Ariane K 💜 #Care4Complex
@arianek.bsky.social
Co-founder Textillia.com! ✂️💕• SFU Geog • Public health/urban planning/open source nerd • Sick AF #Sjogrens #Dysautonomia #IVIG #IatrogenicIllness • ♿️🌈🇦🇲🦆🐶🖖📚💌🌿 • Vancouver • she/her • C4C🇨🇦 FB: https://www.facebook.com/groups/care4complexcanada/
Pinned
Apparently people are doing intros here for new followers. It’s hard to intro myself succinctly but I’ll try - I’m still not sure if I will resume the level of #Care4Complex advocacy here I was doing on X. It’s exhausting, and frankly has only resulted in my feeling further alienated. So, pre-2021…
Does anyone know a doctor anywhere in North America who could assess someone with severe GI damage from multiple infections, worsened by Rituximab/prolonged oral prednisone, malnutrition (including severe Thiamine deficiency), and autoimmune neuropathy?
October 31, 2025 at 7:05 PM
Does anyone know a doctor anywhere in North America who could assess someone with severe GI damage from multiple infections, worsened by Rituximab/prolonged oral prednisone, malnutrition (including severe Thiamine deficiency), and autoimmune neuropathy?
I was sent this story and have to share it - the fact that not only decades of adults and children have been neglected with post viral and complex diseases in Canada, but that this is STILL how we are being treated should be criminal. THIS NEEDS TO STOP. #Care4ComplexCanada #LongCovid
🧵Kid got covid Feb 2024. It was very mild, fever of 38.5C. Sore throat for a day.
But then, he kept getting recurring sore throats every other week for 3 months. And then he raced other kids one day & everything went to hell.
Absence seizures, bed bound kind of fatigue, tremors,
1/x
But then, he kept getting recurring sore throats every other week for 3 months. And then he raced other kids one day & everything went to hell.
Absence seizures, bed bound kind of fatigue, tremors,
1/x
Imagine the parents of chronically ill children who realized that they were lied to when they were told that Covid was mild in children, and even that it was good for their immune systems. They are gonna be enraged. 5/
September 8, 2025 at 11:02 PM
I was sent this story and have to share it - the fact that not only decades of adults and children have been neglected with post viral and complex diseases in Canada, but that this is STILL how we are being treated should be criminal. THIS NEEDS TO STOP. #Care4ComplexCanada #LongCovid
I can’t believe I am asking this for a THIRD year in a row, but does anyone know an ethical HVAC contractor (preferably independent) in Vancouver? The two big companies (Milani and Ashton) have screwed us over and over, and after spending many thousands of dollars...
July 21, 2025 at 11:51 PM
I can’t believe I am asking this for a THIRD year in a row, but does anyone know an ethical HVAC contractor (preferably independent) in Vancouver? The two big companies (Milani and Ashton) have screwed us over and over, and after spending many thousands of dollars...
Paging @catherinewinters.com or other Vancouverites, is your hayfever horrifying rn? I want to rip my itchy throat out of my own mouth. It’s the worst I’ve ever had it and almost nothing is helping! (Yes I logged onto Bsky specifically for this since you didn’t seem to be on X anymore!) 😬
June 18, 2025 at 2:43 AM
Paging @catherinewinters.com or other Vancouverites, is your hayfever horrifying rn? I want to rip my itchy throat out of my own mouth. It’s the worst I’ve ever had it and almost nothing is helping! (Yes I logged onto Bsky specifically for this since you didn’t seem to be on X anymore!) 😬
Do you ever wonder if the government is intentionally keeping us distracted with bickering about masking, so that they can continue to avoid having to do what we needed this whole time and invest in air filtration systems in all public buildings? 👀 #CovidIsAirborne
June 1, 2025 at 5:03 PM
Do you ever wonder if the government is intentionally keeping us distracted with bickering about masking, so that they can continue to avoid having to do what we needed this whole time and invest in air filtration systems in all public buildings? 👀 #CovidIsAirborne
Reposted by Ariane K 💜 #Care4Complex
If HCWs feel “attacked” when we call them out for not masking, perhaps that’s projection because deep down they know they should be wearing a mask.
We’re fighting for our literal lives. Fighting to avoid further disability and loss of baseline.
Your first duty is to your patient. Wear the mask.
We’re fighting for our literal lives. Fighting to avoid further disability and loss of baseline.
Your first duty is to your patient. Wear the mask.
May 4, 2025 at 5:21 AM
If HCWs feel “attacked” when we call them out for not masking, perhaps that’s projection because deep down they know they should be wearing a mask.
We’re fighting for our literal lives. Fighting to avoid further disability and loss of baseline.
Your first duty is to your patient. Wear the mask.
We’re fighting for our literal lives. Fighting to avoid further disability and loss of baseline.
Your first duty is to your patient. Wear the mask.
Reposted by Ariane K 💜 #Care4Complex
at some point these public health ghouls who let covid rip are either going to have to reckon with the consequences of mass immune damage, or escape/disappear somehow
Where is Public Health?
Last week, I was writing about #measles spreading in Ontario and Alberta and the invisibility of public health officials there. www.theglobeandmail.com/canada/artic...
CBC News has more on the topic today, including this observation. www.cbc.ca/news/health/...
Last week, I was writing about #measles spreading in Ontario and Alberta and the invisibility of public health officials there. www.theglobeandmail.com/canada/artic...
CBC News has more on the topic today, including this observation. www.cbc.ca/news/health/...
May 3, 2025 at 2:29 PM
at some point these public health ghouls who let covid rip are either going to have to reckon with the consequences of mass immune damage, or escape/disappear somehow
Reposted by Ariane K 💜 #Care4Complex
🎯
One of Mark Carney's first priorities should be depolarizing our politics and protecting us from foreign-funded disinformation and other deliberate attempts at division.
The best way to do that? Electoral reform. #cdnpoli www.nationalobserver.com/2025/04/30/o...
The best way to do that? Electoral reform. #cdnpoli www.nationalobserver.com/2025/04/30/o...
Mark Carney needs to depolarize our politics
Under a more proportional system, both parties would be incentivized to compete more aggressively in all parts of the country — and rewarded for efforts aimed at building bridges rather than burning t...
www.nationalobserver.com
April 30, 2025 at 3:36 PM
🎯
Reposted by Ariane K 💜 #Care4Complex
What happens when you ask the government for data you have a legitimate right to obtain but that would provide evidence that it was wasting significant taxpayer dollars instead of providing needed health care?
This happens.
This happens.
April 30, 2025 at 3:52 PM
What happens when you ask the government for data you have a legitimate right to obtain but that would provide evidence that it was wasting significant taxpayer dollars instead of providing needed health care?
This happens.
This happens.
The terrible exchange rate is making paying for US medical consults + testing even less feasible. The least the BC government could do, if they're not going to give me healthcare, is give us back our taxes so I can get it in the states. #BCHealthcareCrisis #Care4ComplexCanada
April 22, 2025 at 7:17 PM
The terrible exchange rate is making paying for US medical consults + testing even less feasible. The least the BC government could do, if they're not going to give me healthcare, is give us back our taxes so I can get it in the states. #BCHealthcareCrisis #Care4ComplexCanada
The lengths that I've gone to, trying to get medical care... No average person has the financial, social, educational, cognitive capital to do anything like this while this sick. I am the epitome of privilege aside from not being male. If I can't get care, who can? #Care4Complex
April 21, 2025 at 6:28 PM
The lengths that I've gone to, trying to get medical care... No average person has the financial, social, educational, cognitive capital to do anything like this while this sick. I am the epitome of privilege aside from not being male. If I can't get care, who can? #Care4Complex
How do I get people, especially people in power, to care about me + the thousands of others like me, WITHOUT subjecting myself to more retaliation by vindictive doctors, blacklisting me from care + tarnishing my reputation as a patient? I’m so sick + exhausted. I want to give up.
April 21, 2025 at 5:06 PM
How do I get people, especially people in power, to care about me + the thousands of others like me, WITHOUT subjecting myself to more retaliation by vindictive doctors, blacklisting me from care + tarnishing my reputation as a patient? I’m so sick + exhausted. I want to give up.
Do this many healthcare workers really not understand or care that they’re hurting patients with this ridiculous power trip ego game about taking infection control precautions? I keep waiting for good sense to return to healthcare, but it’s just never going to happen is it. 🫠
April 15, 2025 at 10:35 PM
Do this many healthcare workers really not understand or care that they’re hurting patients with this ridiculous power trip ego game about taking infection control precautions? I keep waiting for good sense to return to healthcare, but it’s just never going to happen is it. 🫠
Reposted by Ariane K 💜 #Care4Complex
![just because i can survive harsh conditions doesn't mean I should have to
[a pic of a Tardigrades]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreigfneemnfp6d65jmiuh4i7pijvcn3edvxza2eibvlenks6k3tkv7u@jpeg)
I’ve been trying to find a Covid safe endodontist in Vancouver to do my root canal for over a year, and these are the replies I get. WTF am I supposed to do? My tooth constantly hurts at this point. I hate Bonnie Henry so much. (Yes I’m going to ask if I can supply them.) FML.
April 15, 2025 at 9:16 PM
I’ve been trying to find a Covid safe endodontist in Vancouver to do my root canal for over a year, and these are the replies I get. WTF am I supposed to do? My tooth constantly hurts at this point. I hate Bonnie Henry so much. (Yes I’m going to ask if I can supply them.) FML.
Does anyone know if you can make Bsky do notifications for incoming DMs on iPhone? I can’t seem to find the settings for it. I’m not on here much so would be good to know if anyone’s messaging me.
April 14, 2025 at 7:10 PM
Does anyone know if you can make Bsky do notifications for incoming DMs on iPhone? I can’t seem to find the settings for it. I’m not on here much so would be good to know if anyone’s messaging me.
I wish I could somehow archive my entire post history on here and X, without completely losing it. I don't feel comfortable publicly posting about my life or medical stuff anymore, between lack of real blocking on X + the risk of some right wing news outlet misusing my posts about MAID. :(
April 7, 2025 at 8:09 PM
I wish I could somehow archive my entire post history on here and X, without completely losing it. I don't feel comfortable publicly posting about my life or medical stuff anymore, between lack of real blocking on X + the risk of some right wing news outlet misusing my posts about MAID. :(
Posting in case I’m missing it somehow, but is there really no way to listen to the entirety of @cbcstephenquinn.bsky.social’s The Early Edition? CBC Listen app has the segments, but it’s super annoying to have to play each few minute piece individually, when I want to hear the entire show.
April 7, 2025 at 4:11 PM
Posting in case I’m missing it somehow, but is there really no way to listen to the entirety of @cbcstephenquinn.bsky.social’s The Early Edition? CBC Listen app has the segments, but it’s super annoying to have to play each few minute piece individually, when I want to hear the entire show.
While I may keep popping in here for news or to skim updates from those who’ve left X, I am inclined to stop posting any personal updates here. There is virtually no engagement and the bits I do get are really bizarre and inappropriate or even hostile. Not worth it. Find me back on X or Insta. 🖖
March 27, 2025 at 4:42 PM
While I may keep popping in here for news or to skim updates from those who’ve left X, I am inclined to stop posting any personal updates here. There is virtually no engagement and the bits I do get are really bizarre and inappropriate or even hostile. Not worth it. Find me back on X or Insta. 🖖
Reposted by Ariane K 💜 #Care4Complex
As a physician, the first time I heard of adenomyosis was when my doctor was concerned I might have it. Not in medical school, not in residency—not until it might affect me. That’s how little we care about women’s health.
I’m so glad USA Today covered adenomyosis. I struggled with this “silent disease” for decades. It caused my infertility and because I had go on hormonal birth control (which contributed to my DVTs) it nearly killed me. We need better treatments, even as Trump/DOGE is killing uterine health research.
Adenomyosis, the 'silent illness' plaguing their lives, goes undiagnosed for decades
This 'silent disease' plagued these women's lives for decades. One woman lost her dream job. For another, the diagnosis came after her hysterectomy.
www.usatoday.com
March 25, 2025 at 6:52 PM
As a physician, the first time I heard of adenomyosis was when my doctor was concerned I might have it. Not in medical school, not in residency—not until it might affect me. That’s how little we care about women’s health.
I don’t know what to do anymore. I don’t know how to keep doing this. I have tried so hard and I get nowhere. No help. Just more gaslighting and prejudice and harm and trauma. I want nothing more than to get better but I can’t do it like this, with no serious medical support.
March 25, 2025 at 5:34 PM
I don’t know what to do anymore. I don’t know how to keep doing this. I have tried so hard and I get nowhere. No help. Just more gaslighting and prejudice and harm and trauma. I want nothing more than to get better but I can’t do it like this, with no serious medical support.
Awake at 2:30am due to pain and medical PTSD/general state of terror due to doctors and reading this. *chefs kiss* Fuck the BC medical system so much.
Beyond exhausted of having chronic pain for over 10 years, and falling through the cracks of a system that treats people with chronic illness as a burden not worth doing anything for. 😒
March 25, 2025 at 9:26 AM
Awake at 2:30am due to pain and medical PTSD/general state of terror due to doctors and reading this. *chefs kiss* Fuck the BC medical system so much.
It’s pretty ironic that I’m being pushed to do a medical procedure I don’t want, but can’t get any of the care I’ve been begging for, for YEARS. This system is so paternalistic and inhumane, and strips your autonomy from you more, the sicker you get and the more they harm you.
March 25, 2025 at 3:45 AM
It’s pretty ironic that I’m being pushed to do a medical procedure I don’t want, but can’t get any of the care I’ve been begging for, for YEARS. This system is so paternalistic and inhumane, and strips your autonomy from you more, the sicker you get and the more they harm you.
Ok so on further consideration, there is no effing way I’m subjecting myself to this. Has anyone local had a colposcopy done with sedation, or at very least in a trauma informed, non violent manner in a safe environment? We shouldn’t have to subject ourselves to this shit.
FML. As if I needed one more thing the repeat HPV swab came back positive. :( I'm being auto-referred to some colposcopy clinic at SPH, which I've been forewarned is basically guaranteed to be a highly traumatic experience. Why would I consent to that? Why is this "heatlhcare"??
March 25, 2025 at 12:28 AM
Ok so on further consideration, there is no effing way I’m subjecting myself to this. Has anyone local had a colposcopy done with sedation, or at very least in a trauma informed, non violent manner in a safe environment? We shouldn’t have to subject ourselves to this shit.
Reposted by Ariane K 💜 #Care4Complex
Medical files can be so dangerous, so many of us have medical files filled with garbage write by doctors who had no idea of what our situation are and we can’t do anything about it…
One of the most frustrating consequences of my medical catastrophe is my file is so full of garbage that local doctors don’t even believe I have a real diagnosis. And I have no way to correct it or clear my name + reputation. #Care4Complex #PatientHarm #MedicalGaslightingKills
March 24, 2025 at 11:50 PM
Medical files can be so dangerous, so many of us have medical files filled with garbage write by doctors who had no idea of what our situation are and we can’t do anything about it…