Chronically exhausted in AB
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nursesupermom.bsky.social
Chronically exhausted in AB
@nursesupermom.bsky.social
🇨🇦 Former RN now disabled with MECFS. Dysautonomia. Paeds/OR/PARR/PublicHealth/CovidResponse.
Mostly listen and retweet.
Connecting the dots that are frustratingly ignored.
Carrying my trauma like all HCWs. Surviving Alberta. #MECFS
Reposted by Chronically exhausted in AB
We are so close to our goal. Please, look up your closest petition signing location on this website and take a minute to add your name to the list of proud Canadians.

Our #ForeverCanadian volunteers are at 68 locations across Alberta. Find them here:

www.forever-canadian.ca/sign-the-pet...
Forever Canadian Official Campaign Website
Forever Canadian campaign is a grassroots coalition of Canadians aimed at reinforcing Canadian unity. It is a proactive vehicle to secure Alberta's continued place in Canada.
www.forever-canadian.ca
October 13, 2025 at 6:33 PM
Exactly
To ABs experiencing increasing delays to ANY HC:

The govt has now fired 4 AHS CEOs and 2 Boards + added endless chaos with 2 yrs of “refocusing”…
Premier bragged openly about walking in hospitals and firing people…

NO HCWs feel safe to advocate in this province
February 11, 2025 at 4:30 AM
Reposted by Chronically exhausted in AB
There must be a full RCMP investigation, an Auditor-General investigation, and a public inquiry into these extremely troubling allegations.

www.theglobeandmail.com/canada/alber...
Opposition calls for RCMP investigation into firing of Alberta Health Services CEO
Ousted executive Athana Mentzelopoulos alleged in a letter that government officials improperly interfered in procurement of private surgical facilities and medication
www.theglobeandmail.com
February 6, 2025 at 8:35 PM
Reposted by Chronically exhausted in AB
Smith & LaGrange should both be resigning in light of this 🤬
February 6, 2025 at 10:40 PM
Reposted by Chronically exhausted in AB
Alberta Health Services update:

“We can confirm that AHS is conducting a review of our procurement procedures and processes related to the matters raised by the former CEO, and in the interim, we have paused the awarding of any contracts involving the parties that are involved in that review....
February 6, 2025 at 10:17 PM
Reposted by Chronically exhausted in AB
If they prove to be true, it will confirm what many Albertans have said: that this government is more concerned about enriching their buddies and themselves rather than acting in the best interests of Albertans.

www.theglobeandmail.com/canada/alber...
Opposition calls for RCMP investigation into firing of Alberta Health Services CEO
Ousted executive Athana Mentzelopoulos alleged in a letter that government officials improperly interfered in procurement of private surgical facilities and medication
www.theglobeandmail.com
February 6, 2025 at 8:35 PM
@daniellesmithab.bsky.social You must resign. Enough corruption and lies!
#Daniellemustresign
February 6, 2025 at 9:11 PM
Reposted by Chronically exhausted in AB
🚨 🚨 🚨Our director just told us that if the social media team can fundraise 30 million dollars, we can get a museum cat. 🐈 🐈 🐈 🚨 🚨 🚨
December 13, 2024 at 10:57 PM
#pwME #MEsky #neurosky. . MECFS peeps - have any of you had a brain MRI that's not normal. Because mine is decidedly not normal and I'm wondering if it's ME or something else. Referred to MS clinic. sigh...
December 7, 2024 at 10:51 PM
Edmonton is close to me. It feels like we haven't advanced at all since this was published. What happens to all the research done over the years 'finding things'. It seems they are found and then disregarded.
sigh....
#MECFS
The Edmonton Journal, Canada. 28th November 1992. #cfsme #mecfs #myalgice #myalgicencephalomyelitis
November 28, 2024 at 8:39 PM
ALL of this! Thanks @putrinolab.bsky.social
#MECFS
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
1/
November 20, 2024 at 7:33 PM
Reposted by Chronically exhausted in AB
First post over here… please share and follow if you’re interested in HC issues in AB:

We’re long past “90 day fix” promise… and all key pt-oriented HC Access metrics are worsening…

calgaryherald.com/opinion/colu...
Opinion: UCP's cures are adding to ailments of Alberta health-care system
Opinion:
calgaryherald.com
November 20, 2024 at 6:12 PM
Be more like Todd
I think the experts are the ones with lived experience in the diseases I am trying to help and learn more about. I couldn’t and wouldn’t do it without them. Patients are always leading the way. I’m just glad to come alongside with my knowledge and skills to try to do something to help.

That’s all.
November 17, 2024 at 2:57 AM
Well that was an exhausting day on xitter for MECFS patients. Also infuriating. And now all those tweets are deleted 🙄
Definitely makes coming to #bluesky a wise decision.
#MECFS
November 17, 2024 at 2:52 AM
Reposted by Chronically exhausted in AB
If you have #MECFS or #LongCovid with PEM, make sure to follow this account.

It will help you avoid the mistakes well-intentioned docs make with us.
Here’s the thing with symptom-titrated exercise in #MECFS, friends:
1. You never get away from the energy robbing nature of this disease
2. Never
3. See #1 and #2

If all your patients miraculously seem to improve in response to your special exercise regimen, they’re probably talking to me instead.
November 16, 2024 at 7:04 PM
For anyone else arriving confused. Check out the Bluesky directory blueskydirectory.com/starter-pack...
All - Bluesky Directory
A curated collection of all things relating to the Blue Sky social media platform.
blueskydirectory.com
November 12, 2024 at 10:06 PM
Reposted by Chronically exhausted in AB
Pseudoscience is harmful in at least 3 ways.

It can:

1. Directly produce harm

2. Indirectly deprive time/resources from supported treatments

3. Erode foundations/trust in scientific professions that promote its use
November 11, 2024 at 11:27 AM
EXACTLY!
Not all opinions are equally valid when it comes to scientific expertise.
November 12, 2024 at 9:06 PM
Finally arrived from the 'bad place'. Hoping to link up to med-sky and ME-sky here. #medsky #MEsky #MECFSsky
November 12, 2024 at 8:51 PM
Reposted by Chronically exhausted in AB
📌
November 12, 2024 at 7:16 PM