Register today for the @icancmeresearch.bsky.social online conference Nov. 4-6. The event was designed by people w/ #MECFS and the theme is “Nothing About Us Without Us.”

icancme.ca/research/202...

How would you react if someone decided you’d no longer have water treatment & plumbing?

That you’d be rolling a dice with water from your faucet. That you’d have to poop in a bucket & dump it in the street, your yard, a ditch.

You’d probably be horrified & outraged, right?

1/

“COVID vaccines are not yet available and are expected to start rolling out across Canada in the fall.” 🙃

New research shows Long COVID and chronic fatigue syndrome (ME/CFS) share the same biological problem: their bodies struggle to use oxygen properly during exercise.

Here's a full breakdown - and what it means.

Now for our second panel discussion, Navigating the Maze of the Continuum of Care for Rehabilitation Living with Long COVID, with Sue Birch, Elizabeth Racz, Michelle DiLauro, Fran Wolfe and Cara Kaup at #COVIDRehab forum

Can automated language analyses identify cognitive deficits in Long COVID? Tijana Simic & Kathleen Fraser present research at the #COVIDRehab forum:

📌Long COVID affects >1 million Canadians, causing long-term symptoms not well-captured by standard cognitive testing

Todd Davenport discusses Abnormal Post-Exertional Recovery in People Living with Long COVID: Insights from Two-Day Cardiopulmonary Exercise Testing at #COVIDRehab forum with @sunsopeningband.bsky.social

Jessica DeMars from Breathewell Physio speaks about her role in treating patients as a physiotherapist and providing safe rehab for post-exertion malaise (PEM)

We are pleased to welcome our keynote speaker, Julia Moore Fogel

Today is the #COVIDRehab Forum! Follow along for updates on presentations, panels, and more.

COVID didn’t end. Its story just stopped being told. canadahealthwatch.ca/2025/04/04/c... by @flannerydean.bsky.social

𝗚𝗲𝘁 𝘄𝗲𝗲𝗸𝗹𝘆 𝘂𝗽𝗱𝗮𝘁𝗲𝘀: CanadaHealthwatch.ca/newsletter 🍁

Imagine you wake up and find you have cancer. It’s devastating to your body, your life. And at least twice a week, you see articles titled “The world has moved on from cancer.” When you go to doctors, they say, oh cancer? Have you tried SSRIs? Your friends occasionally ask if your cancer is better.

There’s been INTERNATIONAL attention on these guidelines, and not because of how good they are. That should say something. Journalists should speak w clinicians savvy in Long Covid who know how damaging these are, and the patients who understand who much damage this can cause us. 🖤🤘

A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM)

Please share widely - all info on our website here

www.physiosforme.com/athletessurvey

5 years have passed and millions are affected globally

All are still waiting for a cure

#LongCovidAwarenessDay

Dropouts in exercise rehabilitation program in patients with Long COVID: A systematic review

journals.lww.com/ajpmr/abstra...

"Exercise rehabilitation studies for #LongCOVID patients show a 14% dropout rate, with the most common reasons being health-related issues and incomplete assessments”
#PASC

Second post that is also high on my priorities: changing the disability insurance industry to better reflect the needs of people with complex health issues like Long Covid.

link.springer.com/article/10.1...

First post! And it’s about something that is near and dear to me - our Long COVID Connect program. This is a non profit, peer facilitated program open to anyone living with Long COVID.

Registration link is here: docs.google.com/forms/d/e/1F...