Unfortunately Mayo clinic is actually very hard to get into, and I've heard really mixed experiences there for anything related to post viral and autonomic conditions. Private practice usually goes better than big medical centres with stuff like this.

Bonus if they do virtual consults and are on the west coast, but I am desperate enough to try and travel anywhere in North America. I cannot go on like this.

My bowel/GI attacks, pain, diarrhea have dramatically worsened in the last six weeks or so. I am having unbearable pain, multiple attacks a week, even in the middle of the night. I still have no prospect of accessing GI care in Vancouver, nor have I been able to see infectious disease.

I am so exhausted and going to have a breakdown from not being able to sleep and the repair men do nothing but gaslight us, on top of being incredibly sick and having this botched root canal to deal with. I JUST WANT TO BE ABLE TO SLEEP. HELPPPPPPP. #Vancouver #HVAC

We have two other units and we have never had an issue with them, we KNOW how it’s supposed to sound and function and there is 100% something wrong (just like before when they gaslit us for an entire summer when there was actually a coolant leak and no coolant left in the machine).

We still don’t have proper functioning AC in the bedroom where I spend 75% of my time trapped in. All they do is gaslight us over this clearly malfunctioning unit. Bruno tried calling the manufacturer and same gaslighting BS.

😳 well that’s some freaky shit, but what can’t Covid do? Tiny silver lining getting a hayfever reprieve.

Oddly it seems to have settled down some since the US election. I get trolled more here and on Threads whenever I try to engage! I will try and pop in a bit more though, the community really got splintered.

Hi! Miss you over on X. I almost never pop my head in here anymore because I was getting such low engagement from people I actually know and like, and lots of weird abusive comments. 🙃

💕 So out of control. They’re supposed to be helping people not abusing them and killing them. I will never understand. I wish I’d had the wherewithal to video tape some of their behaviour, people would not believe it.

Like, ALL we want is decent medical care. That’s it. Why does that get us treated like the scum of the earth??? This is discrimination pure + simple. The medical system and people in it HATE complex illness patients + refuse us care. Tell me how that’s not blatant discrimination?

It’s so scary because it’s just one step away from punishing those who get sick, and I can see that’s next in their evil plan.

Not to mention you can absolutely do all that stuff right, and still end up sick as fuck like me. I did it all. That’s not how bodies and life work.