Fiona Wood
@mewarrior1.bsky.social
Wife, mum, Severe ME, 💙✝️♿️Fibromyalgia
Observe small things, don't rush, love & forgive
#loveyourself #loveothers ❤️
#chronicillnesswarrior1 on X & IG
Opinions are my own 🤓
Observe small things, don't rush, love & forgive
#loveyourself #loveothers ❤️
#chronicillnesswarrior1 on X & IG
Opinions are my own 🤓
1/
🚨 To all @UKLabour MPs:
You hold 403 seats.
127 of you have now signed the amendment challenging the proposed changes to disability benefits.
That’s not a minor rebellion — it’s a movement.
🚨 To all @UKLabour MPs:
You hold 403 seats.
127 of you have now signed the amendment challenging the proposed changes to disability benefits.
That’s not a minor rebellion — it’s a movement.
June 28, 2025 at 11:54 AM
1/
🚨 To all @UKLabour MPs:
You hold 403 seats.
127 of you have now signed the amendment challenging the proposed changes to disability benefits.
That’s not a minor rebellion — it’s a movement.
🚨 To all @UKLabour MPs:
You hold 403 seats.
127 of you have now signed the amendment challenging the proposed changes to disability benefits.
That’s not a minor rebellion — it’s a movement.
To all Labour MPs
@teamlabouruk.bsky.social
@teamlabouruk.bsky.social
June 28, 2025 at 11:41 AM
To all Labour MPs
@teamlabouruk.bsky.social
@teamlabouruk.bsky.social
1/ To all @UKLabour MPs — don’t be pressured into voting YES on July 1st.
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform — it’s division.
We need leadership that listens, not legislation
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform — it’s division.
We need leadership that listens, not legislation
June 28, 2025 at 11:38 AM
1/ To all @UKLabour MPs — don’t be pressured into voting YES on July 1st.
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform — it’s division.
We need leadership that listens, not legislation
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform — it’s division.
We need leadership that listens, not legislation
To all @UKLabour MPs — don’t be pressured into voting YES on July 1st.
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform — it’s division.
1/
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform — it’s division.
1/
June 28, 2025 at 11:06 AM
To all @UKLabour MPs — don’t be pressured into voting YES on July 1st.
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform — it’s division.
1/
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform — it’s division.
1/
@aaronca11.bsky.social how are you? Your account on X seems deleted. I’m just worried
@thecanaryuk.bsky.social ? ?
@thecanaryuk.bsky.social ? ?
June 4, 2025 at 6:40 PM
@aaronca11.bsky.social how are you? Your account on X seems deleted. I’m just worried
@thecanaryuk.bsky.social ? ?
@thecanaryuk.bsky.social ? ?
As this is #MEAwarenessDay let’s remember those who are no longer with us.
We pay tribute to them for their courage and fighting this truly awful undermined disease.
Please post in the comments who you miss because they died due to ME or connected to it
1/
We pay tribute to them for their courage and fighting this truly awful undermined disease.
Please post in the comments who you miss because they died due to ME or connected to it
1/
May 12, 2025 at 12:20 PM
As this is #MEAwarenessDay let’s remember those who are no longer with us.
We pay tribute to them for their courage and fighting this truly awful undermined disease.
Please post in the comments who you miss because they died due to ME or connected to it
1/
We pay tribute to them for their courage and fighting this truly awful undermined disease.
Please post in the comments who you miss because they died due to ME or connected to it
1/
1/
I’m not especially knowledgeable on our politics let alone the US.
I do not agree with lots that T says, but I did like his enthusiasm for his country. That felt authentic.
We seem to have lost pride in our country somewhat. I believe in inclusion of different faiths, cultures etc but I don’t
I’m not especially knowledgeable on our politics let alone the US.
I do not agree with lots that T says, but I did like his enthusiasm for his country. That felt authentic.
We seem to have lost pride in our country somewhat. I believe in inclusion of different faiths, cultures etc but I don’t
x.com
x.com
January 21, 2025 at 1:12 PM
1/
I’m not especially knowledgeable on our politics let alone the US.
I do not agree with lots that T says, but I did like his enthusiasm for his country. That felt authentic.
We seem to have lost pride in our country somewhat. I believe in inclusion of different faiths, cultures etc but I don’t
I’m not especially knowledgeable on our politics let alone the US.
I do not agree with lots that T says, but I did like his enthusiasm for his country. That felt authentic.
We seem to have lost pride in our country somewhat. I believe in inclusion of different faiths, cultures etc but I don’t
1/copied from X
So very accurate Carole Bruce.
I’m so outraged I can hardly adequately express my feelings to this madness of allowing human beings to starve to death.
I wish with all my heart I was exaggerating or catastrophizing but the reality is that receiving life giving absolutely essential
So very accurate Carole Bruce.
I’m so outraged I can hardly adequately express my feelings to this madness of allowing human beings to starve to death.
I wish with all my heart I was exaggerating or catastrophizing but the reality is that receiving life giving absolutely essential
I’ve written about a tiny portion of Sophia’s daily existence to bring very severe ME out of the darkness and onto the radar of those in a position to instigate change 🙏
We’ve got a hard hitting #ThereForME substack out today from Karen Galpin, writing about caring for her daughter Sophia, who has very severe ME.
Karen describes their daily reality, responding to narratives that downplay the impact of #ME
www.thereforme.uk/p/this-is-no...
Karen describes their daily reality, responding to narratives that downplay the impact of #ME
www.thereforme.uk/p/this-is-no...
January 7, 2025 at 7:16 PM
1/copied from X
So very accurate Carole Bruce.
I’m so outraged I can hardly adequately express my feelings to this madness of allowing human beings to starve to death.
I wish with all my heart I was exaggerating or catastrophizing but the reality is that receiving life giving absolutely essential
So very accurate Carole Bruce.
I’m so outraged I can hardly adequately express my feelings to this madness of allowing human beings to starve to death.
I wish with all my heart I was exaggerating or catastrophizing but the reality is that receiving life giving absolutely essential
Reposted by Fiona Wood
women with #longcovid and #mecfs face the unique challenge of being neglected and not trusted despite being severely ill
more details on the image and how to buy them for fundraising here
www.instagram.com/p/DDzwZv3NV5...
more details on the image and how to buy them for fundraising here
www.instagram.com/p/DDzwZv3NV5...
December 20, 2024 at 5:35 PM
women with #longcovid and #mecfs face the unique challenge of being neglected and not trusted despite being severely ill
more details on the image and how to buy them for fundraising here
www.instagram.com/p/DDzwZv3NV5...
more details on the image and how to buy them for fundraising here
www.instagram.com/p/DDzwZv3NV5...
Reposted by Fiona Wood
First, do no harm: If a person with a fatiguing illness reports feeling worse after exertion, exercise is not the remedy. #mecfs #fibromyalgia #postexertionalmalaise www.medscape.com/viewarticle/...
Post-Exertional Malaise in Fatiguing Diseases: What to Know
A new finding of post-exertional malaise in 20% of people with fibromyalgia might be an overestimate, but when post-exertional malaise is present, extreme caution is needed around prescribing exercise...
www.medscape.com
December 20, 2024 at 4:12 PM
First, do no harm: If a person with a fatiguing illness reports feeling worse after exertion, exercise is not the remedy. #mecfs #fibromyalgia #postexertionalmalaise www.medscape.com/viewarticle/...
Please nominate. It’s really quick to do 😉
And share please 💙
Still time to nominate ME Research UK for a £1000 donation from Benefact Group's '12 Days of Giving'. Nominations close on 19th December. It is free and easy to nominate a worthy cause - tinyurl.com/382pkzs8
#CharityNomination
And share please 💙
Still time to nominate ME Research UK for a £1000 donation from Benefact Group's '12 Days of Giving'. Nominations close on 19th December. It is free and easy to nominate a worthy cause - tinyurl.com/382pkzs8
#CharityNomination
Nominate a charity - Movement for Good
Nominate a charity for a Movement for Good award now.
tinyurl.com
December 17, 2024 at 3:56 AM
Please nominate. It’s really quick to do 😉
And share please 💙
Still time to nominate ME Research UK for a £1000 donation from Benefact Group's '12 Days of Giving'. Nominations close on 19th December. It is free and easy to nominate a worthy cause - tinyurl.com/382pkzs8
#CharityNomination
And share please 💙
Still time to nominate ME Research UK for a £1000 donation from Benefact Group's '12 Days of Giving'. Nominations close on 19th December. It is free and easy to nominate a worthy cause - tinyurl.com/382pkzs8
#CharityNomination
1/
This is an amazing video produced by an ME patient that gives the history of ME thus far.
Despite the ‘findings’ that the group of psychiatrists who delivered the PACE trial have now been debunked, the dogma still persists.
youtu.be/RiwX9Y0NbiQ?si…
This is an amazing video produced by an ME patient that gives the history of ME thus far.
Despite the ‘findings’ that the group of psychiatrists who delivered the PACE trial have now been debunked, the dogma still persists.
youtu.be/RiwX9Y0NbiQ?si…
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
https://youtu.be/RiwX9Y0NbiQ?si…
December 15, 2024 at 2:02 PM
1/
This is an amazing video produced by an ME patient that gives the history of ME thus far.
Despite the ‘findings’ that the group of psychiatrists who delivered the PACE trial have now been debunked, the dogma still persists.
youtu.be/RiwX9Y0NbiQ?si…
This is an amazing video produced by an ME patient that gives the history of ME thus far.
Despite the ‘findings’ that the group of psychiatrists who delivered the PACE trial have now been debunked, the dogma still persists.
youtu.be/RiwX9Y0NbiQ?si…
Keep sharing 💙
Please keep watching & sharing this 27min important film on
"The Greatest Medical Scandal" by @abrokenbattery.bsky.social
We need everyone to be watching this
#ME #MEcfs #pwME #LongCovid #MedSky
youtu.be/RiwX9Y0NbiQ?...
"The Greatest Medical Scandal" by @abrokenbattery.bsky.social
We need everyone to be watching this
#ME #MEcfs #pwME #LongCovid #MedSky
youtu.be/RiwX9Y0NbiQ?...
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
youtu.be
December 14, 2024 at 3:17 PM
Keep sharing 💙
Keep sharing 💙
🧵 Even before UK psychologists made life hell for ME/CFS patients around the world (one wonders about the influence of insurers and governments not wanting to pay disability benefits), the media had worked hard to make ME/CFS patients the but of jokes. E.g., referring to ME/CFS as "yuppie flu."
Please keep watching & sharing this 27min important film on
"The Greatest Medical Scandal" by @abrokenbattery.bsky.social
We need everyone to be watching this
#ME #MEcfs #pwME #LongCovid #MedSky
youtu.be/RiwX9Y0NbiQ?...
"The Greatest Medical Scandal" by @abrokenbattery.bsky.social
We need everyone to be watching this
#ME #MEcfs #pwME #LongCovid #MedSky
youtu.be/RiwX9Y0NbiQ?...
December 14, 2024 at 3:16 PM
Keep sharing 💙
A very interesting & informative article 💙
Something I wrote on the importance of understanding PEM in #MECFS and #longcovid - and why Starmer’s gov should already realise risks of pushing some longterm sick into work too fast or too soon.
Warning: opens with refs to assisted dying.
Warning: opens with refs to assisted dying.
Starmer’s Plan to Push Long Term Sick Into Work Risks ‘Devastating Deterioration’ of Conditions Costing Even More in the Long Run
The Government's new plan for welfare has a fundamental flaw at its heart, argues Izzy Wightman
bylinetimes.com
December 14, 2024 at 3:00 PM
A very interesting & informative article 💙
Reposted by Fiona Wood
"In the past five years, more than 7 million deaths from COVID-19 have been reported to WHO, but we estimate the true death toll to be at least three times higher.
"We cannot talk about COVID in the past tense. It’s still with us, it still causes acute disease and 'long COVID', and it still kills"
"We cannot talk about COVID in the past tense. It’s still with us, it still causes acute disease and 'long COVID', and it still kills"
"We cannot talk about COVID in the past tense. It’s still with us, it still causes acute disease and long COVID, and it still kills." – WHO Director-General Dr Tedros Adhanom Ghebreyesus
WHO Director-General's opening remarks at the media briefing – 10 December 2024
www.who.int
December 14, 2024 at 1:27 PM
"In the past five years, more than 7 million deaths from COVID-19 have been reported to WHO, but we estimate the true death toll to be at least three times higher.
"We cannot talk about COVID in the past tense. It’s still with us, it still causes acute disease and 'long COVID', and it still kills"
"We cannot talk about COVID in the past tense. It’s still with us, it still causes acute disease and 'long COVID', and it still kills"
Reposted by Fiona Wood
Dear @wesstreeting, as you'll be aware, the @UKHSA national surveillance programmes collect data on HCAI, including:
Bacteraemia
Clostridioides difficile infection
Escherichia coli
and MRSA.
⚠️But, not for #SARSCoV2 virus (COVID-19)?
Why? @covidinquiryuk
petition.parliament.uk/petitions/70...
Bacteraemia
Clostridioides difficile infection
Escherichia coli
and MRSA.
⚠️But, not for #SARSCoV2 virus (COVID-19)?
Why? @covidinquiryuk
petition.parliament.uk/petitions/70...
Petition: Direct the UKHSA to monitor COVID infections that occur in particular settings.
Ensure that the UK Health Security Agency (UKHSA) monitors, and reports on, the numbers of COVID infections that occur in healthcare settings through its routine surveillance programmes, and advises o...
petition.parliament.uk
December 14, 2024 at 10:31 AM
Dear @wesstreeting, as you'll be aware, the @UKHSA national surveillance programmes collect data on HCAI, including:
Bacteraemia
Clostridioides difficile infection
Escherichia coli
and MRSA.
⚠️But, not for #SARSCoV2 virus (COVID-19)?
Why? @covidinquiryuk
petition.parliament.uk/petitions/70...
Bacteraemia
Clostridioides difficile infection
Escherichia coli
and MRSA.
⚠️But, not for #SARSCoV2 virus (COVID-19)?
Why? @covidinquiryuk
petition.parliament.uk/petitions/70...
It’s not too late to use this template to contact your MP for the APPG on ME 17th December.
appgme.co.uk/meetings/app...
appgme.co.uk/meetings/app...
APPG Inaugural Meeting - 17 December 2024 - All-Party Parliamentary Group on ME
Date: 17 December 2024 The All-Party Parliamentary Group for ME’s inaugural meeting will be held from 5pm – 6.30pm. The agenda of the meeting is as follows: 17:00 – Welcome 17:10 – Election of Chair 1...
appgme.co.uk
December 14, 2024 at 10:11 AM
It’s not too late to use this template to contact your MP for the APPG on ME 17th December.
appgme.co.uk/meetings/app...
appgme.co.uk/meetings/app...
1/ It’s been a hard week following friends visiting last weekend which was lovely but the ME Association AGM really finished me off.
Still absolutely exhausted.
Not sure what you’ve heard but a whole hour dedicated to the Trustees life stories was a tad too long & unnecessary given it was a AGM.
Still absolutely exhausted.
Not sure what you’ve heard but a whole hour dedicated to the Trustees life stories was a tad too long & unnecessary given it was a AGM.
December 13, 2024 at 2:54 PM
1/ It’s been a hard week following friends visiting last weekend which was lovely but the ME Association AGM really finished me off.
Still absolutely exhausted.
Not sure what you’ve heard but a whole hour dedicated to the Trustees life stories was a tad too long & unnecessary given it was a AGM.
Still absolutely exhausted.
Not sure what you’ve heard but a whole hour dedicated to the Trustees life stories was a tad too long & unnecessary given it was a AGM.
1/
📣 𝐓𝐨 𝐚𝐥𝐥 𝐌𝐄 𝐀𝐬𝐬𝐨𝐜𝐢𝐚𝐭𝐢𝐨𝐧 𝐦𝐞𝐦𝐛𝐞𝐫𝐬
A big thank you to Elisabeth @lammas_leaves & @nickyproctor.bsky.social for all their hard work in writing the motion, and ensuring it is on the agenda of the AGM on Monday 9th December at 2pm.
📣 𝐓𝐨 𝐚𝐥𝐥 𝐌𝐄 𝐀𝐬𝐬𝐨𝐜𝐢𝐚𝐭𝐢𝐨𝐧 𝐦𝐞𝐦𝐛𝐞𝐫𝐬
A big thank you to Elisabeth @lammas_leaves & @nickyproctor.bsky.social for all their hard work in writing the motion, and ensuring it is on the agenda of the AGM on Monday 9th December at 2pm.
Response to ME Association public statement
Nicky and I are pleased to see the ME Association has issued this public statement in response to our proposed motion for the 2024 AGM. We have been in communication with Mr Riley and other trustee…
motionmea.wordpress.com
December 5, 2024 at 2:35 AM
1/
📣 𝐓𝐨 𝐚𝐥𝐥 𝐌𝐄 𝐀𝐬𝐬𝐨𝐜𝐢𝐚𝐭𝐢𝐨𝐧 𝐦𝐞𝐦𝐛𝐞𝐫𝐬
A big thank you to Elisabeth @lammas_leaves & @nickyproctor.bsky.social for all their hard work in writing the motion, and ensuring it is on the agenda of the AGM on Monday 9th December at 2pm.
📣 𝐓𝐨 𝐚𝐥𝐥 𝐌𝐄 𝐀𝐬𝐬𝐨𝐜𝐢𝐚𝐭𝐢𝐨𝐧 𝐦𝐞𝐦𝐛𝐞𝐫𝐬
A big thank you to Elisabeth @lammas_leaves & @nickyproctor.bsky.social for all their hard work in writing the motion, and ensuring it is on the agenda of the AGM on Monday 9th December at 2pm.
📣The update on my complaint to the ME Association about the Chairman’s editorial ⬇️
November 30, 2024 at 6:54 PM
📣The update on my complaint to the ME Association about the Chairman’s editorial ⬇️
📣 ME Association update on my complaint .
Apologies, but I’m too exhausted to split my post up into numerous posts so I hope you’ll go onto X to read it or if someone can post it on here then that would be great! 💙
1/
x.com/fionangreg/s...
2/
x.com/fionangreg/s...
x.com
x.com
November 30, 2024 at 3:50 PM
📣 ME Association update on my complaint .
Apologies, but I’m too exhausted to split my post up into numerous posts so I hope you’ll go onto X to read it or if someone can post it on here then that would be great! 💙
1/
x.com/fionangreg/s...
2/
x.com/fionangreg/s...
📣Calling all members of the ME Association.
If you can, please attend the AGM if possible because this is a very critical juncture.
Email:-admin@meassociation.org.uk
for link to AGM 💙
⬇️
If you can, please attend the AGM if possible because this is a very critical juncture.
Email:-admin@meassociation.org.uk
for link to AGM 💙
⬇️
November 30, 2024 at 3:00 PM
📣Calling all members of the ME Association.
If you can, please attend the AGM if possible because this is a very critical juncture.
Email:-admin@meassociation.org.uk
for link to AGM 💙
⬇️
If you can, please attend the AGM if possible because this is a very critical juncture.
Email:-admin@meassociation.org.uk
for link to AGM 💙
⬇️
Vlog #4 E028 hypoallergenic oral feed for MCAS. ⬇️
x.com/fionangreg/s...
Had a bad couple of days.
Anyone seen Dr Aziz in London?
thephysiciansclinic.co.uk/phisician/prof…#SevereMEM#MCASA#ThereForMEM#DontLetMEDiei#SaveCarlaandKarenen
x.com/fionangreg/s...
Had a bad couple of days.
Anyone seen Dr Aziz in London?
thephysiciansclinic.co.uk/phisician/prof…#SevereMEM#MCASA#ThereForMEM#DontLetMEDiei#SaveCarlaandKarenen
https://thephysiciansclinic.co.uk/phisician/prof…
November 29, 2024 at 8:56 AM
Vlog #4 E028 hypoallergenic oral feed for MCAS. ⬇️
x.com/fionangreg/s...
Had a bad couple of days.
Anyone seen Dr Aziz in London?
thephysiciansclinic.co.uk/phisician/prof…#SevereMEM#MCASA#ThereForMEM#DontLetMEDiei#SaveCarlaandKarenen
x.com/fionangreg/s...
Had a bad couple of days.
Anyone seen Dr Aziz in London?
thephysiciansclinic.co.uk/phisician/prof…#SevereMEM#MCASA#ThereForMEM#DontLetMEDiei#SaveCarlaandKarenen
1/
Wow!
This video has really validated my gut problems throughout my life
My tipping point was the UTI summer 2023.
So pleased I’ve found this.
There are videos on the subject of #MCAS.
Well that has cheered me up plus pain is beginning to decrease in my head 🙌💙
youtu.be/AlxzbnCvbvA?...
Wow!
This video has really validated my gut problems throughout my life
My tipping point was the UTI summer 2023.
So pleased I’ve found this.
There are videos on the subject of #MCAS.
Well that has cheered me up plus pain is beginning to decrease in my head 🙌💙
youtu.be/AlxzbnCvbvA?...
The Hidden TRUTH About MCAS: What's REALLY Going On? (Mast Cell Activation Disorder)
YouTube video by Dr. Paul Anderson
youtu.be
November 25, 2024 at 7:15 PM
1/
Wow!
This video has really validated my gut problems throughout my life
My tipping point was the UTI summer 2023.
So pleased I’ve found this.
There are videos on the subject of #MCAS.
Well that has cheered me up plus pain is beginning to decrease in my head 🙌💙
youtu.be/AlxzbnCvbvA?...
Wow!
This video has really validated my gut problems throughout my life
My tipping point was the UTI summer 2023.
So pleased I’ve found this.
There are videos on the subject of #MCAS.
Well that has cheered me up plus pain is beginning to decrease in my head 🙌💙
youtu.be/AlxzbnCvbvA?...