@lifeatthewindow.bsky.social
Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
Pinned
The rise of fascism in the UK isn’t a surprise. It’s because people actually like racist, homphobic, transphobic, eugenic policies.
#Fascism
#Fascism
I don’t think we’re sleepwalking. I think lots of people have their racist eyes wide open and are happily choosing it, sadly.
May 4, 2025 at 2:42 PM
The rise of fascism in the UK isn’t a surprise. It’s because people actually like racist, homphobic, transphobic, eugenic policies.
#Fascism
#Fascism
Absolutely heinous!
Funny how they can magically find autism testing services when for years young people with autism have been parked on waiting lists, desperate for help.
I’m gonna actually throw up with indignation.
Funny how they can magically find autism testing services when for years young people with autism have been parked on waiting lists, desperate for help.
I’m gonna actually throw up with indignation.
FUCK OFF YOU ARSEHOLES.
There is only so much professionalism, particular as a non-binary, autistic, individual, I can muster at the moment. Stop treating us as if we are "broken" as if we are "wrong". How hard is it to accept us as us? I want to cry at the way we are talked about.
There is only so much professionalism, particular as a non-binary, autistic, individual, I can muster at the moment. Stop treating us as if we are "broken" as if we are "wrong". How hard is it to accept us as us? I want to cry at the way we are talked about.
April 27, 2025 at 6:28 PM
Absolutely heinous!
Funny how they can magically find autism testing services when for years young people with autism have been parked on waiting lists, desperate for help.
I’m gonna actually throw up with indignation.
Funny how they can magically find autism testing services when for years young people with autism have been parked on waiting lists, desperate for help.
I’m gonna actually throw up with indignation.
Reposted
Reposted
The term “skilled labor” is weaponized by the ruling class to divide the working class and separate people into a category where poverty wages are justified.
The idea that someone who works shouldn’t make a living wage because they’re “unskilled” is ridiculous,
The idea that someone who works shouldn’t make a living wage because they’re “unskilled” is ridiculous,
April 25, 2025 at 5:29 PM
The term “skilled labor” is weaponized by the ruling class to divide the working class and separate people into a category where poverty wages are justified.
The idea that someone who works shouldn’t make a living wage because they’re “unskilled” is ridiculous,
The idea that someone who works shouldn’t make a living wage because they’re “unskilled” is ridiculous,
Reposted
The right to social security is outlined in Article 9 of the International Covenant on Economic, Social and Cultural Rights (ICESCR), ratified by the UK in 1976.
April 25, 2025 at 5:11 PM
The right to social security is outlined in Article 9 of the International Covenant on Economic, Social and Cultural Rights (ICESCR), ratified by the UK in 1976.
Reposted
Currently the Labour government are getting away with whatever they want by using the chaos of the US to hide behind. They know that people are distracted - the best time to push through bills and policy.
Thank you for writing about this bill giving it the coverage it needs.
Thank you for writing about this bill giving it the coverage it needs.
April 25, 2025 at 6:37 AM
Currently the Labour government are getting away with whatever they want by using the chaos of the US to hide behind. They know that people are distracted - the best time to push through bills and policy.
Thank you for writing about this bill giving it the coverage it needs.
Thank you for writing about this bill giving it the coverage it needs.
JFC. Labour might as well take a goddamn torch to everything that was good or better before they got into power.
They’re burning us all, and our environment, down, in favour of a gilded ‘growth’. Growth that really equals ruin.
I feel sick, sick, sick and devastated.
#LabourDisaster
They’re burning us all, and our environment, down, in favour of a gilded ‘growth’. Growth that really equals ruin.
I feel sick, sick, sick and devastated.
#LabourDisaster
1. Because this issue is critical, but has received remarkably little coverage, here's a thread pulling out the key themes from my article yesterday, on the Planning and Infrastructure Bill, which puts decades of environmental protections to the torch. 🧵 www.theguardian.com/commentisfre...
Labour’s great nature sellout is the worst attack on England’s ecosystems I’ve seen in my lifetime | George Monbiot
The horrifying planning bill, which rips up environmental protections, was drafted with CEOs in mind. We know because Keir Starmer told us, says Guardian columnist George Monbiot
www.theguardian.com
April 25, 2025 at 11:22 AM
JFC. Labour might as well take a goddamn torch to everything that was good or better before they got into power.
They’re burning us all, and our environment, down, in favour of a gilded ‘growth’. Growth that really equals ruin.
I feel sick, sick, sick and devastated.
#LabourDisaster
They’re burning us all, and our environment, down, in favour of a gilded ‘growth’. Growth that really equals ruin.
I feel sick, sick, sick and devastated.
#LabourDisaster
Reposted
New “The process feels like you are on trial for murder, they act like they are trying to catch you out and that you are begging". Excellent and much needed Amnesty report on the welfare system which pushes so many into barely liveable lives. tinyurl.com/4w9rfaar
DWP claimants give verdict on welfare system - 'You're not treated as human'
Amnesty International's new research, which involves interviews with hundreds of people on benefits, claims the current welfare system is 'consciously cruel' and ruining lives
tinyurl.com
April 25, 2025 at 9:55 AM
New “The process feels like you are on trial for murder, they act like they are trying to catch you out and that you are begging". Excellent and much needed Amnesty report on the welfare system which pushes so many into barely liveable lives. tinyurl.com/4w9rfaar
The best new housing options for my move have been scrapped as a possibility as I’m under 55.
Because I’m younger and disabled there is no, zero, zilch fully accessible housing open to me.
They tried to put me up a high rise 🤯
I’m worried.
#pwME #MECFS #DisabilityHousing #Accessibility
Because I’m younger and disabled there is no, zero, zilch fully accessible housing open to me.
They tried to put me up a high rise 🤯
I’m worried.
#pwME #MECFS #DisabilityHousing #Accessibility
April 23, 2025 at 4:18 PM
The best new housing options for my move have been scrapped as a possibility as I’m under 55.
Because I’m younger and disabled there is no, zero, zilch fully accessible housing open to me.
They tried to put me up a high rise 🤯
I’m worried.
#pwME #MECFS #DisabilityHousing #Accessibility
Because I’m younger and disabled there is no, zero, zilch fully accessible housing open to me.
They tried to put me up a high rise 🤯
I’m worried.
#pwME #MECFS #DisabilityHousing #Accessibility
Reposted
I shouldn't be surprised, but it's just WRONG that the more ill & incapacitated I get, the less the NHS wants to see me, the less kindness & empathy they have for me.
1st time in the surgery in wheelchair too.
#NHS this is far more inconvenient for me than for you
#pwME #MECFS #disability #POTS
1st time in the surgery in wheelchair too.
#NHS this is far more inconvenient for me than for you
#pwME #MECFS #disability #POTS
April 23, 2025 at 1:40 PM
I shouldn't be surprised, but it's just WRONG that the more ill & incapacitated I get, the less the NHS wants to see me, the less kindness & empathy they have for me.
1st time in the surgery in wheelchair too.
#NHS this is far more inconvenient for me than for you
#pwME #MECFS #disability #POTS
1st time in the surgery in wheelchair too.
#NHS this is far more inconvenient for me than for you
#pwME #MECFS #disability #POTS
Reposted
My talk is now available to watch! Please watch, share, comment- all the things <3 #mecfs #millionsmissing #chronicillness #momsky #disabledsky
youtu.be/JzKfi8LOMQU?...
youtu.be/JzKfi8LOMQU?...
I Am One of the Millions Missing | Maggie Boxey | TEDxOjai
YouTube video by TEDx Talks
youtu.be
April 15, 2025 at 3:31 PM
My talk is now available to watch! Please watch, share, comment- all the things <3 #mecfs #millionsmissing #chronicillness #momsky #disabledsky
youtu.be/JzKfi8LOMQU?...
youtu.be/JzKfi8LOMQU?...
Some days having social care is really hard.
Another random carer today. Came back to make my lunch a few hours after the breakfast shift…”You are still in bed?!”
FFS read my damn notes. It’s not a choice. I’ve already done every physical thing I can manage this morning.
Arghhh.
#pwME #MECFS
Another random carer today. Came back to make my lunch a few hours after the breakfast shift…”You are still in bed?!”
FFS read my damn notes. It’s not a choice. I’ve already done every physical thing I can manage this morning.
Arghhh.
#pwME #MECFS
April 22, 2025 at 12:00 PM
Reposted
We have over 800 signatures in just 70 hours!
Our coalition — clinicians, researchers, carers, and most importantly, disabled people — will help the public and Parliament see how dangerous these cuts would be.
Every signature adds weight. Thank you so much.
✍️ Please sign: tinyurl.com/yw8bzmxr
Our coalition — clinicians, researchers, carers, and most importantly, disabled people — will help the public and Parliament see how dangerous these cuts would be.
Every signature adds weight. Thank you so much.
✍️ Please sign: tinyurl.com/yw8bzmxr
Disability Benefits Cuts
Open Letter: Disability Benefits Cuts Are Creating a Public Health Emergency
To: Chancellor Rachel Reeves, Secretary of State for Work and Pensions Liz Kendall, Prime Minister Sir Keir Starmer, and Me...
tinyurl.com
April 21, 2025 at 10:29 AM
We have over 800 signatures in just 70 hours!
Our coalition — clinicians, researchers, carers, and most importantly, disabled people — will help the public and Parliament see how dangerous these cuts would be.
Every signature adds weight. Thank you so much.
✍️ Please sign: tinyurl.com/yw8bzmxr
Our coalition — clinicians, researchers, carers, and most importantly, disabled people — will help the public and Parliament see how dangerous these cuts would be.
Every signature adds weight. Thank you so much.
✍️ Please sign: tinyurl.com/yw8bzmxr
Reposted
Thousands show solidarity at #TransRightsAreHumanRights Demo in Parliament Square.
April 19, 2025 at 1:52 PM
Thousands show solidarity at #TransRightsAreHumanRights Demo in Parliament Square.
I was in a very scary place with this 6 months ago.
I only got out of it by finally having care provided and kind of stabilising my PEM situation.
I still get PEM easily, but I’m out of rolling PEM at least.
Cruel, unavoidable pain.
#pwME #MECFS
I only got out of it by finally having care provided and kind of stabilising my PEM situation.
I still get PEM easily, but I’m out of rolling PEM at least.
Cruel, unavoidable pain.
#pwME #MECFS
There’s a deeply unfair cruelty in ME/CFS, in that the more severe you are, the less you can control the amount of PEM you get. Which means you have less power to stop further worsenings.
The further down you fall in the hole, the more you struggle to find ledges to hold onto.
The further down you fall in the hole, the more you struggle to find ledges to hold onto.
April 19, 2025 at 5:15 PM
Reposted
It's been a heavy week. Sending love to everyone xx.
Transwomen are women. Transmen are men.
Autistic children and adults are loved, valued and wonderful.
Late diagnoses of ADHD and Autism is ABOUT DAMN TIME.
Violence in our community is caused by but also healed by community; not more violence.
Transwomen are women. Transmen are men.
Autistic children and adults are loved, valued and wonderful.
Late diagnoses of ADHD and Autism is ABOUT DAMN TIME.
Violence in our community is caused by but also healed by community; not more violence.
April 18, 2025 at 7:01 AM
It's been a heavy week. Sending love to everyone xx.
Transwomen are women. Transmen are men.
Autistic children and adults are loved, valued and wonderful.
Late diagnoses of ADHD and Autism is ABOUT DAMN TIME.
Violence in our community is caused by but also healed by community; not more violence.
Transwomen are women. Transmen are men.
Autistic children and adults are loved, valued and wonderful.
Late diagnoses of ADHD and Autism is ABOUT DAMN TIME.
Violence in our community is caused by but also healed by community; not more violence.
Reposted
Some bad news for people living with #MECFS.
Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC.
I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet.
Let's talk about what a passback is, and what it means for us. 🧵🧪
Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC.
I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet.
Let's talk about what a passback is, and what it means for us. 🧵🧪
April 17, 2025 at 3:53 PM
Some bad news for people living with #MECFS.
Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC.
I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet.
Let's talk about what a passback is, and what it means for us. 🧵🧪
Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC.
I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet.
Let's talk about what a passback is, and what it means for us. 🧵🧪
Some banal/everyday things I miss doing due to M.E.
- Sitting up without consequence
- Talking without consequence
- Walking more than a few metres
- Drinking from a normal cup
- Showering
- Dressing
- Cooking a meal
- Stepping outside
Still think it’s ’not that serious’?
#pwME #MECFS
- Sitting up without consequence
- Talking without consequence
- Walking more than a few metres
- Drinking from a normal cup
- Showering
- Dressing
- Cooking a meal
- Stepping outside
Still think it’s ’not that serious’?
#pwME #MECFS
April 17, 2025 at 10:09 AM
Reposted
Please don't tone police trans people today. They are absolutely fucking entitled to be furious and afraid, and to express that in whatever way feels right. Sober reflection is for the unaffected. And counting the few remaining blessings can absolutely fuck off into the sun.
April 16, 2025 at 9:54 AM
Please don't tone police trans people today. They are absolutely fucking entitled to be furious and afraid, and to express that in whatever way feels right. Sober reflection is for the unaffected. And counting the few remaining blessings can absolutely fuck off into the sun.
Reposted
Reposted
Right, because I've now seen misunderstandings of this enough times that it's got me worried that people don't know this - transgender people in the UK are protected by the Equality Act 2010 under the category of gender reassignment.
*That* was not under discussion today and hasn't changed.
*That* was not under discussion today and hasn't changed.
April 16, 2025 at 9:14 AM
Right, because I've now seen misunderstandings of this enough times that it's got me worried that people don't know this - transgender people in the UK are protected by the Equality Act 2010 under the category of gender reassignment.
*That* was not under discussion today and hasn't changed.
*That* was not under discussion today and hasn't changed.
🚨BREAKING NEWS🚨
Access to Work Scheme Owes Businesses Thousands
Businesses are having to let people go or go bust altogether because the Government's Access to Work scheme - aimed at helping Disabled people in employment - is leaving them in shortfall
www.disabilityrightsuk.org/news/access-...
Access to Work Scheme Owes Businesses Thousands
Businesses are having to let people go or go bust altogether because the Government's Access to Work scheme - aimed at helping Disabled people in employment - is leaving them in shortfall
www.disabilityrightsuk.org/news/access-...
Access to Work Scheme Owes Businesses Thousands
www.disabilityrightsuk.org
April 15, 2025 at 4:47 PM