COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://pulse.pulse.ly/ttsnaa5qog
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
October 22, 2025 at 3:00 PM
COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://pulse.pulse.ly/ttsnaa5qog
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
Ancient Greek word of the day: κακοθερής (kakotherēs), unsuited to endure summer heat (literally, bad at summer).
My thoughts are with those with conditions such as ME for which this is relevant.
#HeatIntolerance #MEcfs #LongCovid #chronicillness #Disability #Spoonie
My thoughts are with those with conditions such as ME for which this is relevant.
#HeatIntolerance #MEcfs #LongCovid #chronicillness #Disability #Spoonie
June 19, 2024 at 8:03 PM
Ancient Greek word of the day: κακοθερής (kakotherēs), unsuited to endure summer heat (literally, bad at summer).
My thoughts are with those with conditions such as ME for which this is relevant.
#HeatIntolerance #MEcfs #LongCovid #chronicillness #Disability #Spoonie
My thoughts are with those with conditions such as ME for which this is relevant.
#HeatIntolerance #MEcfs #LongCovid #chronicillness #Disability #Spoonie
need to start posting on here again but i don’t have much to say since im always in the house with chronic illness. here’s me leaving the house for the first time since summer started !! #mecfs #heatintolerance
July 25, 2025 at 1:55 PM
need to start posting on here again but i don’t have much to say since im always in the house with chronic illness. here’s me leaving the house for the first time since summer started !! #mecfs #heatintolerance
Grand. I’m on two of them. Explains a lot. Check your meds against list below before going out in the hot.
#spoonieproblems #heatintolerance
#spoonie
#medsky
#chronicallyhot
#spoonieproblems #heatintolerance
#spoonie
#medsky
#chronicallyhot
If anyone has extra spoons, please repost and ID this post? I'm out of spoons.
spoonieproblems heatintolrance chronicallyhot spoonie medsky
spoonieproblems heatintolrance chronicallyhot spoonie medsky
July 24, 2025 at 12:34 AM
Grand. I’m on two of them. Explains a lot. Check your meds against list below before going out in the hot.
#spoonieproblems #heatintolerance
#spoonie
#medsky
#chronicallyhot
#spoonieproblems #heatintolerance
#spoonie
#medsky
#chronicallyhot
I don't get to eat today.
It's too hot+humid already.
All I've got is ramen noodles and there's no fucking chance I'm boiling water, as if I could stand for the 10-15 minutes it'd take to do so anyway. Even if I could, it'd be to put even more heat in my body? Haha. No.
#mecfs #heatintolerance
It's too hot+humid already.
All I've got is ramen noodles and there's no fucking chance I'm boiling water, as if I could stand for the 10-15 minutes it'd take to do so anyway. Even if I could, it'd be to put even more heat in my body? Haha. No.
#mecfs #heatintolerance
June 23, 2025 at 7:15 PM
I don't get to eat today.
It's too hot+humid already.
All I've got is ramen noodles and there's no fucking chance I'm boiling water, as if I could stand for the 10-15 minutes it'd take to do so anyway. Even if I could, it'd be to put even more heat in my body? Haha. No.
#mecfs #heatintolerance
It's too hot+humid already.
All I've got is ramen noodles and there's no fucking chance I'm boiling water, as if I could stand for the 10-15 minutes it'd take to do so anyway. Even if I could, it'd be to put even more heat in my body? Haha. No.
#mecfs #heatintolerance
🧪
Currently 35°C feels like 39°C
Or for those unfamiliar 95°F feels like 102.2°F
Definitely feeling for the ND students in my neighbourhood where the schools only had power restored in last few hours.
#EduSky🍎 #ActuallyAutistic #ClimateChange #BNEWeather #Hypersensitivity
#HeatIntolerance
Currently 35°C feels like 39°C
Or for those unfamiliar 95°F feels like 102.2°F
Definitely feeling for the ND students in my neighbourhood where the schools only had power restored in last few hours.
#EduSky🍎 #ActuallyAutistic #ClimateChange #BNEWeather #Hypersensitivity
#HeatIntolerance
November 5, 2024 at 3:34 AM
🧪
Currently 35°C feels like 39°C
Or for those unfamiliar 95°F feels like 102.2°F
Definitely feeling for the ND students in my neighbourhood where the schools only had power restored in last few hours.
#EduSky🍎 #ActuallyAutistic #ClimateChange #BNEWeather #Hypersensitivity
#HeatIntolerance
Currently 35°C feels like 39°C
Or for those unfamiliar 95°F feels like 102.2°F
Definitely feeling for the ND students in my neighbourhood where the schools only had power restored in last few hours.
#EduSky🍎 #ActuallyAutistic #ClimateChange #BNEWeather #Hypersensitivity
#HeatIntolerance
This Witch is melting!
After sleeping over 14 hours, the heat was just too much today. So I ended up sleeping another 12+ hours with a fan aimed directly at me #disability #chronicallyill #chronichealth #chronicpain #disabled #heatintolerance #sleep #oversleeping #melting #mentalhealth #noaircon
After sleeping over 14 hours, the heat was just too much today. So I ended up sleeping another 12+ hours with a fan aimed directly at me #disability #chronicallyill #chronichealth #chronicpain #disabled #heatintolerance #sleep #oversleeping #melting #mentalhealth #noaircon
wicked witch from the wizard of oz is melting a piece of wood .
ALT: wicked witch from the wizard of oz is melting a piece of wood .
media.tenor.com
July 13, 2025 at 12:20 AM
This Witch is melting!
After sleeping over 14 hours, the heat was just too much today. So I ended up sleeping another 12+ hours with a fan aimed directly at me #disability #chronicallyill #chronichealth #chronicpain #disabled #heatintolerance #sleep #oversleeping #melting #mentalhealth #noaircon
After sleeping over 14 hours, the heat was just too much today. So I ended up sleeping another 12+ hours with a fan aimed directly at me #disability #chronicallyill #chronichealth #chronicpain #disabled #heatintolerance #sleep #oversleeping #melting #mentalhealth #noaircon
It’s been a minute, but I’m back.
#chronicIllness #substackWriters #heatIntolerance #writersOfBluesky
chronicallycreative.substack.com/p/a-post-so-...
#chronicIllness #substackWriters #heatIntolerance #writersOfBluesky
chronicallycreative.substack.com/p/a-post-so-...
A post so raw you could call it Sashimi...
…and this far inland, it probably stinks.
chronicallycreative.substack.com
August 17, 2025 at 1:43 AM
It’s been a minute, but I’m back.
#chronicIllness #substackWriters #heatIntolerance #writersOfBluesky
chronicallycreative.substack.com/p/a-post-so-...
#chronicIllness #substackWriters #heatIntolerance #writersOfBluesky
chronicallycreative.substack.com/p/a-post-so-...
A few days ago, I sat outside with a good book. It was a glorious October day. I read for about 30 minutes. I’ve been bedridden ever since. #LongCovid #HeatIntolerance #CognitivePEM
No one wants this life. #MaskUp
No one wants this life. #MaskUp
October 8, 2025 at 2:45 PM
A few days ago, I sat outside with a good book. It was a glorious October day. I read for about 30 minutes. I’ve been bedridden ever since. #LongCovid #HeatIntolerance #CognitivePEM
No one wants this life. #MaskUp
No one wants this life. #MaskUp
It is unsettling knowing today that if I was outside too long, I would get ill or die.
I am heat intolerant due to a medication side effect.
And summer isn't even here yet.
The AC is the only barrier between myself and 🔥.
#Climate
#ExtremeHeat
#HeatDome
#Connecticut
#HeatIntolerance
I am heat intolerant due to a medication side effect.
And summer isn't even here yet.
The AC is the only barrier between myself and 🔥.
#Climate
#ExtremeHeat
#HeatDome
#Connecticut
#HeatIntolerance
June 19, 2025 at 8:40 PM
It is unsettling knowing today that if I was outside too long, I would get ill or die.
I am heat intolerant due to a medication side effect.
And summer isn't even here yet.
The AC is the only barrier between myself and 🔥.
#Climate
#ExtremeHeat
#HeatDome
#Connecticut
#HeatIntolerance
I am heat intolerant due to a medication side effect.
And summer isn't even here yet.
The AC is the only barrier between myself and 🔥.
#Climate
#ExtremeHeat
#HeatDome
#Connecticut
#HeatIntolerance
#MyalgicEncephalomyelitis #MyalgicE #medication #heatwave #sunshine #heatintolerance #heatwaveuk #pwME #antidepressants #diuretic #SSRIs #Antihistamines #ADHDMedication #heatsensitive #hiddendisability #chronicpain #raisingawareness #MECFS #MedicationAwareness #MedicationSafety #intolerances
June 26, 2025 at 12:53 PM
#dailyHaikuPrompt balmy weasel
#heatIntolerance
Summer is no balm
for me, it’s a bomb blasting
past my defenses…
flowing through the cracks.
Pain, a weasel: liquid, lithe-
forever gnawing.
#poems
#poetry
#PoetryCommunity
#PoetryDaily
#Haiku
#FreeVerse
#MicroPoetry
#BlueskyPoets
#vss365
#heatIntolerance
Summer is no balm
for me, it’s a bomb blasting
past my defenses…
flowing through the cracks.
Pain, a weasel: liquid, lithe-
forever gnawing.
#poems
#poetry
#PoetryCommunity
#PoetryDaily
#Haiku
#FreeVerse
#MicroPoetry
#BlueskyPoets
#vss365
July 1, 2025 at 1:49 AM
#dailyHaikuPrompt balmy weasel
#heatIntolerance
Summer is no balm
for me, it’s a bomb blasting
past my defenses…
flowing through the cracks.
Pain, a weasel: liquid, lithe-
forever gnawing.
#poems
#poetry
#PoetryCommunity
#PoetryDaily
#Haiku
#FreeVerse
#MicroPoetry
#BlueskyPoets
#vss365
#heatIntolerance
Summer is no balm
for me, it’s a bomb blasting
past my defenses…
flowing through the cracks.
Pain, a weasel: liquid, lithe-
forever gnawing.
#poems
#poetry
#PoetryCommunity
#PoetryDaily
#Haiku
#FreeVerse
#MicroPoetry
#BlueskyPoets
#vss365
Beat the heat: https://bit.ly/4lmT9gY
Staying cool with myasthenia gravis isn’t always simple, but the right strategies can make a difference.
#MyastheniaGravis #MGSymptoms #HeatIntolerance #MyastheniaGravisNews #Bionews
Staying cool with myasthenia gravis isn’t always simple, but the right strategies can make a difference.
#MyastheniaGravis #MGSymptoms #HeatIntolerance #MyastheniaGravisNews #Bionews
August 8, 2025 at 1:03 PM
Beat the heat: https://bit.ly/4lmT9gY
Staying cool with myasthenia gravis isn’t always simple, but the right strategies can make a difference.
#MyastheniaGravis #MGSymptoms #HeatIntolerance #MyastheniaGravisNews #Bionews
Staying cool with myasthenia gravis isn’t always simple, but the right strategies can make a difference.
#MyastheniaGravis #MGSymptoms #HeatIntolerance #MyastheniaGravisNews #Bionews
Gods, after a month and a 1/2 of ridiculous heat and humidity, not waking up with a migraine and being able to move without my vision blacking out feels like heaven.
#dysautonomia #migraine #heatintolerance
#dysautonomia #migraine #heatintolerance
August 1, 2025 at 7:46 PM
Gods, after a month and a 1/2 of ridiculous heat and humidity, not waking up with a migraine and being able to move without my vision blacking out feels like heaven.
#dysautonomia #migraine #heatintolerance
#dysautonomia #migraine #heatintolerance
Ridiculous.
The outrageously costly central air will be running all day.
I start to wilt above 72° Fahrenheit.
#Connecticut
#HeatIntolerance
#Spring ?
The outrageously costly central air will be running all day.
I start to wilt above 72° Fahrenheit.
#Connecticut
#HeatIntolerance
#Spring ?
May 2, 2025 at 4:49 PM
Ridiculous.
The outrageously costly central air will be running all day.
I start to wilt above 72° Fahrenheit.
#Connecticut
#HeatIntolerance
#Spring ?
The outrageously costly central air will be running all day.
I start to wilt above 72° Fahrenheit.
#Connecticut
#HeatIntolerance
#Spring ?
The temperatures for the next couple of days look like fun, especially Wednesday... NOT!!! 🥵 Looks like I'll be going full-on ninja. 🥷
#Frankfurt
#SunAllergy
#Summer2025
#HeatIntolerance
#Frankfurt
#SunAllergy
#Summer2025
#HeatIntolerance
June 29, 2025 at 9:32 AM
The temperatures for the next couple of days look like fun, especially Wednesday... NOT!!! 🥵 Looks like I'll be going full-on ninja. 🥷
#Frankfurt
#SunAllergy
#Summer2025
#HeatIntolerance
#Frankfurt
#SunAllergy
#Summer2025
#HeatIntolerance
COOLING AID DISCOUNT ALERT! has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://nano-ice.pulse.ly/n0h2ynqcyx
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
September 19, 2025 at 9:59 PM
COOLING AID DISCOUNT ALERT! has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://nano-ice.pulse.ly/n0h2ynqcyx
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://nano-ice.pulse.ly/1lzl8rigne
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
November 25, 2025 at 6:00 PM
COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://nano-ice.pulse.ly/1lzl8rigne
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://nano-ice.pulse.ly/f190vnwryy
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
December 12, 2025 at 12:59 AM
COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://nano-ice.pulse.ly/f190vnwryy
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
#Situationship #love #dating #ugh #help #datingin2025 #datingstories #aita #bluesky #writing #writer #writingcommunity #meds #chronicallyill #genz #kaylirose #substack #GirlWithAByline #lmk #feed #reach #paidsubsonly #paidsubs #thevault #vaultentry #epa #greenhousegasses #heat #heatintolerance
New The Vault [REDACTED] Content:
He told me I was perfect, then ghosted me less than 48 hours later. So yes, I wrote about it. Story is live for paid subs. <3
it’s petty, personal, and a little cathartic.
#Substack #GirlWithAByline #VaultEntry #DatingStories #HeartbreakFiles #Kaylirose #BlueSky
He told me I was perfect, then ghosted me less than 48 hours later. So yes, I wrote about it. Story is live for paid subs. <3
it’s petty, personal, and a little cathartic.
#Substack #GirlWithAByline #VaultEntry #DatingStories #HeartbreakFiles #Kaylirose #BlueSky
The Bar Is So Low It’s Underground
I gave him the benefit of the doubt, and all he did was waste my time.
open.substack.com
June 14, 2025 at 2:19 PM
leaving the beach today 😤 being able to go outside without getting violently ill has been so nice #POTS #mecfs #heatintolerance
July 27, 2025 at 3:55 PM
leaving the beach today 😤 being able to go outside without getting violently ill has been so nice #POTS #mecfs #heatintolerance
🐕 Has anyone tried dog cooling mats for the heat?!
Any other top tips for dealing with heat welcome - we can then put a community thread together ⛱️
#heatintolerance #dysautonomia #pwME #longcovid
Any other top tips for dealing with heat welcome - we can then put a community thread together ⛱️
#heatintolerance #dysautonomia #pwME #longcovid
May 2, 2025 at 4:14 PM
🐕 Has anyone tried dog cooling mats for the heat?!
Any other top tips for dealing with heat welcome - we can then put a community thread together ⛱️
#heatintolerance #dysautonomia #pwME #longcovid
Any other top tips for dealing with heat welcome - we can then put a community thread together ⛱️
#heatintolerance #dysautonomia #pwME #longcovid
Anyone else stuck on this level right now?
I can't leave my house 😩
#ChronicIllness
#HeatIntolerance
#TooDamnHotOutside
I can't leave my house 😩
#ChronicIllness
#HeatIntolerance
#TooDamnHotOutside
July 12, 2025 at 6:30 PM
Anyone else stuck on this level right now?
I can't leave my house 😩
#ChronicIllness
#HeatIntolerance
#TooDamnHotOutside
I can't leave my house 😩
#ChronicIllness
#HeatIntolerance
#TooDamnHotOutside