Karyn Bishof
@kbishof.bsky.social
🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org
🔵 Pw/ #LongCOVID, #IACCS, #Disability
🔵 Fmr. Firefighter/Paramedic
🔵 Fmr. Educator, Coach, & Dir. of Athletics
🔵 B.S. (ex science & health promotion)
🔵 #StillCOVIDING #COVIDConscious #Mask
🔵 Pw/ #LongCOVID, #IACCS, #Disability
🔵 Fmr. Firefighter/Paramedic
🔵 Fmr. Educator, Coach, & Dir. of Athletics
🔵 B.S. (ex science & health promotion)
🔵 #StillCOVIDING #COVIDConscious #Mask
Reposted by Karyn Bishof
Our team heads to the American Public Health Associations conference. #APHA2025 Is the biggest public health assoc. & conference. C19LAP will present 3x & exhibit. We are wishing our team health & success as they connect w/ thousands to help advance solutions to Long COVID!
October 30, 2025 at 4:52 PM
Our team heads to the American Public Health Associations conference. #APHA2025 Is the biggest public health assoc. & conference. C19LAP will present 3x & exhibit. We are wishing our team health & success as they connect w/ thousands to help advance solutions to Long COVID!
On #IndigenousPeoplesDay, remember: the violence never stopped. Colonization just changed its form, from stolen land to stolen children, erased histories, and borders that criminalize the very people this land belongs to. We are still witnessing the same injustice.
October 13, 2025 at 4:22 AM
On #IndigenousPeoplesDay, remember: the violence never stopped. Colonization just changed its form, from stolen land to stolen children, erased histories, and borders that criminalize the very people this land belongs to. We are still witnessing the same injustice.
@SecKennedy our community is dying from #LongCOVID. While its disabling impacts have fractured our national infrastructure, the deaths associated with Long COVID are far under represented & largely ignored. We need urgent leadership & action. We need solutions. We need to educate
October 11, 2025 at 6:26 PM
@SecKennedy our community is dying from #LongCOVID. While its disabling impacts have fractured our national infrastructure, the deaths associated with Long COVID are far under represented & largely ignored. We need urgent leadership & action. We need solutions. We need to educate
The cost of #LongCOVID
This is ONLY March - present of this year. Prior, Jan-Feb I paid $2,000+. My SSD is ~$1,400/mo. I have Medicare. I currently owe over $8,000. This is not sustainable with living. I am one of tens of millions with Long COVID.
This is ONLY March - present of this year. Prior, Jan-Feb I paid $2,000+. My SSD is ~$1,400/mo. I have Medicare. I currently owe over $8,000. This is not sustainable with living. I am one of tens of millions with Long COVID.
October 2, 2025 at 8:03 PM
The cost of #LongCOVID
This is ONLY March - present of this year. Prior, Jan-Feb I paid $2,000+. My SSD is ~$1,400/mo. I have Medicare. I currently owe over $8,000. This is not sustainable with living. I am one of tens of millions with Long COVID.
This is ONLY March - present of this year. Prior, Jan-Feb I paid $2,000+. My SSD is ~$1,400/mo. I have Medicare. I currently owe over $8,000. This is not sustainable with living. I am one of tens of millions with Long COVID.
Reposted by Karyn Bishof
Join us for a free #LongCOVID #Disability webinar on October 8th at 3pm ET!
The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.
Register here:
us06web.zoom.us/webinar/regi...
The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.
Register here:
us06web.zoom.us/webinar/regi...
September 29, 2025 at 8:29 PM
Join us for a free #LongCOVID #Disability webinar on October 8th at 3pm ET!
The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.
Register here:
us06web.zoom.us/webinar/regi...
The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.
Register here:
us06web.zoom.us/webinar/regi...
This is absolutely horrible news.
Let’s bring the prey on vulnerable patients desperate for their lives back who will do anything, even pay their life savings, sell their homes, etc crowd to lead Long COVID research.
Think supplement peddlers meets meets Fl surgeon general, meets cure offerer.
Let’s bring the prey on vulnerable patients desperate for their lives back who will do anything, even pay their life savings, sell their homes, etc crowd to lead Long COVID research.
Think supplement peddlers meets meets Fl surgeon general, meets cure offerer.
September 5, 2025 at 12:12 AM
This is absolutely horrible news.
Let’s bring the prey on vulnerable patients desperate for their lives back who will do anything, even pay their life savings, sell their homes, etc crowd to lead Long COVID research.
Think supplement peddlers meets meets Fl surgeon general, meets cure offerer.
Let’s bring the prey on vulnerable patients desperate for their lives back who will do anything, even pay their life savings, sell their homes, etc crowd to lead Long COVID research.
Think supplement peddlers meets meets Fl surgeon general, meets cure offerer.
You know what worked…
The collaboration and unity that was summer fall and winter 2020.
Bring that back. Drop the ego’s.
#LongCOVID solutions depend on it.
OUR LIVES DEPEND ON IT.
This 2023-present fighting and race to the top of the podium isn’t it.
The collaboration and unity that was summer fall and winter 2020.
Bring that back. Drop the ego’s.
#LongCOVID solutions depend on it.
OUR LIVES DEPEND ON IT.
This 2023-present fighting and race to the top of the podium isn’t it.
August 27, 2025 at 3:06 AM
You know what worked…
The collaboration and unity that was summer fall and winter 2020.
Bring that back. Drop the ego’s.
#LongCOVID solutions depend on it.
OUR LIVES DEPEND ON IT.
This 2023-present fighting and race to the top of the podium isn’t it.
The collaboration and unity that was summer fall and winter 2020.
Bring that back. Drop the ego’s.
#LongCOVID solutions depend on it.
OUR LIVES DEPEND ON IT.
This 2023-present fighting and race to the top of the podium isn’t it.
After two long years of fighting and advocating for myself, my port is in. Hopefully this gets me better access to medical care and quality of life.
#LongCOVID #POTS #Gastroparesis
#LongCOVID #POTS #Gastroparesis
August 23, 2025 at 1:18 AM
After two long years of fighting and advocating for myself, my port is in. Hopefully this gets me better access to medical care and quality of life.
#LongCOVID #POTS #Gastroparesis
#LongCOVID #POTS #Gastroparesis
Nothing like pending a lymph node and bilaterally tonsillectomy next Friday, and being told the port I was waiting til January for is now being put in THIS Friday. Not mentally or physically prepared for this.
August 20, 2025 at 6:07 PM
Nothing like pending a lymph node and bilaterally tonsillectomy next Friday, and being told the port I was waiting til January for is now being put in THIS Friday. Not mentally or physically prepared for this.
Can I tell you that I really never thought I’d be in people’s inboxes and DMs like hey do you want my organs and tissues for Long COVID research, I’m having them out in two weeks.
What a time.
What a time.
August 18, 2025 at 10:36 PM
Can I tell you that I really never thought I’d be in people’s inboxes and DMs like hey do you want my organs and tissues for Long COVID research, I’m having them out in two weeks.
What a time.
What a time.
As school starts tomorrow for parts of Florida, this is a reminder, that when schools start back up after summer, winter, and spring break, transmission & cases take off. While you should ALWAYS protect yourself against COVID+, take the extra precautions the first few weeks. ⬇️
August 10, 2025 at 10:39 PM
As school starts tomorrow for parts of Florida, this is a reminder, that when schools start back up after summer, winter, and spring break, transmission & cases take off. While you should ALWAYS protect yourself against COVID+, take the extra precautions the first few weeks. ⬇️
Me: submits a modification request for my home for my disabilities.
HOA: no, doesn’t align with bylaws.
Me: ada/ fair housing request supersede
HOA: no
Me: your fines for not complying at astronomical plus my civil suit.
HOA: no
Me: ask the HOA attorney.
HOA: approved
HOA: no, doesn’t align with bylaws.
Me: ada/ fair housing request supersede
HOA: no
Me: your fines for not complying at astronomical plus my civil suit.
HOA: no
Me: ask the HOA attorney.
HOA: approved
July 21, 2025 at 6:22 PM
Me: submits a modification request for my home for my disabilities.
HOA: no, doesn’t align with bylaws.
Me: ada/ fair housing request supersede
HOA: no
Me: your fines for not complying at astronomical plus my civil suit.
HOA: no
Me: ask the HOA attorney.
HOA: approved
HOA: no, doesn’t align with bylaws.
Me: ada/ fair housing request supersede
HOA: no
Me: your fines for not complying at astronomical plus my civil suit.
HOA: no
Me: ask the HOA attorney.
HOA: approved
I better see all the white + families helping carpool and get these kids to their games and tournaments for their parents who may be afraid to go.
June 19, 2025 at 11:50 PM
I better see all the white + families helping carpool and get these kids to their games and tournaments for their parents who may be afraid to go.
From our friend Allison, from what was once the Office for Long COVID. 💜 open.substack.com/pub/inneruni...
A Love Letter to Long COVID
and a plea for collective grieving
open.substack.com
June 18, 2025 at 7:18 PM
From our friend Allison, from what was once the Office for Long COVID. 💜 open.substack.com/pub/inneruni...
Florida:
Sooooo where are we all getting our saline from? What insurance / manufacturing companies are back up and running and able to supply post hurricane that took out facility? I need a port but that comes with fluids and apparently it’s still an issue. Honestly at about life or death point.
Sooooo where are we all getting our saline from? What insurance / manufacturing companies are back up and running and able to supply post hurricane that took out facility? I need a port but that comes with fluids and apparently it’s still an issue. Honestly at about life or death point.
June 18, 2025 at 2:11 PM
Florida:
Sooooo where are we all getting our saline from? What insurance / manufacturing companies are back up and running and able to supply post hurricane that took out facility? I need a port but that comes with fluids and apparently it’s still an issue. Honestly at about life or death point.
Sooooo where are we all getting our saline from? What insurance / manufacturing companies are back up and running and able to supply post hurricane that took out facility? I need a port but that comes with fluids and apparently it’s still an issue. Honestly at about life or death point.
Annnnd I’m getting a port and home heath services. 😔
June 16, 2025 at 5:46 PM
Annnnd I’m getting a port and home heath services. 😔
Extremly bad news today folks. 🧵
www.msnbc.com/opinion/msnb...
The “One Big Beautiful Bill,” passed by the U.S. House of Representatives on May 22, 2025, includes significant reductions to major social programs:
www.msnbc.com/opinion/msnb...
The “One Big Beautiful Bill,” passed by the U.S. House of Representatives on May 22, 2025, includes significant reductions to major social programs:
Opinion | There’s a reason Republicans want to hide what’s in their megabill
If that sounds like hyperbole, it’s not.
www.msnbc.com
May 22, 2025 at 1:03 PM
Extremly bad news today folks. 🧵
www.msnbc.com/opinion/msnb...
The “One Big Beautiful Bill,” passed by the U.S. House of Representatives on May 22, 2025, includes significant reductions to major social programs:
www.msnbc.com/opinion/msnb...
The “One Big Beautiful Bill,” passed by the U.S. House of Representatives on May 22, 2025, includes significant reductions to major social programs:
I tried to watch the Polybio today but after about 2hrs my fractured nose & concussion said no more 😔 I’m pretty disappointed! But, I look fwd to the recording & going back through things. Staying up to date is essential yet limited opps exist. Ty participants.
May 17, 2025 at 3:02 AM
I tried to watch the Polybio today but after about 2hrs my fractured nose & concussion said no more 😔 I’m pretty disappointed! But, I look fwd to the recording & going back through things. Staying up to date is essential yet limited opps exist. Ty participants.
Senate Committee on Indian Affairs Leaders Warn RFK, Jr. Against Reorganization That Threatens Native Health Programs
nativenewsonline.net/health/senat...
nativenewsonline.net/health/senat...
Senate Committee on Indian Affairs Leaders Warn RFK, Jr. Against Reorganization That Threatens Native Health Programs
U.S. Senators Brian Schatz , vice chairman of the Senate Committee on Indian Affairs, and Lisa Murkowski , Chairman of the Committee, issued a warning to U.S. Department of Health and Human Services ...
nativenewsonline.net
May 14, 2025 at 3:04 PM
Senate Committee on Indian Affairs Leaders Warn RFK, Jr. Against Reorganization That Threatens Native Health Programs
nativenewsonline.net/health/senat...
nativenewsonline.net/health/senat...
HI! am looking for assistance programs/ grants that help people with disabilities with the costs to make their homes accessible. My main issue is my home is in a trust and I do not qualify for many programs as technically the “trust is the homeowner” which is insane.
TIA
TIA
April 25, 2025 at 4:48 PM
HI! am looking for assistance programs/ grants that help people with disabilities with the costs to make their homes accessible. My main issue is my home is in a trust and I do not qualify for many programs as technically the “trust is the homeowner” which is insane.
TIA
TIA
If you have social security and owe student loans, this is a very important piece of info to have and know. Just another way the disabled and chronically ill will be harmed.
www.businessinsider.com/student-loan...
www.businessinsider.com/student-loan...
Millions of student-loan borrowers could start losing Social Security benefits and tax refunds in 2 weeks if they don't pay up
For the first time in five years, Trump is resuming collections for defaulted student-loan borrowers on May 5.
www.businessinsider.com
April 23, 2025 at 10:22 AM
If you have social security and owe student loans, this is a very important piece of info to have and know. Just another way the disabled and chronically ill will be harmed.
www.businessinsider.com/student-loan...
www.businessinsider.com/student-loan...