#DysautonomiaAwarenessMonth
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katieholten.bsky.social
Welcome to the wild world of #Dysautonomia. Millions of people have it, like me. It's a malfunction of the autonomic nervous system and can impact nearly every system in your body.

www.disabledginger.com/p/living-lif... Words by @broadwaybabyto.bsky.social 🩵

#DysautonomiaAwarenessMonth #POTS
Living Life Upside Down - An Intro to POTS/Dysautonomia
I live my life horizontally thanks to a condition called POTS (Postural Orthostatic Tachycardia Syndrome). It's poorly understood, often misdiagnosed and can be devastating to quality of life.
www.disabledginger.com
October 31, 2025 at 4:37 PM
katieholten.bsky.social
The world is so beautiful! This is Baker Lake, in Nunavut, Canada. Heart it and share some love for people with #Dysautonomia, an autonomic nervous system disorder, which disrupts heart rate and much more. Turquoise is the awareness color for #DysautonomiaAwarenessMonth 🩵
A photo of Baker Lake, near East Bolton, in Quebec, Canada. The lake is shaped (incredibly!) like a heart and the water is turquoise reflecting the blue sky and white clouds above. It's surrounded by rolling hills and trees in their autumn colors, red, brown, orange and a few green trees. Photo dated October 8, 2022. Photo credit: Sebastien St-Jean / AFP / Getty Source: I found the photo in The Atlantic, in an online post with the title: Fall Is in the Air: Images of the Season by ALAN TAYLOR, OCTOBER 24, 2022 Turquoise is the awareness color for dysautonomia and is associated with Dysautonomia Awareness Month, which is in October. Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate. This photo is a lovely way to illustrate dysautonomia awareness month.
October 13, 2025 at 8:52 PM
katieholten.bsky.social
POTS is a form of #dysautonomia — a disorder of the autonomic nervous system.

A new study from @ki.se shows that #POTS is very common in people with long COVID.

The headline is misleading. POTS is way more than a "heart rhythm disorder."

news.ki.se/pots-common-...

#DysautonomiaAwarenessMonth
POTS common in patients with long COVID
A new study from Karolinska Institutet shows that an heart rhythm disorder, POTS, is particularly common in people with long COVID. The majority of those affected are middle-aged women. The study has ...
news.ki.se
October 11, 2025 at 5:53 PM
tomkindlon.bsky.social
From ME Research UK:

Throughout October, we will mark #DysautonomiaAwarenessMonth. #Dysautonomia refers to conditions affecting the autonomic nervous system, such as #PoTS and vasovagal syncope. Dysautonomia can impact quality of life. People with #MECFS often report symptoms. tinyurl.com/3f5sxbza
OCTOBER IS DYSAUTONOMIA AWARENESS MONTH Dysautonomia is an umbrella term that describes a disorder of the autonomic nervous system. It is recognised that viruses can trigger dysautonomia. Many people with ME/CFS experience symptoms of dysautonomia. INFORM. INFLUENCE. INVEST. aft RESEARCH UK SCO36942
October 5, 2025 at 4:14 PM
katieholten.bsky.social
POTS is a form of #dysautonomia — a disorder of the autonomic nervous system. This branch of the nervous system regulates things we don’t consciously control, like heart rate. I have #POTS from long COVID. When I stand up, all the blood in my body falls with gravity. 🫠

#DysautonomiaAwarenessMonth
October 4, 2025 at 3:25 PM
dyssupport.bsky.social
October is Dysautonomia Awareness Month 🩵 This condition affects at least 70M people worldwide but remains under-recognized. Learn about disorders of the autonomic nervous system: https://dysautonomiasupport.pulse.ly/4grjfcpqmv #DysautonomiaAwarenessMonth #POTS #LongCovid
What is Dysautonomia?
Dysautonomia [dis-aw-tuh-noh-mee-uh] Also called autonomic dysfunction, is an umbrella term used to describe disorders that affect the autonomic nervous system. ¹ The autonomic nervous system (ANS)…
dysautonomiasupport.pulse.ly
October 2, 2025 at 2:59 PM
longcovidsos.bsky.social
October is #DysautonomiaAwarenessMonth

For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more

We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October

#POTS #Dysautonomia #invisibleillness
Turquoise background with overlapping blue circles. In the centre, a simple illustration of a person with turquoise hair. Text around the person reads: “Dysautonomia Awareness Month.” Circles highlight symptoms: gastrointestinal issues, PoTS, heart palpitations, fatigue, shortness of breath, dizziness, cognitive issues, temperature dysregulation. Fainter circles in the background say and many many many more Long Covid SOS logo at the bottom left in white
October 1, 2025 at 11:49 AM
kwatier.bsky.social
I just asked my Congressional members to fund #POTS research. Visit to do the same! It only takes a minute. #DysautonomiaAwarenessMonth
November 22, 2024 at 8:11 PM
juliawithmecfs.bsky.social
Es ist Oktober, das heisst, es ist #DysautonomiaAwarenessMonth!
In diesem Monat liegt das Bewusstsein auf Dysautonomien.

Was Dysautonomien sind, wie man sie behandelt ect, werde ich diesen Monat hier aufklären💙
October 1, 2023 at 2:26 PM
juliawithmecfs.bsky.social
Was ist #POTS?

POTS (Posturales orthostatisches Tachykardie Syndrom) gehört auch zu den #Dysautonomien.

- Postural = Körperhaltung betreffend
- Orthostasisches = Aufrechte Haltung
- Tachykardie = Erhöhter Puls
- Syndrom = Symptomkombination

#DysautonomiaAwarenessMonth
Schriftzug: POTS
October 3, 2023 at 1:55 PM
jebanach.bsky.social
With chronic illness there are no breaks, no days off, no time-outs. No matter what else you are dealing with it is not going to give you a pass. What can help a bit is the empathy & understanding of others. Anyway, Happy #DysautonomiaAwarenessMonth from this #dysautonomia baby.
October 3, 2023 at 12:33 AM
drjoepajak.bsky.social
💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
1) Share or take action with @UKPoTs daily posts/ideas.
2) Pledge an activity you enjoy and explain on your socials.
💜More details: potsuk.org/wp-content/u...
#PoTSAwarenessDay @DysSupport
💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth 1) Share or take action with @UKPoTs daily posts/ideas. 2) Pledge an activity you enjoy and explain on your socials. 💜More details: https://potsuk.org/wp-content/uploads/2024/09/PoTS-Pledge-1.pdf #PoTSAwarenessDay @DysSupport
October 20, 2024 at 11:33 AM
dyssupport.bsky.social
Dr. Natraj Ballal is BACK to take your questions in a LIVE Q&A! Join us for a live "Ask the Expert" event featuring Dr. Ballal on October 23 at 6 p.m. Eastern, with a giveaway sponsored by Enact Hydration! Register: https://bit.pulse.ly/ymnzhu2hpl

#DysautonomiaAwarenessMonth
October 18, 2025 at 9:20 PM
otomeshimai.bsky.social
October 1st means the beginning of #DysautonomiaAwarenessMonth ! We are fundraising for @dyssupport.bsky.social through Twitch this year and will be posting information about Dysautonomia through the month. Please like and share to raise awareness!
www.twitch.tv/otomeshimai
October 1, 2025 at 3:37 PM
penumbraminemmward.bsky.social
October is #dysautonomiaawarenessmonth! 🩵🎗️ There are *so* many different types of #dysautonomia that each cause their own set of symptoms. Dysautonomia can look like all this. BUT on the outside, they look "fine". Please stop saying, "You don't look disabled," to people with #hiddendisabilities.
October 2, 2025 at 3:58 PM
a-c-e1.bsky.social
Ganz hervorragender Artikel zu #POTS unter Berücksichtigung von LongCovid, ME/CFS, PEM usw.:

www.nationalgeographic.com/premium/arti...

#DysautonomiaAwarenessMonth
What is POTS? This strange disorder has doubled since the pandemic
Millions of people now live with the debilitating disorder, which can be triggered by viral illnesses like COVID-19. And many say the recommended treatment—exercise—has backfired.
www.nationalgeographic.com
October 16, 2023 at 5:07 PM
drjoepajak.bsky.social
💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
1) Share or take action with @UKPoTs daily posts/ideas.
2) Pledge an activity you enjoy and explain on your socials.
💜More details: Postural Tachycardia Syndrome
@UKPoTS
#PoTSAwarenessDay @DysSupport
Postural Tachycardia Syndrome 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth 1) Share or take action with @UKPoTs daily posts/ideas. 2) Pledge an activity you enjoy and explain on your socials. #PoTSAwarenessDay @DysSupport
October 20, 2024 at 11:43 AM
mefreake.bsky.social
October is #DysautonomiaAwarenessMonth!
cabruce.bsky.social Carole Bruce @cabruce.bsky.social · Oct 2
Dysautonomia is so often ignored in a #ME #MEcfs diagnosis. I wish I’d known about it years ago. I would have avoided so much worry and self-doubt. I was a sitting target for the snake oil vendors.
October 3, 2023 at 8:20 PM
grassianil.bsky.social
#MedSky #DysautonomiaAwarenessMonth #POTs
Niagara Falls will again shine turquoise to help Dysautonomia International launch Dysautonomia Awareness Month on the evening of Oct. 1st! The Falls will be illuminated turquoise from 10:15 PM-10:30 PM EDT on October 1, 2025.

facebook.com/events/s/nia...
Niagara Falls - Dysautonomia Awareness Month Lighting
Causes event in Niagara Falls, NY by Dysautonomia International on Wednesday, October 1 2025
facebook.com
September 17, 2025 at 5:33 PM
dysautonomia.bsky.social
Tonight our volunteers lit up Niagara Falls turquoise for #DysautonomiaAwarenessMonth. Here are some ideas on how you can get involved with raising awareness this October: dysautonomiainternational.org/awareness
Image of Niagara Falls lit up turquoise for Dysautonomia Awareness Month. Dysautonomia International logo. dysautonomiainternational.org
October 7, 2023 at 3:08 AM
tyriavt.bsky.social
[yoinked from DI]

Today, Oct 18th, Panda Express will be holding a virtual fundraiser for #DysautonomiaAwarenessMonth. Place an online or app order for in-store pickup or delivery and help support! 28% of sales will be donated to Dysautonomia International. Order now at bit.ly/PandaForDys
Fundraiser Event for Dysautonomia International
Raise money for Dysautonomia International
bit.ly
October 18, 2024 at 4:28 PM
dravenxivuk.bsky.social
Dysautonomia symptoms no one ever mentions.
#dysautomonia #dysautonomiaawarenessmonth #PoTS #chronicillness
October 22, 2024 at 5:36 PM
kittywhisperer.bsky.social
Other comparators I’ve heard recently:

- End stage renal failure

- Stage 4 cancer

(Can’t remember the source for the cancer comparison but the renal one was during @dysautonomia.bsky.social Conference 2025)

#LongCovid #LongVax #DysautonomiaAwarenessMonth🩵
October 19, 2025 at 12:04 PM
saltymulti.bsky.social
Showering was a mistake. I mostly have my POTS symptoms well managed but one bad night of sleep and a shower and now I feel incapacitated. 😖

Showers shouldn’t be the enemy. #POTS #Dysautonomiaawarenessmonth
October 12, 2025 at 4:49 PM
dravenxivuk.bsky.social
Handy short video explaining #PoTS from PoTSUK to kick off #dysautonomia awareness month
#chronicillness #dysautonomiaawarenessmonth
What is PoTS?
YouTube video by PoTS UK
youtu.be
October 1, 2024 at 10:11 AM