Long COVID Physio
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
https://bio.site/longcovidphysio
Reposted by Long COVID Physio
8/ Obviously it's easy to be wise after the event, but everything we said at the time is on our web site for others to judge
independentsage.org
independentsage.org
Independent SAGE – Independent scientific advice on the COVID-19 crisis, for the UK government and public.
Independent SAGE: Independent scientific advice on the COVID-19 crisis, for the UK government and public.
independentsage.org
November 20, 2025 at 4:53 PM
8/ Obviously it's easy to be wise after the event, but everything we said at the time is on our web site for others to judge
independentsage.org
independentsage.org
Reposted by Long COVID Physio
7/Data and Preparedness
Inquiry: Improve real-time, equality-disaggregated data; strengthen modelling capacity; pre-design dashboards and taskforce structures.
IS: Repeatedly highlighted data gaps (ethnicity, disability); called for transparent modelling and scenario planning.
Inquiry: Improve real-time, equality-disaggregated data; strengthen modelling capacity; pre-design dashboards and taskforce structures.
IS: Repeatedly highlighted data gaps (ethnicity, disability); called for transparent modelling and scenario planning.
November 20, 2025 at 4:43 PM
7/Data and Preparedness
Inquiry: Improve real-time, equality-disaggregated data; strengthen modelling capacity; pre-design dashboards and taskforce structures.
IS: Repeatedly highlighted data gaps (ethnicity, disability); called for transparent modelling and scenario planning.
Inquiry: Improve real-time, equality-disaggregated data; strengthen modelling capacity; pre-design dashboards and taskforce structures.
IS: Repeatedly highlighted data gaps (ethnicity, disability); called for transparent modelling and scenario planning.
Reposted by Long COVID Physio
6/Governance
Inquiry: Recommends standing 4-nations forum; clear transition from COBR to long-term structures; inclusive, accountable decision-making; address toxic culture in govt.
IS: Called for collaborative, respectful four-nations approach; criticised politicisation and lack of coordination.
Inquiry: Recommends standing 4-nations forum; clear transition from COBR to long-term structures; inclusive, accountable decision-making; address toxic culture in govt.
IS: Called for collaborative, respectful four-nations approach; criticised politicisation and lack of coordination.
November 20, 2025 at 4:43 PM
6/Governance
Inquiry: Recommends standing 4-nations forum; clear transition from COBR to long-term structures; inclusive, accountable decision-making; address toxic culture in govt.
IS: Called for collaborative, respectful four-nations approach; criticised politicisation and lack of coordination.
Inquiry: Recommends standing 4-nations forum; clear transition from COBR to long-term structures; inclusive, accountable decision-making; address toxic culture in govt.
IS: Called for collaborative, respectful four-nations approach; criticised politicisation and lack of coordination.
Reposted by Long COVID Physio
5/Social & Economic Harms
Inquiry: Critiques unclear messaging (Stay Alert); recommends transparent, accessible campaigns; integrate behavioural science.
IS: Advocated clear, consistent messaging; criticised confusing slogans; promoted behavioural insights and ventilation messaging early.
Inquiry: Critiques unclear messaging (Stay Alert); recommends transparent, accessible campaigns; integrate behavioural science.
IS: Advocated clear, consistent messaging; criticised confusing slogans; promoted behavioural insights and ventilation messaging early.
November 20, 2025 at 4:43 PM
5/Social & Economic Harms
Inquiry: Critiques unclear messaging (Stay Alert); recommends transparent, accessible campaigns; integrate behavioural science.
IS: Advocated clear, consistent messaging; criticised confusing slogans; promoted behavioural insights and ventilation messaging early.
Inquiry: Critiques unclear messaging (Stay Alert); recommends transparent, accessible campaigns; integrate behavioural science.
IS: Advocated clear, consistent messaging; criticised confusing slogans; promoted behavioural insights and ventilation messaging early.
Reposted by Long COVID Physio
4/Scientific advice
Inquiry: Broaden SAGE participation; maintain UK-wide expert register; include devolved reps from outset; provide feedback loops to advisory groups.
IS: Criticised narrow networks and lack of diversity; called for multidisciplinary input and devolved engagement.
Inquiry: Broaden SAGE participation; maintain UK-wide expert register; include devolved reps from outset; provide feedback loops to advisory groups.
IS: Criticised narrow networks and lack of diversity; called for multidisciplinary input and devolved engagement.
November 20, 2025 at 4:43 PM
4/Scientific advice
Inquiry: Broaden SAGE participation; maintain UK-wide expert register; include devolved reps from outset; provide feedback loops to advisory groups.
IS: Criticised narrow networks and lack of diversity; called for multidisciplinary input and devolved engagement.
Inquiry: Broaden SAGE participation; maintain UK-wide expert register; include devolved reps from outset; provide feedback loops to advisory groups.
IS: Criticised narrow networks and lack of diversity; called for multidisciplinary input and devolved engagement.
Reposted by Long COVID Physio
3/Early action
Inquiry: Criticises “too little, too late”; recommends acting earlier and harder even with imperfect evidence; formal contingency plans for leadership continuity.
IS: Urged early lockdowns, circuit breakers, and strong NPIs; warned against delays and optimism bias.
Inquiry: Criticises “too little, too late”; recommends acting earlier and harder even with imperfect evidence; formal contingency plans for leadership continuity.
IS: Urged early lockdowns, circuit breakers, and strong NPIs; warned against delays and optimism bias.
November 20, 2025 at 4:43 PM
3/Early action
Inquiry: Criticises “too little, too late”; recommends acting earlier and harder even with imperfect evidence; formal contingency plans for leadership continuity.
IS: Urged early lockdowns, circuit breakers, and strong NPIs; warned against delays and optimism bias.
Inquiry: Criticises “too little, too late”; recommends acting earlier and harder even with imperfect evidence; formal contingency plans for leadership continuity.
IS: Urged early lockdowns, circuit breakers, and strong NPIs; warned against delays and optimism bias.
Reposted by Long COVID Physio
2/Transparency
Inquiry: Calls for publication of scientific, economic, social advice; clear communication that science informs but does not dictate policy; accessible formats
IS: Formed in response to lack of transparency; advocated publication of SAGE minutes, membership, & modelling assumptions.
Inquiry: Calls for publication of scientific, economic, social advice; clear communication that science informs but does not dictate policy; accessible formats
IS: Formed in response to lack of transparency; advocated publication of SAGE minutes, membership, & modelling assumptions.
November 20, 2025 at 4:43 PM
2/Transparency
Inquiry: Calls for publication of scientific, economic, social advice; clear communication that science informs but does not dictate policy; accessible formats
IS: Formed in response to lack of transparency; advocated publication of SAGE minutes, membership, & modelling assumptions.
Inquiry: Calls for publication of scientific, economic, social advice; clear communication that science informs but does not dictate policy; accessible formats
IS: Formed in response to lack of transparency; advocated publication of SAGE minutes, membership, & modelling assumptions.
Reposted by Long COVID Physio
1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness
November 20, 2025 at 4:43 PM
1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness
Reposted by Long COVID Physio
UK Covid-19 Inquiry Module 2 Report: #LongCovid wasn’t just a medical issue, it was a governance failure. Millions were left without recognition or support.
@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
November 20, 2025 at 5:37 PM
UK Covid-19 Inquiry Module 2 Report: #LongCovid wasn’t just a medical issue, it was a governance failure. Millions were left without recognition or support.
@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
Reposted by Long COVID Physio
Our statement following the publication of the Covid Inquiry Module 2 report into Core UK decision-making and political governance:
November 20, 2025 at 4:44 PM
Our statement following the publication of the Covid Inquiry Module 2 report into Core UK decision-making and political governance:
Reposted by Long COVID Physio
BREAKING: UK’s response to Covid was “too little too late”. Acting faster could have saved 23,000 lives in England according to the public inquiry.
Boris Johnson presided over a “toxic, sexist, chaotic culture” in No10, where rule-breaking seriously undermined public confidence.
Boris Johnson presided over a “toxic, sexist, chaotic culture” in No10, where rule-breaking seriously undermined public confidence.
November 20, 2025 at 4:07 PM
BREAKING: UK’s response to Covid was “too little too late”. Acting faster could have saved 23,000 lives in England according to the public inquiry.
Boris Johnson presided over a “toxic, sexist, chaotic culture” in No10, where rule-breaking seriously undermined public confidence.
Boris Johnson presided over a “toxic, sexist, chaotic culture” in No10, where rule-breaking seriously undermined public confidence.
Reposted by Long COVID Physio
My story from a day reading the very long and very damning report by the official Covid inquiry into the actions of government during the pandemic.
www.theguardian.com/uk-news/2025...
www.theguardian.com/uk-news/2025...
‘Too little, too late’: damning report condemns UK’s Covid response
Report on handling of pandemic contains stinging criticism of ‘toxic and chaotic’ culture inside Boris Johnson’s No 10
www.theguardian.com
November 20, 2025 at 4:03 PM
My story from a day reading the very long and very damning report by the official Covid inquiry into the actions of government during the pandemic.
www.theguardian.com/uk-news/2025...
www.theguardian.com/uk-news/2025...
Reposted by Long COVID Physio
Watch this short film 📺 which summarises the key findings and recommendations 👇
youtube.com/watch?v=1_cd...
youtube.com/watch?v=1_cd...
November 20, 2025 at 4:16 PM
Watch this short film 📺 which summarises the key findings and recommendations 👇
youtube.com/watch?v=1_cd...
youtube.com/watch?v=1_cd...
Reposted by Long COVID Physio
The Chair of the UK Covid-19 Inquiry, Baroness Heather Hallett, has today published her second report.
Baroness Hallett is calling for the prompt and thorough implementation of 19 key recommendations.
Read about the report on the Inquiry's website 👇
covid19.public-inquiry.uk/reports/
Baroness Hallett is calling for the prompt and thorough implementation of 19 key recommendations.
Read about the report on the Inquiry's website 👇
covid19.public-inquiry.uk/reports/
November 20, 2025 at 4:05 PM
The Chair of the UK Covid-19 Inquiry, Baroness Heather Hallett, has today published her second report.
Baroness Hallett is calling for the prompt and thorough implementation of 19 key recommendations.
Read about the report on the Inquiry's website 👇
covid19.public-inquiry.uk/reports/
Baroness Hallett is calling for the prompt and thorough implementation of 19 key recommendations.
Read about the report on the Inquiry's website 👇
covid19.public-inquiry.uk/reports/
Reposted by Long COVID Physio
TOO LITTLE, TOO LATE. For shame, Mr Johnson and the team you pretended to lead. Preventable deaths on your hands. They will not return to us. You live on, rich and vainglorious.
www.theguardian.com/uk-news/2025...
www.theguardian.com/uk-news/2025...
‘Too little, too late’: damning report condemns UK’s Covid response
Report on handling of pandemic contains stinging criticism of ‘toxic and chaotic’ culture inside Boris Johnson’s No 10
www.theguardian.com
November 20, 2025 at 4:22 PM
TOO LITTLE, TOO LATE. For shame, Mr Johnson and the team you pretended to lead. Preventable deaths on your hands. They will not return to us. You live on, rich and vainglorious.
www.theguardian.com/uk-news/2025...
www.theguardian.com/uk-news/2025...
Reposted by Long COVID Physio
Amatica Health are offering over a £1000 worth of testing for teens under 18 with Long Covid/ ME.
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
November 19, 2025 at 6:34 PM
Amatica Health are offering over a £1000 worth of testing for teens under 18 with Long Covid/ ME.
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
Reposted by Long COVID Physio
👋We are looking for people with ME's experience of the medical system in the UK c.2012 - especially GET/CBT.
Any first hand testimony would be greatly appreciated. It's research for a book & a chance to have your experience inform it's narrative.
🖇️👇
forms.gle/2qxLgWouTNJQ...
Any first hand testimony would be greatly appreciated. It's research for a book & a chance to have your experience inform it's narrative.
🖇️👇
forms.gle/2qxLgWouTNJQ...
Experiences of Medical Care for ME/CFS around 2012
This form is for people who had contact with the medical profession in or around 2012 regarding ME/CFS - particularly where Graded Exercise Therapy (GET) or Cognitive Behavioural Therapy (CBT) were…
docs.google.com
November 20, 2025 at 2:32 PM
👋We are looking for people with ME's experience of the medical system in the UK c.2012 - especially GET/CBT.
Any first hand testimony would be greatly appreciated. It's research for a book & a chance to have your experience inform it's narrative.
🖇️👇
forms.gle/2qxLgWouTNJQ...
Any first hand testimony would be greatly appreciated. It's research for a book & a chance to have your experience inform it's narrative.
🖇️👇
forms.gle/2qxLgWouTNJQ...
Reposted by Long COVID Physio
Looking forward to presenting at the Chartered Society of Physiotherapy conference on Friday in Newport. If you're there come and say hi. Time for more advocacy and education about #ME/CFS and #LongCOVID @PhysiosForME @thecsp
November 19, 2025 at 7:01 PM
Looking forward to presenting at the Chartered Society of Physiotherapy conference on Friday in Newport. If you're there come and say hi. Time for more advocacy and education about #ME/CFS and #LongCOVID @PhysiosForME @thecsp
Reposted by Long COVID Physio
Please fill in this survey if you are a HCP with #longcovid or #ME. Please share widely thank you
🚨New survey alert 🚨
The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME
All information can be found on the landing page here.
www.physiosforme.com/hcpwithmesur...
The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME
All information can be found on the landing page here.
www.physiosforme.com/hcpwithmesur...
hcps with ME survey | Physiosforme
www.physiosforme.com
November 18, 2025 at 8:00 PM
Please fill in this survey if you are a HCP with #longcovid or #ME. Please share widely thank you
“Blood flow to the head in a person with ME experiencing PEM: A case report”
journals.lww.com/cptj/fulltex...
journals.lww.com/cptj/fulltex...
October 30, 2025 at 11:23 AM
“Blood flow to the head in a person with ME experiencing PEM: A case report”
journals.lww.com/cptj/fulltex...
journals.lww.com/cptj/fulltex...
Reposted by Long COVID Physio
We've had another study published 🥳
"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"
Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"
Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
Taylor & Francis Online: Peer-reviewed Journals
Search and explore the millions of quality, peer-reviewed journal articles published under the Taylor & Francis, Routledge and Dove Medical Press imprints.
tandfonline.com
October 15, 2025 at 11:46 AM
We've had another study published 🥳
"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"
Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"
Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
Reposted by Long COVID Physio
It’s unacceptable that five years on individual families have to fight for education support in the absence of clear guidance on the needs of - and more importantly how to meet the needs of children and young people with Long Covid #LongCovidKids #CovidInquiry
October 14, 2025 at 3:18 PM
It’s unacceptable that five years on individual families have to fight for education support in the absence of clear guidance on the needs of - and more importantly how to meet the needs of children and young people with Long Covid #LongCovidKids #CovidInquiry
Reposted by Long COVID Physio
The education secretary needs to be a strong advocate for children, young people and their educators. Recognising their needs and pushing for these to be met. In respect of a number of areas including LC and clinically vulnerable families this was not achieved @cvcev.bsky.social #CovidInquiry
October 14, 2025 at 3:17 PM
The education secretary needs to be a strong advocate for children, young people and their educators. Recognising their needs and pushing for these to be met. In respect of a number of areas including LC and clinically vulnerable families this was not achieved @cvcev.bsky.social #CovidInquiry
Reposted by Long COVID Physio
Gavin Williamson suggests the Department of Health and Social Care may have been who recommended they hold back on issuing guidance re #LongCovid to schools #LongCovidKids #CovidInquiry
October 14, 2025 at 3:15 PM
Gavin Williamson suggests the Department of Health and Social Care may have been who recommended they hold back on issuing guidance re #LongCovid to schools #LongCovidKids #CovidInquiry
Reposted by Long COVID Physio
Sarah Hannett KC: you could have told teachers in May 2021.. you could have helped children with Long COVID. #LongCovidKids #CovidInquiry
October 14, 2025 at 3:14 PM
Sarah Hannett KC: you could have told teachers in May 2021.. you could have helped children with Long COVID. #LongCovidKids #CovidInquiry