✨ Soft Grit Spoonie ✨
@softgritspoonie.bsky.social
Soft grit, loud coffee, relentless pain.
Talking spoons, 🥄 talking cats 😺— both make sense here. I'm sharing the messy + the funny sides of being a #spoonie. 😀
DM is always open
Talking spoons, 🥄 talking cats 😺— both make sense here. I'm sharing the messy + the funny sides of being a #spoonie. 😀
DM is always open
Pinned
Spoonie Resources Drop! 🧡
Hey lovely spoons! 💫
We know how overwhelming it can be to manage chronic illness — between navigating doctors, managing symptoms, and just getting through the day, there's a lot to juggle. So let’s make it easier for each other. 🙌
Hey lovely spoons! 💫
We know how overwhelming it can be to manage chronic illness — between navigating doctors, managing symptoms, and just getting through the day, there's a lot to juggle. So let’s make it easier for each other. 🙌
DID and OSDD aren’t theatrics.
They’re what happens when a brain has to compartmentalize the unbearable to keep a child alive.
They’re what happens when a brain has to compartmentalize the unbearable to keep a child alive.
February 7, 2026 at 3:35 AM
DID and OSDD aren’t theatrics.
They’re what happens when a brain has to compartmentalize the unbearable to keep a child alive.
They’re what happens when a brain has to compartmentalize the unbearable to keep a child alive.
If you could tell your younger self one thing, what would it be?
February 6, 2026 at 11:29 PM
If you could tell your younger self one thing, what would it be?
Trump called the Obamas "monkeys" 🤬🙄🤦
February 6, 2026 at 11:16 PM
Trump called the Obamas "monkeys" 🤬🙄🤦
It's ok to not be ok
February 6, 2026 at 10:57 PM
It's ok to not be ok
If you've never had a migraine so bad that it made you wish lobotomies were still a thing, please take your "have you tried meditation?" and shove it where the sun don't shine. 🤬
February 5, 2026 at 11:19 PM
If you've never had a migraine so bad that it made you wish lobotomies were still a thing, please take your "have you tried meditation?" and shove it where the sun don't shine. 🤬
It's ok to be sad about your disability or chronic illness. It's ok to be mad. It's ok to not be positive all the time. It's ok to not be ok!
February 5, 2026 at 11:14 PM
It's ok to be sad about your disability or chronic illness. It's ok to be mad. It's ok to not be positive all the time. It's ok to not be ok!
There is no marriage equality until a #pwd can get married without losing their benefits!
#disabledsky #disabilitysky #DisabilityAdvocate
#disabledsky #disabilitysky #DisabilityAdvocate
February 5, 2026 at 1:20 AM
There is no marriage equality until a #pwd can get married without losing their benefits!
#disabledsky #disabilitysky #DisabilityAdvocate
#disabledsky #disabilitysky #DisabilityAdvocate
DID isn’t like movies or TV.
It’s a trauma-based disorder, not a gimmick.
Switches are often subtle. Memory is usually fuzzy.
Alters are parts of one person formed to survive.
Media myths cause harm. Education saves lives.
#DID #DissociativeIdentityDisorder #MentalHealthAwareness #TraumaInformed
It’s a trauma-based disorder, not a gimmick.
Switches are often subtle. Memory is usually fuzzy.
Alters are parts of one person formed to survive.
Media myths cause harm. Education saves lives.
#DID #DissociativeIdentityDisorder #MentalHealthAwareness #TraumaInformed
February 5, 2026 at 1:04 AM
DID isn’t like movies or TV.
It’s a trauma-based disorder, not a gimmick.
Switches are often subtle. Memory is usually fuzzy.
Alters are parts of one person formed to survive.
Media myths cause harm. Education saves lives.
#DID #DissociativeIdentityDisorder #MentalHealthAwareness #TraumaInformed
It’s a trauma-based disorder, not a gimmick.
Switches are often subtle. Memory is usually fuzzy.
Alters are parts of one person formed to survive.
Media myths cause harm. Education saves lives.
#DID #DissociativeIdentityDisorder #MentalHealthAwareness #TraumaInformed
If you’re learning how to live in a body that doesn’t follow the rules anymore, welcome.
This space is for honesty, dark humor, grief, rage, and care.
Follow if you need reminders you’re not broken.
This space is for honesty, dark humor, grief, rage, and care.
Follow if you need reminders you’re not broken.
February 5, 2026 at 12:48 AM
If you’re learning how to live in a body that doesn’t follow the rules anymore, welcome.
This space is for honesty, dark humor, grief, rage, and care.
Follow if you need reminders you’re not broken.
This space is for honesty, dark humor, grief, rage, and care.
Follow if you need reminders you’re not broken.
The scariest part isn’t always the diagnosis.
It’s realizing the system expects you to do the doctoring too.
It’s realizing the system expects you to do the doctoring too.
February 4, 2026 at 1:04 AM
The scariest part isn’t always the diagnosis.
It’s realizing the system expects you to do the doctoring too.
It’s realizing the system expects you to do the doctoring too.
I shouldn’t have to educate my doctor.
I came here for care, not to be a guest lecturer in my own survival.
I came here for care, not to be a guest lecturer in my own survival.
February 4, 2026 at 1:03 AM
I shouldn’t have to educate my doctor.
I came here for care, not to be a guest lecturer in my own survival.
I came here for care, not to be a guest lecturer in my own survival.
Chronic illness teaches you medicine the hard way.
Not out of curiosity.
Out of necessity.
Not out of curiosity.
Out of necessity.
February 4, 2026 at 1:02 AM
Chronic illness teaches you medicine the hard way.
Not out of curiosity.
Out of necessity.
Not out of curiosity.
Out of necessity.
Everyone needs someone to be in their corner believing in them.
I believe you even when you don't believe in yourself.
You got this.
Remember to breathe.
I believe you even when you don't believe in yourself.
You got this.
Remember to breathe.
February 3, 2026 at 11:33 PM
Everyone needs someone to be in their corner believing in them.
I believe you even when you don't believe in yourself.
You got this.
Remember to breathe.
I believe you even when you don't believe in yourself.
You got this.
Remember to breathe.
Remember: you know your body than any doctor ever will. You are the expert on you.
February 3, 2026 at 11:21 PM
Remember: you know your body than any doctor ever will. You are the expert on you.
Did you know that my #spoonie support is all over the web? I call it The Spoonie Support Network. You can find all my links at www.linktr.ee/SoftGritSpoo...
#spooniesky #DisabledCreator #promosky #chronicillness
#spooniesky #DisabledCreator #promosky #chronicillness
The Spoonie Support Network 🥄 | Instagram, Facebook | Linktree
A safe space for chronic illness + mental health awareness, advocacy & connection.
💜 Explore links below!
www.linktr.ee
February 3, 2026 at 10:47 PM
Did you know that my #spoonie support is all over the web? I call it The Spoonie Support Network. You can find all my links at www.linktr.ee/SoftGritSpoo...
#spooniesky #DisabledCreator #promosky #chronicillness
#spooniesky #DisabledCreator #promosky #chronicillness
Why do I post about my struggles online?
Because if I can help one person it means my suffering has a purpose.
Because if I can help one person it means my suffering has a purpose.
February 3, 2026 at 10:00 PM
Why do I post about my struggles online?
Because if I can help one person it means my suffering has a purpose.
Because if I can help one person it means my suffering has a purpose.
I feel like my body is just adding more symptoms like it's app updates.
February 3, 2026 at 9:58 PM
I feel like my body is just adding more symptoms like it's app updates.
Trying to manage multiple chronic illnesses at once is like trying to fold a fitted sheet while someone throws rocks at you.
February 3, 2026 at 1:07 AM
Trying to manage multiple chronic illnesses at once is like trying to fold a fitted sheet while someone throws rocks at you.
My dinner last night.
Chicken and pineapple
Chicken and pineapple
February 1, 2026 at 4:09 PM
My dinner last night.
Chicken and pineapple
Chicken and pineapple
I regret having my hysterectomy
January 31, 2026 at 5:12 PM
I regret having my hysterectomy
Well, all my neurologist said was I need to be seen by my surgeon. Got an appointment for Monday.
January 30, 2026 at 7:00 PM
Well, all my neurologist said was I need to be seen by my surgeon. Got an appointment for Monday.
Some of us don’t prefer texting because it’s easier.
We prefer it because talking feels like doing emotional parkour with no safety net. 🫠
#Autistic #Disability
We prefer it because talking feels like doing emotional parkour with no safety net. 🫠
#Autistic #Disability
January 30, 2026 at 6:44 PM
Some of us don’t prefer texting because it’s easier.
We prefer it because talking feels like doing emotional parkour with no safety net. 🫠
#Autistic #Disability
We prefer it because talking feels like doing emotional parkour with no safety net. 🫠
#Autistic #Disability
I'm not sure I have an ingrown hair or something but my shunt area looks infected. I have an emergency video with my neurologist tomorrow. Owwww it hurts so bad! 😭
January 30, 2026 at 1:38 AM
I'm not sure I have an ingrown hair or something but my shunt area looks infected. I have an emergency video with my neurologist tomorrow. Owwww it hurts so bad! 😭