Ariane K 💜 #Care4Complex
@arianek.bsky.social
Co-founder Textillia.com! ✂️💕• SFU Geog • Public health/urban planning/open source nerd • Sick AF #Sjogrens #Dysautonomia #IVIG #IatrogenicIllness • ♿️🌈🇦🇲🦆🐶🖖📚💌🌿 • Vancouver • she/her • C4C🇨🇦 FB: https://www.facebook.com/groups/care4complexcanada/
I’ve been trying to find a Covid safe endodontist in Vancouver to do my root canal for over a year, and these are the replies I get. WTF am I supposed to do? My tooth constantly hurts at this point. I hate Bonnie Henry so much. (Yes I’m going to ask if I can supply them.) FML.
April 15, 2025 at 9:16 PM
I’ve been trying to find a Covid safe endodontist in Vancouver to do my root canal for over a year, and these are the replies I get. WTF am I supposed to do? My tooth constantly hurts at this point. I hate Bonnie Henry so much. (Yes I’m going to ask if I can supply them.) FML.
Seriously tho wtf is up with people on here? I can barely post anything without some kind of fucking weird, holier than thou, passive aggressive comments. Often from these semi anonymous accounts. People are creeps on here, it’s way worse than X where at least the trolls are just boring trolls.
March 23, 2025 at 6:00 PM
Seriously tho wtf is up with people on here? I can barely post anything without some kind of fucking weird, holier than thou, passive aggressive comments. Often from these semi anonymous accounts. People are creeps on here, it’s way worse than X where at least the trolls are just boring trolls.
Sorry too sick to properly copy/paste
February 28, 2025 at 4:56 PM
Sorry too sick to properly copy/paste
Riddle me this: why did the US specialists I saw have literally a dozen or more treatment options I could try, and here I am not even allowed to see a new doctor?
This is an excerpt from the Stanford consult. For the record. Read the last sentence. How is this allowed?
#Care4ComplexCanada
This is an excerpt from the Stanford consult. For the record. Read the last sentence. How is this allowed?
#Care4ComplexCanada
February 26, 2025 at 12:36 AM
Riddle me this: why did the US specialists I saw have literally a dozen or more treatment options I could try, and here I am not even allowed to see a new doctor?
This is an excerpt from the Stanford consult. For the record. Read the last sentence. How is this allowed?
#Care4ComplexCanada
This is an excerpt from the Stanford consult. For the record. Read the last sentence. How is this allowed?
#Care4ComplexCanada
So, apparently Elon Musk has Canadian citizenship?! Don’t fret, @charlieangus104.bsky.social has set up a federal petition to have it revoked. Sign! Share! www.ourcommons.ca/petitions/en...
February 23, 2025 at 5:53 AM
So, apparently Elon Musk has Canadian citizenship?! Don’t fret, @charlieangus104.bsky.social has set up a federal petition to have it revoked. Sign! Share! www.ourcommons.ca/petitions/en...
I just posted my first public call out of the Sjogren’s Society of Canada on the horrific state of Sjogren’s care in Canada (over in the bad place, since that’s where they and most advocates are). Please share and also post your story in replies over there! x.com/arianek/stat... #Care4ComplexCanada
February 8, 2025 at 7:31 PM
I just posted my first public call out of the Sjogren’s Society of Canada on the horrific state of Sjogren’s care in Canada (over in the bad place, since that’s where they and most advocates are). Please share and also post your story in replies over there! x.com/arianek/stat... #Care4ComplexCanada
From X - I don’t know if I’ve ever screenshot reposted before, but this is so exemplary of how the BCNDP + BC media have cooperated to deify Bonnie Henry + fail BC citizens. She’s been out of step with the modern science around Covid for YEARS, and it’s still causing harm. #BCCovidInquiry #bcpoli
February 7, 2025 at 6:44 PM
From X - I don’t know if I’ve ever screenshot reposted before, but this is so exemplary of how the BCNDP + BC media have cooperated to deify Bonnie Henry + fail BC citizens. She’s been out of step with the modern science around Covid for YEARS, and it’s still causing harm. #BCCovidInquiry #bcpoli
If your airways are suddenly burning and you’re wheezing and phlegmy in Vancouver, this is why. Horrific air quality. I haven’t felt like this from smog or smoke ever before, not even driving through the Rockies in 2017 when the forest fires were really bad. ☠️ #vanpoli
January 30, 2025 at 3:39 AM
If your airways are suddenly burning and you’re wheezing and phlegmy in Vancouver, this is why. Horrific air quality. I haven’t felt like this from smog or smoke ever before, not even driving through the Rockies in 2017 when the forest fires were really bad. ☠️ #vanpoli
Y’all please sign and share Marcia’s petition if you haven’t yet - it also has demands for improved care for BC MECFS and complex illness patients. #Care4ComplexBC
docs.google.com/forms/d/e/1F...
docs.google.com/forms/d/e/1F...
January 22, 2025 at 11:53 PM
Y’all please sign and share Marcia’s petition if you haven’t yet - it also has demands for improved care for BC MECFS and complex illness patients. #Care4ComplexBC
docs.google.com/forms/d/e/1F...
docs.google.com/forms/d/e/1F...
I’m trying to find other “medically complex” patients in Canada and especially BC, who feel that medical neglect and discrimination is putting their life at risk, or who have considered applying or applied for #MAID.
Please join: m.facebook.com/groups/care4...
#Care4ComplexCanada
Please join: m.facebook.com/groups/care4...
#Care4ComplexCanada
January 22, 2025 at 6:11 PM
I’m trying to find other “medically complex” patients in Canada and especially BC, who feel that medical neglect and discrimination is putting their life at risk, or who have considered applying or applied for #MAID.
Please join: m.facebook.com/groups/care4...
#Care4ComplexCanada
Please join: m.facebook.com/groups/care4...
#Care4ComplexCanada
January 9, 2025 at 5:12 AM
Are you a “complex” patient in Canada (Dysautonomia, EDS, MCAS, NeuroSjogren’s, etc.) + not getting proper medical care? Please join the Facebook group I set up: www.facebook.com/groups/care4... I’m trying to gather everyone together so we can advocate better. Tell your friends! #Care4ComplexCanada
December 30, 2024 at 2:26 AM
Are you a “complex” patient in Canada (Dysautonomia, EDS, MCAS, NeuroSjogren’s, etc.) + not getting proper medical care? Please join the Facebook group I set up: www.facebook.com/groups/care4... I’m trying to gather everyone together so we can advocate better. Tell your friends! #Care4ComplexCanada
I left out a lot of what happened this fall, cause it was just too much and I wasn’t sure what I wanted to share.
But my most recent US consult reads:
“She has been approved for euthanasia in Canada. Unfortunately she has not been offered true disease modifying therapies.”
#Care4ComplexCanada
But my most recent US consult reads:
“She has been approved for euthanasia in Canada. Unfortunately she has not been offered true disease modifying therapies.”
#Care4ComplexCanada
December 28, 2024 at 8:03 PM
I left out a lot of what happened this fall, cause it was just too much and I wasn’t sure what I wanted to share.
But my most recent US consult reads:
“She has been approved for euthanasia in Canada. Unfortunately she has not been offered true disease modifying therapies.”
#Care4ComplexCanada
But my most recent US consult reads:
“She has been approved for euthanasia in Canada. Unfortunately she has not been offered true disease modifying therapies.”
#Care4ComplexCanada
Just a little holiday reminder to BC doctors that the BC College of Physicians, BC Human Rights Code, + CMA Code of Ethics ALL prohibit the discrimination of patients based on medical complexity. www.cpsbc.ca/files/pdf/PS... Merry Christmas + Happy Holidays! #Care4ComplexBC #Care4ComplexCanada
December 24, 2024 at 9:56 PM
Just a little holiday reminder to BC doctors that the BC College of Physicians, BC Human Rights Code, + CMA Code of Ethics ALL prohibit the discrimination of patients based on medical complexity. www.cpsbc.ca/files/pdf/PS... Merry Christmas + Happy Holidays! #Care4ComplexBC #Care4ComplexCanada
I have opened up the Facebook group for #Care4ComplexCanada - a place for neglected Canadian complex illness patients who are not happy with the medical care they’re receiving, to gather and discuss how to advocate for better care for these neglected illnesses.
December 13, 2024 at 9:23 PM
I have opened up the Facebook group for #Care4ComplexCanada - a place for neglected Canadian complex illness patients who are not happy with the medical care they’re receiving, to gather and discuss how to advocate for better care for these neglected illnesses.
If you haven’t already listened to the intro and first episode of the new “Public Health is Dead” podcast (made right here in Vancouver, land of head minimiser “PHO” Bonnie Henry 🤢), you know what your assignment for today is. It’s FANTASTIC. Do not delay. #CovidIsntOver #CovidIsAirborne
December 8, 2024 at 5:53 PM
If you haven’t already listened to the intro and first episode of the new “Public Health is Dead” podcast (made right here in Vancouver, land of head minimiser “PHO” Bonnie Henry 🤢), you know what your assignment for today is. It’s FANTASTIC. Do not delay. #CovidIsntOver #CovidIsAirborne
Just want to send big love to every complex and medically abandoned patient - PERSON - on here who, like me, spends so much of their limited energy trying to help each other figure out what’s wrong and how to get help. Doing the work the medical system should be doing for us. 🫶💕 #Care4Complex
December 7, 2024 at 7:46 AM
Just want to send big love to every complex and medically abandoned patient - PERSON - on here who, like me, spends so much of their limited energy trying to help each other figure out what’s wrong and how to get help. Doing the work the medical system should be doing for us. 🫶💕 #Care4Complex
Did you know the @WHO
has a "Patient safety rights charter" (see PDF download) who.int/publications... which they call a "...key resource intended to support the implementation of the Global Patient Safety Action Plan 2021–2030: Towards eliminating avoidable harm in health care."
has a "Patient safety rights charter" (see PDF download) who.int/publications... which they call a "...key resource intended to support the implementation of the Global Patient Safety Action Plan 2021–2030: Towards eliminating avoidable harm in health care."
October 1, 2024 at 9:23 PM
Did you know the @WHO
has a "Patient safety rights charter" (see PDF download) who.int/publications... which they call a "...key resource intended to support the implementation of the Global Patient Safety Action Plan 2021–2030: Towards eliminating avoidable harm in health care."
has a "Patient safety rights charter" (see PDF download) who.int/publications... which they call a "...key resource intended to support the implementation of the Global Patient Safety Action Plan 2021–2030: Towards eliminating avoidable harm in health care."
The other place grows more hideous by the day, but so do my first ever dahlias grown from seed, so I’ll call it even? Things are still terrible and overwhelming, and my medical care is a mess/almost non-existent but the days tick on none the less. Life doesn’t make much sense lately. 🙃 And you?
April 12, 2024 at 12:59 AM
The other place grows more hideous by the day, but so do my first ever dahlias grown from seed, so I’ll call it even? Things are still terrible and overwhelming, and my medical care is a mess/almost non-existent but the days tick on none the less. Life doesn’t make much sense lately. 🙃 And you?
In case any of you are missing the other place, see this delightful trolling from yesterday morning. So…how is it over here these days?
January 4, 2024 at 11:28 PM
In case any of you are missing the other place, see this delightful trolling from yesterday morning. So…how is it over here these days?