Dysautonomia Support Network
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dyssupport.bsky.social
Dysautonomia Support Network
@dyssupport.bsky.social
45 followers 2 following 160 posts
Dysautonomia Support Network works to support and empower people with dysautonomia through education, resources, and community.
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dyssupport.bsky.social
This Veterans Day, an interesting insight into the history of dysautonomia: "Soldier's Heart," documented in American Civil War veterans, may have been POTS, according to some researchers.
(Halstead 2018, Struhal & Hain 2021)
#VeteransDay2025 #POTS
November 11, 2025 at 8:27 PM
dyssupport.bsky.social
Newly diagnosed with dysautonomia? DSN's Getting Started guide helps you go from surviving to thriving with provider directories, management resources & supportive communities.
https://dysautonomiasupport.pulse.ly/ub9ikndygr
#Dysautonomia #POTS
November 11, 2025 at 12:59 AM
dyssupport.bsky.social
Education is key to managing dysautonomia. Learn from trusted sources—academic institutions, government sites, nonprofits—to advocate for your health.
https://dysautonomiasupport.pulse.ly/uwbhkry9w8
#Dysautonomia #ChronicIllness #PatientAdvocacy #HealthEducation
November 9, 2025 at 3:59 PM
dyssupport.bsky.social
DSN hosts a monthly Virtual Support Group via Zoom for individuals living with dysautonomia.

Next session: Thurs, 11/20 at 7:30 PM EST (6:30 PM CST, 5:30 PM MST, 4:30 PM PST). Register: https://zoom.pulse.ly/oazlng4cfx

#chronicillnesssupport #potssyndrome #dysautonomia #invisibleillness
November 8, 2025 at 9:59 PM
dyssupport.bsky.social
We asked: What do you want the world to know about dysautonomia? The answers were powerful. Thank you for sharing your truth. 🩵
https://dysautonomiasupport.pulse.ly/ksiprvvbnp
#Dysautonomia #ChronicIllness #InvisibleIllness #POTS #DysautonomiaCommunity
November 8, 2025 at 2:00 AM
dyssupport.bsky.social
Dysautonomia Support Network recently shared that the planned publication of The Dysautonomia Workbook: A Guide to Empowered Living has been delayed until the end of the year. Here, Workbook co-author Joanna Behm, EdD, MS expresses our gratitude for your ongoing support!
November 6, 2025 at 11:59 PM
dyssupport.bsky.social
Lesser-known assistive tools for #dysautonomia: hands-free hair dryer stands, long-handled razors, built-up toothbrush grips, sock aids, compression stocking donners & button hooks. Simple solutions when fatigue/joint pain make daily tasks hard!
https://dysautonomiasupport.pulse.ly/8gi883qzyg
November 5, 2025 at 9:59 PM
dyssupport.bsky.social
Knowledge is power. 💙 Our Dyscovery Education video series offers expert insights on dysautonomia.
Watch now: https://dysautonomiasupport.pulse.ly/kseq4roihz
#Dysautonomia #POTS #ChronicIllness #PatientEducation
November 5, 2025 at 12:00 AM
dyssupport.bsky.social
Energy conservation for dysautonomia: Track symptoms, apply key principles & modify your space. Small changes = big impact! 💙
https://dysautonomiasupport.pulse.ly/nohmiliolu
#Dysautonomia #POTS #ChronicIllness
November 4, 2025 at 12:59 AM
dyssupport.bsky.social
Cold intolerance with dysautonomia? Layer up, use heated blankets, hand warmers & avoid temp shifts. Listen to your body! 💙
https://dysautonomiasupport.pulse.ly/lxdfzqi8rt
#Dysautonomia #ColdIntolerance #ChronicIllness
November 2, 2025 at 8:00 PM
dyssupport.bsky.social
Dysautonomia Awareness Month may have ended, but we're all still here. Let's keep spreading awareness! What do YOU wish everyone was aware of when it comes to dysautonomia? Tell us in the comments.

#dysautonomia #chronicillnesssupport #potssyndrome #longcovid
November 1, 2025 at 3:00 PM
dyssupport.bsky.social
Our idea of treats is...a little different. 🧂🎃 #spoonie #potsie
October 31, 2025 at 6:21 PM
dyssupport.bsky.social
An important update about The Dysautonomia Workbook. Publication has been delayed for another 6-8 weeks. If you would like to contact DSN about your pre-order, use this link: https://dysautonomiasupport.pulse.ly/neisyif5ym
Thank you for your patience.
October 31, 2025 at 1:00 AM
dyssupport.bsky.social
If Orthostatic Intolerance is a challenge you manage at work, here’s some possible accommodations:
✨ Ability to sit as needed
✨ Ability to have food/drink at the workstation
✨ Supine workstation

You deserve support in the workplace. Learn more: https://dysautonomiasupport.pulse.ly/hwenwqzgfu
October 30, 2025 at 12:59 AM
dyssupport.bsky.social
Dysautonomia often occurs with other conditions like EDS, MCAS, gastroparesis, migraines & autoimmune disorders. Understanding these connections matters for better care. https://dysautonomiasupport.pulse.ly/7lvp03z4uo #DysautonomiaAwareness
October 28, 2025 at 11:35 PM
dyssupport.bsky.social
NBA's Kristaps Porzingis revealed his POTS diagnosis—a form of dysautonomia that caused his heart rate to hit 130 while standing. "It hit me like a truck," he said. His story raises awareness for this invisible illness affecting millions.
https://si.pulse.ly/dydhdbwoll
#POTS #Dysautonomia
October 27, 2025 at 11:59 PM
dyssupport.bsky.social
Looking for dysautonomia-knowledgeable providers? Check out this patient-recommended healthcare directory - searchable by region & free to access! 🩵
https://dysautonomiasupport.pulse.ly/3pa2rhcgoj
#Dysautonomia #POTS #ChronicIllness #ChronicIllnessSupport
October 26, 2025 at 5:00 PM
dyssupport.bsky.social
Reminder: you're doing incredible things, just by living with chronic illness.

Quote from "Life Continues: Facing the Challenges of MS, Menopause & Midlife with Hope, Courage & Humor," by C. Ambrosiohttps://ambrosart.pulse.ly/agyliqls59

#DysautonomiaAwareness #ChronicIllnessSupport
October 25, 2025 at 4:00 PM
dyssupport.bsky.social
Hydration helps manage dysautonomia symptoms! Some experts suggest at least half your daily fluids should include electrolytes. You can use products like sports drinks or make your own. Learn more: https://dysautonomiasupport.pulse.ly/9x4xmgdekl #DysautonomiaAwareness #POTS #Hydration
October 24, 2025 at 3:00 PM
dyssupport.bsky.social
Dizzy when standing? Learn about counter-pressure maneuvers—simple techniques to help manage POTS & orthostatic symptoms!
https://dysautonomiasupport.pulse.ly/s5jveopdpd
#POTS #Dysautonomia
October 23, 2025 at 9:59 PM
dyssupport.bsky.social
COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://pulse.pulse.ly/ttsnaa5qog

#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
October 22, 2025 at 3:00 PM
dyssupport.bsky.social
For Dysautonomia Awareness Month: FREE handbooks on school, work, assistive tech & more + condition handouts (POTS, IST, etc.) 🧡
https://dysautonomiasupport.pulse.ly/zoje5uld0e
#Dysautonomia #POTS #ChronicIllness
October 21, 2025 at 4:38 PM
dyssupport.bsky.social
October is Dysautonomia Awareness Month 🩵 This condition affects 70M people worldwide but remains widely misunderstood. Let's raise awareness!
https://dysautonomiasupport.pulse.ly/z1iqrueahv
#DysautonomiaAwareness #Dysautonomia #ChronicIllness
October 20, 2025 at 9:10 PM
dyssupport.bsky.social
The DSN Creatives Club is a place for members to explore and develop interests and talents with others who understand the challenges of pursuing your passion and goals with a chronic condition.
Join: https://facebook.pulse.ly/grlletvhko
#dysautonomia #creativeexpression
October 19, 2025 at 7:53 PM
dyssupport.bsky.social
Dr. Natraj Ballal is BACK to take your questions in a LIVE Q&A! Join us for a live "Ask the Expert" event featuring Dr. Ballal on October 23 at 6 p.m. Eastern, with a giveaway sponsored by Enact Hydration! Register: https://bit.pulse.ly/ymnzhu2hpl

#DysautonomiaAwarenessMonth
October 18, 2025 at 9:20 PM