used to run a course @acserrao76.bsky.social can you help?
On my way to @thekingsfund.bsky.social to join a panel with the fab @jacoblant.bsky.social talking all things 10 yr plan and people &communities. Thanks Jacob for leading by example and sharing the power with lived experience
@nationalvoices.bsky.social
@nationalvoices.bsky.social
September 9, 2025 at 7:27 AM
On my way to @thekingsfund.bsky.social to join a panel with the fab @jacoblant.bsky.social talking all things 10 yr plan and people &communities. Thanks Jacob for leading by example and sharing the power with lived experience
@nationalvoices.bsky.social
@nationalvoices.bsky.social
Great opportunity for #LivedExperience There's a great group of us and we can't wait to meet new people
🚀 We’re recruiting!
National Voices is looking for more Lived Experience Partners to help shape and influence our work with their unique insights and expertise.
🔗 Find out more here: tinyurl.com/5n7xh4k8
📆 Apply by Friday 12 September.
National Voices is looking for more Lived Experience Partners to help shape and influence our work with their unique insights and expertise.
🔗 Find out more here: tinyurl.com/5n7xh4k8
📆 Apply by Friday 12 September.
August 15, 2025 at 3:49 PM
Great opportunity for #LivedExperience There's a great group of us and we can't wait to meet new people
Reposted by Helen Hassell
🚀 We’re recruiting!
National Voices is looking for more Lived Experience Partners to help shape and influence our work with their unique insights and expertise.
🔗 Find out more here: tinyurl.com/5n7xh4k8
📆 Apply by Friday 12 September.
National Voices is looking for more Lived Experience Partners to help shape and influence our work with their unique insights and expertise.
🔗 Find out more here: tinyurl.com/5n7xh4k8
📆 Apply by Friday 12 September.
August 15, 2025 at 8:41 AM
🚀 We’re recruiting!
National Voices is looking for more Lived Experience Partners to help shape and influence our work with their unique insights and expertise.
🔗 Find out more here: tinyurl.com/5n7xh4k8
📆 Apply by Friday 12 September.
National Voices is looking for more Lived Experience Partners to help shape and influence our work with their unique insights and expertise.
🔗 Find out more here: tinyurl.com/5n7xh4k8
📆 Apply by Friday 12 September.
Strikes tomorrow mean my son's surgery has been cancelled. He's an incredibly stressed young man with learning disability who has built up to this surgery all week. Seizures ⬆️and now has to reset to a new date in 4 weeks time.Remember unseen impact on patients when striking @rachel-p.bsky.social
July 24, 2025 at 4:31 PM
Strikes tomorrow mean my son's surgery has been cancelled. He's an incredibly stressed young man with learning disability who has built up to this surgery all week. Seizures ⬆️and now has to reset to a new date in 4 weeks time.Remember unseen impact on patients when striking @rachel-p.bsky.social
Reposted by Helen Hassell
We need to hear from as many carers as possible to help shape our future policy and campaigning work.
Please take our survey and tell us what needs to be done: https://www.surveymonkey.com/r/QNPDKV2?utm_source=bluesky&utm_medium=social&utm_campaign&utm_content=ap_4yly8ojbkk
Please take our survey and tell us what needs to be done: https://www.surveymonkey.com/r/QNPDKV2?utm_source=bluesky&utm_medium=social&utm_campaign&utm_content=ap_4yly8ojbkk
July 9, 2025 at 9:00 AM
We need to hear from as many carers as possible to help shape our future policy and campaigning work.
Please take our survey and tell us what needs to be done: https://www.surveymonkey.com/r/QNPDKV2?utm_source=bluesky&utm_medium=social&utm_campaign&utm_content=ap_4yly8ojbkk
Please take our survey and tell us what needs to be done: https://www.surveymonkey.com/r/QNPDKV2?utm_source=bluesky&utm_medium=social&utm_campaign&utm_content=ap_4yly8ojbkk
Reposted by Helen Hassell
NHS 10-Year-Plan is out!📣
We are pleased to see the ambition for carers to be actively involved in care planning and welcome the new section for the NHS app called ‘My Carer’.
Without carers the healthcare system would collapse we must see them supported in all areas
We are pleased to see the ambition for carers to be actively involved in care planning and welcome the new section for the NHS app called ‘My Carer’.
Without carers the healthcare system would collapse we must see them supported in all areas
July 3, 2025 at 1:59 PM
NHS 10-Year-Plan is out!📣
We are pleased to see the ambition for carers to be actively involved in care planning and welcome the new section for the NHS app called ‘My Carer’.
Without carers the healthcare system would collapse we must see them supported in all areas
We are pleased to see the ambition for carers to be actively involved in care planning and welcome the new section for the NHS app called ‘My Carer’.
Without carers the healthcare system would collapse we must see them supported in all areas
Honest discussion between @rachel-p.bsky.social and Jim Mackey in @patients-association.org.uk webinar. Curiosity is key. Working in a meaningful way with patients
July 2, 2025 at 1:21 PM
Honest discussion between @rachel-p.bsky.social and Jim Mackey in @patients-association.org.uk webinar. Curiosity is key. Working in a meaningful way with patients
Reposted by Helen Hassell
It's #CoProWeek25 ❗
This year’s theme is Innovation through Co-production. A reminder that when people with lived experience shape solutions, we get innovation that works.
Looking forward to the activities this week as we continue to work towards people being at the heart of care and support.
This year’s theme is Innovation through Co-production. A reminder that when people with lived experience shape solutions, we get innovation that works.
Looking forward to the activities this week as we continue to work towards people being at the heart of care and support.
June 30, 2025 at 8:36 AM
It's #CoProWeek25 ❗
This year’s theme is Innovation through Co-production. A reminder that when people with lived experience shape solutions, we get innovation that works.
Looking forward to the activities this week as we continue to work towards people being at the heart of care and support.
This year’s theme is Innovation through Co-production. A reminder that when people with lived experience shape solutions, we get innovation that works.
Looking forward to the activities this week as we continue to work towards people being at the heart of care and support.
This is fantastic
@drlizherrieven.bsky.social has written a toolkit – the first of its kind – to help clinicians in hospital emergency departments to understand and communicate with learning disabled people. @sheffieldchildrens.bsky.social
communitylivingmagazine.com/clear-contact-
communitylivingmagazine.com/clear-contact-
Clear contact in emergency care
A doctor has written a toolkit – the first of its kind – to help clinicians in hospital emergency departments to understand and communicate with learning disabled people. Saba Salman reports
communitylivingmagazine.com
June 24, 2025 at 4:29 PM
This is fantastic
Really interesting to read this
Adult ADHD assessment services in the UK face inconsistent data collection, hindering national planning. Standardised data is essential to improving waiting times, service delivery and outcomes.
buff.ly/HbbHBNX
buff.ly/HbbHBNX
June 14, 2025 at 4:08 PM
Really interesting to read this
Reposted by Helen Hassell
Unpaid carers contribute the equivalent of four million paid care workers to the social care system.
Without them, the system would collapse.
But over the past 10 years, the number of carers receiving support has decreased – find out more in Social Care 360:
buff.ly/BOSpLAG
Without them, the system would collapse.
But over the past 10 years, the number of carers receiving support has decreased – find out more in Social Care 360:
buff.ly/BOSpLAG
Social Care 360: Workforce And Carers | The King's Fund
What's happening to staff vacancy rates and pay in the adult social care sector?
buff.ly
June 12, 2025 at 6:59 AM
Unpaid carers contribute the equivalent of four million paid care workers to the social care system.
Without them, the system would collapse.
But over the past 10 years, the number of carers receiving support has decreased – find out more in Social Care 360:
buff.ly/BOSpLAG
Without them, the system would collapse.
But over the past 10 years, the number of carers receiving support has decreased – find out more in Social Care 360:
buff.ly/BOSpLAG
Reposted by Helen Hassell
At #NHSConfedExpo today, Victor Adebowale explored the complex relationship between the NHS and adult social care, highlighting the urgent need for collaboration to enhance care delivery.
June 12, 2025 at 2:22 PM
At #NHSConfedExpo today, Victor Adebowale explored the complex relationship between the NHS and adult social care, highlighting the urgent need for collaboration to enhance care delivery.
youtu.be/xVWJhlTw2oU?...
Fab new video coproduced in Nottingham/shire to support person centred care using a one page profile
Fab new video coproduced in Nottingham/shire to support person centred care using a one page profile
What to include in an ABOUT ME
YouTube video by NHS Nottingham and Nottinghamshire
youtu.be
May 16, 2025 at 8:14 PM
youtu.be/xVWJhlTw2oU?...
Fab new video coproduced in Nottingham/shire to support person centred care using a one page profile
Fab new video coproduced in Nottingham/shire to support person centred care using a one page profile
Reposted by Helen Hassell
The refreshed Good Lives Framework shared by @learningdiseng.bsky.social lays out what people with learning disabilities say they want and need to live well.
Read the updated framework and easy read version here: www.learningdisabilityengland.org.uk/the-framework/...
Read the updated framework and easy read version here: www.learningdisabilityengland.org.uk/the-framework/...
May 8, 2025 at 10:30 AM
The refreshed Good Lives Framework shared by @learningdiseng.bsky.social lays out what people with learning disabilities say they want and need to live well.
Read the updated framework and easy read version here: www.learningdisabilityengland.org.uk/the-framework/...
Read the updated framework and easy read version here: www.learningdisabilityengland.org.uk/the-framework/...
Amazing to see in the blueprint for ICBs that working fully with people and communities is vital. Really pleasantly surprised to read the document and see how often coproduction and codesign feature. Hopefully the ICBs will develop plans that reflect this
@jacoblant.bsky.social @rachel-p.bsky.social
@jacoblant.bsky.social @rachel-p.bsky.social
May 10, 2025 at 5:02 PM
Amazing to see in the blueprint for ICBs that working fully with people and communities is vital. Really pleasantly surprised to read the document and see how often coproduction and codesign feature. Hopefully the ICBs will develop plans that reflect this
@jacoblant.bsky.social @rachel-p.bsky.social
@jacoblant.bsky.social @rachel-p.bsky.social
Spontaneous trip to the beach was so good for us all. Finished off with chips overlooking the sea
May 10, 2025 at 4:55 PM
Spontaneous trip to the beach was so good for us all. Finished off with chips overlooking the sea
Reposted by Helen Hassell
Amongst many issues with this whole process is the point that there are no perfect footprints for NHS organisations. We do not live our lives in neat boxes, and wherever a boundary is put there will be cross border issues. We'd make so much more progress if we could pick a structure and stick to it.
www.hsj.co.uk/integrated-c...
There is still fury and consternation about the decision to cut the running costs of integrated care boards in half, but plans to consolidate the number of ICBs from 42 to between 23 and 28 are well advanced.
There is still fury and consternation about the decision to cut the running costs of integrated care boards in half, but plans to consolidate the number of ICBs from 42 to between 23 and 28 are well advanced.
Which ICBs are heading for merger?
There is still fury and consternation about the decision to cut the running costs of integrated care boards in half, but plans to consolidate the number of ICBs from 42 to between 23 and 28 are well a...
www.hsj.co.uk
April 29, 2025 at 9:50 AM
Amongst many issues with this whole process is the point that there are no perfect footprints for NHS organisations. We do not live our lives in neat boxes, and wherever a boundary is put there will be cross border issues. We'd make so much more progress if we could pick a structure and stick to it.
Reposted by Helen Hassell
And maybe because so often social care is seen as an adjunct to the NHS, something to get frail older people out of hospital, rather than as it should be, the support which enables people - including those frail older people - to thrive in their community.
Love this. So seldom that we hear about social care as support to be and do the things that matter to us. Maybe because so often it isn’t offering us that? www.bbc.com/news/article...
Direct social care payments 'helped me to become an artist'
Award winner Sally Hirst has never looked back after securing funding to sign up for an art course.
www.bbc.com
April 15, 2025 at 8:07 PM
And maybe because so often social care is seen as an adjunct to the NHS, something to get frail older people out of hospital, rather than as it should be, the support which enables people - including those frail older people - to thrive in their community.
189.6 #NHS1000miles this month. Spring has arrived and birdsong all around. So much to be thankful for in our troubled world
@kathevans2.bsky.social @firogers3.bsky.social
@kathevans2.bsky.social @firogers3.bsky.social
March 31, 2025 at 5:43 PM
189.6 #NHS1000miles this month. Spring has arrived and birdsong all around. So much to be thankful for in our troubled world
@kathevans2.bsky.social @firogers3.bsky.social
@kathevans2.bsky.social @firogers3.bsky.social
Reposted by Helen Hassell
Eid Mubarak to those celebrating today and over the coming days. A time for celebration and for reflection. A time to remember the vulnerable and marginalised - those suffering in conflicts and from natural disasters.
March 30, 2025 at 2:55 PM
Eid Mubarak to those celebrating today and over the coming days. A time for celebration and for reflection. A time to remember the vulnerable and marginalised - those suffering in conflicts and from natural disasters.
A really good reminder to keep it simple
PIF guidance is to aim for a reading age of 9-11 in #HealthInformation.
We have published a statement setting out why this is our position. The statement includes supporting data and useful tools and resources.
View the HTML or download the PDF here: pifonline.org.uk/resources/re...
We have published a statement setting out why this is our position. The statement includes supporting data and useful tools and resources.
View the HTML or download the PDF here: pifonline.org.uk/resources/re...
March 25, 2025 at 6:44 PM
A really good reminder to keep it simple
Reposted by Helen Hassell
“Be an encourager. The world has plenty of critics already.” Dave Willis
The world doesn’t need more people pointing out what’s wrong - it wants even more people lifting others up.
Use your own light to brighten other’s path!
🧡
#kindness #positivity
Picture by Joyfulsmolthings
The world doesn’t need more people pointing out what’s wrong - it wants even more people lifting others up.
Use your own light to brighten other’s path!
🧡
#kindness #positivity
Picture by Joyfulsmolthings
March 20, 2025 at 4:23 PM
“Be an encourager. The world has plenty of critics already.” Dave Willis
The world doesn’t need more people pointing out what’s wrong - it wants even more people lifting others up.
Use your own light to brighten other’s path!
🧡
#kindness #positivity
Picture by Joyfulsmolthings
The world doesn’t need more people pointing out what’s wrong - it wants even more people lifting others up.
Use your own light to brighten other’s path!
🧡
#kindness #positivity
Picture by Joyfulsmolthings
Reposted by Helen Hassell
Every #unpaidcarer needs to contact their MP and tell them exactly what will happen to them and the person they look after if these changes go ahead.
This is really concerning.We already save the government the same as the NHS budget for the year. Not only us but the people we care for are likely to come to harm as we juggle all those balls that no one seems to recognise.
@jacoblant.bsky.social @neilgchurchill.bsky.social @firogers3.bsky.social
@jacoblant.bsky.social @neilgchurchill.bsky.social @firogers3.bsky.social
Massive cuts:
2. Carers likely to lose out too: 1.4 million get Carers Allowance - £4,258.80 a year. 55% awards linked to PIP. 28% of carers are also disabled, around 150,000 unpaid carers receive both Carer’s Allowance and PIP. @carers-uk.bsky.social
2. Carers likely to lose out too: 1.4 million get Carers Allowance - £4,258.80 a year. 55% awards linked to PIP. 28% of carers are also disabled, around 150,000 unpaid carers receive both Carer’s Allowance and PIP. @carers-uk.bsky.social
March 19, 2025 at 5:15 PM
Every #unpaidcarer needs to contact their MP and tell them exactly what will happen to them and the person they look after if these changes go ahead.