Margaret O’Hara
@margaretohara.bsky.social
Patient Advocate in #LongCovid and #HyperemesisGravidarum
Patient Involvement in Research in #NHS
Patient Involvement in Research in #NHS
Reposted by Margaret O’Hara
How to buy yourself a needy malignant narcissist? Just offer him a phony, made up "Peace Prize" & he's all your's!!!
No need for a formal ceremony as he'll snatch from the box & put it on all by himself. Both laughably pathetic AND pathetically laughable. 🤡 🫣
No need for a formal ceremony as he'll snatch from the box & put it on all by himself. Both laughably pathetic AND pathetically laughable. 🤡 🫣
December 6, 2025 at 7:57 PM
How to buy yourself a needy malignant narcissist? Just offer him a phony, made up "Peace Prize" & he's all your's!!!
No need for a formal ceremony as he'll snatch from the box & put it on all by himself. Both laughably pathetic AND pathetically laughable. 🤡 🫣
No need for a formal ceremony as he'll snatch from the box & put it on all by himself. Both laughably pathetic AND pathetically laughable. 🤡 🫣
Reposted by Margaret O’Hara
Great energy at this week’s Long Covid APPG meeting, in Parliament, for @longcovidsupport.bsky.social constructive discussion, powerful lived experience, and real commitment to driving change. Grateful to everyone pushing for better care, research, and recognition. #LongCovid #APPG
December 4, 2025 at 10:30 PM
Great energy at this week’s Long Covid APPG meeting, in Parliament, for @longcovidsupport.bsky.social constructive discussion, powerful lived experience, and real commitment to driving change. Grateful to everyone pushing for better care, research, and recognition. #LongCovid #APPG
Reposted by Margaret O’Hara
Did you catch Mike Ormerod’s powerful testimony at the Covid Inquiry last week?
Mike has Long Covid and volunteers with Long Covid Support. He gave evidence on behalf of Long Covid groups at Module 9 “Economic Response”.
Standout quotes (there are many!) Part 1 🧵👇
Mike has Long Covid and volunteers with Long Covid Support. He gave evidence on behalf of Long Covid groups at Module 9 “Economic Response”.
Standout quotes (there are many!) Part 1 🧵👇
December 3, 2025 at 9:34 PM
Did you catch Mike Ormerod’s powerful testimony at the Covid Inquiry last week?
Mike has Long Covid and volunteers with Long Covid Support. He gave evidence on behalf of Long Covid groups at Module 9 “Economic Response”.
Standout quotes (there are many!) Part 1 🧵👇
Mike has Long Covid and volunteers with Long Covid Support. He gave evidence on behalf of Long Covid groups at Module 9 “Economic Response”.
Standout quotes (there are many!) Part 1 🧵👇
Reposted by Margaret O’Hara
We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year!
Support our work: patientresearchcovid19.com/donate/
Support our work: patientresearchcovid19.com/donate/
December 2, 2025 at 8:56 PM
We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year!
Support our work: patientresearchcovid19.com/donate/
Support our work: patientresearchcovid19.com/donate/
Reposted by Margaret O’Hara
Multiple large natural experiments have documented Shingles vaccine is linked with ~20-25% reduced risk of dementia and Alzheimer's disease. A new report today adds to that and extends the to slowing the progression of dementia @cellcellpress.bsky.social
www.cell.com/cell/fulltex...
www.cell.com/cell/fulltex...
December 2, 2025 at 4:00 PM
Multiple large natural experiments have documented Shingles vaccine is linked with ~20-25% reduced risk of dementia and Alzheimer's disease. A new report today adds to that and extends the to slowing the progression of dementia @cellcellpress.bsky.social
www.cell.com/cell/fulltex...
www.cell.com/cell/fulltex...
Reposted by Margaret O’Hara
1/ We were thrilled to see 50+ MPs and Peers at the Overlapping Illness Alliance drop-in last week.
Thanks to your emails, nearly 80% of MPs got an invite, one even said it was the most letters they'd ever had about an event. Your support genuinely made a difference.
Thanks to your emails, nearly 80% of MPs got an invite, one even said it was the most letters they'd ever had about an event. Your support genuinely made a difference.
December 1, 2025 at 4:56 PM
1/ We were thrilled to see 50+ MPs and Peers at the Overlapping Illness Alliance drop-in last week.
Thanks to your emails, nearly 80% of MPs got an invite, one even said it was the most letters they'd ever had about an event. Your support genuinely made a difference.
Thanks to your emails, nearly 80% of MPs got an invite, one even said it was the most letters they'd ever had about an event. Your support genuinely made a difference.
Great article, well worth a read.
Long Covid is definitely not so much a journey as an abduction or a forced march.
Though saying that, anyone trying to get me to do a forced march right now would quickly realise their mistake.
Long Covid is definitely not so much a journey as an abduction or a forced march.
Though saying that, anyone trying to get me to do a forced march right now would quickly realise their mistake.
Opinion piece on the word "journey" as a problematic euphemism for #chronicillness.
"Sugarcoating my bitter pill, a chronic disease, by calling it a “journey” might sweeten it for you, but not for me"
www.statnews.com/2025/11/25/c...
Screenshot from latest Science for ME weekly update
#LongCovid
"Sugarcoating my bitter pill, a chronic disease, by calling it a “journey” might sweeten it for you, but not for me"
www.statnews.com/2025/11/25/c...
Screenshot from latest Science for ME weekly update
#LongCovid
December 2, 2025 at 7:34 AM
Great article, well worth a read.
Long Covid is definitely not so much a journey as an abduction or a forced march.
Though saying that, anyone trying to get me to do a forced march right now would quickly realise their mistake.
Long Covid is definitely not so much a journey as an abduction or a forced march.
Though saying that, anyone trying to get me to do a forced march right now would quickly realise their mistake.
Reposted by Margaret O’Hara
Some don’t understand that demonising refugees& asylum seekers is a red line for any healthy nation. As a group of people, like any other, they include the brilliant, good & bad, but labelling them as lesser humans undeserving of compassion, safety & equality is definitely bad for the whole country.
December 1, 2025 at 7:54 AM
Some don’t understand that demonising refugees& asylum seekers is a red line for any healthy nation. As a group of people, like any other, they include the brilliant, good & bad, but labelling them as lesser humans undeserving of compassion, safety & equality is definitely bad for the whole country.
Reposted by Margaret O’Hara
🧵New observational study:
Starting metformin within 6 days of COVID was linked to half the long COVID risk compared with patients given other meds (fluvoxamine, fluticasone, ivermectin, montelukast): 4.0% vs 8.5% (aRR 0.47). Small study, but aligns with #BlueSky #MedSky #NewsSky #IDSky #SciSky 1/2
Starting metformin within 6 days of COVID was linked to half the long COVID risk compared with patients given other meds (fluvoxamine, fluticasone, ivermectin, montelukast): 4.0% vs 8.5% (aRR 0.47). Small study, but aligns with #BlueSky #MedSky #NewsSky #IDSky #SciSky 1/2
Metformin at the time of Covid-19 infection and risk of Long Covid: A Target Trial Emulation Study
Background: Our objective was to evaluate metformin prescribed at the time of SARS-CoV-2 infection on the risk of developing Long Covid (LC) in electronic health record data. Methods: We conducted a n...
shorturl.at
November 30, 2025 at 7:46 PM
Reposted by Margaret O’Hara
C19LAP is ready to step in & lead a coordinated national response to #LongCOVID in the absence & abandonment of a federal response, but we cannot do it without your support.
We launched a peer to peer fundraiser. Donate / start yours here: bit.ly/FR4LC26
Top 5 Fundraisers receive a TY package!
We launched a peer to peer fundraiser. Donate / start yours here: bit.ly/FR4LC26
Top 5 Fundraisers receive a TY package!
November 29, 2025 at 8:29 PM
C19LAP is ready to step in & lead a coordinated national response to #LongCOVID in the absence & abandonment of a federal response, but we cannot do it without your support.
We launched a peer to peer fundraiser. Donate / start yours here: bit.ly/FR4LC26
Top 5 Fundraisers receive a TY package!
We launched a peer to peer fundraiser. Donate / start yours here: bit.ly/FR4LC26
Top 5 Fundraisers receive a TY package!
Reposted by Margaret O’Hara
When the language of racism lost scientific legitimacy, it changed shape and began targeting cultures instead.
Racism never went away – it simply changed shape
When the language of racism lost scientific legitimacy, it changed shape and began targeting cultures instead.
tcnv.link
November 29, 2025 at 9:34 AM
When the language of racism lost scientific legitimacy, it changed shape and began targeting cultures instead.
Reposted by Margaret O’Hara
Long-Term Changes in Health-Related Quality of Life and Economic Burden After a SARS-CoV-2 Infection: Analysis of the Long COVID Prospective Cohort Study in Nairobi
www.valuehealthregionalissues.com/article/S221...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC
www.valuehealthregionalissues.com/article/S221...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC
November 28, 2025 at 1:58 AM
Long-Term Changes in Health-Related Quality of Life and Economic Burden After a SARS-CoV-2 Infection: Analysis of the Long COVID Prospective Cohort Study in Nairobi
www.valuehealthregionalissues.com/article/S221...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC
www.valuehealthregionalissues.com/article/S221...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC
Reposted by Margaret O’Hara
From China
Longitudinal assessment of pulmonary perfusion and ventilation defects in long COVID
www.sciencedirect.com/science/arti...
Screenshot from latest Science for ME weekly update
#LongCovid #Covidlung
Longitudinal assessment of pulmonary perfusion and ventilation defects in long COVID
www.sciencedirect.com/science/arti...
Screenshot from latest Science for ME weekly update
#LongCovid #Covidlung
November 27, 2025 at 1:48 AM
From China
Longitudinal assessment of pulmonary perfusion and ventilation defects in long COVID
www.sciencedirect.com/science/arti...
Screenshot from latest Science for ME weekly update
#LongCovid #Covidlung
Longitudinal assessment of pulmonary perfusion and ventilation defects in long COVID
www.sciencedirect.com/science/arti...
Screenshot from latest Science for ME weekly update
#LongCovid #Covidlung
Reposted by Margaret O’Hara
Follow Rutger, get the censored lines direct.
The BBC's has responded in The Guardian that this was a routine editorial decision, but also that it was made on legal advice. Those two explanations don’t fit together. /1
I wish I didn’t have to share this. But the BBC has decided to censor my first Reith Lecture.
They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1
They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1
November 27, 2025 at 9:27 PM
Follow Rutger, get the censored lines direct.
Reposted by Margaret O’Hara
Proud to have co-authored this paper on experiences of #LongCovid and work:
“I've done my job for 30 years and I'm very competent at it, but I couldn't understand what some of the words were meaning… It's almost having to recognise things again and relearn things”
“I've done my job for 30 years and I'm very competent at it, but I couldn't understand what some of the words were meaning… It's almost having to recognise things again and relearn things”
New article exploring how Long COVID affects people at work, highlighting the need for adaptable work accommodations to support employment and well‐being.
onlinelibrary.wiley.com/doi/epdf/10....
@longcovidsupport.bsky.social @nikki-s.bsky.social @imperialperc.bsky.social @imperialbrc.bsky.social
onlinelibrary.wiley.com/doi/epdf/10....
@longcovidsupport.bsky.social @nikki-s.bsky.social @imperialperc.bsky.social @imperialbrc.bsky.social
“I Put a Lot of Emphasis on Work Because I Want to Keep My Job”: A Population‐Based Interview Study of Long Covid and Employment Changes in England
You have to enable JavaScript in your browser's settings in order to use the eReader.
onlinelibrary.wiley.com
November 27, 2025 at 9:58 AM
Proud to have co-authored this paper on experiences of #LongCovid and work:
“I've done my job for 30 years and I'm very competent at it, but I couldn't understand what some of the words were meaning… It's almost having to recognise things again and relearn things”
“I've done my job for 30 years and I'm very competent at it, but I couldn't understand what some of the words were meaning… It's almost having to recognise things again and relearn things”
Reposted by Margaret O’Hara
‘You, Boy!
Go and racially abuse everybody you meet
…but not in a hurtful or insulting way!’
Go and racially abuse everybody you meet
…but not in a hurtful or insulting way!’
November 25, 2025 at 8:13 AM
‘You, Boy!
Go and racially abuse everybody you meet
…but not in a hurtful or insulting way!’
Go and racially abuse everybody you meet
…but not in a hurtful or insulting way!’
Reposted by Margaret O’Hara
If I’m understanding this correctly, X is owned by a white nationalist who pays poor people of color in developing countries to pretend to be working class white Americans to scare other white Americans into being afraid poor people of color from developing countries are going to ruin America?
November 23, 2025 at 7:30 PM
If I’m understanding this correctly, X is owned by a white nationalist who pays poor people of color in developing countries to pretend to be working class white Americans to scare other white Americans into being afraid poor people of color from developing countries are going to ruin America?
Reposted by Margaret O’Hara
My longstanding observations with the Vagus Nerve damage in Long C-19 remains strong...
As per @harryspoelstra.bsky.social
#Nerve_of_Joffe 🤦🏻♂️
www.jacionline.org/article/S009...
As per @harryspoelstra.bsky.social
#Nerve_of_Joffe 🤦🏻♂️
www.jacionline.org/article/S009...
Autonomic dysfunction and vasoregulation in Long COVID-19 are linked to anti-GPCR autoantibodies
www.jacionline.org
November 23, 2025 at 12:04 PM
My longstanding observations with the Vagus Nerve damage in Long C-19 remains strong...
As per @harryspoelstra.bsky.social
#Nerve_of_Joffe 🤦🏻♂️
www.jacionline.org/article/S009...
As per @harryspoelstra.bsky.social
#Nerve_of_Joffe 🤦🏻♂️
www.jacionline.org/article/S009...
Reposted by Margaret O’Hara
Do you hate the new Vaccines and Autism webpage revisions as much as we do? Yes? Great. Some action items:
1. Submit your concerns through CDC INFO: www.cdc.gov/cdc-info/for...
2. (if not a fed employee) Consider adding "vaccines do NOT cause autism" to your signature line 😈
1. Submit your concerns through CDC INFO: www.cdc.gov/cdc-info/for...
2. (if not a fed employee) Consider adding "vaccines do NOT cause autism" to your signature line 😈
Email CDC-INFO
Users can use this form to direct questions to the CDC.
www.cdc.gov
November 22, 2025 at 12:32 AM
Do you hate the new Vaccines and Autism webpage revisions as much as we do? Yes? Great. Some action items:
1. Submit your concerns through CDC INFO: www.cdc.gov/cdc-info/for...
2. (if not a fed employee) Consider adding "vaccines do NOT cause autism" to your signature line 😈
1. Submit your concerns through CDC INFO: www.cdc.gov/cdc-info/for...
2. (if not a fed employee) Consider adding "vaccines do NOT cause autism" to your signature line 😈
Just SARS-CoV-2 in the organs of fetuses whose mothers had Covid during pregnancy. Nothing to worry about
Pregnancy and Cøvid aren't good companions.
@atranscendedman.bsky.social 🙏🏻
www.nature.com/articles/s41...
@atranscendedman.bsky.social 🙏🏻
www.nature.com/articles/s41...
Presence of SARS-CoV-2 in fetal organs via intraamniotic infection - Nature Communications
Infection with SARS-CoV-2 during pregnancy may result in maternal and fetal complications. Here, the authors analyze 18 fetuses following maternal SARS-CoV-2 infection and identify distribution in fet...
www.nature.com
November 21, 2025 at 11:23 PM
Just SARS-CoV-2 in the organs of fetuses whose mothers had Covid during pregnancy. Nothing to worry about
Reposted by Margaret O’Hara
TOO LITTLE, TOO LATE. For shame, Mr Johnson and the team you pretended to lead. Preventable deaths on your hands. They will not return to us. You live on, rich and vainglorious.
www.theguardian.com/uk-news/2025...
www.theguardian.com/uk-news/2025...
‘Too little, too late’: damning report condemns UK’s Covid response
Report on handling of pandemic contains stinging criticism of ‘toxic and chaotic’ culture inside Boris Johnson’s No 10
www.theguardian.com
November 20, 2025 at 4:22 PM
TOO LITTLE, TOO LATE. For shame, Mr Johnson and the team you pretended to lead. Preventable deaths on your hands. They will not return to us. You live on, rich and vainglorious.
www.theguardian.com/uk-news/2025...
www.theguardian.com/uk-news/2025...
Reposted by Margaret O’Hara
Can’t believe the whole country has to suffer through the return of Dickensian childhood diseases because the worst, most ignorant attention-demanders decided other people’s expertise makes them feel bad
November 20, 2025 at 4:19 AM
Can’t believe the whole country has to suffer through the return of Dickensian childhood diseases because the worst, most ignorant attention-demanders decided other people’s expertise makes them feel bad
Reposted by Margaret O’Hara
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 8:35 PM
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Reposted by Margaret O’Hara
A new Nature Immunology report cites Long Covid Families for raising a key point about pediatric trials. School hours, meals, long drives, siblings. When studies plan for real life, children can actually take part. This is real progress for pediatric research.
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Progress on the pathway to long COVID treatments - Nature Immunology
The US National Institute of Allergy and Infectious Diseases and Foundation for the National Institutes of Health convened a 2-day workshop announcing four agents to enter RECOVER–Treating Long COVID ...
www.nature.com
November 19, 2025 at 9:00 PM
A new Nature Immunology report cites Long Covid Families for raising a key point about pediatric trials. School hours, meals, long drives, siblings. When studies plan for real life, children can actually take part. This is real progress for pediatric research.
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Reposted by Margaret O’Hara
Unions representing doctors and nurses in the UK are asking the government to recognise the long term impacts of COVID-19 on health and care workers.
www.bma.org.uk/bma-media-ce...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC #PwLC #postcovid #postcovid19 #COVID19 #COVID
www.bma.org.uk/bma-media-ce...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC #PwLC #postcovid #postcovid19 #COVID19 #COVID
November 17, 2025 at 2:20 AM
Unions representing doctors and nurses in the UK are asking the government to recognise the long term impacts of COVID-19 on health and care workers.
www.bma.org.uk/bma-media-ce...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC #PwLC #postcovid #postcovid19 #COVID19 #COVID
www.bma.org.uk/bma-media-ce...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC #PwLC #postcovid #postcovid19 #COVID19 #COVID