Dysautonomia Support Network
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dyssupport.bsky.social
Dysautonomia Support Network
@dyssupport.bsky.social
55 followers 2 following 220 posts
Dysautonomia Support Network works to support and empower people with dysautonomia through education, resources, and community.
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dyssupport.bsky.social
Heading to college with dysautonomia? Watch DSN's DyscEd Q&A video, download the free handbook & join College Connections support group for students navigating dysautonomia.
Video: https://youtu.pulse.ly/s5gxntoc26
#Dysautonomia #POTS #College
January 10, 2026 at 8:00 PM
dyssupport.bsky.social
Newly diagnosed with dysautonomia? DSN's Getting Started guide is your roadmap - learn about forms, find providers, discover management techniques & connect with community.
https://dysautonomiasupport.pulse.ly/zhuobgc1bp
#Dysautonomia #POTS
January 9, 2026 at 6:59 PM
dyssupport.bsky.social
Dysautonomia affects the autonomic nervous system, which controls automatic body functions. It impacts 70 million people worldwide. While there's no cure, symptoms can be managed effectively. Learn more:
https://dysautonomiasupport.pulse.ly/h63gfycsem
#Dysautonomia #POTS
January 8, 2026 at 9:59 PM
dyssupport.bsky.social
Need a dysautonomia-knowledgeable doctor? DSN's free patient-recommended Provider Directory helps you find experienced healthcare professionals near you.
https://dysautonomiasupport.pulse.ly/aeyx4aiswo
#Dysautonomia #POTS #ChronicIllness
January 8, 2026 at 12:59 AM
dyssupport.bsky.social
Balancing activity & rest helps manage dysautonomia symptoms. The Dysautonomia Workbook is full of OT-based tools to help you keep that balance. Get yours: https://dysautonomiasupport.pulse.ly/i0ghtkdehk
The Dysautonomia Workbook: A Guide to Empowered Living
Practical Tools for Living and Feeling Your Best What’s inside…
dysautonomiasupport.pulse.ly
January 6, 2026 at 11:59 PM
dyssupport.bsky.social
Connect with others who understand. DSN offers 2 Global Communities—Facebook & Inspire—for peer support. 🌍
https://dysautonomiasupport.pulse.ly/s3npyjtrbf
#Dysautonomia #POTS #ChronicIllness
January 6, 2026 at 12:59 AM
dyssupport.bsky.social
Living with dysautonomia? You're not alone. DSN offers medically-reviewed info, safe online communities, monthly Virtual Support Groups & downloadable resources. Everything you need in one place: https://dysautonomiasupport.pulse.ly/133epgwg8k
#Dysautonomia #POTS #ChronicIllness #Support
January 4, 2026 at 7:59 PM
dyssupport.bsky.social
AAG: rare dysautonomia w/ autonomic failure. Symptoms: orthostatic hypotension, dry eyes/mouth, gastroparesis, bladder issues. Treatment: plasma exchange, IVIG, immunosuppressants. https://dysautonomiasupport.pulse.ly/1scjnzl6bx #Dysautonomia #AAG
January 3, 2026 at 8:59 PM
dyssupport.bsky.social
The Dysautonomia Workbook: A Guide to Empowered Living is now available!!! Get practical tools and strategies for living with dysautonomia. See details and order info:https://dysautonomiasupport.pulse.ly/35bcqluith

#dysautonomia #chronicillnesssupport #potssyndrome #longcovid #symptommanagement
January 2, 2026 at 5:00 PM
dyssupport.bsky.social
Happy New Year from all of us at DSN! 🎊
As we step into 2026, we want you to know: you are not alone in this journey. 🩵 Wishing you all a year filled with compassion, strength, and bright days ahead.
January 1, 2026 at 4:59 AM
dyssupport.bsky.social
As we look forward to another new year, what are your hopes and plans for 2026? Share your thoughts and let's start weaving a network of support for each other's New Year's dreams!

#NewYear #dysautonomia #chronicillnesssupport #potssyndrome #longcovid #2026
December 31, 2025 at 9:59 PM
dyssupport.bsky.social
What is Orthostatic Hypotension? OH is a drop in blood pressure when changing position, causing dizziness, lightheadedness, and sometimes fainting. Learn more: https://dysautonomiasupport.pulse.ly/yw04vrgy9l #Dysautonomia #OH #ChronicIllness
December 31, 2025 at 12:59 AM
dyssupport.bsky.social
From "Ask the Expert: How to Use OT to Manage Dysautonomia" with Dr. Joanna Behm. Full video: https://youtu.pulse.ly/b7oe89kpqo
Workbook: https://dysautonomiasupport.pulse.ly/6xt8oqretd
#Dysautonomia #POTS #OT
December 30, 2025 at 2:01 AM
dyssupport.bsky.social
Managing fatigue in school? These modifications help students with dysautonomia: elevator pass, extra books at home, brain breaks, virtual attendance & adjusted schedules. Full guide: https://dysautonomiasupport.pulse.ly/os8s3hipdg #Dysautonomia #POTS
December 28, 2025 at 3:59 PM
dyssupport.bsky.social
You asked about heat intolerance! Try cooling vests, ice packs, portable fans & lukewarm showers. This season's temp shifts are challenging!
https://dysautonomiasupport.pulse.ly/fp4eea8ozb
#Dysautonomia #POTS #ChronicIllness
December 27, 2025 at 6:00 PM
dyssupport.bsky.social
Need to explain POTS? Download our free handout! 📋 Easy info on Postural Orthostatic Tachycardia Syndrome for family, friends & doctors. Other dysautonomia handouts available too!
https://dysautonomiasupport.pulse.ly/lfq4yvqhxq
#POTS #Dysautonomia
December 26, 2025 at 7:00 PM
dyssupport.bsky.social
Today, we're wishing you moments of peace: peace with where you are right now. Peace that recognizes your reality without diminishing your hope. Peace that holds both acceptance and action.

You are more than your symptoms, more than your diagnoses. May you feel that truth today. 💙
December 25, 2025 at 11:00 AM
dyssupport.bsky.social
What other stockings could they be talking about?
#chronicillnesshumor #spoonie #potsie
December 24, 2025 at 7:59 PM
dyssupport.bsky.social
It's tiiiiiiimeeee! 🎉 The Dysautonomia Workbook pre-orders have shipped & copies are available now!
https://dysautonomiasupport.pulse.ly/x7zten6hv5
#Dysautonomia #POTS #ChronicIllness
December 24, 2025 at 12:00 AM
dyssupport.bsky.social
The DSN Creatives Club is a place for members to explore and develop interests and talents with others who understand the challenges of pursuing your passion and goals with a chronic condition.
Join: https://facebook.pulse.ly/dqmngmwv4h
#dysautonomia #creativeexpression
December 23, 2025 at 1:59 AM
dyssupport.bsky.social
Cold intolerance with dysautonomia? Try layers, heated blankets, hand warmers & warm soaks. Avoid quick temp shifts!
https://dysautonomiasupport.pulse.ly/z83fdi9ogd
#Dysautonomia #POTS #ChronicIllness
December 21, 2025 at 8:00 PM
dyssupport.bsky.social
Energy conservation helps manage dysautonomia fatigue through planning, prioritizing, pacing & positioning. Sit when possible, take breaks early & organize efficiently. https://dysautonomiasupport.pulse.ly/kvscy7kda2

#Dysautonomia #POTS
December 20, 2025 at 5:00 PM
dyssupport.bsky.social
Assistive tech isn't just for chores—it's for joy. Scrolling rings, adaptive athletic equipment, ergonomic tools for art/music/gardening. Search: assistive tools + your symptoms + what you love. You deserve to enjoy life. 🩵

#AssistiveTechnology #Disability #ChronicIllness
December 20, 2025 at 1:00 AM
dyssupport.bsky.social
MCAS commonly co-exists with dysautonomia. Mast cells inappropriately release inflammatory chemicals causing multi-system symptoms. Treatment includes trigger avoidance & medications. Learn more: https://dysautonomiasupport.pulse.ly/iexvyluoyb
#MCAS #Dysautonomia #POTS
December 18, 2025 at 11:59 PM
dyssupport.bsky.social
What's the best or most thoughtful gift you've ever received as a person managing chronic illness - or as a caregiver for a person with chronic illness? What's on your wishlist this year? Tell us what would make your holidays brighter!
December 17, 2025 at 4:00 PM