Alisontomyradioooo
@arisonsned.bsky.social
Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵
Reposted by Alisontomyradioooo
I’ve just donated to this worthy cause
I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue.
This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
www.crowdjustice.com
September 2, 2025 at 1:22 PM
I’ve just donated to this worthy cause
Reposted by Alisontomyradioooo
Proud to be on the Science Advisory Board for DecodeME, a peripheral role but a fantastic vantage point from which to witness such outstanding work by Chris Ponting @cgatist.bsky.social and colleagues
#MECFS #pwME
www.theguardian.com/society/2025...
#MECFS #pwME
www.theguardian.com/society/2025...
Scientists find link between genes and ME/chronic fatigue syndrome
Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness
www.theguardian.com
August 6, 2025 at 8:16 PM
Proud to be on the Science Advisory Board for DecodeME, a peripheral role but a fantastic vantage point from which to witness such outstanding work by Chris Ponting @cgatist.bsky.social and colleagues
#MECFS #pwME
www.theguardian.com/society/2025...
#MECFS #pwME
www.theguardian.com/society/2025...
Reposted by Alisontomyradioooo
ME linked to your genetics - early study indicates
YouTube video by Channel 4 News
youtu.be
August 6, 2025 at 6:49 PM
Reposted by Alisontomyradioooo
(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
August 6, 2025 at 7:03 PM
(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
Reposted by Alisontomyradioooo
Clip: Channel 4 News, Prof Chris Ponting tells a participant that the DecodeME study found eight genetic differences in people with MECFS — demonstrating that it’s a biological, organic illness.
August 6, 2025 at 6:35 PM
Clip: Channel 4 News, Prof Chris Ponting tells a participant that the DecodeME study found eight genetic differences in people with MECFS — demonstrating that it’s a biological, organic illness.
Reposted by Alisontomyradioooo
“DecodeME also looked at genetic signals associated with depression and anxiety that were near the genetic signals found for ME/CFS, and found that neither involved the same causal variants as ME/CFS”
www.decodeme.org.uk/x-marks-the-... where ME/CFS biology can be discovered - DecodeME
www.decodeme.org.uk/x-marks-the-... where ME/CFS biology can be discovered - DecodeME
X marks the spot where ME/CFS biology can be discovered - DecodeME
06 August 2025 Scientists, people with ME/CFS, and their charities came together to create DecodeME, the world’s biggest ME/CFS study – and its results are striking. 18,000 people with ME/CFS gave the...
www.decodeme.org.uk
August 6, 2025 at 9:14 PM
“DecodeME also looked at genetic signals associated with depression and anxiety that were near the genetic signals found for ME/CFS, and found that neither involved the same causal variants as ME/CFS”
www.decodeme.org.uk/x-marks-the-... where ME/CFS biology can be discovered - DecodeME
www.decodeme.org.uk/x-marks-the-... where ME/CFS biology can be discovered - DecodeME
Reposted by Alisontomyradioooo
For the statistical geneticists among you, the GWAS summary statistics are now freely available to be downloaded. Look under DecodeME Summary Statistics here: osf.io/rgqs3/files/...
OSF
osf.io
August 6, 2025 at 8:37 PM
For the statistical geneticists among you, the GWAS summary statistics are now freely available to be downloaded. Look under DecodeME Summary Statistics here: osf.io/rgqs3/files/...
Reposted by Alisontomyradioooo
Sign the Petition
Save Savannah Victora-May - Prevent Another ME/CFS Tragedy
www.change.org
July 31, 2025 at 1:40 PM
Reposted by Alisontomyradioooo
Within a week of the plan being published, There were three petitions for people with severe ME being held against their will by the NHS. And now this mother of a child with ME being *arrested* for her death despite the harms caused by THE NHS!!!
July 31, 2025 at 1:38 PM
Within a week of the plan being published, There were three petitions for people with severe ME being held against their will by the NHS. And now this mother of a child with ME being *arrested* for her death despite the harms caused by THE NHS!!!
Reposted by Alisontomyradioooo
Ashley Dalton is @ashleydaltonmp.bsky.social
July 31, 2025 at 1:45 PM
Ashley Dalton is @ashleydaltonmp.bsky.social
Reposted by Alisontomyradioooo
@rthonwesstreeting.bsky.social
I can't find Ashley Dalton on here so tagging you in with total support for what you have had to do.
Hope BMA negotiations are going better.
I can't find Ashley Dalton on here so tagging you in with total support for what you have had to do.
Hope BMA negotiations are going better.
Within a week of the plan being published, There were three petitions for people with severe ME being held against their will by the NHS. And now this mother of a child with ME being *arrested* for her death despite the harms caused by THE NHS!!!
July 31, 2025 at 1:41 PM
@rthonwesstreeting.bsky.social
I can't find Ashley Dalton on here so tagging you in with total support for what you have had to do.
Hope BMA negotiations are going better.
I can't find Ashley Dalton on here so tagging you in with total support for what you have had to do.
Hope BMA negotiations are going better.
Reposted by Alisontomyradioooo
@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
July 31, 2025 at 7:11 AM
@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
Reposted by Alisontomyradioooo
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
July 31, 2025 at 6:45 AM
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
Reposted by Alisontomyradioooo
Reposted by Alisontomyradioooo
It’s #MEAwareness Day! MECFS has one of the lowest QOL of any disease and yet most providers incorrectly believe it’s psychological and refuse to use current best tx practices. For my healthcare friends, the Bateman Horne Center just released a very comprehensive clinical care guide.
May 12, 2025 at 3:26 PM
It’s #MEAwareness Day! MECFS has one of the lowest QOL of any disease and yet most providers incorrectly believe it’s psychological and refuse to use current best tx practices. For my healthcare friends, the Bateman Horne Center just released a very comprehensive clinical care guide.
Bailouts won't fix the sewage scandal and won't reduce bills. Join me and @GoodLawProject to call on Steve Reed to stop water company greed
goodlaw.social/uk6y
goodlaw.social/uk6y
Ask Steve Reed to stop bills rising, not reward water company greed
Thames Water’s profit-hungry owners have let the water network rot while they’ve racked up alarming debts. And who do they want to pick up the tab? Customers – through ever-rising water bills. The com...
goodlaw.social
April 6, 2025 at 11:01 AM
Bailouts won't fix the sewage scandal and won't reduce bills. Join me and @GoodLawProject to call on Steve Reed to stop water company greed
goodlaw.social/uk6y
goodlaw.social/uk6y
Reposted by Alisontomyradioooo
Christmas cards still available from the charity
10 cards per pack - £2 per pack (includes postage, for UK delivery - email us for outside of UK)
www.investinme.org/ccard2024.sh...
#mecfs #research #philanthropy #Christmascards #CofEforME
10 cards per pack - £2 per pack (includes postage, for UK delivery - email us for outside of UK)
www.investinme.org/ccard2024.sh...
#mecfs #research #philanthropy #Christmascards #CofEforME
November 27, 2024 at 2:40 PM
Christmas cards still available from the charity
10 cards per pack - £2 per pack (includes postage, for UK delivery - email us for outside of UK)
www.investinme.org/ccard2024.sh...
#mecfs #research #philanthropy #Christmascards #CofEforME
10 cards per pack - £2 per pack (includes postage, for UK delivery - email us for outside of UK)
www.investinme.org/ccard2024.sh...
#mecfs #research #philanthropy #Christmascards #CofEforME
Reposted by Alisontomyradioooo
#InvestinMEResearch - How We Effectively Energise ME Research
Finding, Funding and Facilitating Research into ME
investinme.org/invest-in-me...
#mecfs #GivingTuesday #research #philanthropy
#CofEforME
Finding, Funding and Facilitating Research into ME
investinme.org/invest-in-me...
#mecfs #GivingTuesday #research #philanthropy
#CofEforME
December 3, 2024 at 5:27 PM
#InvestinMEResearch - How We Effectively Energise ME Research
Finding, Funding and Facilitating Research into ME
investinme.org/invest-in-me...
#mecfs #GivingTuesday #research #philanthropy
#CofEforME
Finding, Funding and Facilitating Research into ME
investinme.org/invest-in-me...
#mecfs #GivingTuesday #research #philanthropy
#CofEforME
Reposted by Alisontomyradioooo
🆕 Our researchers have helped develop a new multiple organ-on-chip system to help study how neurotoxins move from the gut to the brain 🧠
A collaboration with @universityofessex.bsky.social University of Hull and UKHSA 🔬
https://buff.ly/3BlKH0l
A collaboration with @universityofessex.bsky.social University of Hull and UKHSA 🔬
https://buff.ly/3BlKH0l
Organ-on-chip system to study the gut-brain axis - Quadram Institute
The model system simulated how a neurotoxin in the gut can trigger the brain cell death seen in Parkinson’s disease, in a proof-of-concept study from the Quadram Institute, University of Hull,…
quadram.ac.uk
December 10, 2024 at 3:06 PM
🆕 Our researchers have helped develop a new multiple organ-on-chip system to help study how neurotoxins move from the gut to the brain 🧠
A collaboration with @universityofessex.bsky.social University of Hull and UKHSA 🔬
https://buff.ly/3BlKH0l
A collaboration with @universityofessex.bsky.social University of Hull and UKHSA 🔬
https://buff.ly/3BlKH0l
Reposted by Alisontomyradioooo
Her Royal Highness The Princess Royal today visited the Quadram Institute on the Norwich Research Park to hear about our work in protecting and improving health.
@nnuh.bsky.social
https://buff.ly/41y6NY6
@nnuh.bsky.social
https://buff.ly/41y6NY6
Her Royal Highness The Princess Royal visits the Quadram Institute - Quadram Institute
Her Royal Highness The Princess Royal visited the Quadram Institute on the Norwich Research Park to hear about its work in protecting and improving health.
quadram.ac.uk
December 12, 2024 at 4:36 PM
Her Royal Highness The Princess Royal today visited the Quadram Institute on the Norwich Research Park to hear about our work in protecting and improving health.
@nnuh.bsky.social
https://buff.ly/41y6NY6
@nnuh.bsky.social
https://buff.ly/41y6NY6
Reposted by Alisontomyradioooo
mygivingcircle.org/invest-in-me...
Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
December 13, 2024 at 6:47 PM
mygivingcircle.org/invest-in-me...
Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
Reposted by Alisontomyradioooo
Every journey has to start somewhere.
Back running after a month off. Got round 3 miles and it nearly killed me.
Up and running for Belfast Marathon (european country 33)
Aiming to get to £55k by end of 2025 for @investinmeresearch.bsky.social
www.justgiving.com/mikeseumarathons
Back running after a month off. Got round 3 miles and it nearly killed me.
Up and running for Belfast Marathon (european country 33)
Aiming to get to £55k by end of 2025 for @investinmeresearch.bsky.social
www.justgiving.com/mikeseumarathons
December 14, 2024 at 9:44 AM
Every journey has to start somewhere.
Back running after a month off. Got round 3 miles and it nearly killed me.
Up and running for Belfast Marathon (european country 33)
Aiming to get to £55k by end of 2025 for @investinmeresearch.bsky.social
www.justgiving.com/mikeseumarathons
Back running after a month off. Got round 3 miles and it nearly killed me.
Up and running for Belfast Marathon (european country 33)
Aiming to get to £55k by end of 2025 for @investinmeresearch.bsky.social
www.justgiving.com/mikeseumarathons