Charlie Park
@givesnospoons.bsky.social
Child psychologist who retired early due to late discovered Autism, chronic illnesses, disability, activism and art.
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Formally @meanderingpark
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Formally @meanderingpark
I grew up with mum playing this cassette in the car on repeat. Great choice Australia #hottest100
🥁 Hottest 100 of Australian songs: #1
#Hottest100 #AusHottest100
#NowPlaying
🕗 8:00 pm
🎵 Never Tear Us Apart
🧑🎤 INXS
💿 Kick
🎧 Apple Music / Spotify / YouTube Music
📝 Lyrics
#Hottest100 #AusHottest100
#NowPlaying
🕗 8:00 pm
🎵 Never Tear Us Apart
🧑🎤 INXS
💿 Kick
🎧 Apple Music / Spotify / YouTube Music
📝 Lyrics
July 26, 2025 at 10:11 AM
I grew up with mum playing this cassette in the car on repeat. Great choice Australia #hottest100
I'm terrified I'll be rage quitting the radio on hearing number 1 #hottest100
July 26, 2025 at 9:57 AM
I'm terrified I'll be rage quitting the radio on hearing number 1 #hottest100
Wanting:
Zebra, John Butler Trio
No Old Man River, TISM
Purple Sneakers, You Am I
#hottest100 but don't like their chances
Zebra, John Butler Trio
No Old Man River, TISM
Purple Sneakers, You Am I
#hottest100 but don't like their chances
July 26, 2025 at 9:30 AM
Wanting:
Zebra, John Butler Trio
No Old Man River, TISM
Purple Sneakers, You Am I
#hottest100 but don't like their chances
Zebra, John Butler Trio
No Old Man River, TISM
Purple Sneakers, You Am I
#hottest100 but don't like their chances
No idea about the top 5 #hottest100. Feeling nervous.
July 26, 2025 at 9:23 AM
No idea about the top 5 #hottest100. Feeling nervous.
When explaining who I am, it's hard not to say "before disabling chronic illness, I was a psychologist, dancer, traveller, cook, yogi, swimmer. Now, I am sick with a side of disability advocacy."
There are two lives, people, identity sets - before and after. After is murkier and harder to explain.
There are two lives, people, identity sets - before and after. After is murkier and harder to explain.
July 22, 2025 at 3:53 AM
When explaining who I am, it's hard not to say "before disabling chronic illness, I was a psychologist, dancer, traveller, cook, yogi, swimmer. Now, I am sick with a side of disability advocacy."
There are two lives, people, identity sets - before and after. After is murkier and harder to explain.
There are two lives, people, identity sets - before and after. After is murkier and harder to explain.
It's really hard getting people to understand that:
Yes, I can physically do a thing, sometimes even easily in the moment but
No, I cannot do the thing because of catastrophic consequences on my health afterwards that they'll likely never see.
Yes, I can physically do a thing, sometimes even easily in the moment but
No, I cannot do the thing because of catastrophic consequences on my health afterwards that they'll likely never see.
July 21, 2025 at 2:38 AM
It's really hard getting people to understand that:
Yes, I can physically do a thing, sometimes even easily in the moment but
No, I cannot do the thing because of catastrophic consequences on my health afterwards that they'll likely never see.
Yes, I can physically do a thing, sometimes even easily in the moment but
No, I cannot do the thing because of catastrophic consequences on my health afterwards that they'll likely never see.
Having disabling chronic illnesses is a constant existential flip flop between:
"I must do everything possible to protect my precious, fragile health."
And
"F*** it, my life is painful and short, so I might as well eat all the pizza and dance while I can".
"I must do everything possible to protect my precious, fragile health."
And
"F*** it, my life is painful and short, so I might as well eat all the pizza and dance while I can".
July 20, 2025 at 11:16 AM
Having disabling chronic illnesses is a constant existential flip flop between:
"I must do everything possible to protect my precious, fragile health."
And
"F*** it, my life is painful and short, so I might as well eat all the pizza and dance while I can".
"I must do everything possible to protect my precious, fragile health."
And
"F*** it, my life is painful and short, so I might as well eat all the pizza and dance while I can".
Disability Support Provider: "We support the NDIS 💜".
Me: Not disabled people? 🤔 Well, that tracks.
Me: Not disabled people? 🤔 Well, that tracks.
July 18, 2025 at 2:13 AM
Disability Support Provider: "We support the NDIS 💜".
Me: Not disabled people? 🤔 Well, that tracks.
Me: Not disabled people? 🤔 Well, that tracks.
I cannot get over how the NDIS does not fund insurance for mobility devices.
One step further: Why don't *they* organise and offer comprehensive insurance for all funded equipment?
It would be cost effective, help to ensure quick replacement of broken equipment and is the responsible thing to do.
One step further: Why don't *they* organise and offer comprehensive insurance for all funded equipment?
It would be cost effective, help to ensure quick replacement of broken equipment and is the responsible thing to do.
July 17, 2025 at 1:50 AM
I cannot get over how the NDIS does not fund insurance for mobility devices.
One step further: Why don't *they* organise and offer comprehensive insurance for all funded equipment?
It would be cost effective, help to ensure quick replacement of broken equipment and is the responsible thing to do.
One step further: Why don't *they* organise and offer comprehensive insurance for all funded equipment?
It would be cost effective, help to ensure quick replacement of broken equipment and is the responsible thing to do.
NDIS Therapists: Pricing changes are the straw that broke the camel's back! We need immediate action!
NDIS Participants: Welcome to the party! Can I introduce you to Plan Cuts, Lists of Supports, Funding Periods, Eligibility Reassessments, Pre-Payment Audits, ambush planning meetings, debts...
NDIS Participants: Welcome to the party! Can I introduce you to Plan Cuts, Lists of Supports, Funding Periods, Eligibility Reassessments, Pre-Payment Audits, ambush planning meetings, debts...
July 16, 2025 at 5:23 AM
NDIS Therapists: Pricing changes are the straw that broke the camel's back! We need immediate action!
NDIS Participants: Welcome to the party! Can I introduce you to Plan Cuts, Lists of Supports, Funding Periods, Eligibility Reassessments, Pre-Payment Audits, ambush planning meetings, debts...
NDIS Participants: Welcome to the party! Can I introduce you to Plan Cuts, Lists of Supports, Funding Periods, Eligibility Reassessments, Pre-Payment Audits, ambush planning meetings, debts...
My meal prep worker cancelled their shift at short notice (COVID).
With the new #NDIS Lists, I can no longer claim a rebate for smoothies and sandwiches bought from my local cafe because junk food is bad man.
My partner is currently cooking meals for the week while at work and caring for me 🙃.
With the new #NDIS Lists, I can no longer claim a rebate for smoothies and sandwiches bought from my local cafe because junk food is bad man.
My partner is currently cooking meals for the week while at work and caring for me 🙃.
July 16, 2025 at 12:42 AM
My meal prep worker cancelled their shift at short notice (COVID).
With the new #NDIS Lists, I can no longer claim a rebate for smoothies and sandwiches bought from my local cafe because junk food is bad man.
My partner is currently cooking meals for the week while at work and caring for me 🙃.
With the new #NDIS Lists, I can no longer claim a rebate for smoothies and sandwiches bought from my local cafe because junk food is bad man.
My partner is currently cooking meals for the week while at work and caring for me 🙃.
My new article about the WILD experience of using disability services for the first time.
New piece by @givesnospoons.bsky.social - Journey to Planet Disability Support Services.
I thought I was well-prepared to use disability support services, but it was like being transported to a different planet where service providers’ behaviour was alien.
powerd.media/article/jour...
I thought I was well-prepared to use disability support services, but it was like being transported to a different planet where service providers’ behaviour was alien.
powerd.media/article/jour...
July 12, 2025 at 12:02 PM
My new article about the WILD experience of using disability services for the first time.
PSA for people with #AddisonsDisease: If you have cold symptoms, it's worth doing a combo COVID/Flu/RSV RAT test.
I've tested positive for RSV. I'd never heard of it before. It can cause pneumonia, fever, dehydration 🚩.
I'm Sick Dosing, upping fluids, monitoring vitals, resting.
I've tested positive for RSV. I'd never heard of it before. It can cause pneumonia, fever, dehydration 🚩.
I'm Sick Dosing, upping fluids, monitoring vitals, resting.
July 8, 2025 at 7:14 AM
PSA for people with #AddisonsDisease: If you have cold symptoms, it's worth doing a combo COVID/Flu/RSV RAT test.
I've tested positive for RSV. I'd never heard of it before. It can cause pneumonia, fever, dehydration 🚩.
I'm Sick Dosing, upping fluids, monitoring vitals, resting.
I've tested positive for RSV. I'd never heard of it before. It can cause pneumonia, fever, dehydration 🚩.
I'm Sick Dosing, upping fluids, monitoring vitals, resting.
Me: Can an #NDIS provider charge me for a 6 hour arts program if I can physically/mentally only attend it for 2 hours?
A disability carer and advocate: My daughter loves her day program (not even the same one). You can't expect every business to change for you. Go to somewhere else.
I just can't.
A disability carer and advocate: My daughter loves her day program (not even the same one). You can't expect every business to change for you. Go to somewhere else.
I just can't.
July 6, 2025 at 6:26 AM
Me: Can an #NDIS provider charge me for a 6 hour arts program if I can physically/mentally only attend it for 2 hours?
A disability carer and advocate: My daughter loves her day program (not even the same one). You can't expect every business to change for you. Go to somewhere else.
I just can't.
A disability carer and advocate: My daughter loves her day program (not even the same one). You can't expect every business to change for you. Go to somewhere else.
I just can't.
Why disabled people sometimes need to use a "luxury" service that is usually for non-disabled people:
1) They are higher quality, safer, less exhausting and better value than using the disability equivalent of the same service.
2) There is no disability equivalent service available.
Example:
1) They are higher quality, safer, less exhausting and better value than using the disability equivalent of the same service.
2) There is no disability equivalent service available.
Example:
June 23, 2025 at 5:30 AM
Why disabled people sometimes need to use a "luxury" service that is usually for non-disabled people:
1) They are higher quality, safer, less exhausting and better value than using the disability equivalent of the same service.
2) There is no disability equivalent service available.
Example:
1) They are higher quality, safer, less exhausting and better value than using the disability equivalent of the same service.
2) There is no disability equivalent service available.
Example:
Reposted by Charlie Park
all i want is to one day own a modest sized home in a walkable neighborhood and raise money for shelter animals. wear an outfit i like, walk to the grocery store, buy some nectarines, feed cats, and live in peace. just don't understand why achieving this is so hard
June 22, 2025 at 9:07 PM
all i want is to one day own a modest sized home in a walkable neighborhood and raise money for shelter animals. wear an outfit i like, walk to the grocery store, buy some nectarines, feed cats, and live in peace. just don't understand why achieving this is so hard
That some #NDIS participants are functioning well is not an indication of NDIS failings. They aren't fakers. Money isn't being wasted.
It means the opposite - the NDIS is doing its job to support disabled people to live their best lives.
Remove supports and they'll return to poor functioning.
It means the opposite - the NDIS is doing its job to support disabled people to live their best lives.
Remove supports and they'll return to poor functioning.
June 18, 2025 at 11:02 AM
That some #NDIS participants are functioning well is not an indication of NDIS failings. They aren't fakers. Money isn't being wasted.
It means the opposite - the NDIS is doing its job to support disabled people to live their best lives.
Remove supports and they'll return to poor functioning.
It means the opposite - the NDIS is doing its job to support disabled people to live their best lives.
Remove supports and they'll return to poor functioning.
Note to self: When a dentist says "you'll be in pain for a couple of days and discomfort for a week, take over the counter pain killers", I need to x10.
Pain = Excruciating pain
Discomfort = Pain that stops you eating normally
Need pain killers = Need to request a script for codeine
A week = 10
Pain = Excruciating pain
Discomfort = Pain that stops you eating normally
Need pain killers = Need to request a script for codeine
A week = 10
June 18, 2025 at 10:51 AM
Note to self: When a dentist says "you'll be in pain for a couple of days and discomfort for a week, take over the counter pain killers", I need to x10.
Pain = Excruciating pain
Discomfort = Pain that stops you eating normally
Need pain killers = Need to request a script for codeine
A week = 10
Pain = Excruciating pain
Discomfort = Pain that stops you eating normally
Need pain killers = Need to request a script for codeine
A week = 10
Festivals with no pass-outs or quiet spaces are inaccessible for many disabled people.
We often need to go to the car or a hotel room to rest, to take a break from noise, lights, crowds, or do medical-care.
It's expensive paying for a full ticket if we can only stay a short time without a break.
We often need to go to the car or a hotel room to rest, to take a break from noise, lights, crowds, or do medical-care.
It's expensive paying for a full ticket if we can only stay a short time without a break.
June 14, 2025 at 10:37 AM
Festivals with no pass-outs or quiet spaces are inaccessible for many disabled people.
We often need to go to the car or a hotel room to rest, to take a break from noise, lights, crowds, or do medical-care.
It's expensive paying for a full ticket if we can only stay a short time without a break.
We often need to go to the car or a hotel room to rest, to take a break from noise, lights, crowds, or do medical-care.
It's expensive paying for a full ticket if we can only stay a short time without a break.
That I've heard multiple non-disabled people loudly state that help with gardening should not ever be a government funded support for disabled people is clear evidence that non-disabled people should not ever be responsible for deciding what funded supports disabled people can get
#NDIS #Disability
#NDIS #Disability
May 30, 2025 at 7:58 AM
That I've heard multiple non-disabled people loudly state that help with gardening should not ever be a government funded support for disabled people is clear evidence that non-disabled people should not ever be responsible for deciding what funded supports disabled people can get
#NDIS #Disability
#NDIS #Disability
Who's not in the room? Who's voice is not heard at the table?
Disabled people who aren't
Well connected
Well spoken
Well available
Well experienced
Well energetic
Well looking
Well
Disabled people who aren't
Well connected
Well spoken
Well available
Well experienced
Well energetic
Well looking
Well
May 24, 2025 at 10:51 AM
Who's not in the room? Who's voice is not heard at the table?
Disabled people who aren't
Well connected
Well spoken
Well available
Well experienced
Well energetic
Well looking
Well
Disabled people who aren't
Well connected
Well spoken
Well available
Well experienced
Well energetic
Well looking
Well
I'm still shocked at how many #NDIS STA/Respite Centres:
1) Are double-story.
2) Have unsupportive, non-disability furniture.
3) No mention of infection control.
4) Or what dietary requirements they cater for.
5) Childish, day-long, social-heavy activities.
This is harmful to most disabled people
1) Are double-story.
2) Have unsupportive, non-disability furniture.
3) No mention of infection control.
4) Or what dietary requirements they cater for.
5) Childish, day-long, social-heavy activities.
This is harmful to most disabled people
May 22, 2025 at 2:25 AM
I'm still shocked at how many #NDIS STA/Respite Centres:
1) Are double-story.
2) Have unsupportive, non-disability furniture.
3) No mention of infection control.
4) Or what dietary requirements they cater for.
5) Childish, day-long, social-heavy activities.
This is harmful to most disabled people
1) Are double-story.
2) Have unsupportive, non-disability furniture.
3) No mention of infection control.
4) Or what dietary requirements they cater for.
5) Childish, day-long, social-heavy activities.
This is harmful to most disabled people
Acquiring a disability or becoming more disabled is expensive! Suddenly most of your furniture, appliances, clothing and sometimes your whole house is no longer suitable or accessible for your body.
You have to replace things and buy more things just to maintain basic functioning and independence.
You have to replace things and buy more things just to maintain basic functioning and independence.
May 21, 2025 at 7:53 AM
Acquiring a disability or becoming more disabled is expensive! Suddenly most of your furniture, appliances, clothing and sometimes your whole house is no longer suitable or accessible for your body.
You have to replace things and buy more things just to maintain basic functioning and independence.
You have to replace things and buy more things just to maintain basic functioning and independence.