Casey Doherty
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caseydoherty.bsky.social
Casey Doherty
@caseydoherty.bsky.social
Disability policy analyst @americanprogress.bsky.social by day, disability studies PhD student by night, disabled activist by later night.
ME/Long Covid/Lyme/MCAS/etc.
Cat mom!
she/her. Opinions my own.
Pinned
I’m here! I work in disability policy and am a disability studies PhD student. This account will be all things disability policy & research, pandemic mitigation measures, Long COVID/ME advocacy, reproductive justice, and more. And cats! Can’t forget cats.
I’m looking forward to joining @seemiaroll.bsky.social and @reprolawyer.bsky.social in conversation this Friday (2/13) at the Sexuality, Disability, and the Power to Disrupt Conference!

www.disabilitysexualitylab.com/conference-2...
Conference 2026 — Disability & Sexuality Lab
www.disabilitysexualitylab.com
February 11, 2026 at 7:53 PM
Reposted by Casey Doherty
Gallup will no longer measure presidential approval after 88 years thehill.com/homenews/med...
February 11, 2026 at 7:12 PM
New @americanprogress.bsky.social toolkit out now! It's designed to help advocates ensure states comply with HHS' Section 504 rule, which strengthens disability nondiscrimination protections across health care, child welfare systems, and other federally funded programs.
Toolkit: Ensuring State Implementation of HHS’ Updated Section 504 Rule
This toolkit provides background on the U.S. Department of Health and Human Services’ final rule on “Nondiscrimination on the Basis of Disability in Programs or Activities Receiving Federal Financial ...
www.americanprogress.org
February 11, 2026 at 7:15 PM
Reposted by Casey Doherty
🚨My disabled brother and I are appealing to you from Gaza🚨
Our lives are catastrophic. We are homeless, living on dirty sand. Our tent is destroyed, we were flooded by the heavy rains. There is no healthy food or clean water.
We need $300 to buy a tent and food.
Pls help🤲
chuffed.org/project/1580...
February 10, 2026 at 10:47 AM
CONGRATULATIONS to the @incldisability.bsky.social team for publishing their Virtual Conference Planning Handbook, with lessons they learned from hosting their free, virtual, international conferences.

Check it out!

www.includingdisability.org/events/handb...
Including Disability - Handbook
Read the Handbook The Including Disability Virtual Conference Planning Handbook is available as an accessible PDF document below. If this document does not meet your access needs, please let us know a...
www.includingdisability.org
February 10, 2026 at 12:16 AM
Reposted by Casey Doherty
Join us for a free webinar! The Sick Times editors @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social — plus special guest speakers — will demystify the process of writing and pitching op-eds and essays on Long COVID. Register now: us06web.zoom.us/meeting/regi...
February 9, 2026 at 9:14 PM
Reposted by Casey Doherty
This study is so well done and I can't wait to see the results.

Highly encourage people with ME and those who provide health care for them to participat:
restandmecfs.com
February 9, 2026 at 6:33 PM
Reposted by Casey Doherty
Just looked at the presenter list for the Symposium for Disability and Accessibility at Yale and I feel very grateful to be in the same row as @caseydoherty.bsky.social and my DISCO Network cohort-mate Kim Fernandes 😍 dandasymposium.yale.edu/organizers-a...
Organizers and Presenters
dandasymposium.yale.edu
February 9, 2026 at 7:50 PM
Reposted by Casey Doherty
More background on this: One of the reasons skiers are taking precautions like masking is because some athletes have had post-viral illness or chronic fatigue.

Source: fasterskier.com/2025/12/novi...
February 7, 2026 at 1:20 AM
Reposted by Casey Doherty
The Long Covid Innovation bill will be heard next in the Maryland Senate! 🥳

If you sent your story already, you can increase your impact by reformatting w/ the Senate bill number (SB0392) and uploading again Tues 2/10 8am-6pm!

And if you needed a little more time, here it is!

Instructions:
February 7, 2026 at 8:13 PM
Reposted by Casey Doherty
Hi everyone, I have a last minute doctors appointment in LA and transport costs $450 plus the medical hotel $400. If you have any spare change would appreciate help ❤️

I know you always see me posting about work but it is all essentially for the free.99. 😞 Praying one day that’ll change.
Donate to Critical Healthcare Support for Victoria, organized by Vee Copeland
Hello everyone, My name is Victoria and thank you for checking out my gofundme.… Vee Copeland needs your support for Critical Healthcare Support for Victoria
www.gofundme.com
February 8, 2026 at 4:39 PM
By 2/9, I’m opposing ED’s proposal to stop requiring states to report significant disproportionality data under IDEA Part B. This data tracks racial disparities in disability ID, placement, & discipline. Removing it weakens transparency and civil rights enforcement. Please submit a comment!
Agency Information Collection Activities; Submission to the Office of Management and Budget for Review and Approval; Comment Request; Annual State Application Under Part B of the Individuals With Disa...
In accordance with the Paperwork Reduction Act (PRA) of 1995, the Department is proposing a revision of a currently approved information collection request (ICR).
www.federalregister.gov
February 7, 2026 at 1:49 AM
Reposted by Casey Doherty
Go submit your testimony to the House right now! And again (or if you miss today’s House deadline) to the Senate on Tuesday! You don’t need to live in Maryland—the idea is to show this is a global problem/global market. Here’s how to submit:

docs.google.com/document/d/1...
February 6, 2026 at 7:32 PM
Reposted by Casey Doherty
The spending plan retains the Administration for Community Living, which oversees programs helping people with disabilities access all range of services in their communities and advocates for the needs of people with disabilities.

www.disabilityscoop.com/2026/02/05/t...
Trump Wanted To Cut Disability Programs. Congress Just Said No
After months of uncertainty, federal lawmakers approved a spending package that rejects Trump administration efforts to alter IDEA and do away with some disability programs.
www.disabilityscoop.com
February 6, 2026 at 10:15 PM
Reposted by Casey Doherty
A man taken into custody in Rochester Thursday by federal immigration agents and now held at the Whipple Federal Building in the Twin Cities is a recent organ transplant recipient who is without his needed anti-rejection medication, state Rep. Kim Hicks tells MPR News.
Transplant recipient arrested by federal agents in Rochester needs medicine, state representative says
State Rep. Kim Hicks told MPR News she drove to the Whipple Federal Building near Ft. Snelling Thursday night to give the man his medication but authorities wouldn't take it without a doctor's note. S...
www.mprnews.org
February 6, 2026 at 6:07 PM
Reposted by Casey Doherty
Hi all!

There will be two windows to share your story in the form of written testimony to support the Maryland Long Covid Innovation bill. The first is:

This Friday 2/6 from 8am-3pm

To make it easier, @viralpersistence.bsky.social and I have written up a how-to: docs.google.com/document/d/1...
Long Covid friends—

A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.

The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!

More info:
Sign the Petition
Advocate for Maryland HB 0027 for Long COVID R&D
www.change.org
February 4, 2026 at 8:46 PM
Reposted by Casey Doherty
We know this may be too involved for some w/ #LongCovid #pwLC.

If you can make an account and write your story, @viralpersistence.bsky.social is offering to help format and upload. You’d need to share your login, name and address. If you’re comfortable w/that, you can send her your testimony here:
MD Long Covid Bill Testimony
This form is to share written testimony for Maryland bills HB0027 and SB0392, which if passed will create a funding structure for LC research at the state level. The process of submitting testimony on...
docs.google.com
February 4, 2026 at 9:12 PM
Reposted by Casey Doherty
I took the low energy survey. There's a general as well. It is an extremely caring and knowledgeable survey. There's no compensation, but I am happy to help researchers looking to find ways to help others. If you have ME/CFS, I recommend it.
Hi everyone, I wanted to share a research study I just launched on rest, energy, & ME/CFS, open to people with ME/CFS & medical or healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS. Visit restandmecfs.com for more.
February 5, 2026 at 9:55 AM
Reposted by Casey Doherty
The survey will remain open until September! So truly, no rush.
February 5, 2026 at 5:54 PM
Reposted by Casey Doherty
The survey has only been open for a day & there's surprisingly 70 in-depth qualitative responses. Thank you so much everyone for expending your precious energy. I will be presenting preliminary findings in April at this conference dandasymposium.yale.edu. I will post the presentation as well!
February 5, 2026 at 5:54 PM
Reposted by Casey Doherty
I wrote this spicy piece, reflecting on the history of eugenics and how it reflects on current policies.
One of the biggest peddlers of discrimination against people based on perceived health & abilities is Dept. of Health & Human Services Secretary Robert F. Kennedy Jr., writes @seemiaroll.bsky.social. RFK Jr.’s ableist rhetoric & dangerous proposals lead the U.S. down its familiar legacy of eugenics.
America’s legacy of eugenics is alive and well under Trump
Robert F. Kennedy Jr.’s ableist rhetoric and dangerous policy proposals lead the U.S. down a deadly, yet familiar path
prismreports.org
February 5, 2026 at 9:48 PM
Reposted by Casey Doherty
I’m outraged. Our kids are living in terror under this unjust federal occupation. No child should endure the cruelty being inflicted at the hands of the Trump regime.
What the Crackdown Has Done to Minneapolis Children
www.nytimes.com
February 5, 2026 at 9:13 PM
Reposted by Casey Doherty
THIS: “Living in a city that you know has the resources, and still dealing with these issues, shows just how poorly cities are ready to deal with accessibility issues” - @seemiaroll.bsky.social

It doesn’t have to be this way. #Ableism #DisabilityJustice

www.motherjones.com/politics/202...
Snowstorms are hell for wheelchair users—but they don't have to be
"You can't physically move. You can't do anything."
www.motherjones.com
February 5, 2026 at 4:03 PM