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longcovidphysio.bsky.social
Long COVID Physio
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies

https://bio.site/longcovidphysio
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8/ Obviously it's easy to be wise after the event, but everything we said at the time is on our web site for others to judge
independentsage.org
Independent SAGE – Independent scientific advice on the COVID-19 crisis, for the UK government and public.
Independent SAGE: Independent scientific advice on the COVID-19 crisis, for the UK government and public.
independentsage.org
November 20, 2025 at 4:53 PM
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7/Data and Preparedness
Inquiry: Improve real-time, equality-disaggregated data; strengthen modelling capacity; pre-design dashboards and taskforce structures.
IS: Repeatedly highlighted data gaps (ethnicity, disability); called for transparent modelling and scenario planning.
November 20, 2025 at 4:43 PM
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6/Governance
Inquiry: Recommends standing 4-nations forum; clear transition from COBR to long-term structures; inclusive, accountable decision-making; address toxic culture in govt.
IS: Called for collaborative, respectful four-nations approach; criticised politicisation and lack of coordination.
November 20, 2025 at 4:43 PM
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5/Social & Economic Harms
Inquiry: Critiques unclear messaging (Stay Alert); recommends transparent, accessible campaigns; integrate behavioural science.
IS: Advocated clear, consistent messaging; criticised confusing slogans; promoted behavioural insights and ventilation messaging early.
November 20, 2025 at 4:43 PM
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4/Scientific advice
Inquiry: Broaden SAGE participation; maintain UK-wide expert register; include devolved reps from outset; provide feedback loops to advisory groups.
IS: Criticised narrow networks and lack of diversity; called for multidisciplinary input and devolved engagement.
November 20, 2025 at 4:43 PM
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3/Early action
Inquiry: Criticises “too little, too late”; recommends acting earlier and harder even with imperfect evidence; formal contingency plans for leadership continuity.
IS: Urged early lockdowns, circuit breakers, and strong NPIs; warned against delays and optimism bias.
November 20, 2025 at 4:43 PM
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2/Transparency
Inquiry: Calls for publication of scientific, economic, social advice; clear communication that science informs but does not dictate policy; accessible formats
IS: Formed in response to lack of transparency; advocated publication of SAGE minutes, membership, & modelling assumptions.
November 20, 2025 at 4:43 PM
Thank you for highlighting our education video series on #LongCovid

Currently available in Arabic, Bahasa Indonesia, Bangla, Brazilian Portuguese, French, German, Italian, Mandarin (Simplified Chinese), and Spanish.

longcovid.physio/long-covid-v...
Long COVID Video Series — Long COVID Physio
Long COVID Physio has partnered with FisioCamera to deliver a series of educational videos about Long COVID.
longcovid.physio
October 27, 2025 at 2:43 PM
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It’s unacceptable that five years on individual families have to fight for education support in the absence of clear guidance on the needs of - and more importantly how to meet the needs of children and young people with Long Covid #LongCovidKids #CovidInquiry
October 14, 2025 at 3:18 PM
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The education secretary needs to be a strong advocate for children, young people and their educators. Recognising their needs and pushing for these to be met. In respect of a number of areas including LC and clinically vulnerable families this was not achieved @cvcev.bsky.social #CovidInquiry
October 14, 2025 at 3:17 PM
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Gavin Williamson suggests the Department of Health and Social Care may have been who recommended they hold back on issuing guidance re #LongCovid to schools #LongCovidKids #CovidInquiry
October 14, 2025 at 3:15 PM