eucatastrophie
eucatastrophe.bsky.social
eucatastrophie
@eucatastrophe.bsky.social
severe #myalgicencephalomyelitis , #longcovid. Interrupted artist. Existing somewhere between life and death.
Reposted by eucatastrophie
Call your member of Congress on this matter: 202-224-3121.
Dem need to introduce impeachment of RFK in House. Let Rs and Trump defend this monster.
September 4, 2025 at 6:05 PM
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Our intrepid former CMO was just on MSNBC discussing the hearing. It helps to actually understand how CDC works.
HHS Secretary refuses to say how many died from Covid during tense Senate hearing
Sparks flew on Capitol Hill as HHS Secretary Robert F. Kennedy Jr. was peppered with questions from senators over his handling of his position. Kennedy accused his ousted CDC director of lying, and tr...
www.msnbc.com
September 4, 2025 at 6:08 PM
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In the days after last week's Minneapolis shooting, I've been continually haunted by the shooter's video and the nihilistic contagion that seems to spread in mass shooter fandom communities. I spoke to @alexbnewhouse.bsky.social about how to process this terrible phenomenon w/o helping perpetuate it
The Mass Shooters Are Performing for One Another
The goal of these attacks is to join a lineage of infamous killers.
www.theatlantic.com
September 4, 2025 at 6:12 PM
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If you were alive in the 1980s, this is among the most wonderful & truly incredible things you have ever witnessed in your lifetime.
July 28, 2025 at 2:15 AM
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searching for something else and rediscovered this amazing town hall about #CDC cuts.

yeahhhh the Rs stopped holding town halls because their constituents were mad enough to spit
Question about firings at #CDC and re: nuclear facilities, saying they let ppl go & then had to hire them back, why is this so disorganized/chaotic?

McCormick starts by saying "13k work at CDC"-- already displeased rumblings from the crowd as he tries to imply there are more than enough people-- 🧵
"Duplicitous"
August 25, 2025 at 8:10 PM
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🚨 It’s the 20th anniversary of Katrina + FEMA workers are warning us: cuts + censorship are gutting the agency meant to keep us safe. Delayed disaster response = lives at risk. Sign the Katrina Declaration + demand Congress protect FEMA. 👉 www.standupforscience.net/fema-katrina-declaration
August 25, 2025 at 12:00 PM
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1) Suppose this isn't a coincidence:

- Olfactomedin 4 (OLFM4) Is a Biomarker for the severity of infectious diseases.

- OLFM4 is also one of the few DecodeME hits for patients with an infectious onset.
August 25, 2025 at 7:57 AM
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I'd be out there with mysidewalk chalk every single morning...
www.nytimes.com/2025/08/23/u...
Florida Paints Over Rainbow Memorial for Victims of Pulse Nightclub Shooting
www.nytimes.com
August 25, 2025 at 12:38 AM
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My paper is forthcoming in Philosophy of Science!

Drawing on the examples of HIV/AIDS and IACCs (incl. Long COVID), I argue that lay interference with the conduct of science can improve the accuracy of scientific outputs and propel science forward. Some main points ⬇️

philarchive.org/rec/CANTEG
Chloé de Canson, The Epistemic Grounds for Lay Interference in the Conduct of Science - PhilArchive
I present a heretofore untheorised form of lay science, called extitutional science, whereby lay scientists, by virtue of their collective experience, are able to detect errors committed by institutio...
philarchive.org
August 12, 2025 at 4:21 PM
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Lol yes, that is what I meant. Doofus move, I need an editor!

globe.adsbexchange.com

bsky.app/profile/anon...
August 18, 2025 at 12:30 AM
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Then there is the health risk…

The NYT had a story about firefighting today with good info, although some of the nuances are missing.

Respirators could help, but would drastically reduce productivity (due to heat exhaustion) and increase training and equipment costs.
Wildfire Fighters, Unmasked in Toxic Smoke, Are Getting Sick and Dying
www.nytimes.com
August 18, 2025 at 12:01 AM
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Care instructions for how to take care of people with severe ME.

German:
public-health.meduniwien.ac.at/fileadmin/co...

Google translation:
drive.google.com/file/d/1phdn...

Screenshot from latest Science for ME weekly update

#SevereME #MEcfs #CFS #PwME #VerySevereME
August 18, 2025 at 1:03 AM
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📢 The Internet Archive needs your help.

At a time when information is being rewritten or erased online, a $700 million lawsuit from major record labels threatens to destroy the Wayback Machine.

Tell the labels to drop the 78s lawsuit.

👉 Sign our open letter: www.change.org/p/defend-the...

🧵⬇️
April 17, 2025 at 4:51 PM
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Time to give Palantir the Tesla and Target treatment. Make it shameful to work there. Organize rallies at their offices.
April 17, 2025 at 4:28 PM
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Some bad news for people living with #MECFS.

Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC.

I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet.

Let's talk about what a passback is, and what it means for us. 🧵🧪
April 17, 2025 at 3:53 PM
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Another real story from a USAID worker. This is who we are. Don't look away.

open.substack.com/pub/scaan/p/...
Heartwrenching: The End of A 25-Year Career
A contributor shares a touching essay about her life international development and the payback for doing God's work.
open.substack.com
February 21, 2025 at 12:49 AM
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Recruiting study for people with ME/CFS & healthy controls who can get to Palo Alto, CA, USA (along with the possibility of home visits for some nearby).
studypages.com/s/myalgic-en...

Janet Dafoe @janetdafoe.bsky.social plugged it today.

#MEcfs #CFS
February 13, 2025 at 10:30 PM
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One thing Democratic leadership could do right now is to name an alternate HHS secretary--someone to provide ongoing public updates and health information. And do it for other departments too. Start showing voters what a Democratic government would look like--press conferences, speeches, all of it.
February 13, 2025 at 5:33 PM
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Thank goodness for the American Medical Association. Here is their YouTube page. Please share far and wide. Right now bird flu is spreading throughout our country and most people have no clue. Please stay updated and bookmark this page for your health and well-being.

www.youtube.com/@americanmed...
February 12, 2025 at 8:45 PM
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I heard a very interesting radio interview on the Australian national broadcaster about the intersection of the wellness industry and white supremacism.
www.abc.net.au/listen/progr...
How white nationalism infiltrated the wellness industry - ABC listen
A deep dive behind the scenes in the wellness industry in the United States and the UK has uncovered a strange connection between a number of soap, tea and other wellness products, and companies suppo...
www.abc.net.au
February 13, 2025 at 10:39 PM
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A lot of chronic illness is post viral. People are healthy until they get flu, mono, covid etc

It only takes one infection to upend your life & leave you with severe disabilities

RFK Jr says he wants to end chronic illness epidemic & yet will make avoiding viruses harder

Get boosted. Wear a mask.
February 13, 2025 at 9:06 PM
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How much Elon Musk makes from the government a day: $8 million.

How much a senior on Social Security gets a day: $65

Note: In 2024 alone, Musk’s enterprises were awarded approximately $3 billion across nearly 100 federal contracts, averaging about $8 million per day.
February 13, 2025 at 9:23 PM
It's even worse, they literally said to test EMFs for chronic disease. Those bullshit sticker grifts are about to boom. I hate this so much
"assess the prevalence of and threat posed by the prescription of selective serotonin reuptake inhibitors, antipsychotics, mood stabilizers, stimulants, and weight-loss drugs"

good time time become an antipsychiatry grifter in the US

www.whitehouse.gov/presidential...
Establishing the President's Make America Healthy Again Commission
By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered: Section 1.
www.whitehouse.gov
February 14, 2025 at 1:10 AM
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NEW: My office is hearing that DOGE is now at the IRS. That means Musk's henchmen are in a position to dig through a trove of data about every taxpayer in America. And if your refund is delayed, they could very well be the reason.
February 13, 2025 at 7:01 PM