Adrienne Oneil
LightNews LightNews
banner
profadrienneoneil.bsky.social
Adrienne Oneil
@profadrienneoneil.bsky.social
1.2K followers 710 following 49 posts
Professor, Behavioural Scientist, Food & Mood Centre, Deakin University 🧠❤️🥦🥑🫒🍎🏋️🏃‍♀️
Music & Sports Lover
Brisbane lions fan 💛❤️💙

Myalgic Encephalomyelitis/Long Covid advocate & Lived Experience consultant
Posts Replies Media Videos
profadrienneoneil.bsky.social
Keeping a keen eye on the therapeutic potential of rapamycin-an immunomodulator 1st approved as a prophylactic against organ rejection.

Two new pilots show that: 1) it didn’t penetrate the BBB but improved inflammatory biomarkers and 2) fatigue, cognition in #MECFS

www.nature.com/articles/s43...
Rapamycin treatment for Alzheimer’s disease and related dementias: a pilot phase 1 clinical trial - Communications Medicine
Gonzales et al. conducted an open-label phase 1 clinical trial of rapamycin for mild cognitive impairment and dementia due to Alzheimer’s disease. Rapamycin is not detected in cerebrospinal fluid befo...
www.nature.com
May 21, 2025 at 11:47 PM
Reposted by Adrienne Oneil
commsmed.nature.com
🚨 NEW RESEARCH! ⚕️ 🩺

DeLong et al. find associations between physical #multimorbidity and #depression using the UKBiobank data.

https://bit.ly/4kz23rD
#MentalHealth #PhysicalHealth
Cluster and survival analysis of UK biobank data reveals associations between physical multimorbidity clusters and subsequent depression - Communications Medicine
DeLong et al. investigate several clustering techniques to identify patterns of physical multimorbidity. They find several clusters which align to known body systems and use survival analyses to determine which clusters are most associated with depression.
bit.ly
May 21, 2025 at 12:31 PM
profadrienneoneil.bsky.social
Amazing! I’ll be printing this out and taking with me to all appointments
batemanhornecenter.bsky.social Bateman Horne Center @batemanhornecenter.bsky.social · May 9
The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
Graphic with a stethoscope and a doctor’s arm, displaying the text 'CLINICAL CARE GUIDE Managing ME/CFS, Long COVID, & IACCs.' The Bateman Horne Center and MERC logos are at the bottom, with a background of a deep blue gradient.
May 10, 2025 at 1:47 AM
Reposted by Adrienne Oneil
tomkindlon.bsky.social
A housing project specifically for people with severe ME/CFS, including 24-hour assistance, is being planned in Neunkirchen-Seelscheid

Info in German
sozialhummel.de/wohnprojekt-...

Some info & discussion in English
www.s4me.info/threads/hous...

Image from Science for ME update

#MEcfs #SevereME
Germany A housing project specifically for people with severe ME/CFS, including 24-hour assistance, is being planned in Neunkirchen-Seelscheid . A developer, in collaboration with Sozialhummel, plans to build barrier-free apartments that are optimally tailored to the needs of people with severe ME/CFS. Interested parties can join a waiting list.
April 22, 2025 at 1:38 AM
profadrienneoneil.bsky.social
Daisy having the best day ever, scoring a slice of pepperoni on her walk 🍕
April 16, 2025 at 3:38 AM
Reposted by Adrienne Oneil
katieklocksin.bsky.social
NIH observational study finds that one of every 22 covid infections causes myalgic encephelomyelitis:

www.livescience.com/health/coron...
1 in 22 COVID survivors develop debilitating chronic syndrome
A study suggests that catching COVID-19 significantly raises the risk of developing ME/CFS (formerly called "chronic fatigue syndrome"), a typically lifelong condition that can be debilitating.
www.livescience.com
April 8, 2025 at 7:40 AM
Reposted by Adrienne Oneil
daniellebeckman.bsky.social
My favorite from today. #HandsOff #HandsOff2025
A person wearing a respirator and a sign that reads: Science keeps your dumb ass alive
April 6, 2025 at 7:34 AM
Reposted by Adrienne Oneil
daniellebeckman.bsky.social
This whole conversation about #LongCovid...
Research published in Nature Medicine estimates Long Covid has an annual economic impact of approximately $1 trillion—equivalent to about 1% of the global economy. www.nature.com/articles/s41...
April 4, 2025 at 1:36 AM
profadrienneoneil.bsky.social
Thanks the Age for handing my story with care and Congrats Dr Armstrong & team on this exciting finding. This research isn’t possible without Open Medicine Foundation funding #MECFS research where NHMRC won’t.

Newspaper👇
www.theage.com.au/national/vic...

Research👇
www.nature.com/articles/s43...
It took 11 years for Adrienne’s illness to be diagnosed. A new computer model could change everything
Chronic fatigue syndrome is notoriously difficult to diagnose, but a new computer-assisted model can predict it with 85 per cent accuracy.
www.theage.com.au
March 29, 2025 at 10:24 PM
Reposted by Adrienne Oneil
boghuma.bsky.social
99.4% of new drugs approved by the FDA are the product of NIH funded research.
Remember this every time you see another headline on the NIH funding cuts.
It will directly impact YOU.
#ScienceNOTSilence
March 23, 2025 at 10:36 PM
Reposted by Adrienne Oneil
daniellebeckman.bsky.social
#LongCovidAwarenessDay2025
Amy on twitter: I've been 90-99% bedbound for nearly 3.5 years. People say "it's the vax" - I never got the vax. People say "it's laziness" - I used to be an athlete. No more excuses. We need help NOW. #5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
March 15, 2025 at 9:34 PM
profadrienneoneil.bsky.social
Forest therapy 😍🌺🐨🌈
March 9, 2025 at 2:30 AM
profadrienneoneil.bsky.social
“My average (long COVID) patient is previously very fit, very successful, and desperate to get back to normal life,” he says. “The people I’m looking at are actually incredibly motivated, the movers and shakers of society, and we lose them to our detriment.” 😭😭💔💔
March 3, 2025 at 10:17 PM
Reposted by Adrienne Oneil
daniellebeckman.bsky.social
My friends are dying. People are dying of #LongCovid and #MECFS while society keeps ignoring their existence. Rest in peace, Faraz. Sorry we failed you.
February 25, 2025 at 6:33 PM
profadrienneoneil.bsky.social
New to behavioural mental health trials and unsure how to assess and monitor harms?

With MAGNET Clinical Trial Network, we have developed a “How To” guide with step by step recommendations & tips. We hope you find it helpful!

#behaviouralscience #behavioralmedicine

doi.org/10.1177/0004...
February 25, 2025 at 3:11 AM
profadrienneoneil.bsky.social
Last night’s Australian Story following the lives of two people who lost their spouse to sudden cardiac arrest was so powerful. A reminder of the importance of the work we do in CVD research

www.abc.net.au/news/2025-02...

#suddencardiacarrest #cpr #cardiac
Heartfelt | Col Clausen + Laura Aisbett
Follow the latest news headlines from Australia's most trusted source. Read in-depth expert analysis and watch live coverage on ABC News.
www.abc.net.au
February 19, 2025 at 7:20 AM
profadrienneoneil.bsky.social
Great paper Sarah! #behaviouralscience #nutrition #cardiovasculardisease
sarahgauci.bsky.social Dr Sarah Gauci @sarahgauci.bsky.social · Feb 16
New Research: Psychosocial & nutritional support is vital in cardiac rehab—but gaps exist in delivery

🔍 98 practitioners surveyed
📊 Screening not consistent
🍽️ Expert dietary support lacking
How can we better support practitioners to close these gaps?

www.sciencedirect.com/science/arti...
Psychosocial Well-Being and Healthy Eating in Cardiac Rehabilitation: A National Survey of Cardiac Rehabilitation Practitioners Self-Reported Practices
Psychosocial well-being and nutritional counselling are important components of cardiac rehabilitation endorsed by national and international guidelin…
www.sciencedirect.com
February 16, 2025 at 9:46 PM
Reposted by Adrienne Oneil
rbreich.bsky.social
The irony of the richest man in the world almost single-handedly destroying an agency designed to help the world’s poor, so that the U.S. federal budget has more room for another giant tax cut for the richest man in the world and his pals, should not be lost on anyone. [Cartoon by Mike Luckovich]
February 15, 2025 at 11:01 PM
Reposted by Adrienne Oneil
tomkindlon.bsky.social
More information on negative responses to Cochrane scrapping their plan to do a new review of exercise therapy for CFS

Links:
thesicktimes.org/2025/02/04/r...

www.s4me.info/threads/s4me...

Screenshot from latest Science for ME weekly update

#MEcfs #CFS
More on Cochrane's actions (see December and January news) The Sick Times "Really pissed off": Cochrane receives backlash from advocates and experts after abandoning ME/CFS review Great article by David Tuller with a longer recap of the Cochrane saga. Two members of the writing team that was appointed by Cochrane to update the review provide comments: Todd Davenport: "This experience has really showed me the extent of the political games behind this supposedly objective process of trying to synthesize studies" Mary Dimmock: "We put a lot of work into doing this in good faith, and they just pulled it with no consideration for the patients" Tuller concludes: ".. it appears that Cochrane’s actions are, from its perspective, irreversible. But unless it acts quickly to clean up this mess, the long-term damage to its reputation could be irreversible as well." Article l Thread Science for ME Complaints about republishing an outdated and flawed review as if it were a new review, and the failure to withdraw it Trish Davis and Maree Candish, on behalf of the Science for ME committee, have submitted a detailed set of five complaints with supporting evidence. The submission concludes: "We find these actions by Cochrane so clearly indefensible and the arguments so illogical that we can only conclude that senior editors and Trustees have given in to pressure from proponents of exercise therapy for ME/CFS. We ask Cochrane to take the following actions in order to restore its credibility and avoid further harm to patients." Actions requested include removal of the 2024 version; an editorial note saying the review is outdated and should not be used for clinical care; standing firm against pressure from exercise proponents with vested interests; and re-opening the decision not to withdraw the 2019 review. Complaint | Discussion thread
February 13, 2025 at 8:12 PM
Reposted by Adrienne Oneil
petermorley.bsky.social
Thank goodness for the American Medical Association. Here is their YouTube page. Please share far and wide. Right now bird flu is spreading throughout our country and most people have no clue. Please stay updated and bookmark this page for your health and well-being.

www.youtube.com/@americanmed...
February 12, 2025 at 8:45 PM
Reposted by Adrienne Oneil
krutikakuppalli.bsky.social
NIH doesn’t just support infectious disease research—it drives breakthroughs in cancer, childhood diseases, heart disease, diabetes & more.

Thanks to NIH, we have:
💉 Cancer immunotherapy
❤️ Cholesterol-lowering statins
🩸 Insulin for diabetes

Investing in NIH = investing in life-saving discoveries.
February 8, 2025 at 3:07 PM
profadrienneoneil.bsky.social
My veggie garden is going gangbusters! 🍎🍆🎃🍅
February 7, 2025 at 9:19 AM
profadrienneoneil.bsky.social
Summer sunset in Victoria, Australia after crazy storms last night
February 3, 2025 at 10:07 AM
Reposted by Adrienne Oneil
meganranney.bsky.social
Some NIH study sections for tomorrow have just been canceled.

Who knows which of these grants would have led to the next life-saving invention.
Who knows which scientists will throw in the towel bc of funding delays.
Who can even begin to measure the impact of these reckless cancellations.😕🩺🧪🛟
February 3, 2025 at 4:31 AM
profadrienneoneil.bsky.social
This is a super scary - both for scientists relying on NIH funds and for patients awaiting scientific advances in treatments 😭
jbyoder.org Jeremy B. Yoder 🧬📊🌿🏳️‍🌈🖖🏻 @jbyoder.org · Jan 28
Reiterating my call to fellow federally-funded scientists: Call your reps, tell them how this hurts science and everything good that comes from science

(Also non-scientists, and scientists without federal funding! But the more of us who can directly speak to the impacts of these freezes the better)
jonlambert.bsky.social Jonathan Lambert @jonlambert.bsky.social · Jan 27
The National Science Foundation cancelled over 60 grant review panels today, effectively grinding funding of new projects to a halt.

The so-far indefinite pause comes as NSF grapples with the impact Trump's executive orders will have on their grantmaking process.
www.npr.org/sections/sho...
January 28, 2025 at 10:26 AM