Hannah Davis
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Reposted by Hannah Davis
Patient voices were heard! The ADDRESS-LC trial on Bezisterim is now open to those who have been living with #LongCovid for more than 2 years. We’re glad to see Biovie’s trial continues to reflect patient + scientific input!
Find a trial site near you:
addresslongcovid.com/sites/
Find a trial site near you:
addresslongcovid.com/sites/
Study Sites | Address: Long COVID Clinical Study | BioVie Pharma
Study Sites near you! Learn more about participating in a clinical study of a Trial Drug to treat neurological symptoms of Long COVID.
addresslongcovid.com
September 19, 2025 at 6:51 PM
Patient voices were heard! The ADDRESS-LC trial on Bezisterim is now open to those who have been living with #LongCovid for more than 2 years. We’re glad to see Biovie’s trial continues to reflect patient + scientific input!
Find a trial site near you:
addresslongcovid.com/sites/
Find a trial site near you:
addresslongcovid.com/sites/
Reposted by Hannah Davis
Fascinating research on issues with blood flow in the brain in MDD (Major Depressive Disorder). Low blood volume and low blood flow are issues in #MECFS as well.
Functional vs Structural Cortical Deficit Pattern Biomarkers for MDD
This case-control study investigates if a regional homogeneity–magnetic resonance imaging cortical deficit pattern provides a more robust biomarker for major depressive disorder (MDD) than its…
jamanetwork.com
September 24, 2025 at 10:27 PM
Fascinating research on issues with blood flow in the brain in MDD (Major Depressive Disorder). Low blood volume and low blood flow are issues in #MECFS as well.
Please consider donating if you’re financially able! Vee is an incredible #longcovid and disability advocate and needs to raise funding for urgent transportation that Medicaid won’t cover:
hey folks, its your neighborhood cripple :( i have to see an urgent specialist friday for a possible infection. bc its so last min but not the ER i cant get medicaid to cover transport. if you'd like to donate to help me pay for a $440 gurney transport i'd REALLY appreciate it. venmo: itssvee or gfm
Donate to Critical Healthcare Support for Victoria, organized by Vee Copeland
Hello everyone,
My name is Victoria and thank you for checking out my gofundme.… Vee Copeland needs your support for Critical Healthcare Support for Victoria
www.gofundme.com
September 24, 2025 at 11:13 PM
Please consider donating if you’re financially able! Vee is an incredible #longcovid and disability advocate and needs to raise funding for urgent transportation that Medicaid won’t cover:
Reposted by Hannah Davis
hey folks, its your neighborhood cripple :( i have to see an urgent specialist friday for a possible infection. bc its so last min but not the ER i cant get medicaid to cover transport. if you'd like to donate to help me pay for a $440 gurney transport i'd REALLY appreciate it. venmo: itssvee or gfm
Donate to Critical Healthcare Support for Victoria, organized by Vee Copeland
Hello everyone,
My name is Victoria and thank you for checking out my gofundme.… Vee Copeland needs your support for Critical Healthcare Support for Victoria
www.gofundme.com
September 24, 2025 at 10:44 PM
hey folks, its your neighborhood cripple :( i have to see an urgent specialist friday for a possible infection. bc its so last min but not the ER i cant get medicaid to cover transport. if you'd like to donate to help me pay for a $440 gurney transport i'd REALLY appreciate it. venmo: itssvee or gfm
Reposted by Hannah Davis
Powerful closing remarks from PLRC co-founder @ahandvanish.bsky.social at the Keystone Symposia on #LongCovid last week, reflecting on the state of research and the journey of the patient community:
"In our immediate presence, time slows, while the world beyond speeds up, and moves without us”
"In our immediate presence, time slows, while the world beyond speeds up, and moves without us”
August 19, 2025 at 6:20 PM
Powerful closing remarks from PLRC co-founder @ahandvanish.bsky.social at the Keystone Symposia on #LongCovid last week, reflecting on the state of research and the journey of the patient community:
"In our immediate presence, time slows, while the world beyond speeds up, and moves without us”
"In our immediate presence, time slows, while the world beyond speeds up, and moves without us”
Reposted by Hannah Davis
Re: my last boost of @patientled
Really loved Hannah's point that #LongCovid is not mysterious & unknown....whenever you read or hear that, replace it with "complex, devastating and increasingly well-understood as an incurable neuro-immune disorder."
Really loved Hannah's point that #LongCovid is not mysterious & unknown....whenever you read or hear that, replace it with "complex, devastating and increasingly well-understood as an incurable neuro-immune disorder."
August 18, 2025 at 10:29 PM
Re: my last boost of @patientled
Really loved Hannah's point that #LongCovid is not mysterious & unknown....whenever you read or hear that, replace it with "complex, devastating and increasingly well-understood as an incurable neuro-immune disorder."
Really loved Hannah's point that #LongCovid is not mysterious & unknown....whenever you read or hear that, replace it with "complex, devastating and increasingly well-understood as an incurable neuro-immune disorder."
Reposted by Hannah Davis
🚨🧵 by @ahandvanish.bsky.social on Twitter:
"Study finds brainstem reduction & deformation in #LongCovid patients aged 20-50...
They found cerebrospinal fluid (CSF) flow velocity is significantly reduced..."
Full thread:
threadreaderapp.com/thread/19513...
"Study finds brainstem reduction & deformation in #LongCovid patients aged 20-50...
They found cerebrospinal fluid (CSF) flow velocity is significantly reduced..."
Full thread:
threadreaderapp.com/thread/19513...
August 3, 2025 at 3:12 AM
🚨🧵 by @ahandvanish.bsky.social on Twitter:
"Study finds brainstem reduction & deformation in #LongCovid patients aged 20-50...
They found cerebrospinal fluid (CSF) flow velocity is significantly reduced..."
Full thread:
threadreaderapp.com/thread/19513...
"Study finds brainstem reduction & deformation in #LongCovid patients aged 20-50...
They found cerebrospinal fluid (CSF) flow velocity is significantly reduced..."
Full thread:
threadreaderapp.com/thread/19513...
Reposted by Hannah Davis
How does Epstein- Barr virus induce multiple sclerosis?
The infection leads to B cells that get into the brain, attracting pro-inflammatory T cells (mouse model)
www.nature.com/articles/s41...
The infection leads to B cells that get into the brain, attracting pro-inflammatory T cells (mouse model)
www.nature.com/articles/s41...
EBV induces CNS homing of B cells attracting inflammatory T cells - Nature
Epstein–Barr virus infection generates a neuroinvasive B cell subset, which recruits activated T cells to the central nervous system, promoting multiple sclerosis.
www.nature.com
August 6, 2025 at 3:24 PM
How does Epstein- Barr virus induce multiple sclerosis?
The infection leads to B cells that get into the brain, attracting pro-inflammatory T cells (mouse model)
www.nature.com/articles/s41...
The infection leads to B cells that get into the brain, attracting pro-inflammatory T cells (mouse model)
www.nature.com/articles/s41...
Reposted by Hannah Davis
NEW RESEARCH: breathing polluted air in midlife (45-60 yo) can accelerate cognitive aging decades later. Even low levels of pollutants harm memory and processing speed.
Your reminder that dementia is projected to triple by midcentury. Also we’re cutting Medicaid.
www.newsweek.com/this-age-ran...
Your reminder that dementia is projected to triple by midcentury. Also we’re cutting Medicaid.
www.newsweek.com/this-age-ran...
This is the age range when air pollution starts damaging your brain
Air pollution damages the brain. Here's when it starts.
www.newsweek.com
July 25, 2025 at 5:32 PM
NEW RESEARCH: breathing polluted air in midlife (45-60 yo) can accelerate cognitive aging decades later. Even low levels of pollutants harm memory and processing speed.
Your reminder that dementia is projected to triple by midcentury. Also we’re cutting Medicaid.
www.newsweek.com/this-age-ran...
Your reminder that dementia is projected to triple by midcentury. Also we’re cutting Medicaid.
www.newsweek.com/this-age-ran...
Reposted by Hannah Davis
Contact a study site to determine if you're eligible.
More US study sites will be added over the next few months. 🔗 addresslongcovid.com/sites/
3/
More US study sites will be added over the next few months. 🔗 addresslongcovid.com/sites/
3/
July 14, 2025 at 8:00 PM
Contact a study site to determine if you're eligible.
More US study sites will be added over the next few months. 🔗 addresslongcovid.com/sites/
3/
More US study sites will be added over the next few months. 🔗 addresslongcovid.com/sites/
3/
Reposted by Hannah Davis
The ADDRESS-LC #LongCovid clinical trial is still enrolling!
The trial looks at bezisterim, an investigational anti-inflammatory drug that crosses the blood–brain barrier. 1/
The trial looks at bezisterim, an investigational anti-inflammatory drug that crosses the blood–brain barrier. 1/
July 14, 2025 at 8:00 PM
The ADDRESS-LC #LongCovid clinical trial is still enrolling!
The trial looks at bezisterim, an investigational anti-inflammatory drug that crosses the blood–brain barrier. 1/
The trial looks at bezisterim, an investigational anti-inflammatory drug that crosses the blood–brain barrier. 1/
Reposted by Hannah Davis
The live blog is now updated with all of today's talks, plus an interactive table of contents at the top. Thank you for the great webinar @patientled.bsky.social !!!!!
This afternoon, @thesicktimes.bsky.social will be live blogging @patientled.bsky.social's Patient-Led Research Fund Webinar. Check back on this article for our takeaways from the research talks: thesicktimes.org/2025/07/09/l...
Live blog: Following the Patient-Led Research Fund summer 2025 webinar - The Sick Times
Members of the Patient-Led Research Collaborative (PLRC) and grantees of their $5 million Patient-Led Research Fund will be presenting updates about their work in a webinar today. The virtual event wi...
thesicktimes.org
July 9, 2025 at 9:55 PM
The live blog is now updated with all of today's talks, plus an interactive table of contents at the top. Thank you for the great webinar @patientled.bsky.social !!!!!
Reposted by Hannah Davis
ADDRESS-LC, the #LongCovid clinical trial for Bezisterim, is still enrolling!
Bezisterim is an investigational drug that has been studied as a potential treatment for neurological and neurodegenerative disorders.
Visit addresslongcovid.com to see if you're eligible! 1/
Bezisterim is an investigational drug that has been studied as a potential treatment for neurological and neurodegenerative disorders.
Visit addresslongcovid.com to see if you're eligible! 1/
ADDRESS: Long COVID Clinical Study | BioVie Pharma
ADDRESS: Long COVID- Clinical study evaluating anti-inflammatory drug for underlying the neurological symptoms of Long COVID.
addresslongcovid.com
July 3, 2025 at 5:13 PM
ADDRESS-LC, the #LongCovid clinical trial for Bezisterim, is still enrolling!
Bezisterim is an investigational drug that has been studied as a potential treatment for neurological and neurodegenerative disorders.
Visit addresslongcovid.com to see if you're eligible! 1/
Bezisterim is an investigational drug that has been studied as a potential treatment for neurological and neurodegenerative disorders.
Visit addresslongcovid.com to see if you're eligible! 1/
Reposted by Hannah Davis
Thank you to everyone calling their Republican Reps and urging them to vote NO on this horrible budget bill!
This bill is a matter of life or death for so many people,
Thank you to everyone taking action and trying to prevent it from passing!
This bill is a matter of life or death for so many people,
Thank you to everyone taking action and trying to prevent it from passing!
July 3, 2025 at 3:57 PM
Thank you to everyone calling their Republican Reps and urging them to vote NO on this horrible budget bill!
This bill is a matter of life or death for so many people,
Thank you to everyone taking action and trying to prevent it from passing!
This bill is a matter of life or death for so many people,
Thank you to everyone taking action and trying to prevent it from passing!
Reposted by Hannah Davis
Super excited to participate in this webinar on the ADDRESS-LC trial – please use the link below to sign up and join in. It will be recorded if you can't make it!
Register today for our webinar “The ADDRESS-LC Trial: Studying the Impact of Bezisterim on Brain Fog and Fatigue in People with #LongCovid.”
Sign up here:
us02web.zoom.us/webinar/regi...
Sign up here:
us02web.zoom.us/webinar/regi...
June 26, 2025 at 6:21 PM
Super excited to participate in this webinar on the ADDRESS-LC trial – please use the link below to sign up and join in. It will be recorded if you can't make it!
Reposted by Hannah Davis
Please consider joining the @patientled.bsky.social registry whether you have Long COVID or not.
We are excited to begin longitudinal data collection (which has been lacking) &
let interested folks know about additional research & clinical trial opportunities:
mydatahelps.org/e/PLRCRG/Wel...
1/2
We are excited to begin longitudinal data collection (which has been lacking) &
let interested folks know about additional research & clinical trial opportunities:
mydatahelps.org/e/PLRCRG/Wel...
1/2
Survey -
MyDataHelps
mydatahelps.org
June 23, 2025 at 4:05 PM
Please consider joining the @patientled.bsky.social registry whether you have Long COVID or not.
We are excited to begin longitudinal data collection (which has been lacking) &
let interested folks know about additional research & clinical trial opportunities:
mydatahelps.org/e/PLRCRG/Wel...
1/2
We are excited to begin longitudinal data collection (which has been lacking) &
let interested folks know about additional research & clinical trial opportunities:
mydatahelps.org/e/PLRCRG/Wel...
1/2
Reposted by Hannah Davis
PLRC have transformed the meaning of 'patient expertise' or 'community-led research'.
Not only do they lead crucial research, they fund innovative new lines og inquiry - catch up with their webinar next week!
Not only do they lead crucial research, they fund innovative new lines og inquiry - catch up with their webinar next week!
We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
June 30, 2025 at 1:51 PM
PLRC have transformed the meaning of 'patient expertise' or 'community-led research'.
Not only do they lead crucial research, they fund innovative new lines og inquiry - catch up with their webinar next week!
Not only do they lead crucial research, they fund innovative new lines og inquiry - catch up with their webinar next week!
Reposted by Hannah Davis
Excited to join the SPEAR study group, working with @Invivyd as well as exceptional scientists like @MichaelPelusoMD and @microbeminded2 to bring mAB clinical trials to people with #LongCOVID and post-vaccination syndrome. These trials are LONG overdue. LFG! 💪🏼
investors.adagiotx.com/news-release...
investors.adagiotx.com/news-release...
investors.adagiotx.com
July 2, 2025 at 6:06 PM
Excited to join the SPEAR study group, working with @Invivyd as well as exceptional scientists like @MichaelPelusoMD and @microbeminded2 to bring mAB clinical trials to people with #LongCOVID and post-vaccination syndrome. These trials are LONG overdue. LFG! 💪🏼
investors.adagiotx.com/news-release...
investors.adagiotx.com/news-release...
Reposted by Hannah Davis
Now dreaming of a conversation (and/or interview for us to also watch/participate) between @hankgreen.bsky.social and @virusesimmunity.bsky.social @putrinolab.bsky.social @ahandvanish.bsky.social @exceedhergrasp1.bsky.social Amy Proal from @polybiorf.bsky.social and other stellar researchers
Just a few suggestions for a start if you don’t follow them already @virusesimmunity.bsky.social @putrinolab.bsky.social @patientled.bsky.social @polybiorf.bsky.social @exceedhergrasp1.bsky.social @openmedf.bsky.social
June 29, 2025 at 6:24 PM
Now dreaming of a conversation (and/or interview for us to also watch/participate) between @hankgreen.bsky.social and @virusesimmunity.bsky.social @putrinolab.bsky.social @ahandvanish.bsky.social @exceedhergrasp1.bsky.social Amy Proal from @polybiorf.bsky.social and other stellar researchers
Reposted by Hannah Davis
Just a few suggestions for a start if you don’t follow them already @virusesimmunity.bsky.social @putrinolab.bsky.social @patientled.bsky.social @polybiorf.bsky.social @exceedhergrasp1.bsky.social @openmedf.bsky.social
June 28, 2025 at 6:00 PM
Just a few suggestions for a start if you don’t follow them already @virusesimmunity.bsky.social @putrinolab.bsky.social @patientled.bsky.social @polybiorf.bsky.social @exceedhergrasp1.bsky.social @openmedf.bsky.social
Reposted by Hannah Davis
Hello…doing some research now on the increasing viral impact on people as we went super global as a potential driver of immune disregulation. I’ve got some good leads on the current state of research but if there’s anyone who knows anything they think I should know, please let me know!!
June 28, 2025 at 5:45 PM
Hello…doing some research now on the increasing viral impact on people as we went super global as a potential driver of immune disregulation. I’ve got some good leads on the current state of research but if there’s anyone who knows anything they think I should know, please let me know!!
Does anyone know of providers treating CCI non-surgically in or near NYC/Brooklyn?
PT, PRP injections, etc all very welcome. #LongCovid #mespine
PT, PRP injections, etc all very welcome. #LongCovid #mespine
June 25, 2025 at 11:16 PM
Does anyone know of providers treating CCI non-surgically in or near NYC/Brooklyn?
PT, PRP injections, etc all very welcome. #LongCovid #mespine
PT, PRP injections, etc all very welcome. #LongCovid #mespine
Reposted by Hannah Davis
This is gonna be great!
We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
June 25, 2025 at 8:31 PM
This is gonna be great!
We're hosting a webinar on the results of our Patient-Led Research Fund - 10 biomedical studies all selected by patients! Please join! us02web.zoom.us/webinar/regi...
We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
June 25, 2025 at 6:01 PM
We're hosting a webinar on the results of our Patient-Led Research Fund - 10 biomedical studies all selected by patients! Please join! us02web.zoom.us/webinar/regi...
Reposted by Hannah Davis
We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
June 24, 2025 at 9:43 PM
We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID