✨ Soft Grit Spoonie ✨
@softgritspoonie.bsky.social
Soft grit, loud coffee, relentless pain.
Talking spoons, 🥄 talking cats 😺— both make sense here. I'm sharing the messy + the funny sides of being a #spoonie. 😀
DM is always open
Talking spoons, 🥄 talking cats 😺— both make sense here. I'm sharing the messy + the funny sides of being a #spoonie. 😀
DM is always open
Pinned
Spoonie Resources Drop! 🧡
Hey lovely spoons! 💫
We know how overwhelming it can be to manage chronic illness — between navigating doctors, managing symptoms, and just getting through the day, there's a lot to juggle. So let’s make it easier for each other. 🙌
Hey lovely spoons! 💫
We know how overwhelming it can be to manage chronic illness — between navigating doctors, managing symptoms, and just getting through the day, there's a lot to juggle. So let’s make it easier for each other. 🙌
I am soft on purpose.
My body is unreliable.
My voice isn’t.
Rest is resistance.
Access is a right.
Tender doesn’t mean fragile.
I can be gentle and furious.
Disabled and whole.
Still here. Still speaking. 🥄♿
My body is unreliable.
My voice isn’t.
Rest is resistance.
Access is a right.
Tender doesn’t mean fragile.
I can be gentle and furious.
Disabled and whole.
Still here. Still speaking. 🥄♿
February 8, 2026 at 9:35 PM
I am soft on purpose.
My body is unreliable.
My voice isn’t.
Rest is resistance.
Access is a right.
Tender doesn’t mean fragile.
I can be gentle and furious.
Disabled and whole.
Still here. Still speaking. 🥄♿
My body is unreliable.
My voice isn’t.
Rest is resistance.
Access is a right.
Tender doesn’t mean fragile.
I can be gentle and furious.
Disabled and whole.
Still here. Still speaking. 🥄♿
"I think I'll make a post about..."
*dissociates*
*dissociates*
February 8, 2026 at 9:29 PM
"I think I'll make a post about..."
*dissociates*
*dissociates*
if have a shunt and are considering getting hysterectomy and they want do it laparoscopicly, please know that it can cause shunt malfunction.
I had my laparoscopic and robotic hysterectomy on October 30 and had to have an emergency shunt revision on November 5 of last year.Recovery has been hell.
I had my laparoscopic and robotic hysterectomy on October 30 and had to have an emergency shunt revision on November 5 of last year.Recovery has been hell.
February 8, 2026 at 9:26 PM
if have a shunt and are considering getting hysterectomy and they want do it laparoscopicly, please know that it can cause shunt malfunction.
I had my laparoscopic and robotic hysterectomy on October 30 and had to have an emergency shunt revision on November 5 of last year.Recovery has been hell.
I had my laparoscopic and robotic hysterectomy on October 30 and had to have an emergency shunt revision on November 5 of last year.Recovery has been hell.
We are getting a new front load washer so I can do laundry.
My partner asked if I was excited, I said "yes!"
He said, "welcome to middle age." 😆
My partner asked if I was excited, I said "yes!"
He said, "welcome to middle age." 😆
February 8, 2026 at 6:41 PM
We are getting a new front load washer so I can do laundry.
My partner asked if I was excited, I said "yes!"
He said, "welcome to middle age." 😆
My partner asked if I was excited, I said "yes!"
He said, "welcome to middle age." 😆
I wish I could go back to when caffeine woke me up or made me hyper. I just finished a Coke and I'm ready for a nap.
February 8, 2026 at 5:54 PM
I wish I could go back to when caffeine woke me up or made me hyper. I just finished a Coke and I'm ready for a nap.
I made a pack of all the wonderful people who added me to their starter pack(s). This is my way of paying it forward,
go.bsky.app/9hdosdS
go.bsky.app/9hdosdS
February 8, 2026 at 12:14 AM
I made a pack of all the wonderful people who added me to their starter pack(s). This is my way of paying it forward,
go.bsky.app/9hdosdS
go.bsky.app/9hdosdS
I wish I could go back in time to where caffeine made me awake and hyper. Now I'm on my second soda trying to keep from falling asleep sitting up. Ugh
February 7, 2026 at 4:02 PM
I wish I could go back in time to where caffeine made me awake and hyper. Now I'm on my second soda trying to keep from falling asleep sitting up. Ugh
DID and OSDD aren’t theatrics.
They’re what happens when a brain has to compartmentalize the unbearable to keep a child alive.
They’re what happens when a brain has to compartmentalize the unbearable to keep a child alive.
February 7, 2026 at 3:35 AM
DID and OSDD aren’t theatrics.
They’re what happens when a brain has to compartmentalize the unbearable to keep a child alive.
They’re what happens when a brain has to compartmentalize the unbearable to keep a child alive.
If you could tell your younger self one thing, what would it be?
February 6, 2026 at 11:29 PM
If you could tell your younger self one thing, what would it be?
Trump called the Obamas "monkeys" 🤬🙄🤦
February 6, 2026 at 11:16 PM
Trump called the Obamas "monkeys" 🤬🙄🤦
It's ok to not be ok
February 6, 2026 at 10:57 PM
It's ok to not be ok
If you've never had a migraine so bad that it made you wish lobotomies were still a thing, please take your "have you tried meditation?" and shove it where the sun don't shine. 🤬
February 5, 2026 at 11:19 PM
If you've never had a migraine so bad that it made you wish lobotomies were still a thing, please take your "have you tried meditation?" and shove it where the sun don't shine. 🤬
It's ok to be sad about your disability or chronic illness. It's ok to be mad. It's ok to not be positive all the time. It's ok to not be ok!
February 5, 2026 at 11:14 PM
It's ok to be sad about your disability or chronic illness. It's ok to be mad. It's ok to not be positive all the time. It's ok to not be ok!
There is no marriage equality until a #pwd can get married without losing their benefits!
#disabledsky #disabilitysky #DisabilityAdvocate
#disabledsky #disabilitysky #DisabilityAdvocate
February 5, 2026 at 1:20 AM
There is no marriage equality until a #pwd can get married without losing their benefits!
#disabledsky #disabilitysky #DisabilityAdvocate
#disabledsky #disabilitysky #DisabilityAdvocate
DID isn’t like movies or TV.
It’s a trauma-based disorder, not a gimmick.
Switches are often subtle. Memory is usually fuzzy.
Alters are parts of one person formed to survive.
Media myths cause harm. Education saves lives.
#DID #DissociativeIdentityDisorder #MentalHealthAwareness #TraumaInformed
It’s a trauma-based disorder, not a gimmick.
Switches are often subtle. Memory is usually fuzzy.
Alters are parts of one person formed to survive.
Media myths cause harm. Education saves lives.
#DID #DissociativeIdentityDisorder #MentalHealthAwareness #TraumaInformed
February 5, 2026 at 1:04 AM
DID isn’t like movies or TV.
It’s a trauma-based disorder, not a gimmick.
Switches are often subtle. Memory is usually fuzzy.
Alters are parts of one person formed to survive.
Media myths cause harm. Education saves lives.
#DID #DissociativeIdentityDisorder #MentalHealthAwareness #TraumaInformed
It’s a trauma-based disorder, not a gimmick.
Switches are often subtle. Memory is usually fuzzy.
Alters are parts of one person formed to survive.
Media myths cause harm. Education saves lives.
#DID #DissociativeIdentityDisorder #MentalHealthAwareness #TraumaInformed
If you’re learning how to live in a body that doesn’t follow the rules anymore, welcome.
This space is for honesty, dark humor, grief, rage, and care.
Follow if you need reminders you’re not broken.
This space is for honesty, dark humor, grief, rage, and care.
Follow if you need reminders you’re not broken.
February 5, 2026 at 12:48 AM
If you’re learning how to live in a body that doesn’t follow the rules anymore, welcome.
This space is for honesty, dark humor, grief, rage, and care.
Follow if you need reminders you’re not broken.
This space is for honesty, dark humor, grief, rage, and care.
Follow if you need reminders you’re not broken.
The scariest part isn’t always the diagnosis.
It’s realizing the system expects you to do the doctoring too.
It’s realizing the system expects you to do the doctoring too.
February 4, 2026 at 1:04 AM
The scariest part isn’t always the diagnosis.
It’s realizing the system expects you to do the doctoring too.
It’s realizing the system expects you to do the doctoring too.
I shouldn’t have to educate my doctor.
I came here for care, not to be a guest lecturer in my own survival.
I came here for care, not to be a guest lecturer in my own survival.
February 4, 2026 at 1:03 AM
I shouldn’t have to educate my doctor.
I came here for care, not to be a guest lecturer in my own survival.
I came here for care, not to be a guest lecturer in my own survival.
Chronic illness teaches you medicine the hard way.
Not out of curiosity.
Out of necessity.
Not out of curiosity.
Out of necessity.
February 4, 2026 at 1:02 AM
Chronic illness teaches you medicine the hard way.
Not out of curiosity.
Out of necessity.
Not out of curiosity.
Out of necessity.
Everyone needs someone to be in their corner believing in them.
I believe you even when you don't believe in yourself.
You got this.
Remember to breathe.
I believe you even when you don't believe in yourself.
You got this.
Remember to breathe.
February 3, 2026 at 11:33 PM
Everyone needs someone to be in their corner believing in them.
I believe you even when you don't believe in yourself.
You got this.
Remember to breathe.
I believe you even when you don't believe in yourself.
You got this.
Remember to breathe.
Remember: you know your body than any doctor ever will. You are the expert on you.
February 3, 2026 at 11:21 PM
Remember: you know your body than any doctor ever will. You are the expert on you.
Did you know that my #spoonie support is all over the web? I call it The Spoonie Support Network. You can find all my links at www.linktr.ee/SoftGritSpoo...
#spooniesky #DisabledCreator #promosky #chronicillness
#spooniesky #DisabledCreator #promosky #chronicillness
The Spoonie Support Network 🥄 | Instagram, Facebook | Linktree
A safe space for chronic illness + mental health awareness, advocacy & connection.
💜 Explore links below!
www.linktr.ee
February 3, 2026 at 10:47 PM
Did you know that my #spoonie support is all over the web? I call it The Spoonie Support Network. You can find all my links at www.linktr.ee/SoftGritSpoo...
#spooniesky #DisabledCreator #promosky #chronicillness
#spooniesky #DisabledCreator #promosky #chronicillness
Why do I post about my struggles online?
Because if I can help one person it means my suffering has a purpose.
Because if I can help one person it means my suffering has a purpose.
February 3, 2026 at 10:00 PM
Why do I post about my struggles online?
Because if I can help one person it means my suffering has a purpose.
Because if I can help one person it means my suffering has a purpose.