Robin Baumeister
@quoththerobin.bsky.social
she/her | MS, MHS | autism/neurodiversity & health research, research assistant @ JHU | serial hobbyist; helicopter cat parent; polite menace | 🌈♾️🦋🌱
views my own.
views my own.
Reposted by Robin Baumeister
In this meta-analysis of 40 studies incl 5,619,584 participants we found that #autistic individuals are more than 2X likely to have had at least 1 adverse childhood experience, incl all types of abuse, neglect, violence, bullying etc., than a non-autistic person.
journals.sagepub.com/doi/full/10....
journals.sagepub.com/doi/full/10....
February 4, 2025 at 11:24 PM
In this meta-analysis of 40 studies incl 5,619,584 participants we found that #autistic individuals are more than 2X likely to have had at least 1 adverse childhood experience, incl all types of abuse, neglect, violence, bullying etc., than a non-autistic person.
journals.sagepub.com/doi/full/10....
journals.sagepub.com/doi/full/10....
Reposted by Robin Baumeister
me, reading all of you on bluesky: the american experiment is over. we know not what hell we enter over the coming years
me, writing an email: Hi! I hope this finds you well.
me, writing an email: Hi! I hope this finds you well.
February 5, 2025 at 9:33 PM
me, reading all of you on bluesky: the american experiment is over. we know not what hell we enter over the coming years
me, writing an email: Hi! I hope this finds you well.
me, writing an email: Hi! I hope this finds you well.
Reposted by Robin Baumeister
7) Use the phrase "might as well" to call when you have time. Doesn't have to be a big deal / planned scheduled thing. On a lunch break? call yr reps. Taking the dog out? Call yr reps. Smoke break? Plz consider quitting but also call your reps.
8) Validate your anxiety. It's ok to be nervous!
8) Validate your anxiety. It's ok to be nervous!
February 5, 2025 at 8:36 PM
7) Use the phrase "might as well" to call when you have time. Doesn't have to be a big deal / planned scheduled thing. On a lunch break? call yr reps. Taking the dog out? Call yr reps. Smoke break? Plz consider quitting but also call your reps.
8) Validate your anxiety. It's ok to be nervous!
8) Validate your anxiety. It's ok to be nervous!
Reposted by Robin Baumeister
4) Walk around & PACE if that helps you. Keep your mind focused on moving your body so it isn't overthinking the call
5) If you get nervous & hang up that's ok. You're helping by lighting up those phone lines.
6) The busy signal is a sound of VICTORY, not a clue your call is a bother. Keep it up!
5) If you get nervous & hang up that's ok. You're helping by lighting up those phone lines.
6) The busy signal is a sound of VICTORY, not a clue your call is a bother. Keep it up!
February 5, 2025 at 8:36 PM
4) Walk around & PACE if that helps you. Keep your mind focused on moving your body so it isn't overthinking the call
5) If you get nervous & hang up that's ok. You're helping by lighting up those phone lines.
6) The busy signal is a sound of VICTORY, not a clue your call is a bother. Keep it up!
5) If you get nervous & hang up that's ok. You're helping by lighting up those phone lines.
6) The busy signal is a sound of VICTORY, not a clue your call is a bother. Keep it up!
Reposted by Robin Baumeister
Tips for Autistics to shake phone anxiety & call reps:
1) Body double, live or virtual. Have a friend call!
2) Have a written script! it's ok to sound like you're reading directly from it. You don't need to mask, but you DO need to be clear
3) Have 1-3 SPECIFIC issues to address. Ex: DOE & RFK!
1) Body double, live or virtual. Have a friend call!
2) Have a written script! it's ok to sound like you're reading directly from it. You don't need to mask, but you DO need to be clear
3) Have 1-3 SPECIFIC issues to address. Ex: DOE & RFK!
February 5, 2025 at 8:36 PM
Tips for Autistics to shake phone anxiety & call reps:
1) Body double, live or virtual. Have a friend call!
2) Have a written script! it's ok to sound like you're reading directly from it. You don't need to mask, but you DO need to be clear
3) Have 1-3 SPECIFIC issues to address. Ex: DOE & RFK!
1) Body double, live or virtual. Have a friend call!
2) Have a written script! it's ok to sound like you're reading directly from it. You don't need to mask, but you DO need to be clear
3) Have 1-3 SPECIFIC issues to address. Ex: DOE & RFK!
Reposted by Robin Baumeister
February 4, 2025 at 12:36 PM
Reposted by Robin Baumeister
hate it when i stand up too quickly and i get dizzy and society collapses
January 21, 2025 at 9:28 PM
hate it when i stand up too quickly and i get dizzy and society collapses
Reposted by Robin Baumeister
Today is Retraction Day, when we observe the anniversary of the retraction (Feb. 2, 2010) of the fraudulent paper that purported to show a link between vaccines and autism. 🧪#medsky
![This is the front page of a fraudulent research article that purported to show a link between vaccines and autism. The word "RETRACTED" is written across it in large red letters.
Wikipedia: On 28th February 1998, a fraudulent research paper by physician Andrew Wakefield and twelve coauthors, titled "Ileal-Lymphoid-Nodular Hyperplasia, Non-Specific Colitis, and Pervasive Developmental Disorder in Children", was published in the British medical journal The Lancet.[1] The paper falsely claimed causative links between the measles, mumps, and rubella (MMR) vaccine and colitis and between colitis and autism. The fraud involved data selection, data manipulation, and two undisclosed conflicts of interest.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:sox6xar4qdc3ujhi5h4whtlh/bafkreiazjyxk6foryp6lzxcqbls62uaokwhjrjmnzg5uqpdimg77xrt26a@jpeg)
February 2, 2025 at 2:25 PM
Today is Retraction Day, when we observe the anniversary of the retraction (Feb. 2, 2010) of the fraudulent paper that purported to show a link between vaccines and autism. 🧪#medsky
Reposted by Robin Baumeister
wow just logged off and there are problems there too
February 4, 2025 at 6:17 PM
wow just logged off and there are problems there too
Reposted by Robin Baumeister
Whenever this comes up I think about how the first person diagnosed with autism was alive until 2023
February 4, 2025 at 3:36 PM
Whenever this comes up I think about how the first person diagnosed with autism was alive until 2023
Reposted by Robin Baumeister
I went to my Congressman's local office today. First off, they were surprised that I was there. They said they had been getting phone calls, but I was the first walk-in. That said, the phones were not ringing off the hook. If the DC phone lines are busy, try calling the local office.
February 4, 2025 at 2:36 AM
I went to my Congressman's local office today. First off, they were surprised that I was there. They said they had been getting phone calls, but I was the first walk-in. That said, the phones were not ringing off the hook. If the DC phone lines are busy, try calling the local office.
Reposted by Robin Baumeister
“They will never, no matter what happens, take trans joy away.”
Our resilience is in our joy. No politician can take that from us.
Our resilience is in our joy. No politician can take that from us.
“I Would Not Be Here Without Trans Girls”: Chappell Roan on the Grammys 2025 Red Carpet
The Midwest Princess made a powerful statement of trans solidarity ahead of the ceremony.
www.them.us
February 3, 2025 at 7:19 PM
“They will never, no matter what happens, take trans joy away.”
Our resilience is in our joy. No politician can take that from us.
Our resilience is in our joy. No politician can take that from us.
Reposted by Robin Baumeister
I hope you will all join me in expressing your thanks to the NIH and NSF staff who are working in an impossibly difficult and chaotic environment to keep science going in our country.
February 3, 2025 at 1:45 AM
I hope you will all join me in expressing your thanks to the NIH and NSF staff who are working in an impossibly difficult and chaotic environment to keep science going in our country.
Reposted by Robin Baumeister
Satire: I dream of a world where every neurocutie can recognise our unique strengths, & realise autism doesn’t have to hold us back! If we all just had the right support & £10K from our parents, we’d be free to be our neurosquiggly selves. @thedailytism.bsky.social:
thedailytism.com/neurozesty-n...
thedailytism.com/neurozesty-n...
Neurozesty neurodeviant learns to love neurofruity neuroheretical brain
A neurowiggly little neurobabe has finally learned to accept her neuroquirks, neurotraits and general neurowhimsy, according to sources. Avery Mann, 38, fell into a deep despair after being diagnosed ...
thedailytism.com
February 2, 2025 at 5:44 PM
Satire: I dream of a world where every neurocutie can recognise our unique strengths, & realise autism doesn’t have to hold us back! If we all just had the right support & £10K from our parents, we’d be free to be our neurosquiggly selves. @thedailytism.bsky.social:
thedailytism.com/neurozesty-n...
thedailytism.com/neurozesty-n...
Reposted by Robin Baumeister
Autistic Lexicon
Autism Community vs. Autistic Community.
The *Autistic* Community is inclusive of anyone who is Autistic (with a diagnosis of ASD or not)
The *Autism* Community is arguably anyone/anything that has any connection to Autism and is a much larger.
Autism Community vs. Autistic Community.
The *Autistic* Community is inclusive of anyone who is Autistic (with a diagnosis of ASD or not)
The *Autism* Community is arguably anyone/anything that has any connection to Autism and is a much larger.
January 11, 2025 at 10:57 PM
Autistic Lexicon
Autism Community vs. Autistic Community.
The *Autistic* Community is inclusive of anyone who is Autistic (with a diagnosis of ASD or not)
The *Autism* Community is arguably anyone/anything that has any connection to Autism and is a much larger.
Autism Community vs. Autistic Community.
The *Autistic* Community is inclusive of anyone who is Autistic (with a diagnosis of ASD or not)
The *Autism* Community is arguably anyone/anything that has any connection to Autism and is a much larger.
Reposted by Robin Baumeister
This is what the government did with 120K+ Japanese Americans in 1942.
I know. I was there in those camps.
I know. I was there in those camps.
January 31, 2025 at 7:11 PM
This is what the government did with 120K+ Japanese Americans in 1942.
I know. I was there in those camps.
I know. I was there in those camps.
Reposted by Robin Baumeister
RFK Jr. wants evidence that vaccines do not cause autism.
The evidence is there. He refuses to see it.
The evidence is there. He refuses to see it.
January 30, 2025 at 8:16 PM
RFK Jr. wants evidence that vaccines do not cause autism.
The evidence is there. He refuses to see it.
The evidence is there. He refuses to see it.
Reposted by Robin Baumeister
I've spent the last decade chronicling how the lies of people like RFK Jr. has actively harmed #ActuallyAutistic people and their loved ones. I spent Kennedy's confirmation with his biggest fans as they repeated his lies.
www.independent.co.uk/news/world/a...
www.independent.co.uk/news/world/a...
What it’s like watching RFK Jr.’s hearing with his biggest fans as an autistic person
Analysis: Robert F. Kennedy has earned a strong cult following. Eric Garcia spent Kennedy’s confirmation hearing with his faithful flock
www.independent.co.uk
January 30, 2025 at 3:23 AM
I've spent the last decade chronicling how the lies of people like RFK Jr. has actively harmed #ActuallyAutistic people and their loved ones. I spent Kennedy's confirmation with his biggest fans as they repeated his lies.
www.independent.co.uk/news/world/a...
www.independent.co.uk/news/world/a...
Reposted by Robin Baumeister
We're going to make it through this 🩷💙
Let's turn our fear and rage into community action.
Let's turn our fear and rage into community action.
January 21, 2025 at 3:25 PM
We're going to make it through this 🩷💙
Let's turn our fear and rage into community action.
Let's turn our fear and rage into community action.
Reposted by Robin Baumeister
if it wasn't they wouldnt try so hard to take it from you everyday
You are allowed to feel joy.
Yes, even now.
Joy is resistance.
Yes, even now.
Joy is resistance.
January 29, 2025 at 2:54 PM
if it wasn't they wouldnt try so hard to take it from you everyday
Reposted by Robin Baumeister
This is my favorite picture of Stonewall.
They knew they were getting arrested just for being LGBTQ+.
Yet... they're still here, standing outside of the boarded up Stonewall Inn, smiling as the world was at a fever pitch of hatred against them.
I think about it a lot in moments like this.
They knew they were getting arrested just for being LGBTQ+.
Yet... they're still here, standing outside of the boarded up Stonewall Inn, smiling as the world was at a fever pitch of hatred against them.
I think about it a lot in moments like this.
January 29, 2025 at 3:18 AM
This is my favorite picture of Stonewall.
They knew they were getting arrested just for being LGBTQ+.
Yet... they're still here, standing outside of the boarded up Stonewall Inn, smiling as the world was at a fever pitch of hatred against them.
I think about it a lot in moments like this.
They knew they were getting arrested just for being LGBTQ+.
Yet... they're still here, standing outside of the boarded up Stonewall Inn, smiling as the world was at a fever pitch of hatred against them.
I think about it a lot in moments like this.
Reposted by Robin Baumeister
Autism advocates say they are fearful that if RFK Jr. is confirmed, it could undermine years of progress in unlinking autism and vaccines, while potentially diverting research dollars to a theory already discredited by hundreds of studies worldwide.
Autism community fears RFK Jr. would set back decades of progress
Advocates worry that as HHS secretary, Robert F. Kennedy Jr. could undermine years of work to unlink autism and vaccines and divert precious research dollars to a discredited theory.
www.nbcnews.com
January 29, 2025 at 3:46 AM
Autism advocates say they are fearful that if RFK Jr. is confirmed, it could undermine years of progress in unlinking autism and vaccines, while potentially diverting research dollars to a theory already discredited by hundreds of studies worldwide.
Reposted by Robin Baumeister
You don’t always have to try your best, sometimes you can even try your worst just as a little treat
January 29, 2025 at 2:50 PM
You don’t always have to try your best, sometimes you can even try your worst just as a little treat
Reposted by Robin Baumeister
many people are saying www.congress.gov/contact-us
I used to work for an elected official as the person who answered their emails. I can tell you from personal experience, if even twenty or thirty people all call an official in a day, they start panicking. This stuff does help.
I know you hate this advice. I know you hear it all the time, but for gods sake you need to be calling your congressperson. Now. Today.
If you have a GOP representative, you need to call and ask if they approve of stripping congress of its constitutional authority. If they like being powerless.
If you have a GOP representative, you need to call and ask if they approve of stripping congress of its constitutional authority. If they like being powerless.
January 29, 2025 at 3:08 AM
many people are saying www.congress.gov/contact-us
Reposted by Robin Baumeister
Want to get through to your elected officials, but not sure how? Check out our toolkit all about civic engagement!
Civic Engagement Toolbox For Self-Advocates - Autistic Self Advocacy Network
Right now, many people are getting involved in political advocacy for the first time. People are going to town hall meetings and making phone calls to their members of Congress. They're writing…
buff.ly
January 29, 2025 at 12:00 AM
Want to get through to your elected officials, but not sure how? Check out our toolkit all about civic engagement!