Elizabeth Milo
@akaemilo.bsky.social
Derailed by #MCAS #hEDS #MEcfs #Dysautonomia #GravesDisease
Animals deserve better.
Missing Ireland.
Writer at ElizabethMilo.com
#MaskUp
Animals deserve better.
Missing Ireland.
Writer at ElizabethMilo.com
#MaskUp
Reposted by Elizabeth Milo
Reposted by Elizabeth Milo
Lessons to learn from US collapse: support local news, support investigative reporting, keep your public broadcasting going.
Breaking News: The White House is said to be planning to ask Congress to rescind $1.1 billion in federal funding from public media, including NPR and PBS.
White House to Ask Congress to Rescind Funding From NPR and PBS
The Trump administration plans to ask Congress to rescind $1.1 billion in federal funding for the Corporation for Public Broadcasting, which provides some funding for public media in the United States...
www.nytimes.com
April 15, 2025 at 10:59 PM
Lessons to learn from US collapse: support local news, support investigative reporting, keep your public broadcasting going.
Reposted by Elizabeth Milo
Those trying to understand the tariffs as economic policy are dangerously naive.
No, the tariffs are a tool to collapse our democracy. A means to compel loyalty from every business that will need to petition Trump for relief.
1/ A 🧵 to explain his plan and how we fight back.
No, the tariffs are a tool to collapse our democracy. A means to compel loyalty from every business that will need to petition Trump for relief.
1/ A 🧵 to explain his plan and how we fight back.
April 3, 2025 at 3:29 AM
Those trying to understand the tariffs as economic policy are dangerously naive.
No, the tariffs are a tool to collapse our democracy. A means to compel loyalty from every business that will need to petition Trump for relief.
1/ A 🧵 to explain his plan and how we fight back.
No, the tariffs are a tool to collapse our democracy. A means to compel loyalty from every business that will need to petition Trump for relief.
1/ A 🧵 to explain his plan and how we fight back.
Reposted by Elizabeth Milo
Benefits of #ventilation in sickness & health have been known for over a century. It’s wonderful to see the country’s second largest hospital promoting it here, together with science-based infection prevention & control.
Can a university follow suit?
#StayHome #SafeAir
@unisouthampton.bsky.social
Can a university follow suit?
#StayHome #SafeAir
@unisouthampton.bsky.social
February 23, 2025 at 10:49 AM
Benefits of #ventilation in sickness & health have been known for over a century. It’s wonderful to see the country’s second largest hospital promoting it here, together with science-based infection prevention & control.
Can a university follow suit?
#StayHome #SafeAir
@unisouthampton.bsky.social
Can a university follow suit?
#StayHome #SafeAir
@unisouthampton.bsky.social
Reposted by Elizabeth Milo
It breaks my heart to share these, but I have to.
My cats who caught bird flu did NOT have any sneezing, no nasal discharge, or symptoms I'd associate with the flu.
Gandalf had a fever, loss of appetite, and then this weakness of hind limbs, which progressed rapidly.
This is a neuro symptom.
My cats who caught bird flu did NOT have any sneezing, no nasal discharge, or symptoms I'd associate with the flu.
Gandalf had a fever, loss of appetite, and then this weakness of hind limbs, which progressed rapidly.
This is a neuro symptom.
February 15, 2025 at 2:38 AM
It breaks my heart to share these, but I have to.
My cats who caught bird flu did NOT have any sneezing, no nasal discharge, or symptoms I'd associate with the flu.
Gandalf had a fever, loss of appetite, and then this weakness of hind limbs, which progressed rapidly.
This is a neuro symptom.
My cats who caught bird flu did NOT have any sneezing, no nasal discharge, or symptoms I'd associate with the flu.
Gandalf had a fever, loss of appetite, and then this weakness of hind limbs, which progressed rapidly.
This is a neuro symptom.
Reposted by Elizabeth Milo
The policy lead for CDC's H5N1 response has abruptly resigned.
Sources tell me CDC's response to the bird flu pandemic has been severely hobbled by the chaos of the past two weeks.
Sources tell me CDC's response to the bird flu pandemic has been severely hobbled by the chaos of the past two weeks.
February 6, 2025 at 3:32 AM
The policy lead for CDC's H5N1 response has abruptly resigned.
Sources tell me CDC's response to the bird flu pandemic has been severely hobbled by the chaos of the past two weeks.
Sources tell me CDC's response to the bird flu pandemic has been severely hobbled by the chaos of the past two weeks.
Reposted by Elizabeth Milo
Finally, some media coverage in Australia on the mass mortality of corals on the Great Barrier Reef in 2024.
The government’s cover-up is crumbling.
www.theguardian.com/environment/...
The government’s cover-up is crumbling.
www.theguardian.com/environment/...
January 22, 2025 at 9:52 AM
Finally, some media coverage in Australia on the mass mortality of corals on the Great Barrier Reef in 2024.
The government’s cover-up is crumbling.
www.theguardian.com/environment/...
The government’s cover-up is crumbling.
www.theguardian.com/environment/...
Reposted by Elizabeth Milo
People with chronic illness have been doing PSAs informally for five years now anyway, but now that public health comms are formally suspended, I guess it’s really just us??
So yeah, pass it on—important thing to watch for if you’ve been sick recently.
So yeah, pass it on—important thing to watch for if you’ve been sick recently.
i've given two colleagues with recent Covid infections warnings about PEM ("if you feel abnormally tired or sick after exertion – not just a normal amount of tired after exercise, but something that stands out") and both have told me that they have noticed it
January 24, 2025 at 5:01 PM
People with chronic illness have been doing PSAs informally for five years now anyway, but now that public health comms are formally suspended, I guess it’s really just us??
So yeah, pass it on—important thing to watch for if you’ve been sick recently.
So yeah, pass it on—important thing to watch for if you’ve been sick recently.
Reposted by Elizabeth Milo
When I say that COVID is a huge unacknowledged part of our current political landscape, this is what I mean. Every single powerful US institution spent the last four years *actively* convincing people that public health doesn't matter and that if they just look out for themselves they'll be fine.
"Trump ordering CDC, FDA and NIH to stop providing public health updates"
---this alone should be enough for people to take to the streets.
---this alone should be enough for people to take to the streets.
January 24, 2025 at 4:18 PM
When I say that COVID is a huge unacknowledged part of our current political landscape, this is what I mean. Every single powerful US institution spent the last four years *actively* convincing people that public health doesn't matter and that if they just look out for themselves they'll be fine.
Reposted by Elizabeth Milo
Maria Van Kerkhove: “The world I live in right now, no one wants to talk about COVID-19…Everyone is acting as tho this pandemic didn’t really happen…I feel this massive gravitational pull to go back to what we were doing before…There’s no way we should be going back.” www.science.org/content/arti...
COVID 5 years later: Learning from a pandemic many are forgetting
Five years after SARS-CoV-2 surfaced, scientists reflect and look ahead to the next threat
www.science.org
January 16, 2025 at 2:10 AM
Maria Van Kerkhove: “The world I live in right now, no one wants to talk about COVID-19…Everyone is acting as tho this pandemic didn’t really happen…I feel this massive gravitational pull to go back to what we were doing before…There’s no way we should be going back.” www.science.org/content/arti...
Reposted by Elizabeth Milo
If you can, please donate to my son’s birthday fundraiser, where 100% of your donation goes directly to my research.
spot.fund/FindACureFor...
- Ronald W, Davis, PhD.
spot.fund/FindACureFor...
- Ronald W, Davis, PhD.
Click here to support Whitney Dafoe's story *FindACureForMEcfs
*spotfund is the easiest place to create beautiful and free online fundraisers. It takes just minutes to start raising money today.
spot.fund
January 15, 2025 at 4:13 PM
If you can, please donate to my son’s birthday fundraiser, where 100% of your donation goes directly to my research.
spot.fund/FindACureFor...
- Ronald W, Davis, PhD.
spot.fund/FindACureFor...
- Ronald W, Davis, PhD.
Reposted by Elizabeth Milo
If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia.
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
December 7, 2024 at 3:28 AM
If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia.
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
Reposted by Elizabeth Milo
I just made a starter pack for providers who are still masking. If you’re still wearing a mask, lmk and I’ll add you!
go.bsky.app/AVhvvHE
go.bsky.app/AVhvvHE
November 15, 2024 at 11:01 PM
I just made a starter pack for providers who are still masking. If you’re still wearing a mask, lmk and I’ll add you!
go.bsky.app/AVhvvHE
go.bsky.app/AVhvvHE
Reposted by Elizabeth Milo
10/30/24, Frontiers: 'Orthostatic intolerance with tachycardia (postural tachycardia syndrome) and without (hypocapnic cerebral hypoperfusion) represent a spectrum of the same disorder'
By Peter Novak, David Systrom, et al.
pmc.ncbi.nlm.nih.gov/articles/PMC...
By Peter Novak, David Systrom, et al.
pmc.ncbi.nlm.nih.gov/articles/PMC...
pmc.ncbi.nlm.nih.gov
November 15, 2024 at 9:12 PM
10/30/24, Frontiers: 'Orthostatic intolerance with tachycardia (postural tachycardia syndrome) and without (hypocapnic cerebral hypoperfusion) represent a spectrum of the same disorder'
By Peter Novak, David Systrom, et al.
pmc.ncbi.nlm.nih.gov/articles/PMC...
By Peter Novak, David Systrom, et al.
pmc.ncbi.nlm.nih.gov/articles/PMC...
Reposted by Elizabeth Milo
✨This petition will close TOMORROW, Nov 15!✨ We're over 7k-- next stop 10k!
In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses.
Sign & share widely!
US signers: lnkd.in/e99rsvdT
International signers: lnkd.in/e3TpjnTE
In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses.
Sign & share widely!
US signers: lnkd.in/e99rsvdT
International signers: lnkd.in/e3TpjnTE
November 14, 2024 at 2:54 PM
✨This petition will close TOMORROW, Nov 15!✨ We're over 7k-- next stop 10k!
In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses.
Sign & share widely!
US signers: lnkd.in/e99rsvdT
International signers: lnkd.in/e3TpjnTE
In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses.
Sign & share widely!
US signers: lnkd.in/e99rsvdT
International signers: lnkd.in/e3TpjnTE
Reposted by Elizabeth Milo
One part of our upgraded infrastructure may affect your profile.
If you see your handle now says “Invalid handle,” please reverify it by navigating to Settings > Change my handle > Type in your current handle > Verify DNS Record > Update.
(Basically, update to the same handle.)
If you see your handle now says “Invalid handle,” please reverify it by navigating to Settings > Change my handle > Type in your current handle > Verify DNS Record > Update.
(Basically, update to the same handle.)
August 18, 2023 at 9:35 PM
One part of our upgraded infrastructure may affect your profile.
If you see your handle now says “Invalid handle,” please reverify it by navigating to Settings > Change my handle > Type in your current handle > Verify DNS Record > Update.
(Basically, update to the same handle.)
If you see your handle now says “Invalid handle,” please reverify it by navigating to Settings > Change my handle > Type in your current handle > Verify DNS Record > Update.
(Basically, update to the same handle.)
Reposted by Elizabeth Milo
“Theres a lot of virus out there protect yourself and others, especially as we're all going to be around family and vulnerable.”
Thank you Michael Stipe for following the science and wearing a high quality mask! ❤️
Thank you Michael Stipe for following the science and wearing a high quality mask! ❤️
December 22, 2023 at 6:49 AM
“Theres a lot of virus out there protect yourself and others, especially as we're all going to be around family and vulnerable.”
Thank you Michael Stipe for following the science and wearing a high quality mask! ❤️
Thank you Michael Stipe for following the science and wearing a high quality mask! ❤️
Reposted by Elizabeth Milo
I just updated the Huge, FREE covid safety resource list. Lots of new info, tips, and community resources! Plus answers to questions I've been getting about testing, cool new prevention tools, 24/7 long covid helplines, and more.
Link: www.patreon.com/posts/huge-f...
Link: www.patreon.com/posts/huge-f...
November 6, 2023 at 1:40 AM
I just updated the Huge, FREE covid safety resource list. Lots of new info, tips, and community resources! Plus answers to questions I've been getting about testing, cool new prevention tools, 24/7 long covid helplines, and more.
Link: www.patreon.com/posts/huge-f...
Link: www.patreon.com/posts/huge-f...
Reposted by Elizabeth Milo
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
October 7, 2023 at 4:03 PM
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...