Long COVID Physio
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longcovidphysio.bsky.social
Long COVID Physio
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies

https://bio.site/longcovidphysio
Please see the attached images for a press release from @longcovidphysio.bsky.social urging immediate action on the U.K. Covid-19 Public Inquiry findings from Module 2.
December 4, 2025 at 9:52 PM
“Blood flow to the head in a person with ME experiencing PEM: A case report”

journals.lww.com/cptj/fulltex...
October 30, 2025 at 11:23 AM
Viene mañana 🚨📣

La Serie de Video COVID Persistente completa… los 8 episodios traducidos al español
🎉🎉🎉🎉

17 de julio 2025
10:00 (CEST)

#COVIDPersistente #LongCOVID
July 16, 2025 at 7:19 PM
Congratulations to our Chair Todd Davenport who has been awarded as a Catherine Worthingham Fellow of the American Physical Therapy Association

We are delighted that Todd’s outstanding work for ME/CFS and LC has been recognised

Thankyou for all that you are & do @sunsopeningband.bsky.social 🙏
July 14, 2025 at 9:10 AM
“Skeletal muscle properties in #LongCOVID and #ME/CFS differ from those induced by bed rest”

Objective science debunking deconditioning theories! 💥 🎤

@patientled.bsky.social

www.medrxiv.org/content/10.1...
May 6, 2025 at 9:23 PM
#CROI is the Conference on Retroviruses and Opportunistic Infections

This year #CROI2025 was in San Francisco, USA. Data on #LongCOVID was presented.

So what was the latest science for the field of infection associated chronic conditions?

A thread 🧵
March 29, 2025 at 2:54 PM
5 years have passed and millions are affected globally

All are still waiting for a cure

#LongCovidAwarenessDay
March 15, 2025 at 8:12 AM
We are devastated to learn of Ondine's passing. A shining light has gone out in the Long Covid Community. An absolute force for good and powerful speaker, she selflessly campaigned for recognition, research and rehabilitation for those affected. 💔
March 12, 2025 at 1:29 PM
January 14, 2025 at 9:14 AM
Skeletal muscle adaptations and post-exertional malaise #PEM #PESE in #LongCOVID

www.cell.com/trends/endoc...
December 22, 2024 at 8:03 PM
There is recommendation for vaccines but eligibility is becoming more restricted

@longcovidkids.bsky.social @longcovidsupport.bsky.social @longcovidsos.bsky.social @bhattmurphy.bsky.social
December 20, 2024 at 1:16 PM
We, as core participants in Module 3 at Covid Inquiry UK , seek an urgent Interim recommendation from the Chair to make Healthcare settings safe

@longcovidkids.bsky.social @longcovidsupport.bsky.social @longcovidsos.bsky.social @bhattmurphy.bsky.social
December 20, 2024 at 1:09 PM
HSE abrogated its responsibility to protect staff by failing to challenge the adequacy of the IPC Guidance

#covidinquiry
November 27, 2024 at 11:11 AM
UK Covid Inquiry 27 Nov

TheBMA Outlining the worse state of the NHS now, post-pandemic

Waiting lists 9.4 million
Severe staff shortages
Bed numbers far too low
£17.3 billion maintenance backlog
Staff morale & MH in crisis
Population health worsened

#covidinquiryuk
November 27, 2024 at 11:09 AM
UK Covid Inquiry 27 Nov

NHSEngland summing up:

Covid caused around 27million deaths globally, directly or indirectly - it was a tsunami

#covidinquiryuk
November 27, 2024 at 10:31 AM
UK Covid Inquiry 27 Nov

NHSEngland summing up:

Covid caused around 27million deaths globally, directly or indirectly - it was a tsunami

#covidinquiryuk
November 27, 2024 at 10:29 AM
UK Covid Inquiry 26 Nov

Prime Minister - "downplaying or giving alternative narratives to what we're actually physically witnessing"

Saleyha Ahsan #covidinquiryuk
November 26, 2024 at 5:31 PM
UK Covid Inquiry 26 Nov

Data: each specific number is a human life; one that is on a journey.
In relation to covid, death is not an easy death, illness is not an easy illness.
It would have been a frightening journey for all involved

Saleyha Ahsan Covid bereaved families #covidinquiryuk
November 26, 2024 at 5:15 PM
UK Covid Inquiry 26 Nov

“Data itself has no value. It’s what you do with the data & the Qs that you ask

Data needs to tell the truth. If it doesn’t, it’s useless”

Right data, right format, right Qs & needs to be actionable.

Anna-Louise Marsh-Rees Bereaved families Cymru #covidinquiry
November 26, 2024 at 2:37 PM
UK Covid Inquiry 26 Nov

“Prevention is key”

“It’s a human right to have fresh, uncontaminated air”

Anna-Louise Marsh-Rees Bereaved families for Justice Cymru

#covidinquiry
November 26, 2024 at 1:22 PM
UK Covid Inquiry 26 Nov

Covid pts were put on Non-Covid wards 😱
We heard repeatedly ‘we were following IPC Guidelines’ 🤔

“a sign of insanity, doing the same thing & expecting different results”

Did no-one say why aren’t these guidelines working?

Bereaved families 4 Justice Cymru
#covidinquiry
November 26, 2024 at 12:11 PM
UK Covid Inquiry 26 Nov

“It’s all about:

Communication
Respect
Listening

Never once have the Health Boards consulted those who were actually there, how we think things could be made better: communication, IPC, DNACPR”

Anna-Louise Marsh-Rees Bereaved families for Justice Cymru #covidinquiryuk
November 26, 2024 at 11:44 AM
UK Covid Inquiry 26 Nov

Four members had hospital morgues losing bodies of their loved ones.

"One of our members had to actually stop her father's body being transported to a super morgue"

Anna-Louise Marsh-Rees for Bereaved families for Justice Cymru

#covidinquiryuk
November 26, 2024 at 11:36 AM
UK Covid Inquiry 26 Nov

Anna-Louise Rees-Marsh for Bereaved families for Justice Cymru on the confusion around DNACPR

“It says on my dad’s CPR “we explained to the pt that CPR would be futile”. I pray they didn’t use that word “futile””

“You just wouldn’t would you?”

#wordsmatter #covidinquiryuk
November 26, 2024 at 11:21 AM
Being on a new platform gives us great opportunity to reflect on successes of the past such as the #LCPForum in 2022

All recordings available 👇
tinyurl.com/LCPForum

And 🥁 there might even be a publication coming soon 😜 #LongCOVID
November 14, 2024 at 6:21 PM