Dalila
@dalilatm.bsky.social
Interested in research ethics and all about #lupus #lupusnephritis | Running support group #Wales 🏴| Views my own | We need a cure for Lupus 🦋
Pinned
Dalila
@dalilatm.bsky.social
· Dec 11
That's a wrap #2024Wrapped! 🎉 It’s been a year of amazing guest speakers from around the globe sharing unique perspectives on lupus, plus our first F2F meeting in #Swansea 🏴🙌 Huge thanks to them & our group members. Here's to an even brighter 2025! 🌟 #lupus #Wales
Reposted by Dalila
Career highlight being asked to be on one my favourite podcasts!
Had lots of fun recording this with Brenda Raud and Jason Goldsmith on the @immunologypodcast.com
Great to chat research and spread the word about lupus. Please go check it out!
Had lots of fun recording this with Brenda Raud and Jason Goldsmith on the @immunologypodcast.com
Great to chat research and spread the word about lupus. Please go check it out!
There's a new episode out now!
Dr. @georgearobinson.bsky.social from @ucl.ac.uk talks about his research on #lupus and #SexDifferences in autoimmunity.
📍 https://bit.ly/3JL4pXI
Dr. @georgearobinson.bsky.social from @ucl.ac.uk talks about his research on #lupus and #SexDifferences in autoimmunity.
📍 https://bit.ly/3JL4pXI
November 19, 2025 at 8:35 AM
Career highlight being asked to be on one my favourite podcasts!
Had lots of fun recording this with Brenda Raud and Jason Goldsmith on the @immunologypodcast.com
Great to chat research and spread the word about lupus. Please go check it out!
Had lots of fun recording this with Brenda Raud and Jason Goldsmith on the @immunologypodcast.com
Great to chat research and spread the word about lupus. Please go check it out!
Reposted by Dalila
⚡Our November issue is out! Featuring trials of #CARTcells for #LUPUS, an #ADC for #lungcancer, cardiac #genetherapy, an #ebola #vaccine, discovery of microbial elements in #braintumors, #liquidbiopsies, #newbornscreening, News, Reviews, & more.
https://www.nature.com/nm/volumes/31/issues/11
https://www.nature.com/nm/volumes/31/issues/11
November 19, 2025 at 4:33 PM
⚡Our November issue is out! Featuring trials of #CARTcells for #LUPUS, an #ADC for #lungcancer, cardiac #genetherapy, an #ebola #vaccine, discovery of microbial elements in #braintumors, #liquidbiopsies, #newbornscreening, News, Reviews, & more.
https://www.nature.com/nm/volumes/31/issues/11
https://www.nature.com/nm/volumes/31/issues/11
Reposted by Dalila
A national cohort study examined the risk of severe infection and infection-related mortality in patients with chronic kidney disease with lupus nephritis in comparison to other chronic kidney disease etiologies
doi.org/10.1016/j.kint.2025.10.010
#OpenAccess #MedSky #NephSky #ckd @ki.se
doi.org/10.1016/j.kint.2025.10.010
#OpenAccess #MedSky #NephSky #ckd @ki.se
November 21, 2025 at 9:36 PM
A national cohort study examined the risk of severe infection and infection-related mortality in patients with chronic kidney disease with lupus nephritis in comparison to other chronic kidney disease etiologies
doi.org/10.1016/j.kint.2025.10.010
#OpenAccess #MedSky #NephSky #ckd @ki.se
doi.org/10.1016/j.kint.2025.10.010
#OpenAccess #MedSky #NephSky #ckd @ki.se
Reposted by Dalila
Lupus Nephritis study of 136 pts followed 121 mos. Median time to wean GC to 7.5 mg/day, 5 mg/day & D/C was 9, 12 & 29 months post-Dx. Predictors of shorter time to D/C= Sustained CR/SLEDAI-2K≤4, membranous LN, & HCQ. Prolonged GC & renal flares increase damage accrual
buff.ly
November 22, 2025 at 9:01 PM
Lupus Nephritis study of 136 pts followed 121 mos. Median time to wean GC to 7.5 mg/day, 5 mg/day & D/C was 9, 12 & 29 months post-Dx. Predictors of shorter time to D/C= Sustained CR/SLEDAI-2K≤4, membranous LN, & HCQ. Prolonged GC & renal flares increase damage accrual
🤩 Wonderful day yesterday at the NHS Wales Awards – thanks to @cedarcardiff.bsky.social for their great public involvement work. Delighted that the project, ‘Development of the NHS Wales People’s Experience Survey’, was a finalist for the Person-Centred Care Award! 🎉
November 19, 2025 at 6:16 PM
🤩 Wonderful day yesterday at the NHS Wales Awards – thanks to @cedarcardiff.bsky.social for their great public involvement work. Delighted that the project, ‘Development of the NHS Wales People’s Experience Survey’, was a finalist for the Person-Centred Care Award! 🎉
Reposted by Dalila
New Arthritis Care & Research Journal Club!
📓 Treating patients with lupus nephritis to lupus low disease activity reduces renal relapse and preserves long-term kidney function
➡️ Download the slides: https://acr.tw/4oDnE4A
📓 Treating patients with lupus nephritis to lupus low disease activity reduces renal relapse and preserves long-term kidney function
➡️ Download the slides: https://acr.tw/4oDnE4A
November 14, 2025 at 2:05 PM
New Arthritis Care & Research Journal Club!
📓 Treating patients with lupus nephritis to lupus low disease activity reduces renal relapse and preserves long-term kidney function
➡️ Download the slides: https://acr.tw/4oDnE4A
📓 Treating patients with lupus nephritis to lupus low disease activity reduces renal relapse and preserves long-term kidney function
➡️ Download the slides: https://acr.tw/4oDnE4A
Reposted by Dalila
Putting Steroid Tapering into Practice in SLE
Drs. Yuz Yusof and Ed Vital discuss abstract 1526 (Guidance For Corticosteroid Tapering In Patients With Systemic Lupus Erythematosus: Results From An International Delphi Consensus Project) presented at #ACR25.
rheumnow.com/video/puttin...
Drs. Yuz Yusof and Ed Vital discuss abstract 1526 (Guidance For Corticosteroid Tapering In Patients With Systemic Lupus Erythematosus: Results From An International Delphi Consensus Project) presented at #ACR25.
rheumnow.com/video/puttin...
November 16, 2025 at 3:02 PM
Putting Steroid Tapering into Practice in SLE
Drs. Yuz Yusof and Ed Vital discuss abstract 1526 (Guidance For Corticosteroid Tapering In Patients With Systemic Lupus Erythematosus: Results From An International Delphi Consensus Project) presented at #ACR25.
rheumnow.com/video/puttin...
Drs. Yuz Yusof and Ed Vital discuss abstract 1526 (Guidance For Corticosteroid Tapering In Patients With Systemic Lupus Erythematosus: Results From An International Delphi Consensus Project) presented at #ACR25.
rheumnow.com/video/puttin...
#LupusNephritis #Lupus @ajkd.bsky.social
“A Change is Gonna Come” to Treatment of Lupus Nephritis: A Review
www.ajkd.org/article/S027...
“A Change is Gonna Come” to Treatment of Lupus Nephritis: A Review
www.ajkd.org/article/S027...
“A Change is Gonna Come” to Treatment of Lupus Nephritis: A Review
Systemic Lupus Erythematosus (SLE) is a chronic, multi-organ autoimmune disease, with
lupus nephritis (LN) affecting up to 60% of patients. Early diagnosis and treatment
are critical for preserving ki...
www.ajkd.org
November 16, 2025 at 10:20 AM
#LupusNephritis #Lupus @ajkd.bsky.social
“A Change is Gonna Come” to Treatment of Lupus Nephritis: A Review
www.ajkd.org/article/S027...
“A Change is Gonna Come” to Treatment of Lupus Nephritis: A Review
www.ajkd.org/article/S027...
Reposted by Dalila
New AI tool could cut wasted efforts to transplant organs by 60%
New AI tool could cut wasted efforts to transplant organs by 60%
Machine learning model predicts whether donor is likely to die within the timeframe that liver remains viable
Doctors have developed an AI tool that could reduce wasted efforts to transplant organs by 60%.
Thousands of patients worldwide are waiting for a potentially life-saving donor, and more candidates are stuck on waiting lists than there are available organs. Continue reading...
www.theguardian.com
November 13, 2025 at 11:48 PM
New AI tool could cut wasted efforts to transplant organs by 60%
Reposted by Dalila
Childbirth – from fear and uncertainty, to confidence and calm.
Chartered Psychologist Dr Katrina Forbes-McKay joins forces with former midwife Mo Tabib to argue that ‘it’s not just knowing what to do, it’s believing you can do it’.
www.bps.org.uk/psychologist...
Chartered Psychologist Dr Katrina Forbes-McKay joins forces with former midwife Mo Tabib to argue that ‘it’s not just knowing what to do, it’s believing you can do it’.
www.bps.org.uk/psychologist...
Childbirth – from fear and uncertainty, to confidence and calm | BPS
Chartered Psychologist Dr Katrina Forbes-McKay joins forces with former midwife Mo Tabib to argue that ‘it’s not just knowing what to do, it’s believing you can do it’.
www.bps.org.uk
November 10, 2025 at 10:04 AM
Childbirth – from fear and uncertainty, to confidence and calm.
Chartered Psychologist Dr Katrina Forbes-McKay joins forces with former midwife Mo Tabib to argue that ‘it’s not just knowing what to do, it’s believing you can do it’.
www.bps.org.uk/psychologist...
Chartered Psychologist Dr Katrina Forbes-McKay joins forces with former midwife Mo Tabib to argue that ‘it’s not just knowing what to do, it’s believing you can do it’.
www.bps.org.uk/psychologist...
Reposted by Dalila
Editorial on this study in A&R: "The data in the paper by Tumurkhuu et al suggest that reduced TRIM21 expression in patients with lupus could contribute to cutaneous and systemic inflammation following repeated UV exposure"
doi.org/10.1002/art....
doi.org/10.1002/art....
November 9, 2025 at 1:36 PM
Editorial on this study in A&R: "The data in the paper by Tumurkhuu et al suggest that reduced TRIM21 expression in patients with lupus could contribute to cutaneous and systemic inflammation following repeated UV exposure"
doi.org/10.1002/art....
doi.org/10.1002/art....
#KidneyWeek2025 #USA 'Novel Risk Factors for Complications in Lupus Nephritis Kidney Biopsy: Use of Point-of-Care Ultrasonography (POCUS) Renal Protocol and Inflammatory Markers' #Abstract #LupusNephritis #Lupus
medjournal360.com/conference-r...
medjournal360.com/conference-r...
Inflammation and kidney disease severity predict bleeding risk after lupus kidney biopsy - Med Journal 360
Inflammatory activity and kidney disease severity, including high serum creatinine and class IV lupus nephritis, are associated with an increased risk of bleeding after percutaneous kidney biopsy, acc...
medjournal360.com
November 9, 2025 at 9:55 AM
#KidneyWeek2025 #USA 'Novel Risk Factors for Complications in Lupus Nephritis Kidney Biopsy: Use of Point-of-Care Ultrasonography (POCUS) Renal Protocol and Inflammatory Markers' #Abstract #LupusNephritis #Lupus
medjournal360.com/conference-r...
medjournal360.com/conference-r...
That much-needed Saturday energy boost 🎶 #VivaldisWinter
November 8, 2025 at 11:57 AM
That much-needed Saturday energy boost 🎶 #VivaldisWinter
Reposted by Dalila
Samir Parikh gives an update on lupus nephritis. #KidneyWk Looking for rapid reduction of proteinuria? Voclosporin is faster, but belimumab showed similar separation from placebo, it just takes longer due to mechanism of action.
November 5, 2025 at 3:38 PM
Samir Parikh gives an update on lupus nephritis. #KidneyWk Looking for rapid reduction of proteinuria? Voclosporin is faster, but belimumab showed similar separation from placebo, it just takes longer due to mechanism of action.
Great to see lupus and its many complex challenges being highlighted across international media #Lupus #SLE #Awareness
AP is taking a deep dive into autoimmune diseases. Autoimmune diseases don’t get a lot of public attention, and they’re difficult to diagnosis. For most lupus patients it's years before they get an answer. apnews.com/article/auto...
Disease of 1,000 faces shows how science is tackling immunity’s dark side
It's one of medicine's biggest mysteries — why sometimes our immune system attacks our own bodies. Autoimmune diseases affect as many as 50 million Americans and millions more worldwide.
apnews.com
November 7, 2025 at 12:58 PM
Great to see lupus and its many complex challenges being highlighted across international media #Lupus #SLE #Awareness
Reposted by Dalila
Short, noncoding YRNA can activate pathological variants of the innate sensor RIG-I, causing autoinflammation and #lupus nephritis in mouse models.
Learn more in #ScienceImmunology: https://scim.ag/43ewTiV
Learn more in #ScienceImmunology: https://scim.ag/43ewTiV
Local activation of mutant RIG-I by short noncoding Y-RNA in the kidney triggers lethal nephritis
Y-RNA activates RIG-I gain-of-function mutants in the kidney, causing lethal autoimmune diseases including lupus nephritis.
scim.ag
November 6, 2025 at 10:01 PM
Short, noncoding YRNA can activate pathological variants of the innate sensor RIG-I, causing autoinflammation and #lupus nephritis in mouse models.
Learn more in #ScienceImmunology: https://scim.ag/43ewTiV
Learn more in #ScienceImmunology: https://scim.ag/43ewTiV
Reposted by Dalila
Predicting Long-Term Proteinuria Risk in SLE
Lupus nephritis affects nearly half of SLE patients, with up to a 30% mortality rate over 10 years and 10-22% progressing to end-stage kidney disease. Early detection and diagnosis are essential.
rheumnow.com/news/decade-...
Lupus nephritis affects nearly half of SLE patients, with up to a 30% mortality rate over 10 years and 10-22% progressing to end-stage kidney disease. Early detection and diagnosis are essential.
rheumnow.com/news/decade-...
November 6, 2025 at 10:01 PM
Predicting Long-Term Proteinuria Risk in SLE
Lupus nephritis affects nearly half of SLE patients, with up to a 30% mortality rate over 10 years and 10-22% progressing to end-stage kidney disease. Early detection and diagnosis are essential.
rheumnow.com/news/decade-...
Lupus nephritis affects nearly half of SLE patients, with up to a 30% mortality rate over 10 years and 10-22% progressing to end-stage kidney disease. Early detection and diagnosis are essential.
rheumnow.com/news/decade-...
#USA 'A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development' #Lupus #Guidelines
pubmed.ncbi.nlm.nih.gov/41182325/
pubmed.ncbi.nlm.nih.gov/41182325/
A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development - PubMed
This work supported the integration of patient experiences in the clinical practice guideline development process and aligned recommendations with real-world patient experiences and priorities, thereby enhancing the clinical applicability of the ACR LN and SLE guidelines.
pubmed.ncbi.nlm.nih.gov
November 5, 2025 at 11:08 AM
#USA 'A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development' #Lupus #Guidelines
pubmed.ncbi.nlm.nih.gov/41182325/
pubmed.ncbi.nlm.nih.gov/41182325/
Join us tomorrow! #Webinar
🤩 New @eular.org webinar! Join us for PAED X PARE: a unique dialogue on reproductive healthcare in childhood & juvenile onset RMDs.
🗓️ Nov 5 | 16:30–17:30 CET
📍 Teams
🔗 esor.eular.org/enrol/index....
#lupus #pedsrheum #pregnancy #RMD #rheumatology #PARE
🗓️ Nov 5 | 16:30–17:30 CET
📍 Teams
🔗 esor.eular.org/enrol/index....
#lupus #pedsrheum #pregnancy #RMD #rheumatology #PARE
November 4, 2025 at 2:57 PM
Join us tomorrow! #Webinar
Reposted by Dalila
Now published: The 2025 ACR Guideline for the Treatment of Systemic Lupus Erythematosus
📄 Read the paper: acr.tw/47mkegj
ℹ️ See additional content and resources on this guideline at acr.tw/4mbHK4W
#Medsky #Rheumsky #Rheumatology
📄 Read the paper: acr.tw/47mkegj
ℹ️ See additional content and resources on this guideline at acr.tw/4mbHK4W
#Medsky #Rheumsky #Rheumatology
November 3, 2025 at 4:35 PM
Now published: The 2025 ACR Guideline for the Treatment of Systemic Lupus Erythematosus
📄 Read the paper: acr.tw/47mkegj
ℹ️ See additional content and resources on this guideline at acr.tw/4mbHK4W
#Medsky #Rheumsky #Rheumatology
📄 Read the paper: acr.tw/47mkegj
ℹ️ See additional content and resources on this guideline at acr.tw/4mbHK4W
#Medsky #Rheumsky #Rheumatology
#Lupus Interesting! Challenges in lupus, the role of emerging technologies & the future of lupus research @sangerinstitute.bsky.social
'Five questions on lupus with Catherine Sutherland'
sangerinstitute.blog/2025/10/07/f...
'Five questions on lupus with Catherine Sutherland'
sangerinstitute.blog/2025/10/07/f...
Five questions on lupus with Catherine Sutherland - Wellcome Sanger Institute Blog
In recognition of UK Lupus Awareness Month, we caught up with Catherine Sutherland, Computational Senior Staff Scientist in the Human Genetics programme at the Wellcome Sanger Institute, to discuss mo...
sangerinstitute.blog
November 3, 2025 at 10:24 AM
#Lupus Interesting! Challenges in lupus, the role of emerging technologies & the future of lupus research @sangerinstitute.bsky.social
'Five questions on lupus with Catherine Sutherland'
sangerinstitute.blog/2025/10/07/f...
'Five questions on lupus with Catherine Sutherland'
sangerinstitute.blog/2025/10/07/f...
Reposted by Dalila
Testing the ability of the Renal Activity Index for Lupus (RAIL) to discriminate LN in adults with SLE using urine samples from the TULIP-LN and TULIP-1 trials showed RAIL score could identify active LN and also differentiate treatment responders
AC&R
doi.org/10.1002/acr....
#Medsky #Nephsky
AC&R
doi.org/10.1002/acr....
#Medsky #Nephsky
October 30, 2025 at 8:38 PM
Testing the ability of the Renal Activity Index for Lupus (RAIL) to discriminate LN in adults with SLE using urine samples from the TULIP-LN and TULIP-1 trials showed RAIL score could identify active LN and also differentiate treatment responders
AC&R
doi.org/10.1002/acr....
#Medsky #Nephsky
AC&R
doi.org/10.1002/acr....
#Medsky #Nephsky
Reposted by Dalila
SLE Conference Preview: Biologics at #ACR25
We have 4 approved lupus therapies: belimumab, voclosporin, and obinutuzumab for lupus nephritis, and belimumab and anifrolumab for non-renal SLE. What other challenges remain, and what promising treatments are on the horizon?
rheumnow.com/news/sle-con...
We have 4 approved lupus therapies: belimumab, voclosporin, and obinutuzumab for lupus nephritis, and belimumab and anifrolumab for non-renal SLE. What other challenges remain, and what promising treatments are on the horizon?
rheumnow.com/news/sle-con...
October 31, 2025 at 3:04 PM
SLE Conference Preview: Biologics at #ACR25
We have 4 approved lupus therapies: belimumab, voclosporin, and obinutuzumab for lupus nephritis, and belimumab and anifrolumab for non-renal SLE. What other challenges remain, and what promising treatments are on the horizon?
rheumnow.com/news/sle-con...
We have 4 approved lupus therapies: belimumab, voclosporin, and obinutuzumab for lupus nephritis, and belimumab and anifrolumab for non-renal SLE. What other challenges remain, and what promising treatments are on the horizon?
rheumnow.com/news/sle-con...
Reposted by Dalila
🔑 Key messages
🟣 Health literacy underpins SDM: without understanding, there is no true partnership.
🟣 Social context matters: decisions are not made isolated from patients’ daily realities.
🟣 Equity & empathy must guide SDM: tackling bias and barriers ensures everyone can participate meaningfully.
🟣 Health literacy underpins SDM: without understanding, there is no true partnership.
🟣 Social context matters: decisions are not made isolated from patients’ daily realities.
🟣 Equity & empathy must guide SDM: tackling bias and barriers ensures everyone can participate meaningfully.
November 1, 2025 at 2:48 AM
🔑 Key messages
🟣 Health literacy underpins SDM: without understanding, there is no true partnership.
🟣 Social context matters: decisions are not made isolated from patients’ daily realities.
🟣 Equity & empathy must guide SDM: tackling bias and barriers ensures everyone can participate meaningfully.
🟣 Health literacy underpins SDM: without understanding, there is no true partnership.
🟣 Social context matters: decisions are not made isolated from patients’ daily realities.
🟣 Equity & empathy must guide SDM: tackling bias and barriers ensures everyone can participate meaningfully.
Reposted by Dalila
For Lupus Awareness Month, we’re spotlighting George Robinson’s work on personalised therapies for lupus - research funded by your support. He’s studying treatments that could reduce symptoms.
Watch the full interview via the link in our bio.
#LupusAwarenessMonth #Research #NHS
Watch the full interview via the link in our bio.
#LupusAwarenessMonth #Research #NHS
October 29, 2025 at 2:09 PM
For Lupus Awareness Month, we’re spotlighting George Robinson’s work on personalised therapies for lupus - research funded by your support. He’s studying treatments that could reduce symptoms.
Watch the full interview via the link in our bio.
#LupusAwarenessMonth #Research #NHS
Watch the full interview via the link in our bio.
#LupusAwarenessMonth #Research #NHS