Helen Hassell
helenhassell.bsky.social
Helen Hassell
@helenhassell.bsky.social
Lived experience partner NHS England, National Voices.Unpaid carer for last 28yrs & counting. Passionate about person centred care & working with systems to co-produce &co design with everyone. SEND experience Love my dog, Leia and getting those miles in!
Completely agree. Have a son with LD who has had his surgery cancelled. So much went in to preparing him and it's completely thrown him. Has a huge impact on him and us as his unpaid carers
July 25, 2025 at 8:54 AM
July 24, 2025 at 4:52 PM
This also impacts me as his unpaid carer. I'm already exhausted from the preparation that has gone in to ensure he's ready and keep him safe. Another month of elongated stress and no sleep to come
July 24, 2025 at 4:34 PM
Uclh are amazing! I have a very needle phobic adult son who needed to be admitted to national hospital for neurology and neurosurgery. They went above and beyond to ensure they knew what mattered to him and did bloods under GA too whilst having surgery
May 17, 2025 at 9:24 AM
And you got to spend time with the incredible @muntma.bsky.social
May 14, 2025 at 7:48 PM