Another day, another rant. 🤪 I can't even describe how tired I am of these constant illnesses. I just want to cry. I can't get *any* work done because I just don't have a voice. I've been trying *everything* to improve it. 😷 I'm terrified of seeming unreliable because of it. 😫😠😣
#spoonieproblems
#spoonieproblems
December 9, 2025 at 4:19 PM
Another day, another rant. 🤪 I can't even describe how tired I am of these constant illnesses. I just want to cry. I can't get *any* work done because I just don't have a voice. I've been trying *everything* to improve it. 😷 I'm terrified of seeming unreliable because of it. 😫😠😣
#spoonieproblems
#spoonieproblems
Bleh!
That thing where you accidentally taste your meds. Minor but nevertheless one of them #SpoonieProblems.
Bleh-bleh-bleh
That thing where you accidentally taste your meds. Minor but nevertheless one of them #SpoonieProblems.
Bleh-bleh-bleh
December 6, 2025 at 10:35 PM
Bleh!
That thing where you accidentally taste your meds. Minor but nevertheless one of them #SpoonieProblems.
Bleh-bleh-bleh
That thing where you accidentally taste your meds. Minor but nevertheless one of them #SpoonieProblems.
Bleh-bleh-bleh
Dealing with #ChronicIllness symptoms
Spoonie: *googling* Is this symptom normal?
Google: WHAT THE F*CK. NO GO TO THE HOSPITAL!
Spoonie: *googling* Is this symptom normal? + *disorder*
Google: Oh, yeah, you're fine, life sucks doesn't it?
Credit:dysfunctionalqueer
#SpoonieProblems #SpoonieProbs
Spoonie: *googling* Is this symptom normal?
Google: WHAT THE F*CK. NO GO TO THE HOSPITAL!
Spoonie: *googling* Is this symptom normal? + *disorder*
Google: Oh, yeah, you're fine, life sucks doesn't it?
Credit:dysfunctionalqueer
#SpoonieProblems #SpoonieProbs
October 17, 2025 at 4:17 AM
Dealing with #ChronicIllness symptoms
Spoonie: *googling* Is this symptom normal?
Google: WHAT THE F*CK. NO GO TO THE HOSPITAL!
Spoonie: *googling* Is this symptom normal? + *disorder*
Google: Oh, yeah, you're fine, life sucks doesn't it?
Credit:dysfunctionalqueer
#SpoonieProblems #SpoonieProbs
Spoonie: *googling* Is this symptom normal?
Google: WHAT THE F*CK. NO GO TO THE HOSPITAL!
Spoonie: *googling* Is this symptom normal? + *disorder*
Google: Oh, yeah, you're fine, life sucks doesn't it?
Credit:dysfunctionalqueer
#SpoonieProblems #SpoonieProbs
Aah my nemesis: gravel. 😑
IYKYK.
(At least I made it to about 2 feet from the door)
#WheelieProblems #Wheelchair #WheelchairLife #WheelchairProblems #SpoonieProblems #Disabled
IYKYK.
(At least I made it to about 2 feet from the door)
#WheelieProblems #Wheelchair #WheelchairLife #WheelchairProblems #SpoonieProblems #Disabled
September 22, 2025 at 3:59 PM
Aah my nemesis: gravel. 😑
IYKYK.
(At least I made it to about 2 feet from the door)
#WheelieProblems #Wheelchair #WheelchairLife #WheelchairProblems #SpoonieProblems #Disabled
IYKYK.
(At least I made it to about 2 feet from the door)
#WheelieProblems #Wheelchair #WheelchairLife #WheelchairProblems #SpoonieProblems #Disabled
My need to use a heating pad to help lessen the intensity of my body aches versus this hot weather & my heat intolerance. #spoonieproblems #chronicillness #chronicpain
a cartoon character from the little mermaid is smiling and saying life 's full of tough choices innit
Alt: The sea witch Ursula from the animated Disney movie The Little Mermaid is smiling and saying, "Life 's full of tough choices, innit?"
media.tenor.com
September 2, 2025 at 2:50 PM
My need to use a heating pad to help lessen the intensity of my body aches versus this hot weather & my heat intolerance. #spoonieproblems #chronicillness #chronicpain
#chronicmigraine #migrainebestie #spoonieproblems #softgritspoonie #sarcasticspoonie #disabilityhumor #notjustaheadache #neurospicylife
July 31, 2025 at 1:27 PM
Grand. I’m on two of them. Explains a lot. Check your meds against list below before going out in the hot.
#spoonieproblems #heatintolerance
#spoonie
#medsky
#chronicallyhot
#spoonieproblems #heatintolerance
#spoonie
#medsky
#chronicallyhot
If anyone has extra spoons, please repost and ID this post? I'm out of spoons.
spoonieproblems heatintolrance chronicallyhot spoonie medsky
spoonieproblems heatintolrance chronicallyhot spoonie medsky
July 24, 2025 at 12:34 AM
Grand. I’m on two of them. Explains a lot. Check your meds against list below before going out in the hot.
#spoonieproblems #heatintolerance
#spoonie
#medsky
#chronicallyhot
#spoonieproblems #heatintolerance
#spoonie
#medsky
#chronicallyhot
If anyone has extra spoons, please repost and ID this post? I'm out of spoons.
spoonieproblems heatintolrance chronicallyhot spoonie medsky
spoonieproblems heatintolrance chronicallyhot spoonie medsky
July 23, 2025 at 11:10 PM
If anyone has extra spoons, please repost and ID this post? I'm out of spoons.
spoonieproblems heatintolrance chronicallyhot spoonie medsky
spoonieproblems heatintolrance chronicallyhot spoonie medsky
I hear ya.
I had to update my list of meds at a doc today & literally thought “damn that’s a lot of chemicals to keep me semi-functioning”
💊💊💊💊💊💊
I recently graduated to the AM/PM/Night daily pills holders 😱
#spoonieproblems
I had to update my list of meds at a doc today & literally thought “damn that’s a lot of chemicals to keep me semi-functioning”
💊💊💊💊💊💊
I recently graduated to the AM/PM/Night daily pills holders 😱
#spoonieproblems
July 16, 2025 at 4:29 AM
I hear ya.
I had to update my list of meds at a doc today & literally thought “damn that’s a lot of chemicals to keep me semi-functioning”
💊💊💊💊💊💊
I recently graduated to the AM/PM/Night daily pills holders 😱
#spoonieproblems
I had to update my list of meds at a doc today & literally thought “damn that’s a lot of chemicals to keep me semi-functioning”
💊💊💊💊💊💊
I recently graduated to the AM/PM/Night daily pills holders 😱
#spoonieproblems
I cannot make this up...
Insurance Denied Me... AGAIN!!!
youtu.be/ijU2XE3uQik
#ChronicIllness #ChronicIllnessAwareness
#Disability #DisabilityAwareness #SpoonieLife #SpoonieProblems
Insurance Denied Me... AGAIN!!!
youtu.be/ijU2XE3uQik
#ChronicIllness #ChronicIllnessAwareness
#Disability #DisabilityAwareness #SpoonieLife #SpoonieProblems
Insurance Denied Me... AGAIN!!!
YouTube video by Liv | ADHD.fibro.hEDS🌈
youtu.be
June 12, 2025 at 5:20 PM
I cannot make this up...
Insurance Denied Me... AGAIN!!!
youtu.be/ijU2XE3uQik
#ChronicIllness #ChronicIllnessAwareness
#Disability #DisabilityAwareness #SpoonieLife #SpoonieProblems
Insurance Denied Me... AGAIN!!!
youtu.be/ijU2XE3uQik
#ChronicIllness #ChronicIllnessAwareness
#Disability #DisabilityAwareness #SpoonieLife #SpoonieProblems
My wrist keeps wanting to pop out of place which is really less than optimal because I still have things to do today.
#EhlersDanlos #SpoonieProblems
#EhlersDanlos #SpoonieProblems
June 12, 2025 at 7:43 AM
My wrist keeps wanting to pop out of place which is really less than optimal because I still have things to do today.
#EhlersDanlos #SpoonieProblems
#EhlersDanlos #SpoonieProblems
Being a Spoonie is basically a nonstop tug-of-war: youtube.com/shorts/ACMp9...
🧠 Brain fog vs. fatigue
💊 Insurance battles vs. symptoms
⏰ Rest vs. productivity guilt
Which side wins in your life? 👇
#SpoonieProblems #ChronicIllness #DisabilityHumor #BoatTugOfWar
🧠 Brain fog vs. fatigue
💊 Insurance battles vs. symptoms
⏰ Rest vs. productivity guilt
Which side wins in your life? 👇
#SpoonieProblems #ChronicIllness #DisabilityHumor #BoatTugOfWar
Spoonie Tug-of-War: Chronic Illness in a Boat
YouTube video by Spoonie Threads
youtube.com
June 10, 2025 at 5:44 PM
Being a Spoonie is basically a nonstop tug-of-war: youtube.com/shorts/ACMp9...
🧠 Brain fog vs. fatigue
💊 Insurance battles vs. symptoms
⏰ Rest vs. productivity guilt
Which side wins in your life? 👇
#SpoonieProblems #ChronicIllness #DisabilityHumor #BoatTugOfWar
🧠 Brain fog vs. fatigue
💊 Insurance battles vs. symptoms
⏰ Rest vs. productivity guilt
Which side wins in your life? 👇
#SpoonieProblems #ChronicIllness #DisabilityHumor #BoatTugOfWar
This awesome woman was highlighted by #ShayneConde, I've subbed up and I'll watch later, when I'm more awake #SpoonieProblems
Do yourselves a favour, follow both of these wonderful women, you'll learn a heck of a lot and become better people for it!
#Chemmpossible
www.patreon.com/posts/130073...
Do yourselves a favour, follow both of these wonderful women, you'll learn a heck of a lot and become better people for it!
#Chemmpossible
www.patreon.com/posts/130073...
Follow this journalist for all the Black History we should have learned in school | Shayna Conde
Get more from Shayna Conde on Patreon
www.patreon.com
May 28, 2025 at 11:44 AM
This awesome woman was highlighted by #ShayneConde, I've subbed up and I'll watch later, when I'm more awake #SpoonieProblems
Do yourselves a favour, follow both of these wonderful women, you'll learn a heck of a lot and become better people for it!
#Chemmpossible
www.patreon.com/posts/130073...
Do yourselves a favour, follow both of these wonderful women, you'll learn a heck of a lot and become better people for it!
#Chemmpossible
www.patreon.com/posts/130073...
🫠 When your chronic illness says ‘rest day’ but you’re already out… 🪦 #FibromyalgiaAwarenessMonth #spoonieproblems
May 18, 2025 at 4:29 PM
🫠 When your chronic illness says ‘rest day’ but you’re already out… 🪦 #FibromyalgiaAwarenessMonth #spoonieproblems
This is what I like to call “ableist asf.” #ableism #SpoonieProblems #disability
I once got “why would you ever travel if it makes you feel this bad” from a NURSE. I informed her how “we like to live life and travel too” like she was a child cause it was time to learn!💅
I once got “why would you ever travel if it makes you feel this bad” from a NURSE. I informed her how “we like to live life and travel too” like she was a child cause it was time to learn!💅
“Surely you can just go into a home?”
First, care homes are not easy to find, especially for young people with complex chronic illness.
Second, when did people start jumping right to institutionalizing disabled people again?
We both want & deserve to live independently for as long as possible
First, care homes are not easy to find, especially for young people with complex chronic illness.
Second, when did people start jumping right to institutionalizing disabled people again?
We both want & deserve to live independently for as long as possible
May 12, 2025 at 1:52 PM
This is what I like to call “ableist asf.” #ableism #SpoonieProblems #disability
I once got “why would you ever travel if it makes you feel this bad” from a NURSE. I informed her how “we like to live life and travel too” like she was a child cause it was time to learn!💅
I once got “why would you ever travel if it makes you feel this bad” from a NURSE. I informed her how “we like to live life and travel too” like she was a child cause it was time to learn!💅
I'm Indie Publishing A Little Less Invisible Because #5: When the cute new boy looks at you like that–all frazzled and slightly annoyed–and you thought the heart palpitations were bad before 😅. I want to see more #SpoonieProblems in books
#AmWriting #YAContemporaryFantasy #ChronicIllnessRep
#AmWriting #YAContemporaryFantasy #ChronicIllnessRep
May 10, 2025 at 4:13 PM
I'm Indie Publishing A Little Less Invisible Because #5: When the cute new boy looks at you like that–all frazzled and slightly annoyed–and you thought the heart palpitations were bad before 😅. I want to see more #SpoonieProblems in books
#AmWriting #YAContemporaryFantasy #ChronicIllnessRep
#AmWriting #YAContemporaryFantasy #ChronicIllnessRep
![Emoji Legend
⚠️💨# | "Trend Strength Rating" (deprecated; soon to be replaced by 💨x#, see below)
🔓 | "Unlocked" Ongoing Emergency Word (such words are not weighted down by their own previous usage; their *ongoing* increased usage--weeks, months, years--would otherwise move them down the list.)
[NOT YET IMPLEMENTED]
💨x# | "Increased Trending Rate" for a Word (meaningful value; "💨x8 - burger" will mean "burger" is trending at 8 times its own normal rate for this time of day)
[PREVIOUSLY USED]
⚠️🌀💨 | "Trend Strength Rating" (see above)
⚠️🌀 CAT. # | [same; "CAT." = Category, like hurricane]
💬# | 10min Post Count
🆎# | 10min Word Count
🙂# | 10min Emoji Count](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:k43ha6nlknmdw4owymqnvcat/bafkreigp6bgag3jzkool6uxrujpcrwtn6zkd7cbfrmevhaxaqhhewgolmu@jpeg)
Flare-up brain:
☑️ Can’t remember if I ate
☑️ Forgot what day it is
☑️ BUT I can rate my pain on a scale of 1–10 like a champ 🙃
📘 Painfully Organised was made for days like this.
No pressure.
🔗 www.amazon.com/dp/B0F5BFFH27
#ChronicIllness #BrainFog #SpoonieProblems #FlareUpLife
☑️ Can’t remember if I ate
☑️ Forgot what day it is
☑️ BUT I can rate my pain on a scale of 1–10 like a champ 🙃
📘 Painfully Organised was made for days like this.
No pressure.
🔗 www.amazon.com/dp/B0F5BFFH27
#ChronicIllness #BrainFog #SpoonieProblems #FlareUpLife
Painfully Organised: A Flare-Up and Symptom Tracker for Chronic Illness
Painfully Organised: A Flare-Up and Symptom Tracker for Chronic Illness [Burfield-Wallis, Gary] on Amazon.com. *FREE* shipping on qualifying offers. Painfully Organised: A Flare-Up and Symptom Tracker for Chronic Illness
www.amazon.com
April 23, 2025 at 9:54 AM
Flare-up brain:
☑️ Can’t remember if I ate
☑️ Forgot what day it is
☑️ BUT I can rate my pain on a scale of 1–10 like a champ 🙃
📘 Painfully Organised was made for days like this.
No pressure.
🔗 www.amazon.com/dp/B0F5BFFH27
#ChronicIllness #BrainFog #SpoonieProblems #FlareUpLife
☑️ Can’t remember if I ate
☑️ Forgot what day it is
☑️ BUT I can rate my pain on a scale of 1–10 like a champ 🙃
📘 Painfully Organised was made for days like this.
No pressure.
🔗 www.amazon.com/dp/B0F5BFFH27
#ChronicIllness #BrainFog #SpoonieProblems #FlareUpLife
At least he has a pretty voice. 🤷🏽
The smells are giving me asthma though.
#spoonieproblems
#chronicillness
The smells are giving me asthma though.
#spoonieproblems
#chronicillness
March 24, 2025 at 8:24 PM
At least he has a pretty voice. 🤷🏽
The smells are giving me asthma though.
#spoonieproblems
#chronicillness
The smells are giving me asthma though.
#spoonieproblems
#chronicillness
one time, at my routine MRI ( #spoonieproblems )
lab tec, obviously prepared to comfort a #sickkid : any questions, sweetie?
me, merely hungry: is there an in-flight meal?
lab tec, obviously prepared to comfort a #sickkid : any questions, sweetie?
me, merely hungry: is there an in-flight meal?
March 20, 2025 at 11:01 PM
one time, at my routine MRI ( #spoonieproblems )
lab tec, obviously prepared to comfort a #sickkid : any questions, sweetie?
me, merely hungry: is there an in-flight meal?
lab tec, obviously prepared to comfort a #sickkid : any questions, sweetie?
me, merely hungry: is there an in-flight meal?
Had good fun yesterday but as usual paying for having left the house for the 1st time in 3 weeks. I slept for 17 hours straight. Still stuck in bed due to pain, but that’s how it goes 🤷♀️ #ChronicIllness #ChronicFatigue #ChronicPain #Spoonie #SpoonieProblems #SpoonieLife
March 12, 2025 at 2:28 PM
Had good fun yesterday but as usual paying for having left the house for the 1st time in 3 weeks. I slept for 17 hours straight. Still stuck in bed due to pain, but that’s how it goes 🤷♀️ #ChronicIllness #ChronicFatigue #ChronicPain #Spoonie #SpoonieProblems #SpoonieLife
If I leave it off my reassessment paperwork and my GP includes it again, is that "deliberately" not including something, and if I include it this time having not done last time, is that gonna be something they quiz me on and also what do I say? #spoonieproblems #disabilityproblems
March 7, 2025 at 8:47 PM
If I leave it off my reassessment paperwork and my GP includes it again, is that "deliberately" not including something, and if I include it this time having not done last time, is that gonna be something they quiz me on and also what do I say? #spoonieproblems #disabilityproblems
#SpoonieProblems when you're (finally) packing things and your back starts screaming because you're bending and moving around while also doing laundry.
Sounds very much like a "take four Aleve and sit/lie very still" kinda night.
Sounds very much like a "take four Aleve and sit/lie very still" kinda night.
March 5, 2025 at 9:06 PM
#SpoonieProblems when you're (finally) packing things and your back starts screaming because you're bending and moving around while also doing laundry.
Sounds very much like a "take four Aleve and sit/lie very still" kinda night.
Sounds very much like a "take four Aleve and sit/lie very still" kinda night.