Dalila
@dalilatm.bsky.social
Interested in research ethics and all about #lupus #lupusnephritis | Running support group #Wales 🏴| Views my own | We need a cure for Lupus 🦋
🤩 Wonderful day yesterday at the NHS Wales Awards – thanks to @cedarcardiff.bsky.social for their great public involvement work. Delighted that the project, ‘Development of the NHS Wales People’s Experience Survey’, was a finalist for the Person-Centred Care Award! 🎉
November 19, 2025 at 6:16 PM
🤩 Wonderful day yesterday at the NHS Wales Awards – thanks to @cedarcardiff.bsky.social for their great public involvement work. Delighted that the project, ‘Development of the NHS Wales People’s Experience Survey’, was a finalist for the Person-Centred Care Award! 🎉
That much-needed Saturday energy boost 🎶 #VivaldisWinter
November 8, 2025 at 11:57 AM
That much-needed Saturday energy boost 🎶 #VivaldisWinter
One of my favourite books on #lupus since it came out — clearly structured, great for discussion. I keep coming back to it 📖
Thanks to editor @zahitouma.bsky.social and team
Thanks to editor @zahitouma.bsky.social and team
October 26, 2025 at 9:36 AM
One of my favourite books on #lupus since it came out — clearly structured, great for discussion. I keep coming back to it 📖
Thanks to editor @zahitouma.bsky.social and team
Thanks to editor @zahitouma.bsky.social and team
🌟 Great to have attended yesterday’s @daringtodream.bsky.social ‘Making Space’ event! Inspiring to learn about their work on emotional support through new spaces & music. We even learned about recent Cardiff Met research & their supportive dancing robots across hospitals in #Wales 🤖
October 15, 2025 at 11:26 AM
🌟 Great to have attended yesterday’s @daringtodream.bsky.social ‘Making Space’ event! Inspiring to learn about their work on emotional support through new spaces & music. We even learned about recent Cardiff Met research & their supportive dancing robots across hospitals in #Wales 🤖
🦋 Lupus Webinar this Thursday! #lupusnephritis #lupus #SLE
Hosted by the JIR Academy: “Lupus Nephritis: From Guidelines to Paediatric Practice”
🗓 Oct 16 | 13:00 CET
Talks by Pr Kamphuis & Pr Aggarwal + clinical cases by Dr Yasaswini & Dr Nolan
🔗 www.jircohorte.org/jirevents
Hosted by the JIR Academy: “Lupus Nephritis: From Guidelines to Paediatric Practice”
🗓 Oct 16 | 13:00 CET
Talks by Pr Kamphuis & Pr Aggarwal + clinical cases by Dr Yasaswini & Dr Nolan
🔗 www.jircohorte.org/jirevents
October 14, 2025 at 9:04 AM
🦋 Lupus Webinar this Thursday! #lupusnephritis #lupus #SLE
Hosted by the JIR Academy: “Lupus Nephritis: From Guidelines to Paediatric Practice”
🗓 Oct 16 | 13:00 CET
Talks by Pr Kamphuis & Pr Aggarwal + clinical cases by Dr Yasaswini & Dr Nolan
🔗 www.jircohorte.org/jirevents
Hosted by the JIR Academy: “Lupus Nephritis: From Guidelines to Paediatric Practice”
🗓 Oct 16 | 13:00 CET
Talks by Pr Kamphuis & Pr Aggarwal + clinical cases by Dr Yasaswini & Dr Nolan
🔗 www.jircohorte.org/jirevents
Happening this month: ENCA Online Event 2025
💻 An interactive online event for health professionals, patient representatives, and families in paediatric rheumatology.
📅 Saturday, 25 October 2025
🕤 09:30 – 13:00 (CET)
encanetwork.org/event/
💻 An interactive online event for health professionals, patient representatives, and families in paediatric rheumatology.
📅 Saturday, 25 October 2025
🕤 09:30 – 13:00 (CET)
encanetwork.org/event/
October 13, 2025 at 6:59 AM
Happening this month: ENCA Online Event 2025
💻 An interactive online event for health professionals, patient representatives, and families in paediatric rheumatology.
📅 Saturday, 25 October 2025
🕤 09:30 – 13:00 (CET)
encanetwork.org/event/
💻 An interactive online event for health professionals, patient representatives, and families in paediatric rheumatology.
📅 Saturday, 25 October 2025
🕤 09:30 – 13:00 (CET)
encanetwork.org/event/
From Wales to Australia! 🌍 We were thrilled to have Chloe Bayliss join our group meeting and share her inspiring #lupus journey 💜 Her story featured in our report for @lupusuk.bsky.social’s magazine — and now she has a copy all the way in Australia! 🇦🇺 So exciting! #Cardiff
October 10, 2025 at 9:13 AM
From Wales to Australia! 🌍 We were thrilled to have Chloe Bayliss join our group meeting and share her inspiring #lupus journey 💜 Her story featured in our report for @lupusuk.bsky.social’s magazine — and now she has a copy all the way in Australia! 🇦🇺 So exciting! #Cardiff
🇩🇪 #Berlin It's #LupusAcademy Meeting time! 🩺 Three days dedicated to all things lupus. Just kicked off with Prof. Maria Dall’Era @UCSF sharing the latest updates on lupus nephritis #lupus #LupusNephritis
October 9, 2025 at 11:24 AM
🇩🇪 #Berlin It's #LupusAcademy Meeting time! 🩺 Three days dedicated to all things lupus. Just kicked off with Prof. Maria Dall’Era @UCSF sharing the latest updates on lupus nephritis #lupus #LupusNephritis
💡 A fantastic October to explore childhood-onset lupus and get involved in the discussion! #cSLE #lupus #paediatric Coming-up events:
☑️ Thur, 16 Oct | 13:00–15:00 CEST, JIR Academy
☑️ Tue, 21 OCT | 12:00 CEST, PrES School
☑️ Sat, 25 OCT | 9:30-13:00 CEST, ENCA Network Event
☑️ Thur, 16 Oct | 13:00–15:00 CEST, JIR Academy
☑️ Tue, 21 OCT | 12:00 CEST, PrES School
☑️ Sat, 25 OCT | 9:30-13:00 CEST, ENCA Network Event
October 7, 2025 at 9:56 AM
💡 A fantastic October to explore childhood-onset lupus and get involved in the discussion! #cSLE #lupus #paediatric Coming-up events:
☑️ Thur, 16 Oct | 13:00–15:00 CEST, JIR Academy
☑️ Tue, 21 OCT | 12:00 CEST, PrES School
☑️ Sat, 25 OCT | 9:30-13:00 CEST, ENCA Network Event
☑️ Thur, 16 Oct | 13:00–15:00 CEST, JIR Academy
☑️ Tue, 21 OCT | 12:00 CEST, PrES School
☑️ Sat, 25 OCT | 9:30-13:00 CEST, ENCA Network Event
Early days, but such positive news for science and the Huntington’s disease community 🙏🏻
www.bbc.com/news/article...
www.bbc.com/news/article...
September 24, 2025 at 12:30 PM
Early days, but such positive news for science and the Huntington’s disease community 🙏🏻
www.bbc.com/news/article...
www.bbc.com/news/article...
Looks amazing! 🪐👏 Keep it up! I caught last night’s eclipse online 🇳🇿Astrophysicist Graham Jones said Saturn’s equinoxes are every 15 years, with the last one in May 🤩 the rings look thinner at equinox!
September 22, 2025 at 8:23 AM
Looks amazing! 🪐👏 Keep it up! I caught last night’s eclipse online 🇳🇿Astrophysicist Graham Jones said Saturn’s equinoxes are every 15 years, with the last one in May 🤩 the rings look thinner at equinox!
🎧 Enjoyed listening to ‘No More Normal’. #Awareness Glad it mentions autoimmune conditions & #mentalhealth
As Rakshasa et al. paper highlights, people with autoimmune conditions have nearly twice the risk of affective disorders Vs general population:
🔗 www.healio.com/news/rheumat...
As Rakshasa et al. paper highlights, people with autoimmune conditions have nearly twice the risk of affective disorders Vs general population:
🔗 www.healio.com/news/rheumat...
September 16, 2025 at 12:25 PM
🎧 Enjoyed listening to ‘No More Normal’. #Awareness Glad it mentions autoimmune conditions & #mentalhealth
As Rakshasa et al. paper highlights, people with autoimmune conditions have nearly twice the risk of affective disorders Vs general population:
🔗 www.healio.com/news/rheumat...
As Rakshasa et al. paper highlights, people with autoimmune conditions have nearly twice the risk of affective disorders Vs general population:
🔗 www.healio.com/news/rheumat...
An amazing documentary — real lives, emotional depth — it keeps you on the edge of your seat. Ends with an on-point ‘Florence & the Machine’ song and a powerful reminder of how great care touches everyone and saves lives #Critical #Netflix #MustWatch
August 6, 2025 at 3:06 PM
An amazing documentary — real lives, emotional depth — it keeps you on the edge of your seat. Ends with an on-point ‘Florence & the Machine’ song and a powerful reminder of how great care touches everyone and saves lives #Critical #Netflix #MustWatch
🦋 Excited to be part of the PReS Lupus Working Party, collaborating to share the patient voice and bring hope for a better future in childhood lupus.
#paediatric #rheumatology #lupus
Keep up with the latest work from the PReS Lupus WP ☑️ Follow on LinkedIn! www.linkedin.com/in/preslupus...
#paediatric #rheumatology #lupus
Keep up with the latest work from the PReS Lupus WP ☑️ Follow on LinkedIn! www.linkedin.com/in/preslupus...
August 5, 2025 at 1:36 PM
🦋 Excited to be part of the PReS Lupus Working Party, collaborating to share the patient voice and bring hope for a better future in childhood lupus.
#paediatric #rheumatology #lupus
Keep up with the latest work from the PReS Lupus WP ☑️ Follow on LinkedIn! www.linkedin.com/in/preslupus...
#paediatric #rheumatology #lupus
Keep up with the latest work from the PReS Lupus WP ☑️ Follow on LinkedIn! www.linkedin.com/in/preslupus...
⭐️ Happy to share that our article, in collab with CEDAR, is featured in the latest LUPUS UK magazine! 😀 It discusses the refreshed National PREMs 🏴📝 — project winner of the 2024 Health & Care Research Public Involvement Award 🏆
Available to all LUPUS UK subscribers
#Lupus #PREM #PPI #Survey #Wales
Available to all LUPUS UK subscribers
#Lupus #PREM #PPI #Survey #Wales
July 20, 2025 at 1:37 PM
⭐️ Happy to share that our article, in collab with CEDAR, is featured in the latest LUPUS UK magazine! 😀 It discusses the refreshed National PREMs 🏴📝 — project winner of the 2024 Health & Care Research Public Involvement Award 🏆
Available to all LUPUS UK subscribers
#Lupus #PREM #PPI #Survey #Wales
Available to all LUPUS UK subscribers
#Lupus #PREM #PPI #Survey #Wales
🤩 New @eular.org webinar! Join us for PAED X PARE: a unique dialogue on reproductive healthcare in childhood & juvenile onset RMDs.
🗓️ Nov 5 | 16:30–17:30 CET
📍 Teams
🔗 esor.eular.org/enrol/index....
#lupus #pedsrheum #pregnancy #RMD #rheumatology #PARE
🗓️ Nov 5 | 16:30–17:30 CET
📍 Teams
🔗 esor.eular.org/enrol/index....
#lupus #pedsrheum #pregnancy #RMD #rheumatology #PARE
July 19, 2025 at 2:43 PM
🤩 New @eular.org webinar! Join us for PAED X PARE: a unique dialogue on reproductive healthcare in childhood & juvenile onset RMDs.
🗓️ Nov 5 | 16:30–17:30 CET
📍 Teams
🔗 esor.eular.org/enrol/index....
#lupus #pedsrheum #pregnancy #RMD #rheumatology #PARE
🗓️ Nov 5 | 16:30–17:30 CET
📍 Teams
🔗 esor.eular.org/enrol/index....
#lupus #pedsrheum #pregnancy #RMD #rheumatology #PARE
🦋 Great to have attended Lupus UK’s National Council Meeting this weekend to connect with other regional group coordinators and hear about the exciting projects ahead! 🌟 #Birmingham #Lupus #Support
July 13, 2025 at 9:06 AM
🦋 Great to have attended Lupus UK’s National Council Meeting this weekend to connect with other regional group coordinators and hear about the exciting projects ahead! 🌟 #Birmingham #Lupus #Support
#Inspiring #Wales Great to have attended the Advanced Neurotherapies Centre launch event: ‘Making advanced therapies for brain diseases a reality today’. ⭐️ Inspiring presentations on new treatments & innovative approaches!
June 19, 2025 at 1:12 PM
#Inspiring #Wales Great to have attended the Advanced Neurotherapies Centre launch event: ‘Making advanced therapies for brain diseases a reality today’. ⭐️ Inspiring presentations on new treatments & innovative approaches!
June 18, 2025 at 1:48 PM
#EULAR2025 #Fibromyalgia #Debate 🔥 Kevin Davies (ACCIA), asks if there’s a problem here? A bit, but ‘we don’t a have problem lumping things together’ and refers to #lupus, ‘a multi system disease, hugely variable phenotype, hugely variable natural history’ ⬇️
June 13, 2025 at 12:29 PM
#EULAR2025 #Fibromyalgia #Debate 🔥 Kevin Davies (ACCIA), asks if there’s a problem here? A bit, but ‘we don’t a have problem lumping things together’ and refers to #lupus, ‘a multi system disease, hugely variable phenotype, hugely variable natural history’ ⬇️
👍🏻 Well done @eular.org for organising this 🔥 debate on #Fibromyalgia! Is it or not autoimmune? Thought-provoking—especially important for those living with both FM and #Lupus #EULAR2025
June 13, 2025 at 12:14 PM
👍🏻 Well done @eular.org for organising this 🔥 debate on #Fibromyalgia! Is it or not autoimmune? Thought-provoking—especially important for those living with both FM and #Lupus #EULAR2025
Not attending #EULAR2025? Join today’s webinar!
⚡️Starting in 10 min!
📅 Thu 12 June, 3pm BST
🎤 INSPIRE team from @cam.ac.uk shares results from their global survey on autoimmune diseases (6,000+ responses!) #lupus 🌍
Open to all & recording available.
🔗 Join: bit.ly/LTCG_WEBINAR
⚡️Starting in 10 min!
📅 Thu 12 June, 3pm BST
🎤 INSPIRE team from @cam.ac.uk shares results from their global survey on autoimmune diseases (6,000+ responses!) #lupus 🌍
Open to all & recording available.
🔗 Join: bit.ly/LTCG_WEBINAR
June 12, 2025 at 1:51 PM
Not attending #EULAR2025? Join today’s webinar!
⚡️Starting in 10 min!
📅 Thu 12 June, 3pm BST
🎤 INSPIRE team from @cam.ac.uk shares results from their global survey on autoimmune diseases (6,000+ responses!) #lupus 🌍
Open to all & recording available.
🔗 Join: bit.ly/LTCG_WEBINAR
⚡️Starting in 10 min!
📅 Thu 12 June, 3pm BST
🎤 INSPIRE team from @cam.ac.uk shares results from their global survey on autoimmune diseases (6,000+ responses!) #lupus 🌍
Open to all & recording available.
🔗 Join: bit.ly/LTCG_WEBINAR
💡 Excellent conclusions from Dr Costenbader on Nutrition & Management of IRDs. Better evidence on RA than #SLE #lupus. More research needed ☑️ #EULAR2025
June 11, 2025 at 1:39 PM
💡 Excellent conclusions from Dr Costenbader on Nutrition & Management of IRDs. Better evidence on RA than #SLE #lupus. More research needed ☑️ #EULAR2025